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Elder Care Lawyer Question
I’ve talked to 3 Elder Care lawyers to protect the house if husband goes on Medicaid. Two of them want me to set up irrevocable trust but they are very expensive. Another says I should take my husband off of the deed. But I was told that won’t help. Does it matter if I set up trust through a regular trust attorney who will…
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I don’t know how to do this
We are at the beginning stages of this horrific journey. When I read about what others are going through here, I know what I have to say seems so small and petty… But anyway, for the past four years we’ve been planning on getting our downstairs painted, and over the past four months my husband has been hounding me to get…
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Burnout
I'm running on empty. My DH has mid stage dementia and is 02 dependent due to congestive heart failure. He's in a long term memory care facility and I see him every day. He's constantly confused about how to wear the 02 device and calls me about 20 times a day; often acutely confused, delusional, nasty, paranoid - and I…
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A simple tip
I got my booster shot yesterday. I was going to register my wife to get one today. Yesterday she had her purse, and when I needed her medicare number, it was in her purse, which was somewhere, but where? I looked for probably over an hour before I found it. Yes, she got her booster shot today, but it could have been much…
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Newbie help
My husband was just diagnosed on Thursday but I have known for a while that something was wrong. He can still care for himself but I do all of the cleaning, banking and appointments, etc. the dr we saw said that he can slow down the progression by working out, eating clean and so on, now my husband thinks he’s ok if he…
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Alzheimer's and cancer: different sides of the same coin
The observation that people with Alzheimer's disease rarely develop cancer and that people with cancer rarely develop Alzheimer's disease suggest that they are opposite diseases: Alzheimer's disease is cell growth without cell death and cancer is cell growth without cell death. Yet the same apparent triggering factors such…
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preparing meals
I need some help in meal preparation. My DW won't eat anything spicy, salty, (she likes chicken noodle soup), or anything that is hard to chew. She complains that her teeth are not sharp. If we go to a restaurant she will complain about most of the food and eats about a third of the meal. We have been to the Dentist twice…
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Biogen
I found this article about the approval of Aduhelm interesting. It’s not a drug I would ask his neurologist to prescribe, but I find the approval process fascinating. https://www.cnn.com/2021/09/26/politics/alzheimers-drug-aduhelm-fda-approval/index.html
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Caregiver’s health
Has anyone placed their spouse in Memory care because of the caregiver’s mental health
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endless rehashing of lost history
My partner doesn't remember much about us any more, and she's constantly questioning me, trying to fill in the holes. It's disconcerting to say the least, and heartbreaking--how long have we been together, do I know her family, do I have family, do I know our neighbors, do I have children, was I married before, what kind…
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How to get DW to take her meds?
My DW has been diagnosed with moderate dementia/Alzheimers. Each evening before bedtime, she does habitually take Donepezil (prescribed for MCI 3 yrs ago by our primary care doc). When we saw her neurologist 5 months ago, he added Memantine during the day. He thought it might help. But she has refused to even try this…
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Biogen: When free is not free
When I read that Biogen was giving away free doses of its Alzheimer's drug Aduhelm, I thought that it was just an act of desperation. But there may be something more nefarious to this based on what it is doing with some of its multiple sclerosis drugs: Biogen Accused of Baiting Patients With Illegal Drug Co-Pays Biogen…
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We Saw the Psychiatrist!
So yesterday DH had his first Psych appointment in 48 years! He was diagnosed with BiPolar2 when he was 24 (now 72) and started on Lithium and he has never gone back. Now with a dementia diagnosis and probable bvFTD the neuro wanted him to see the Psychiatrist to sort out what was what. He did not want to go and I was…
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Covid boosters
DD#1 is my vaccine expert (Johns Hopkins PhD in microbiology and public health, now with FDA) She is 100% supportive of boosters for all dementia patients in facilities and any visitors over 65 She also reminded me to get my flu shot and I told her I did last week. Get the "high dose" if you can , From CDC Several flu…
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A tip for caregivers who have highly agitated spouses at home
This morning was highly stressful, once again. Got my husband into the shower without any issues, got him dressed with no issues. Once he was in the kitchen he became highly agitated began cursing at me, spit on me while I was making his breakfast, clapped his hands at my face, didn't touch me because his perception is…
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Scam supplements
Another email appeared in my mailbox today about a new miracle supplement that restores damaged brains, memory recovered! All natural, non GMO etc.etc. Is it just me? I feel an enormous visceral rage building in me when I read this crap. How can people plan and deliver an advertising campaign for a scam product that preys…
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O.T. - Amazon
With the holiday sales coming up, you should read this link I'm providing. This article is about chromebooks, but it should give you information to consider even if you want something else. This type of advertising should be against the law. Buyer beware! Do your homework before you…
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Taking cookies To loved Ones
for those of you that take loved ones cookies the following recipe is yummy And soooo easy. 1 box lemon cake mix 1 egg. 2 cups thawed cool whip mix in large bowl. 1/2 to 1 cup powdered sugar to roll cookies in. Combine ingredients, batter will be sticky, form dough into Tablespoonfuls and roll in powdered sugar. Bake for 8…
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Just need to talk to my friends (155)
Hi, Had one heck of a time trying to get on the thread so thought I'd start a new section of this one. I don't know what in the world people are thinking! I watched a super-good football game this afternoon - Cleveland Browns at KC Chiefs. Arrowhead hold at least 75,000 people and it was filled to the brim. I watched…
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Four years in memory care
It's now been 4 years since the woman who was my lovely, brilliant, loving wife went into memory care. She has not the slightest idea who I am, or anyone else for that matter. She is unsteady walking so she sits much of the time, often silent as if gibberish takes too much effort. She seems to enjoy the blueberries and…
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VENT: noise, stress and poop
DH gets super needy in the afternoon now. He needs something else about every 5 minutes. He wants water, then a snack, then another snack, then a cigarette, then a soda, then the bathroom and then water and on and on and on. DH shuffles his feet as he paces around. I have misphonia, so the never ending noise, as minor as…
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I just started reading this and so far it looks great.
I only got to page 39 since yesterday. https://www.alzint.org/u/World-Alzheimer-Report-2021.pdf
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Cards stating your LO has Alz
Morning! I have not been on this site for several months. Can I purchase small business cards that state “Please be patient, my companion has Alzheimer’s” on this site? If yes, please direct me where or how to go about ordering. I read I can order them on Vistaprint. Thank you for all your help! Dottie
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Virgil how are you?
It is in the subject. Thinking to you and wondering if everything is ok for you wife.
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This might be venting
Well, it took a few years but I realize I need some breaks to this caregiving madness. That seems to be a rather common realization on this forum. If I'm not burnt out, I don't know what that is. So, I first looked for in-home help. There's nobody providing that kind of care where I live. Then I looked for adult daycare. I…
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A note to Biogen
The Neurological Center in Washington D.C. has posted this message to Biogen representatives outside their door: In response to the growing controversy over the new BIOGEN Alzheimer's medication, Aduhelm, BIOGEN pharmaceutical representatives are no longer welcome in our offices. BIOGEN representatives should not enter or…
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I've given up all expectations
DH's delusions and paranoia resurfaced over the weekend after taking a short hiatus. He said a man was looking into our living room window and tried to come in our front door on Saturday night. He ranted all day yesterday about how he's going to shoot these men and call the police, etc etc. He is angry at me because I…
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I was thinking it wouldn't be holidays, but it is !
Tunisia wahou ! We arrived and he was taken in charge by a very Nice caregiver. She took his hand and conduct him everywhere. At the moment i am sunbathing after a Nice time in the swiming pool with him. I Just swim with him. She helped him to shower, to put his swiming suit on... i do nothing but resting. So i enjoyed…
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Read the fine print
I have been trying to help my folks find a care community which has aging in place facilities...i.e. start at independent living, move to assisted living then on to memory care or skilled nursing care. In this area, most of the nicer places you have to enter at the independent living level and buy the apartment. We thought…
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Funeral home advertisement
https://www.cbsnews.com/news/anti-vaccine-billboard-funeral-home-truck-pro-vaccine-goes-viral-charlotte/