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Share Your Alzheimer's Story with CMS
I received an email today from the Alzheimer's Association with one block on the page suggesting CMS is considering or has decided to not cover some or all drugs to treat Alzheimer's. Following the suggested link I shared my story, for what it is worth, with CMS. TO CMS: My wife, 64, was diagnosed with early onset Dementia…
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A personality that exasperates me
My husband’s ego has always been quite strong. It persists despite all the changes that he does not comprehend. He is insistent that his incorrect, inaccurate, and wrong-headed thinking are, in fact, correct.I go along with as much as I can. I know that arguing or rational discussion are worse than useless. There are times…
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A bit of a scare
Last night, a little after 6 PM, DW fell in the dining room. 75% of the time I'm holding her hand when she walks because she is not particularly great on her feet. I did not do that last night, and I think she tripped over the dog, but not sure. She hit her head on a chair or the table, and was unconscious for maybe 5…
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Another day with a new challenge. E v e r y Day
Hello friends. It is almost 2 in the morning. It is so hard to talk about this. If you have not gone through this, or are experiencing it right now, then you will not understand. I think my husband is forgetting to walk! It was hard yesterday and today to walk him (with a walker, and my help) from the bedroom to the family…
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Every day brings something new
Wow I never would have guessed, we got a late Christmas card and my dw now keeps saying she needs to get writing the Christmas cards. I never saw that one. I have gotten rid of the card, and all is well again for now.
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Chronic solvent-induced encephalopathy - depression
My DH's dementia comes from Chronic solvent-induced encephalopathy, which is not meant to be progressive once to solvent exposure ceases, but no improvement has occurred in the 4 years since his diagnosis. He is equivalent to a mid-course Alzheimer's case. He walks, and gathers firewood mainly, after a long interesting…
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Sometimes I think I am going crazy
Sometimes I think I am going crazy my dw will seem to be lucid. It makes me question what's going on with her, I have studied so much over the past 4 years.is it depression or dementia, she knows her brain is dying and her short term is a minute. We did yesterday's daily devotion again today I didn't bother to mention it.…
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I am not strong enough
I am the sole caregiver for DW and I am not strong enough. Not like others here who have demonstrated Herculean strength facing their LO’s care. These are the things I have enough strength for: I floss and brush her teeth. I wash her in the shower. I guide her in dressing. I help clean her after toileting. I clean up…
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Free Online Caregiving 101 Class
Family Caregiver Alliance gives free online classes from time to time. On February 14, they are giving a class, "Caregiving 101." It is also a good idea to sign up to receive the online newletters from Family Caregiver Alliance. While they are centered in San Francisco, they provide a lot of good information and also…
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New members - honor your loved one
https://www.alzconnected.org/discussion.aspx?g=posts&t=2147548367&page=1
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Dentures & etc
Hello fellow caregivers, I’m new here tonight. My husband was diagnosed 4 years ago. His dementia is not Alzheimer’s but is the result of years working as a printmaker with strong solvents, he did not protect himself. As he is no longer exposed I don’t know how far it will progress, but it is not getting better, despite…
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incontinence underwear specific for men
I have no idea how good these are, but I know some of you are dealing with men who need something like this. So I thought I'd pass this on in case you are still looking for…
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Surreal day
Have spent most of today reacting to or calming constant agitation and confusion. We hit all the repetitive conversation highlights (see other thread on remaining calm), in addition to dealing with neighbors sick from Covid, old acquaintance dying of Covid, malfunctioned TV satellite which wasn’t fixed by a service visit…
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Draft letter for OPM WRT DW competence
I had to draft a letter for DW's physician to explain her condition to OPM and in support of me being her representative payee. You might find it useful (they do not recognize POA) Since we have different last names I call her Dr World Famous Dr. World Famous is the last stages of Alzheimer's disease Major or Mild…
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DAY CARE CENTER FOR A DEMENTIA PATIENT
Thank you all for your advise. You all, of course, are right. I will start a new post somewhere here, I am still learning about this website. Good luck to all of us. I am exhausted right now ... . Hello all. I hope you guys are fine. I joined because I am a little bit desperate. I am new to this, taking care of my husband…
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Advice needed for future reference
Hello, I'm a bit of a planner, my philosophy is that bridges are easier to cross when one is prepared. I love a good checklist and spreadsheet. So, I'm asking for some input on my List Of Things To Have Ready For A Newbie. * Legal planning: DPOA, HCPOA, Wills, Letters of Instruction , HIPPA medical release of records…
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Privates
DH complained his privates we’re getting wet in the toilet bowl when he was sitting on the commode.. I suspected he had lifted both the lid and seat up and his privates then dangled in the water. So I ordered a 3” high raised toilet seat. No more complaints from DH because if he still raises both the lid and seat, he is at…
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Rivers of Urine at Night
Hospice has been incredibly helpful. DH now has a hospital bed and it is so much easier getting him into and out of bed. DH's night time incontinence has increased. DH used to wake me a couple of times a night to go to the bathroom. When he woke me last night, he and his bed linens were soaking wet. I changed the wet…
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On a lighter note, do the pets know something is wrong?
My DH was diagnosed last summer with MCI. He has trouble remembering anything current, and suffers from some paranoia and anxiety. Over the last few months, his memory issues have worsened and he has become somewhat depressed. One of my cats appears to know that things are not right with DH, and has become a caregiver. He…
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Teepa Interview
https://www.blogtalkradio.com/alzheimersspeaks https://www.blogtalkradio.com/alzheimersspeaks/2022/01/18/an-enlightening-conversation-with-two-leaders-in-dementia-care
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Today's amusement!
My LO fell this week and fractured the neck of the humerus (no that's not the funny part). Today, we were at the ortho office which is not within the same system as the primary that took x-rays yesterday. Needless to say, everyone has to do their own x-rays. Radiology tech comes to room - " I'm here to take her for her…
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Leaving ES at home alone
This is my first post. My DH was diagnosed with younger-onset in early December and we are still processing what this means to our lives and I am looking for direction on how to be supportive but not lose my mind. He is devastated and struggling to accept the diagnosis. He is still independent and drives short distances.…
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More mischief with meds
My partner takes a fair amount of medication-blood pressure, rheumatoid arthritis, severe reflux because of scoliosis, long-and short-acting pain meds because of the same scoliosis. She hasn’t been able to manage her own meds for probably three years, so I keep all the bottles and a weekly medminder in my bathroom (which…
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DH getting violent
DH has mild dementia. He has always been a quick tempered person. Today, he became violent, he hit me, lost his temper. I have been doing all chores without his help since his mild dementia diagnose. He is on lowest dose of Exelon patch, has Diabetis, some prostate and kidney issues, heart problem in the past. He is on…
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News
I came back from Tunisia 2 weeks ago now. I call my partner in Tunisia every other days. For the moment, he tells me « I am fine! ». He is quite occupied and the caregiver goes out with him everyday : to the marina, to the Medina… They even take a taxi to visit the surrounding cities. He went golfing with a resident's…
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Going bye-bye
My next challenge is getting my stage 6 DW in and out of the car. She has suddenly stopped doing it on her own. I hate to use strong-arm tactics, especially in public. As for cajolery and sweet reason, that ship has sailed long ago. Any ideas?
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Coronavirus, Alzheimer's Disease, and Peroxynitrite
I don't want to hijack Crushed's thread so I will start a new one. The coronavirus can cause damage to the brain. The mechanisms, if not the exact results, are the same as Alzheimer's disease. In both cases, the brain's main defense against oxidative damage are depleted. Researchers at Baylor College of Medicine…
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Demanding something be done immediately
I am still new to learning a lot about dealing with my partner's dementia. He has an MRI done next month and then we meet with the geriatric psychiatrist for some insight as to what type, how far the progression is, and what the future may hold. I had a very busy day today trying to take down Christmas decorations, make…
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Just need to talk to my friends (163)
Morning, Ron, hope the bad weather stays south of you. I didn't see local weather so wasn't aware of the storms. I guess it's the cold front that came through here during the night. The north wind is howling and it's cold. Glad it seems that Lou's toe is feeling better. Sara - back when my parents put meat in the freezer…
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Major change coming for California medicaid requirements
https://www.elderlawanswers.com/california-removing-asset-test-for-medicaid-eligibility-18652?