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ADUHELM PRICE.
CHANGE OF ADUHELM PRICE BY BIOGEN IS ONLY A STEP TOWARD EQUITABLE ACCESS TO TREATMENTS FOR ALZHEIMER'S DISEASE
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Not religious but could not resist
Best caretaker nativity scene ever
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Refusal to see a doctor
After waiting months for an appointment with a neurologist DH refuses to go. I have read other posts on how a situation like this is handled and I tried them all (the appointment is for me but you need to go to answer questions, and his cardiologist wanted him to see his partner, and offering to take him out to a nice…
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Doctors statement on Aduhelm
Published: December 20, 2021 We call on the FDA to withdraw its marketing approval for Aduhelm (aducanumab) for the treatment of Alzheimer’s disease. An accelerated withdrawal would mitigate some of the harm of its unwarranted accelerated approval for these reasons: * Aduhelm failed to demonstrate the prespecified…
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we're in the movies
DH and I were watching a Christmas movie last night. Halfway through he got all excited and said we are in the movie. He saw himself, me and other members of the family. Even the commercials had us. I asked him if they were people that looked like us and he said no it was us. He was happy to see us in the movie and was…
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I found the TV remote in his glass of water
Of course it is not the end of the world. Its just one of many of the minor annoyances that are sprinkled into the long, miserable Alzheimer's journey. dang it. This disease is heartbreaking, soul sucking and relentless in creating yet another problem to solve.
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I need to place DH
My husband had been showing mild symptoms of dementia for years. In 2019 it started to be noticeable to friends and by last year I knew that it was more than mild dementia. I finally was able to make an appointment for him with a gerontologist. In February he was diagnosed with Alzheimer’s and aphasia dementia. I had a lot…
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For Lane
Needed your help. I believe I made another discovery on helping people with sundowning and sleeping. I need someone tough like you to ask the right questions and to put it in writing so I can get this published. Please let me know if you will help me with this. We will need to do this by phone and it will need to be…
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Lift chairs and/or recliners
If your loved one uses either, what are the pros and cons?
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Early Stage - any advice?
This is my first post. My DH was just diagnosed with probable Alzheimer's. He began to have noticeable memory issues in 2020 which became progressively worse during 2021. It took us a long time to have an appointment for an evaluation. We have an appointment in January to see if he possibly has some of the other…
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Does anyone have experience with “Town Square”?
A Town Square adult day care facility is opening in our area. I was wondering if anyone has any loved one attending this program. My DH attends a not for profit adult day program and is extremely unhappy with it. I’m hoping this will be better.
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cell phone
My DW would like a cell phone for Christmas as the grandchildren tell her "grandma, you need to have a cell phone" My DW believes that if she has a cell then her family and friends will call her. We have a landline and several extensions but most of the calls are from telemarketers. The do not call her. My concern is that…
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He is pacing, l’m going crazy
Bad night, he waked me up at 3 am. He asked to go to bathroom then he was unable to enter the bed… when it was finished, I couldn’t sleep. That's every other night. Today is Saturday I wanted to do a nap. All this time I heard him pacing in the closest room. Unfortunately the 120 years old wooden floor creaks. I got up and…
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Heading towards the end of this disease
My 63 year old husband has been bedridden for the past 13 days. He is under hospice care at our home. We are keeping him as comfortable as possible. It's very, very sad to see him this way. I could see this stage coming for a few months. He would want to go to bed earlier and lay in bed longer. He took a shower every day…
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Arrrrrgh!
I had to run to the store this morning. One of our sons stayed with her. When I got home, she was all upset. She wanted to get a coke, but she spills it all over the place when she pours it. Then she spills it on the floor as she walks from the kitchen to living room.. He wanted to get it for her, but she wanted to get it…
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Need to move to Assisted Living facility
I am new I am new to this group and am having issues with my sister who was recently diagnosed with moderate dementia towards Alzheimer's. It has been advised by 2 doctors she not live alone, as she is now, mama but she refuses to move out of her home. She currently lives alone and I am Checking on her every day to make…
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What will I remember?
Am I doomed to remember DW primarily as someone with a progressing dementia? Of course intellectually, superficially, I can remember the wonderful way she was before this terrible dementia. But at a deeper level the emotional memory I seem be developing is that of a great sadness for her, almost pity that she can no longer…
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Anger From DW Over Being On Her Computer
My wife has ES~MS of dementia, which means she functions fairly well a good deal of the time. She has made contributions (using her laptop) that she said were "small", that I see on our CC statement are large. She has enough contributions that it amounts to $10K or more a year, at this point. Sometimes when one calls she…
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Easygoing husband now punching staff and more
My poor husband who’s been in memory care for 4 months now has become angry and violent toward both staff and residents. A couple of weeks ago a staff member had to go to the ER because he was whipping her around until her shoulder became sprained. The staff put him on an increased dose of Risperidone which I read can…
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My husband died over a year ago
I ran into an old friend of his today at a local store. He asked me how he was. I told him he has died. He was shocked, but I could have sworn I have already told him this. All of his past acquaintances always act shocked. I feel bad, but it's like if you don't want to know, don't ask. I also buried a favorite Uncle two…
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Tasks and house rules for home care aides?
We have finally found a reliable home care aide it appears, after several months of the agency not having anyone to send, or no shows. For someone coming in 20-30 hrs a week, what are the tasks and guidelines you have set for home help that you recommend? DH is Stage 6d with anosognosia, very mobile and a wanderer. I…
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Stressful couple of weeks
The last time I wrote it was about what a great day we had on Thanksgiving. Unfortunately, that was the last great day we've had. We have four children. The two older sons are mine and the youngest son and daughter are ours. DH has never gotten along with my oldest son. He seems to have always seen him as a rival even…
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44 years ago today
44 years ago today, my wife and I made our vows to each other and became man and wife. It was a sunny and warm day for December in the Hudson Valley, much like it was today. (50s) Although our wedding party was small, many people came to watch the ceremony, since my wife’s family was well known in town. All brides are…
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Another step down.
Starting at 12:30 am on Wednesday morning my mil started the first of two falls and 2 bed slips in 16 hours. Her balance is gone. Her desire to pace is not. Her ankle and knee are swollen. She’s hit her head twice. She’s going to walk until she falls and can’t walk anymore. We’ve resorted to putting the mattress on the…
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Wants me to call police
One of the delusions DH has had for almost a year is that people are living in our attic at dusk by coming in through the crawlspace and going through a non-existent hole straight to the attic and then leaving at dawn and then has added a girl living upstairs (which we don't often use) who has a man coming to visit who…
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not swallowing all his water
DH is bedbound. We raise his hospital bed up when he eats and drinks. Yesterday and today, when given water which he drinks through a straw, some of the water came back out running down his chin. He takes longer to eat now and chews and chews every bite, as if he's eating a tough piece of meat, no matter what it is. Is…
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Looking for more advice/opinions
My DH ended up being sectioned walking into neighbors homes, yelling and trying a few times to throw me physically out of home… Had delusions…. After a brief stay in geriatric psych, I had to place him in memory care because he wasn’t ready for home. He was insisting I was not his wife and had a few delusions. While at MC,…
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Recommended Annual Screening
I spoke with Nurse Practitioner at DH’s endocrinologist office - she is the closest thing we have to a primary physician - shared my concerns about his mental and neurological status. I asked that it be confidential as he is already sort of paranoid. There is testing she is going to recommend at his 3 month visit next week…
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Paris20
In another thread, you said "The other night, my husband sat bare-@ssed on our bed. By the time I told him not to do that, it was too late. I had to change all the linens and do a wash at midnight. " I just wonder if you're familiar with layering the bed? If you layered it, you wouldn't have to wash at midnight. If you're…
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I don't understand(1)
Talked to the neuropsychologist today about last week's testing. Although DH tested in the moderate to severe memory loss category in Nov, he did well last week. Scores were in the average to below average range. She feels he is very depressed. He sleeps 20 hours a day and has lost interest in everything. So I understand…