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Everything I own
… You sheltered me from harm Kept me warm, kept me warm You gave my life to me Set me free, set me free The finest years I ever knew Were all the years I had with you … And I would give anything I own I'd give up my life, my heart, my home I would give everything I own Just to have you back again … You taught me how to…
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Can someone help me understand purposely going on Medicaid
Hi Everyone, At the advice of this forum, my husband and I met with an Elder Care Attorney. My husband has a recent dx of dementia, possibly Alzheimer's, and are waiting 6 months to see a neuropsych for testing. DH does not have many symptoms yet and can perform ADL and drive. Most people would not know he has dementia. He…
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What to expect
My dw of 22 years diagnosed 2019 Lost sex drive although talks about it every so often ( she still knows I think about it) Everyone feels sorry for me as I loose her. It’s sad but I think it must get unbearable and want to know just what to expect. Everyone just talks generally. She Tomas with me, not necessarily adding to…
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Depakote and Donepezil
So I just got the call from the MD. They prescride these 2 medications. Does anybody have any experience with these good or bad. They didn't give me a dx. And are these expensive? And lastly any good ideas on how I can introduce these since dw doesn't take any meds period.. I know one is for memory she might not fight…
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Son wanting us to move in??
Our oldest son, who lives in NC, has graciously asked DW and myself to move in with them. I have thought about this, and thought about it and still haven't made a conclusion. Here is his game plan. They sell their house, which is very nice, and we sell our house, which is a nice older ranch style house in OK. We would…
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Whiplash
Hi Gang, I really do try to bring something to this forum, and when I read some of the stuff I put up when I was still emotional about it, I often regret it. It's not that I think a good vent is a bad thing, I just try to find something useful to bring to y'all. This last week has had some good moments, and I find myself…
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Cataract Surgery - Yea or Nay?
My DH has mixed dementia, Alzheimer’s and vascular. He was diagnosed in 2020 and is probably early stage 5. He went to eye dr last week and she said that he has cataracts in both eyes and he should have surgery. DH says he has no difficulty with his vision and doesn’t want to have it done. (He no longer drives.) My concern…
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Coping methods
Thank you all for the warm welcome with my first post. I am curious how other people are coping with this challenge. Up until 3 months ago I was playing golf 3 days a week and obsessed with practice, a full type A personality. I exercise daily and I can't get away to play anymore. Practicing like a maniac is very…
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Charitable donations
Is the Alzheimer's Association a good place to send donations or do those that run it take alot in salaries? My DH is 92 and has AD and for future reference I want to know when he passes if I should list the Association as a choice for friends and family to send donations in his name.
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Taking PWD from MC to Dr. Appointment
My wife is in MC (9 mos) and is under care of in-house pcp for general medicine. Her psychiatrist manages her anti depressants and anti psychotics, and now anti seizure meds. The pcp’s PA visits all the residents regularly and the pcp is always available to the staff for emergencies. I schedule phone calls with the…
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The new normal
Every day sees changes that keep adding up. During the last six months or so, DH constantly says umm, umm or huhh huhh. Sometimes I can tell he is singing, mostly it is just the umm or huhh sounds. When I ask what he said, he says, "nothing." He does this all of the time, unless he is asleep. Conversation is limited and…
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On the finances of memory care
Memory care is expensive no doubt about it. People with spouses fall into different groups 1) there are people who cannot begin to afford it at all 2) there are people who can afford it for some limited period of time 3) there are people who can "afford" it for a limited period of time at the expense of putting themselves…
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Support for adults who grew up with an alz parent
Does any one know of a support channel for adults who grew up with a parent with dementia. They are not the caregivers, nor were they, but wrestling with the relationship is a real struggle. I’m thinking of something equivalent to ACOA programs through AlAnon. Thanks
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Thank you !
I have been taking care of my wife for a year and a half. I used to be able to leave her alone for up to 6 hours as long as we go somewhere when I get home. Her disease is progressing fast and the last 3 months I'm caring for her 24/7. Lately I have been really feeling the weight of it all. I feel completely isolated with…
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End of spring
It was March 21 that my partner was hospitalized, so three months today since she left the house and farm. Anniversary reaction of sorts I guess, a whole season gone by. We just did a FaceTime call, and she was in good spirits, though when seeing me, she says she's "sick of this arrangement" and "is leaving these parts,"…
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My Wish
This year I lost three family members to Alzheimer's Disease. My father-in-law and husband passed within a week of each other, and my aunt died about six months later. In reflecting on how much this disease has taken from my family's lives, I am saddened by the fact that after all this time, we are still no closer to…
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Need Your Help - Bidet Seats
Goodness; the topic of bidet seats has become a quest. Three very elderly amazing aunts who are sisters in three different states have got onto the topic and are asking me for information about how to choose a bidet seat of which I have no knowledge. They all want such a seat and must choose well as it is a major purchase…
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Just need to talk to my friends (173)
Morning, Hope all of you are up and at 'em this morning. My thoughts this morning have been with Sandy. By now her biopsy is finished and she's going to be ready to go home in a couple of hours. Now, the waiting for the results. beautiful day here in Okkahoma. No rain today but storms predicted for tomorrow morning, then…
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Falcon, Kenzie, and May - Two more questions about the mp3 players
I have looked at both of the mp3 players you talked about, but I have questions about them that I can't seem to find answers to. I read customer reviews when I buy online. One person gave the Simple Music Player one star because he said he couldn't load any songs on it through a chromebook. This is all I have now, since my…
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Asking for opinions
As most of you know, my wife has been in MC for a little over 2 weeks. One of our daughters visits just about every day, and she tells me her mother cries for a while when she visits because she wants to come home. She doesn't know she's there for the long haul. Another daughter thinks it might be a good idea to tell her…
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Forget about war, politics, and murders
I just happened to come upon an old thread that I think deserves being seen again, during these uncertain times. https://www.alzconnected.org/discussion.aspx?g=posts&t=2147553267
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Who knows about a good mp3 music player?
I have decided to not take a TV up to my wife's room because I think it might cause her to stay in her room. If she wants to watch TV, there is a community room she can go to, and mingle with other people. What I'd really like to find is some type of mp3 player that has only one or two buttons to activate it or shut it…
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MC transition is so difficult!
I posted this last night on a different thread but am hoping for additional information from others who have had to place their LO into MC or are approaching this decision. I am also wondering if other have experienced such rapid declines in their LO along with the inability to contain them in the house and keep them safe.…
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MC day time activity?
Currently in the process of reviewing MC facilities to have a plan B ready. To be honest I was not totally repelled but actually could see DW fitting in. DW is currently at stage 6c/d. We also frequent the county senior center for lunch and DW especially enjoys it when they have music events. I asked a MC manager if we…
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We had our 1st visit with the neurologist
I am happy to say it was a good visit. DH was diagnosed with mixed dementia CMS-HCC The Dr asked if he had ever had a traumatic brain injury. There is evidence on the CT scan that he did at some time. He doesn't remember one nor do I know of one. It also looks like he has Alzheimer's. He prescribed quetiapine to help with…
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This might be helpful information
I am gonna be starting dw on depakote tomorrow and looking at all the side effects. And I came across this article about learning how to manage behaviors without medicine. I saw a lot behaviors that are listed here often. Some of you may have already read this.…
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Not sure what to do(2)
My DH has over the years obtained a vast amount of "stuff" He is a true hoarder in every sence of the word and the basement is full. Because of this disease he no longer can use any of this stuff. I have mentioned selling a lot of it to help with the bills. He absolutely refuses to talk about it, thinking he is going to…
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Looking for care facility options in the Avon or Plainfield Indiana areas- anyone with ideas, please
A dear friend is needing suggestions for good care facility options in or around the Avon or Plainfield Indiana area. I told her I would ask in hopes there are some Indiana people on this forum who might share their experiences- good or bad. Any and all ideas to make sure her mother is placed in a good and caring facilty…
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Every day it's the same two things...
DH sundowns badly nearly every day. It starts with, "Well, guess I better be going" I say where are you going? You live here..........He says he's gotta find his mother and go home to Bridgton............I always say the farm is sold and your mother has been dead for 10 years.........I tell him we have been married for…
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Filing without an attorney for Arizona Long Term Care
Hello: I live in Arizona and would like to know if anyone out there applied for Arizona Long Term Care(ALTC-Medicade) with out the help of an attorney and were you successful in obtaining ALTC? Any down side in applying without the help of an attorney and if turned down then pay for the service? My current Elderly Law…