-
Wake up and go to sleep
My DW stage 6, will get into a zombie trance and become restlestsin the middle of the night, or she will stand rigid and immovable by the side of the bed. When this happens I turn on the lights and take her for a walking tour of the house. This snaps her out of it, and she will get back into bed and go back to sleep. It's…
-
Mom asked for help
My mom was having a rough evening tonight pacing and holding her baby doll. I was watching her pace for a couple hours she had been.medicated as usual but was just restless. I heard her softly crying in her room so I went in there to check on her. She looks at and says" I've forgotten so much of everything, please help.me.…
-
Going out on a limb.
After making a lot of possibly bogus assumptions and unquestionably loose calculations the crude death rate of the omicron variant could be about .3% or about 1/5 of the delta variant . That assumes the same population age distribution The bad news is give the incredible number of infections. We could see 1500 deaths a day…
-
Keeping an Alzheimer's patient occupied
Here's a challenge I've run into. My wife is not really capable of keeping herself occupied much of the time. She does get outside to do gardening when the weather allows it. Inside is another story. During our marriage she never really showed an interest in any particular subject as a hobby. I had a suggestion from…
-
Caregivers(1)
“There are only four kinds of people in the world – those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers
-
Poem(3)
I had written this when our pet died a few years back,I know a pet isn't a DW or DH but the feelings of loss are great. When we have a great loss you get a lump that you can't swallow. I almost posted this in those who have lost a loved one. I hope my DW has a long ways to go. Orange is Just a color But Butterscotch made…
-
DH had a bad fall followed by a substantial mental decline.
DH fell on the concrete driveway 2 days ago. Fractured nose & required stitches. Other facial injuries including a substantial road rash on his forehead, cheeks and chin. Had a CAT scan at the emergency room. No indication of stroke that would cause the fall or a concussion as a result of the fall. Question: Can this sort…
-
Nano Vacation
Today my HWD and I went on an adventure and I must say we both had really good time! We went for a drive through a gorgeous river valley; there was pogonip everywhere. We had reservations for a private pool at a hot springs. This was so much easier than getting him to shower. He needed a great deal of help getting dressed,…
-
DW does not know who I am - how to handle?
I’m 6+ years in this spiraling journey - my DW no longer knows me - she thinks I’m a good friend. I’m not sure how to respond to questions she asks. Where do you live, how do you know me, where do you work etc? I don’t know whether to continue to change the topic or tell her the truth - I’m your husband! I knew this was…
-
Catastrophically disabled VA
I've read back through quite a few posts on this here. They seem to say different things. Which I'm beginning to think has to do with the time they were posted. I'm sure things have changed over the years. I have searched and searched online but was wondering if there is anyone here who has a LO who receives benefits…
-
Recording LO singing
I used to go to the MC and sing with the residents,often I would see family recording their LO singing. This morning I found myself doing that. Memories for me.
-
Tell me I'm doing a good job....
I feel like quitting. I'm going nuts trying to get DH placed. Paperwork for Medicaid. Paperwork for financial stuff related to caregivers. Nursing home I picked is not accepting new residents, and not sure when they will again. That's OK, because paperwork for Medicaid is taking forever to get collected. And it seems like…
-
Noises, shrieks and yelling
My husband’s dementia has taken on a new aspect. He yells, screams, shrieks, makes very weird noises and whacks the paper on the table. It is quite unnerving, I have taken the precaution to mute my mike when I am on Zoom. Sometimes I have to cut my video because he wandering around naked. It is disconcerting and downright…
-
Do you ever wonder if you're doing what really needs to be done?
Every so often I let things slide that should be done because I don't want the argument. Then I wonder if I'm doing right by her. Do any of you have that same feeling?
-
I need advice from my friends
My husband has always been close to his sister. We just talked to her Thursday on the phone. He has a hard time trying to take even for a few minutes. My problem, early this morning I got a call from our niece, his sister had a massive heart attack and currently she is on life support. The hospital is doing a last brain…
-
Feeling so alone(1)
Hi everyone, It's so awful to feel so alone. One minute you have a companion, company, help, etc. and the next you are alone except for having another child, another responsibility. He did a lot here so on top of taking on caregiving there's that too. It's not really human the way I live anymore. Slave, maid, run down…
-
Breaking things
I awoke this morning to find an African carved spoon, I collect African masks and art, broken and thrown into the garbage. My husband has started to yell, make really strange noises and smash things. I was too late getting to a well loved Korean mask, he had pitched it in the garbage. To say I was upset was an…
-
Silent Seizures
DW has started having a few bouts of heighten confusion and agitation. These bouts generally don't last more than a few hours, rather than a continuous change. Thanks to this forum I suspected a UTI and checked with her PCP who ordered a through urinalysis with culture, and also extensive blood work. I was surprised to…
-
Plan B(1)
Over and over we post and read about a Plan B for our loved ones. Today I read a post that brought me up short. All my paper work is in order but what about my Plan B? Gig Harbor has posted that she has a binder with all relevent info at the ready. I need to create one that contains all the info from bank to PCP to…
-
My caregiver as told by his wife
Good Morning, My caregiver is my husband and has been by my side for almost 3 years. During this adventure, his mother passed away and was also her caregiver. That was 6 months ago and I don't think he has had time to grieve. My husband cooks complicated meals, because he enjoys cooking. I don't taste them and in fact, I…
-
My second time around
Yes this is my second time around this block. I've been away for a while but now I'm back, the same broken heart and empty life as before. I first placed my love in MC in December of 2020,she was there before for 33 days and I missed her more than words con describe. One day on a face time call she looked at me and said;"I…
-
13 on MoCa More Tests This Week
After 5 months wait, we finally had our appointment at the Medical University of SC memory clinic. I know DH has been progressing but I was shocked that he only scored 13 on the MoCa. His last test a year ago he scored 27. But last week he could not remember who the president is...he joked and said, "we don't have one."…
-
DH cannot understand the words.
Hi all, I hope the new year is treating you and yours kindly. The world us such an uncertain place. Last night while watching a TV show, DH would sit and mutter a lot of swear words. He rarely swears and so I paid attention. I mentioned this was a series we had watched in the past and did he want to continue watching it…
-
Finances and dementia
We quite properly talk about the legal documents required in a dementia case and yes they are important. But just as important is realistic financial planning. Dementia patients require supervision and eventually 24/7/365 care The cost of that care , one way or another, falls overwhelmingly on families unless and until…
-
Animal care taken to the extreme--just venting.
This is just a vent. It's been a beautiful snowy day here today. My partner found a mouse in the chicken house--in a little front room where their food is stored in metal garbage cans. I think the mice come in from pipes around the sink--no chicken house is vermin-proof. Now she wants to go feed it because she doesn't want…
-
@CStrope. O T
On another thread you mention putting a tracker on an email sent to see when it is read. How do you do this? I have AOL. Thank you. Iris
-
I requested a hospice evaluation for DH and it is unsettling
I mentioned in recent posts that DH continues to decline. I realize it is the nature of the disease. Alzheimer's goes from bad to worse. I messaged the PCP. I provided my recent observations regarding ADLs and stated that DH has been falling. The PCP wrote a referral for a hospice evaluation. I know hospice is an option to…
-
Home Health Care(2)
I am at the stage where I believe I need help here at home. I have read this was a good first step prior to having DH admitted to MC. I just can't watch his every move during the day and all night when he roams and gets into things. My question is how to select the best nursing organization for this. I am awaiting input…
-
Emergency Contact?
New to this forum, and new to the realization of DH’s dementia behaviors (no diagnosis yet). I’m discovering things I haven’t thought of before. I need some medical care, scheduled next week, and for the first time, I don’t want DH to be my “Emergency Contact.” We are a couple with a combined 6 grown children, his- & hers-…
-
Frustrated and Porn
I have a cold and a slight fever. I’ve been home all day since I wasn’t up to going to work. It’s not Covid. My husband just asked how long I planned on not going to work. I know he wants me out of the house so he can watch porn on the computer. He does not spend any money just scrolls around for about 30 seconds on a…