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Waiting for surgery, stress level on overdrive
My DH needs inguinal hernia surgery and after long waits for surgeon appointments the surgery date is now just weeks away not months. You would think this would be a relief but has turned into major stress for him and me. He has absolutely no clue about dates anymore. Every day about 7 or 8 times a day he takes the…
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Getting confused with towels
DH with mild dementia used my towel. I put out two sets of towels, one yellow and one dark peach, second day I noticed my towel was wet before I had shower. I changed both sets of towels. I wonder if anyone else had this issue. I wonder if I should write a initial on the towels? Any ideas?
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DH was admitted to hospice yesterday - I am relieved & sad
Yesterday, DH was assessed for Palliative Care with Company A and Hospice Care with Company B. He was accepted into both programs. I terminated the Palliative Care with Company A in favor of the Hospice Care with Company B. I am both relieved and sad that he was accepted into hospice. If all I have heard is true, hospice…
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Newbie Caregiver / Spouse
Hello Everyone! I am new to this forum and also new to this whole new world of Alzheimers. My DH was diagnosed just yesterday as having Moderate Alzheimers. I am still tearing up as I take in all that is happening and all that is to happen in our lives. I am thankful to find this support group forum with resources and tips…
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Covid adn dementia
Despite the high risk of severe COVID-19 among the elderly, there are only a few studies that have been published addressing the relationship between COVID-19 and AD. However, the numerous shared links between these two diseases highlight the importance of assessing neurological symptoms and implementing preventive…
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OT re: Betty White
Betty White supported the Los Angeles Zoo. The zoo has created a self-guided Betty's L.A. Zoo Tour, honoring her contributions to the facility. The tour includes signs at 16 stops where guests can learn about her connection to a particular animal or location. The walking tour will be up through January 31st. The tour can…
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Covid Omicron and death rates
One of the advantages/disadvantages of living in Maryland is that we are are very well educated and wealthy state that has a fairly honest government system and reasonable transparency. So we get good current medically reliable data YESTERDAY WE HAD THE HIGHEST SEVEN DAY AVERAGE REPORTED DEATHS IN THE HISTORY OF THE…
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Question about wheelchairs
Has anyone seen or heard of a motorized wheelchair which can be controlled by the caregiver rather than the patient?
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Wake up and go to sleep
My DW stage 6, will get into a zombie trance and become restlestsin the middle of the night, or she will stand rigid and immovable by the side of the bed. When this happens I turn on the lights and take her for a walking tour of the house. This snaps her out of it, and she will get back into bed and go back to sleep. It's…
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Mom asked for help
My mom was having a rough evening tonight pacing and holding her baby doll. I was watching her pace for a couple hours she had been.medicated as usual but was just restless. I heard her softly crying in her room so I went in there to check on her. She looks at and says" I've forgotten so much of everything, please help.me.…
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Going out on a limb.
After making a lot of possibly bogus assumptions and unquestionably loose calculations the crude death rate of the omicron variant could be about .3% or about 1/5 of the delta variant . That assumes the same population age distribution The bad news is give the incredible number of infections. We could see 1500 deaths a day…
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Keeping an Alzheimer's patient occupied
Here's a challenge I've run into. My wife is not really capable of keeping herself occupied much of the time. She does get outside to do gardening when the weather allows it. Inside is another story. During our marriage she never really showed an interest in any particular subject as a hobby. I had a suggestion from…
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Caregivers(1)
“There are only four kinds of people in the world – those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers
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Poem(3)
I had written this when our pet died a few years back,I know a pet isn't a DW or DH but the feelings of loss are great. When we have a great loss you get a lump that you can't swallow. I almost posted this in those who have lost a loved one. I hope my DW has a long ways to go. Orange is Just a color But Butterscotch made…
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DH had a bad fall followed by a substantial mental decline.
DH fell on the concrete driveway 2 days ago. Fractured nose & required stitches. Other facial injuries including a substantial road rash on his forehead, cheeks and chin. Had a CAT scan at the emergency room. No indication of stroke that would cause the fall or a concussion as a result of the fall. Question: Can this sort…
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Nano Vacation
Today my HWD and I went on an adventure and I must say we both had really good time! We went for a drive through a gorgeous river valley; there was pogonip everywhere. We had reservations for a private pool at a hot springs. This was so much easier than getting him to shower. He needed a great deal of help getting dressed,…
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DW does not know who I am - how to handle?
I’m 6+ years in this spiraling journey - my DW no longer knows me - she thinks I’m a good friend. I’m not sure how to respond to questions she asks. Where do you live, how do you know me, where do you work etc? I don’t know whether to continue to change the topic or tell her the truth - I’m your husband! I knew this was…
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Catastrophically disabled VA
I've read back through quite a few posts on this here. They seem to say different things. Which I'm beginning to think has to do with the time they were posted. I'm sure things have changed over the years. I have searched and searched online but was wondering if there is anyone here who has a LO who receives benefits…
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Recording LO singing
I used to go to the MC and sing with the residents,often I would see family recording their LO singing. This morning I found myself doing that. Memories for me.
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Tell me I'm doing a good job....
I feel like quitting. I'm going nuts trying to get DH placed. Paperwork for Medicaid. Paperwork for financial stuff related to caregivers. Nursing home I picked is not accepting new residents, and not sure when they will again. That's OK, because paperwork for Medicaid is taking forever to get collected. And it seems like…
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Noises, shrieks and yelling
My husband’s dementia has taken on a new aspect. He yells, screams, shrieks, makes very weird noises and whacks the paper on the table. It is quite unnerving, I have taken the precaution to mute my mike when I am on Zoom. Sometimes I have to cut my video because he wandering around naked. It is disconcerting and downright…
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Do you ever wonder if you're doing what really needs to be done?
Every so often I let things slide that should be done because I don't want the argument. Then I wonder if I'm doing right by her. Do any of you have that same feeling?
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I need advice from my friends
My husband has always been close to his sister. We just talked to her Thursday on the phone. He has a hard time trying to take even for a few minutes. My problem, early this morning I got a call from our niece, his sister had a massive heart attack and currently she is on life support. The hospital is doing a last brain…
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Feeling so alone(1)
Hi everyone, It's so awful to feel so alone. One minute you have a companion, company, help, etc. and the next you are alone except for having another child, another responsibility. He did a lot here so on top of taking on caregiving there's that too. It's not really human the way I live anymore. Slave, maid, run down…
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Breaking things
I awoke this morning to find an African carved spoon, I collect African masks and art, broken and thrown into the garbage. My husband has started to yell, make really strange noises and smash things. I was too late getting to a well loved Korean mask, he had pitched it in the garbage. To say I was upset was an…
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Silent Seizures
DW has started having a few bouts of heighten confusion and agitation. These bouts generally don't last more than a few hours, rather than a continuous change. Thanks to this forum I suspected a UTI and checked with her PCP who ordered a through urinalysis with culture, and also extensive blood work. I was surprised to…
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Plan B(1)
Over and over we post and read about a Plan B for our loved ones. Today I read a post that brought me up short. All my paper work is in order but what about my Plan B? Gig Harbor has posted that she has a binder with all relevent info at the ready. I need to create one that contains all the info from bank to PCP to…
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My caregiver as told by his wife
Good Morning, My caregiver is my husband and has been by my side for almost 3 years. During this adventure, his mother passed away and was also her caregiver. That was 6 months ago and I don't think he has had time to grieve. My husband cooks complicated meals, because he enjoys cooking. I don't taste them and in fact, I…
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My second time around
Yes this is my second time around this block. I've been away for a while but now I'm back, the same broken heart and empty life as before. I first placed my love in MC in December of 2020,she was there before for 33 days and I missed her more than words con describe. One day on a face time call she looked at me and said;"I…
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13 on MoCa More Tests This Week
After 5 months wait, we finally had our appointment at the Medical University of SC memory clinic. I know DH has been progressing but I was shocked that he only scored 13 on the MoCa. His last test a year ago he scored 27. But last week he could not remember who the president is...he joked and said, "we don't have one."…