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Coping with Christmas
I asked DW to marry me on Christmas Day 1972. She looked at me with shock and horror and then said Yes, I thinks so but don't tell anyone We were married in May 1975 but for many reasons we often missed anniversaries together but we never ever missed Christmas. It was our day. Our Christmas ran Sundown to Sundown from…
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Grandx, Drina, grief, anger, fear, tender hearts
I was touched by Grandx's thread, "Grieving stages on this rough road." I'm especially moved tonight by Drina's reply where she shares about not wanting to attend a large gathering and her daughter's response of anger, accusing her of "wasting/not living life." Oh that hurts. I don't want to derail Grandx's topic, so I'm…
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My 3rd anniversary on the forum
I am tremendously grateful for this forum. When I joined this forum in 2018. I was scared and naive and sad and confused. I didn't know the difference between a neuro surgeon and a neurologist. I didn't know dementia was an umbrella term. I didn't know what was in store for us on this unpredictable journey. At the time, we…
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Need help(2)
My wife has dementia. Sometimes I feel like there’s no help. I’m stressed out. Currently trying to find some home health care at least twelve hours a week. Also looking into an Elder Law attorney. I’ve contacted one in Sarasota but how do I know he’s my best choice. Any advise or help will be greatly appreciated.
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Constant Crying, Fear, Feeling Forlorn and Hopelessness
Good Morning, Over 2.5 years in to Sue's daily struggle, she and I have reached a daily impasse that feels endless and hopeless for both of us. She is inconsolable, not recognizing familiar objects or their functions. She is unable to empathize or understand when help is being given. In other words, she seems to feel that…
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Help! I am so depressed
Wondered why i feel so tired, lack of ambition. I just sit and look at my ipad. Then i realized I am depressed! My husband has alzheimers and is becoming incontinate. Paranoid and hallucinates. December is a bad month because it would be my oldest daughter’s 50th birthday, but she died of cancer 25 yrs ago. Me middle…
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How to explain why you are placing them in MC
In a previous thread I shared my dilemma of when would be the right time to place my wife in memory care, and got lots of good feedback. Now it's time and I've found a good place and started the necessary paperwork. So now my question is, how do I explain why I am leaving her at the facility? My wife is mostly cheerful and…
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Possible hospice graduation
My DH has been on hospice since January 2020 and bedbound since 10/20. He has FTD and ALS. Two siblings near his age have died this past year from the same disease (gene). He can't move in bed and can't talk. The VA provides a CNA for 3 hours daily so that we can use a hoyer lift to move him into a recliner. DH's hospice…
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ADUHELM PRICE.
CHANGE OF ADUHELM PRICE BY BIOGEN IS ONLY A STEP TOWARD EQUITABLE ACCESS TO TREATMENTS FOR ALZHEIMER'S DISEASE
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Not religious but could not resist
Best caretaker nativity scene ever
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Refusal to see a doctor
After waiting months for an appointment with a neurologist DH refuses to go. I have read other posts on how a situation like this is handled and I tried them all (the appointment is for me but you need to go to answer questions, and his cardiologist wanted him to see his partner, and offering to take him out to a nice…
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Doctors statement on Aduhelm
Published: December 20, 2021 We call on the FDA to withdraw its marketing approval for Aduhelm (aducanumab) for the treatment of Alzheimer’s disease. An accelerated withdrawal would mitigate some of the harm of its unwarranted accelerated approval for these reasons: * Aduhelm failed to demonstrate the prespecified…
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we're in the movies
DH and I were watching a Christmas movie last night. Halfway through he got all excited and said we are in the movie. He saw himself, me and other members of the family. Even the commercials had us. I asked him if they were people that looked like us and he said no it was us. He was happy to see us in the movie and was…
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I found the TV remote in his glass of water
Of course it is not the end of the world. Its just one of many of the minor annoyances that are sprinkled into the long, miserable Alzheimer's journey. dang it. This disease is heartbreaking, soul sucking and relentless in creating yet another problem to solve.
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I need to place DH
My husband had been showing mild symptoms of dementia for years. In 2019 it started to be noticeable to friends and by last year I knew that it was more than mild dementia. I finally was able to make an appointment for him with a gerontologist. In February he was diagnosed with Alzheimer’s and aphasia dementia. I had a lot…
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For Lane
Needed your help. I believe I made another discovery on helping people with sundowning and sleeping. I need someone tough like you to ask the right questions and to put it in writing so I can get this published. Please let me know if you will help me with this. We will need to do this by phone and it will need to be…
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Lift chairs and/or recliners
If your loved one uses either, what are the pros and cons?
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Early Stage - any advice?
This is my first post. My DH was just diagnosed with probable Alzheimer's. He began to have noticeable memory issues in 2020 which became progressively worse during 2021. It took us a long time to have an appointment for an evaluation. We have an appointment in January to see if he possibly has some of the other…
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Does anyone have experience with “Town Square”?
A Town Square adult day care facility is opening in our area. I was wondering if anyone has any loved one attending this program. My DH attends a not for profit adult day program and is extremely unhappy with it. I’m hoping this will be better.
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cell phone
My DW would like a cell phone for Christmas as the grandchildren tell her "grandma, you need to have a cell phone" My DW believes that if she has a cell then her family and friends will call her. We have a landline and several extensions but most of the calls are from telemarketers. The do not call her. My concern is that…
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He is pacing, l’m going crazy
Bad night, he waked me up at 3 am. He asked to go to bathroom then he was unable to enter the bed… when it was finished, I couldn’t sleep. That's every other night. Today is Saturday I wanted to do a nap. All this time I heard him pacing in the closest room. Unfortunately the 120 years old wooden floor creaks. I got up and…
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Heading towards the end of this disease
My 63 year old husband has been bedridden for the past 13 days. He is under hospice care at our home. We are keeping him as comfortable as possible. It's very, very sad to see him this way. I could see this stage coming for a few months. He would want to go to bed earlier and lay in bed longer. He took a shower every day…
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Arrrrrgh!
I had to run to the store this morning. One of our sons stayed with her. When I got home, she was all upset. She wanted to get a coke, but she spills it all over the place when she pours it. Then she spills it on the floor as she walks from the kitchen to living room.. He wanted to get it for her, but she wanted to get it…
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Need to move to Assisted Living facility
I am new I am new to this group and am having issues with my sister who was recently diagnosed with moderate dementia towards Alzheimer's. It has been advised by 2 doctors she not live alone, as she is now, mama but she refuses to move out of her home. She currently lives alone and I am Checking on her every day to make…
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What will I remember?
Am I doomed to remember DW primarily as someone with a progressing dementia? Of course intellectually, superficially, I can remember the wonderful way she was before this terrible dementia. But at a deeper level the emotional memory I seem be developing is that of a great sadness for her, almost pity that she can no longer…
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Anger From DW Over Being On Her Computer
My wife has ES~MS of dementia, which means she functions fairly well a good deal of the time. She has made contributions (using her laptop) that she said were "small", that I see on our CC statement are large. She has enough contributions that it amounts to $10K or more a year, at this point. Sometimes when one calls she…
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Easygoing husband now punching staff and more
My poor husband who’s been in memory care for 4 months now has become angry and violent toward both staff and residents. A couple of weeks ago a staff member had to go to the ER because he was whipping her around until her shoulder became sprained. The staff put him on an increased dose of Risperidone which I read can…
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My husband died over a year ago
I ran into an old friend of his today at a local store. He asked me how he was. I told him he has died. He was shocked, but I could have sworn I have already told him this. All of his past acquaintances always act shocked. I feel bad, but it's like if you don't want to know, don't ask. I also buried a favorite Uncle two…
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Tasks and house rules for home care aides?
We have finally found a reliable home care aide it appears, after several months of the agency not having anyone to send, or no shows. For someone coming in 20-30 hrs a week, what are the tasks and guidelines you have set for home help that you recommend? DH is Stage 6d with anosognosia, very mobile and a wanderer. I…
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Stressful couple of weeks
The last time I wrote it was about what a great day we had on Thanksgiving. Unfortunately, that was the last great day we've had. We have four children. The two older sons are mine and the youngest son and daughter are ours. DH has never gotten along with my oldest son. He seems to have always seen him as a rival even…