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Still Around
I've been off this forum as I've been ultra busy with DH. We have had rolling behavior issues which have left me exhausted. Or rather burnt out. DH is now on an antidepressant and is going through the adjustment period. This means flipping the switch and heading for Planet X. This has happened quite a bit in the past two -…
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2 trips to the ER
DH ..92...for the first time wandered out of the apartment and tried to open up the car doors.We live in independent living and a neighbor noticed him and helped him lay down on the grass and they knocked on my door ( I had been napping as I have fibro and CFS )and we called EMS. DH had brain surgery 4 yrs ago and was…
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Wrong month
DH has been confused about which month it is, thinking it is June. I gave up on correcting him. So when he asked this week if we were going to the fireworks on the 4th of July, I begged off citing Covid concerns. Then he asked about celebrating our anniversary on July 18th. We already celebrated it on the 18th by going to…
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Glucerna and Other Drinks Contamination Recall
https://www.yahoo.com/finance/news/glucerna-oatly-drinks-among-53-203923957.html
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Has anyone been through grief counseling?
If so, maybe you can answer a question for me. My wife died a little more than a month ago. We have a daughter who has always been there for us throughout her mother's dementia, and she handled the specifics for the funeral. She has been having a very hard time with grief. She and I went to the cemetery yesterday to see…
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Hyper Focused and Mood Swings Just a Vent
I don't expect any "solving" answers to my vent. DH is not diagnosed (and while I know no one wants a dementia diagnosis, I must admit I am a little envious of those of you that at least have that piece done so you have a "reason" for behaviors). He is still working in our business as President and told me as recently as a…
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Love is still strong
For the last few weeks she has been so cute. There are still the accidents and messes, and the inability to do basically anything, but there have also been smiles. The smiles that pull all her lines tight and give her the face of bright young thing. She jokes with me, and pokes me when I walk by, and then laughs at her…
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ToolBelt Expert
Hello Stewart, have been thinking of you and hope you are doing alright; we have had some concern as you had not been feeling well. So hope you have been able to gain some headway on feeling a bit better and that things are moving in a positive direction for both you and your dear wife. J.
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jmlarue(1)
Hello jm; I have been thinking of you and wondering how you are doing and how things are going since your DHs arrival back home. Though we know it won't be "perfect," I so hope that things are at least somewhat better than they had been prior to the VA Psych stay. Wonder if you are still thinking of and/or are working on…
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So now all this...
Recent times have not been good to us. For several months I've been trying to deal with my wife's delusions, hallucinations, anger, and agitation. We've worked our way through some of the meds and different dosing levels with limited success and overall unacceptable results. My goal had been to better manage her behavioral…
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I feel out of my depth
My husband was diagnosed in November 2021 with mid stage dementia. I had to retire in April in order to take care of him full time, he was no longer able to be left alone for even a few hours a day and I can't afford even part time help. I sometimes feel angry that I had to do that, then I feel guilty as he is the love of…
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No poo in sink
Hi everyone,I have been getting up every morning checking the sink for brown surprises, and so far there have been none, a week and a half and no poo. I still catch him peeing from time to time but no poo. I have eliminated most of the dairy in his diet and it seems to be working. I realize this may be tempting fate…
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DW wants to come home from MC
DW has been in memory care since end of April. She knows who I am but recently most of her conversation does not make sense. Regarding her coming home sometimes I tell her the truth, i.e., she has a medical condition that need specialized help that I can't provide her by myself. I usually try to delay or defer the…
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Possible fabrication in Alzheimer's research
https://www.science.org/content/article/potential-fabrication-research-images-threatens-key-theory-alzheimers-disease
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Hodgepodge contemplation of where we are now
I used to write a lot and participate much more the first few years I came here. Now I mostly read, so grateful for others' sharing, and have hunkered down in my own little corner, poking my nose out once in a while. I just don't have much energy for anything more and am feeling weary and quiet and somewhat detached. At…
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Follow up on DH
My last post I had said dh had a fever but tested negative for covid. He did in fact test positive for a UTI the next day. He was put on meds and is doing much better. He seems to have adjusted to MC and is eating very well. He still cannot stand or walk and is on hospice so they will not do PT. His Dr and I both believe…
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M1(3)
Just thinking about you, and hoping you can get a breakthrough soon.
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Celebs talking about dementia/LBD
There’s a new (a couple weeks) video up by Robin Williams widow, Susan, a speech about Lewy Body dementia, which he had before his suicide. It’s breath-taking. I can’t link, but if you search on YouTube for “Robin Williams widow Lewy Body” it’ll be in the first few listed. It’s identified as her BioHive seminar talk (other…
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Good News
Memory Care place called me this AM all is good, looking for DW to be placed end of Aug or 1st part of Sept. CECL is doing his part getting things squared away. My sister dropped in this morning from downstate and DW knew her right off the bat I had to run to town and when I got back DW was all smiles and laughing. Well…
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still here
Ive written about anger, guilt, needing to get away and I did get away for 10 days. Had a wonderful trip with daughter and grand sons. Seen beautiful country in Oregon. Seen son I havent seen in 4 years. So yes it was wonderful but now Im back . Took LO a couple days to calm down. He gets very upset when Im gone. Thinking…
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Thanks JoC
I read your response to Stewart and realized that you were not only talking to him but some of it applied to me also. I have a problem with doing my homework regarding a situation and then not acting on it. I'll figure out what I need to do and then sit and spin my wheels. I just don't take action. I guess I'm afraid I'll…
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Anger issues with no doctor
My DH is so angry with me every day since I took his car keys. He has locked me out of the house, tried to disable my car and made endless threats. I am so tired. I don’t want to get up in the morning. I called the alz hotline, engaged a therapist and a gerontologist, talked with our children, all while trying to keep him…
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Male spouse caregiver support group for early onset ALZ
I've started an online monthly support group for male spouse caregivers of those diagnosed with early onset Alzheimer's. You can get more information and register at this link. https://lorenzoshouse.org/our-model/healing-spaces/light-lounge/
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Just normal evolution
Here are some news and one question as I know you always have. Since I have been to Tunisia and fixed the medical follow up, everything is fine. No more violence, he kisses everybody and is smiling the whole day long. He sleeps better. There are some slow (slow is not the good word as the global evolution is in fact very…
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No more solo camping for DH
My DH loves to camp, and we have a little teardrop camper he can set up with or without hookups. Now that he’s working part time, he usually goes for a two or three night stay each month. There’s a state forest about an hour and a half from us that is quiet and he can kayak or hike. He went this Tuesday and was enjoying…
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Be careful what you sign
https://www.npr.org/sections/health-shots/2022/07/28/1113134049/nursing-homes-are-suing-friends-and-family-to-collect-on-patients-bills
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MC Dancing Queen - 2nd Try
This is my 2nd try at posting this video. Several members said they could not view the 1st version so I reduced the file size in the hope it could be viewed. As I have stated in previous post DW is very happy at the MC. She can often be found dancing during activities and the MC staff call her the Dancing Queen. If the…
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DH home from VA Psych Unit - 2 Week stay
DH was discharged home at my request (see previous posts). I'm wondering how the staff comes to their conclusions. The whole point of the Psych Unit commit was to get a handle on the hallucinations that had prompted DH to lash out at me. Every time I called that unit to ask how DH was behaving, the pat answer was: he's…
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The Alzheimers long haul
It is now four full years since DW had the slightest idea who I was or who her children and grandchildren are. Even at that time she had no meaningful speech. She can still walk and chew but that is it. She is 70. She is otherwise healthy and looks lovely. Takes no medication except seroquel when needed. She likes…
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What percentage have delusions?
Just wondering how many of you who are caring for a loved one with Alzheimer’s have seen them experience delusions. Along with the typical memory loss, demand for my attention, constant questions, etc., my DH has delusions. In fact the delusions came years before the memory loss. We’ve been married 11 years. I talked with…