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DH cannot understand the words.
Hi all, I hope the new year is treating you and yours kindly. The world us such an uncertain place. Last night while watching a TV show, DH would sit and mutter a lot of swear words. He rarely swears and so I paid attention. I mentioned this was a series we had watched in the past and did he want to continue watching it…
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Finances and dementia
We quite properly talk about the legal documents required in a dementia case and yes they are important. But just as important is realistic financial planning. Dementia patients require supervision and eventually 24/7/365 care The cost of that care , one way or another, falls overwhelmingly on families unless and until…
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Animal care taken to the extreme--just venting.
This is just a vent. It's been a beautiful snowy day here today. My partner found a mouse in the chicken house--in a little front room where their food is stored in metal garbage cans. I think the mice come in from pipes around the sink--no chicken house is vermin-proof. Now she wants to go feed it because she doesn't want…
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@CStrope. O T
On another thread you mention putting a tracker on an email sent to see when it is read. How do you do this? I have AOL. Thank you. Iris
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I requested a hospice evaluation for DH and it is unsettling
I mentioned in recent posts that DH continues to decline. I realize it is the nature of the disease. Alzheimer's goes from bad to worse. I messaged the PCP. I provided my recent observations regarding ADLs and stated that DH has been falling. The PCP wrote a referral for a hospice evaluation. I know hospice is an option to…
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Home Health Care(2)
I am at the stage where I believe I need help here at home. I have read this was a good first step prior to having DH admitted to MC. I just can't watch his every move during the day and all night when he roams and gets into things. My question is how to select the best nursing organization for this. I am awaiting input…
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Emergency Contact?
New to this forum, and new to the realization of DH’s dementia behaviors (no diagnosis yet). I’m discovering things I haven’t thought of before. I need some medical care, scheduled next week, and for the first time, I don’t want DH to be my “Emergency Contact.” We are a couple with a combined 6 grown children, his- & hers-…
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Frustrated and Porn
I have a cold and a slight fever. I’ve been home all day since I wasn’t up to going to work. It’s not Covid. My husband just asked how long I planned on not going to work. I know he wants me out of the house so he can watch porn on the computer. He does not spend any money just scrolls around for about 30 seconds on a…
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Care Compare website
I'm not sure just how reliable this will be, but it looks interesting. You Can Now Compare Nursing Homes on Staff Turnover Rates and Weekend Help * January 13th, 2022 * * * * * The Centers for Medicare and Medicaid Services (CMS) announced that it will add data on staff turnover rates and weekend staffing levels to…
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My first post
I am new here, I am unsure about where my DW is stage wise. She has not been evaluated by any medical folks. About 10 years ago I did some training with the local altzhiemers chapter as a pastor, I got lots of books and at that time I had some questions about my Dw. Please let me say this now, I do not consider myself a…
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A total win
Our front door was hanging off its hinges, I took one look at why, got a selection of my husband’s screwdrivers, some really long screws and proceeded to unscrew the top latch. My hubby was holding the door, while I sunk a huge screw into the frame, then I sunk the other screw into the bottom of the latch.The door now…
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Lady Texan(1)
I didn't want you to miss the post from Jo C. to your thread on hospice evaluation. Be sure to read it. It is excellent, and should help you.
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Nursing home labor shortage
https://www.elderlawanswers.com/worsening-nursing-home-staffing-crisis-taking-a-devastating-toll-on-residents-their-families-and-hospitals-18635?
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Married Still, but...
Hi all - I know this topic has been mentioned in this forum before. Has anyone come across a good reference site/book/etc. on the subject? My wife doesn't remember me or the kids or her brother, friends, etc. She may have some minute recollection - that I'm someone she might know - when she sees me at the MC when I visit…
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WTH???
What the hay? I couldn’t figure out where to post this musing... on the most recent “laughing to keep from crying” thread, or Lorita and friends’ legacy thread since that is literally the only place I can recall this topic being discussed regularly to my knowledge. But that doesn’t explain why DH has livestock on his mind…
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Are you willing to help me test this theory out?
If yes please add your comments here below and explain what and how you did it and the results you saw?
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Ice Cream and manic behaviour
I just had a really terrible night. Imagine a really bad night of wandering, manic behavior, and self-endangerment. After some hard thinking and connecting some dots from other threads, the two incidences I have had like this, nearly identical, had in common one major thing. Ben and Jerry's. No knock on B&J, I am a huge…
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Way Off Topic: Solar Panels
I shall remove this Thread fairly soon. We live in Southern California. My DH is wanting to put Solar Panels on our two story house. However; we are aging, and due to my husband's condition, I do not see us staying in our big house any longer than three to six years . . . ten at the outside most and that length of time…
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snack of the day
I wanted to make something special for DW, She has to be hand fed. I found I had some very dubious looking aging melted/ solidified chocolate chips; one big block in the bag. So I put it in a 2 cup Pyrex measuring cup, added a little butter , put it in the microwave and carefully melted it. Once it was melted I took a pint…
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Speaking freely
Hello DH was diagnosed officially November 2021 with EOAD, but showing signs for a year prior. He is early stages: still drives to a men's game group and volunteering. We have all papers, needs, and documents in order, and that is where I feel the burden. All decisions are on me: managing money, insurance, calendars,…
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Don’t know if I can make it to the end.
I haven’t been online in awhile, just slowly taking care of DH at home with the help of my AD and hospice. He is late stage 7, can’t walk, talk, feed himself, incontinent and mostly bed bound,. With the help of my dtr we can get him up and in a wheelchair and we use a Hoyer lift to put back in bed. He is quiet, not making…
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Update: He wet himself for the first time.
DH saw his PCP yesterday and he thinks he probably had a TIA. The Dr. listed about five different tests that he could do but said he didn't want to do a "full court press" unless we were committed to having surgery if necessary. We settled on just doing an MRI. That will be done next Tuesday. DH does not remember anything…
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Something a little different - music
Check it out. Pretty good album by Robert Plant and Alison Krauss. Robert Plant & Alison Krauss - The Price Of Love (Official Audio)
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Memories with no one to share them with
I was feeling sorry for myself because I was thinking of everything we had done in our life and my husband remembers none of it. I can tell others about my memories but there is no one to share them with. Then I realized that every divorced person goes thru this and I never thought of it before.
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bathroom remodel
Hello, I am planning on having our bathroom remodeled later this year. It just needs to be done. Right now it is a standard bathroom with a shower/tub. Currently, no special devices are needed for my DH to take his nightly shower. All I have thought of so far are grab bars. I read the comments regarding female hygiene and…
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Legal Documents Finally in Place
We signed wills, Medical POAs, Statutory Durable POAs, living wills today. I feel much better that we are at least in a better legal situation moving forward to whatever our future has in store for us.
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Latest on Aduhelm
Medicare officials have decided that the federal health insurance program should only cover the controversial new Alzheimer’s drug Aduhelm for patients who are participating in approved clinical trials. If the preliminary decision is finalized later this year, it would significantly limit the number of patients who could…
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Good morning. need to talk
Hello everyone. I am Pamela . I am 69 and Caregiver to my husband , Dan , who has Dementia... ( Vascular and possibly Alzheimers ) Diagnosed in early October 2021... so we are fairly new to this journey.. although it has been going on since 2017 and was not recognized or determined til 2021. He has been staged at 4-5 . He…
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Amping up from the butt crack of dawn
OMG OMG OMG Is this going to go on forever? Sue now wakes at 4AM, which was my only time to myself. She begins asking and repeating the same questions "tirelessly" and crescendos upward, until she is in tears. This continues the entire day. She cannot take a nap, hence I'm "on the job", with absolutely no break. The…
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Hydration
Need advice on getting her to drink