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He lost his wallet.
This afternoon has been especially wearing and exhausting. About a month ago, DH lost his wallet. I really believe he accidentally threw it away. He had taken his money out so there was no monetary loss. The only thing in it was his picture ID. The whole thing has morphed from he lost his wallet to him saying someone stole…
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$266.00 a day
I am getting so tired. I do everything for my husband and all he likes to do is walk. He can still eat by himself and is fully continent so I can’t really complain there. He has a 10 sec memory and can’t talk about anything. Showers and changing clothes can be a battle and sometimes I just give up. Life seems like an…
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Is this a crazy idea?
For those of you who are really having a very hard time, I wonder if a hypnotist might help? Would you try it?
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Swiss Cheese
In a TV show…Quantum Leap…the main character jumped back in time into other people”s bodies to correct an error in history. He always explained his confusion as having a Swiss Cheese memory. This must be what it is like for my sweetie…only it is the present that is full of holes and memory traps for him, while his past is…
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Horrible Story Famous Utah elder care lawyer plunders Alzheimers patient
IM posting this right now I will come back with advice later The lawyer was very well known in the disability law community Its equivalent to Berni Madoff From Newsweek Utah attorney is accused of embezzling more than $9.5 million from clients over the past decade to fund his "lavish lifestyle," prosecutors said. Calvin…
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Embarrassing situation
Saturday evening we were invited by friends of mines. When we arrived, they told us that another couple will join us as well another friend, perhaps with her partner. When the couple arrived. What a surprise, they recognized my partner and he recognized them. They already met several times because they had a common friend.…
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Imagining the journey without technology
My dad cares for my Mom who has dementia but I am unsure of what kind of dementia she has. He doesn't know either. My dad is an analog man in a digital world. He hasn't embraced emerging technology. He has given up email. His search skills are antiquated. He reads the news on line but that's about it. Not embracing…
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Best Practices in Dementia Care and Caregiver Support
https://www.capc.org/training/best-practices-in-dementia-care-and-caregiver-support/
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A tough love talk
Mrs. will not shower or bathe. Will happily fight about it. I was gone too long...in my office sorting out an accounting mess, and then I noticed things were real quiet. Finding the two poopy hand towels in the kitchen sink was a horrifying first. You may recall that I have had a real hard time overcoming my aversion to…
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A Tip for Caregivers
My husband is unable to step onto a body weight scale. I bought an extra wide scale thinking it might be easier to step on but it isn't for him, so now I use a body tape measure to get an idea of how much muscle mass he's losing. I measure his thighs, biceps, and waist. Compared to 8 months ago he's lost an inch or a…
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Medicare price jump due to poorly supported Alzheimer's drug
WASHINGTON (AP) — Medicare’s “Part B” outpatient premium will jump by $21.60 a month in 2022, one of the largest increases ever. Officials said Friday a new Alzheimer’s drug is responsible for about half of that....... Medicare officials told reporters on Friday that about half the increase is due to contingency planning…
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Has any one read this book and what are your thoughts? Someone with dementia said it was good.
https://www.amazon.com/Clinic-Alzheimers-Disease-Other-Dementias-ebook/dp/B08KH53VDY/ref=sr_1_3?keywords=mayo+clinic+alzheimers&qid=1636654932&sr=8-3
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Rural: Where do you find in-home respite care?
I live with the HWD in a rural area, and am struggling to find respite care. Care.com yields nothing within 50 miles, the Alzheimer's Association local chapter does not list resources. I am going to call them tomorrow for a "care consultation" but it is an 800 number and I don't have high hopes. Licensed, unlicensed, I…
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Hello again!
It’s been a long time since I’ve been on the board. I’ve needed connection so here I am! I hope everyone is well!
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What We've Got is Failure to Communicate
Communication with my wife has become extremely difficult. Even simple communication is almost impossible now. Her main issues are language, communication, concentration and memory problems. Being new to care giving I'm having trouble understanding, accepting and dealing with someone who answers almost any question…
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Unorthodox Care Plan (MC)
I have my own little version of “Mordern Family” with my stepdaughter and her family including DW’s ex-husband. Over the years this extended family unit has evolved from probably avoiding social get togethers in the early days, to accepting that we could all gather to celebrate births, birthdays, holidays and graduations…
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Observation
This morning in the grocery store parking lot I saw a guy park his pick up truck in the handicapped section, way out of the dedicated lane, no handicap tag in view, back end of his truck was sticking out. He left it parked that way and went into the store. It brought back a memory of when my husband first showed symptoms…
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reality(2)
DH had his NP testing session and the report is not good. The suggested diagnosis from results of hours of testing is "Dementia due to mixed etiologies, mild severity" ---and an additional comment that states "due to evidence of progression and lack of insight suggests comorbid Alzheimer's disease." Now we are at the…
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Questions about the Montreal Cognitive Assessment
My husband was tested at our local memory clinic by a MOCA Certified Rater. She administered the Montreal Cognitive Assessment (MoCA). His score was 24. My questions are these: Does it show a different kind of problem depending on where he scored lower? For instance, in the Visuospatial/Executive section, he scored 5 out…
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Peroxynitrite scavenging product
I am not endorsing this product and I don't know how effective it would be against Alzheimer's disease. Almost all of the ingredients are peroxynitrite scavengers and the company's explanation of the problems created by peroxynitrite is spot on. Ingredients: * Vitamin B2 * Vitamin B12 * Calcium * Garlic extract * Exhinacea…
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Privacy and Friends/Caregivers
I have only posted a few times but have a new issue and would like some feedback. My DW lifelong friend occasionally offers to give me a break and takes my DW for the afternoon. The friend is constantly taking pictures and recording videos with the 2 of them and sending them to people not close to my wife or I. Has anyone…
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Placement in Memory Care(2)
Studith We are about to place my DH in Memory Care. He looks for me first thing in the morning, and comes out of bed at night to make sure I''m here, and this is unbearable to me, knowing this will be the case as he becomes accustomed to his new surroundings. When our helper is here, he looks for me, although she''s able…
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Something good out of the fog
My gal is in love with a TV show. There are 3 documentaries about a couple friends doing epic motorcycle trips. She love the guys, loves the scenery, and remembers nearly none of it. Despite watching them over and over for days, it's always new and interesting to her. Now she asks how the guys are doing. Wonders how they…
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Newbie here
I care for my husband who has been dx'd with mixed dementia since 2015. I need advice on how to navigate Medicare to Medicaid. All the Memory care places told me l have to pay out of pocket for 2 years then they will accept Medicaid. We have a small savings which might not even last 2 years, and live on SS.
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Happy Veterans' Day - Thank you for your service
To all the Veterans and your loved ones, Thank you for your courage, commitment and sacrifice. with tremendous gratitude, Lady Texan
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SSA Question
DW is fine. Asking for a friend. People who have walked this road before, I need help with the SSA form OMB No. 0960-0101 I received. It asks for the information about "living children of the deceased". Does that mean adult children or just minor children? A search of several websites has yielded no information.
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Just need to talk to my friends (158)
Hi, Thought it was about time to start a new installment of our thread - time goes fast when you're among friends. It's 55 here this morning with a stiff north wind but the sun is just now beginning to shine. Supposed to be in the 60s the next four days, then down into the 40s by Thursday. I dread that. My back was feeling…
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Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
https://www.nap.edu/read/26175/chapter/1
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He thinks he knows everything
My husband always had a strong ego. Now, with Alzheimer’s, he seems to try to prove his self-worth with every interaction. If I tell fiblets, he tells humungous whoppers, except that he believes he is telling the truth. If someone mentions a country, any country, he has been there. If someone mentions a famous person, he…
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Hot of the press form the Milken Institute - Scaling Comprehensive Dementia-Care Models.
https://milkeninstitute.org/report/dementia-care-models-scaling-comprehensive