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What Stage?
Good morning, My partner was diagnosed with Vascular Dementia this past summer. He was born a triplet and one of his triplet sisters died from complications of Alzheimer's. I noticed changes beginning about 2 and half years ago. He got lost driving to a few of his appointments last year. He was unstable on his feet and…
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Untimely timely: pimavanserin
I had just mentioned pimavanserin [Nuplazid] earlier today on another post for the potential use against psychosis in some forms of dementia, but had not seen the most recent news. FDA Rejects Nuplazid to Treat Dementia-related Psychosis These included the lack of significant benefits in some dementia forms and the small…
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Feel so alone
Today started out so good. I made a nice Easter brunch for DH and me. Then a Zoom call with my family 700 miles away. I never had children so seeing and speaking with my brother, SIL and two adult nieces and their kids should have made my day. It was just a reminder of how alone I will be after DH is gone. He can hardly…
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DH Denial
Background: we are 3 years in; just had 2nd neuro psych eval 3 weeks ago and met with neurologist yesterday to go over results (which of course I already had). DH despises her. Said he was never going back. Told her to never say the word Alzheimer and dementia to him again. It's the elephant in our home. I still work and…
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Questions About Elder Care Attorneys
I'm exhausted from not sleeping at night because I contacted an elder care attorney and they now want almost $9,000.00 to arrange things like Medicaid application, getting the house/cars/etc. into only my name. We already both had our Power of Attorneys, Wills and Five Wishes taken care of. My question is this - is this a…
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Easter Dinner almost turned into a disaster
Celebrating anything with Alzheimer's is hard. Easter was no exception. DH wouldn't get out of bed to get ready for church service. I was wearing myself out going up and down the stairs to remind him to get up and shower. Finally, our daughter, who is visiting talked to him and he did get up. By that time it was almost…
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one more little loss
We went to the dentist today for the first time in a year (oh, the things we take for granted) and I was worried that she might have trouble, but she did okay--not too much history to give. But, on the way home, we stopped at Subway for takeout--also for the first time in a year--and she had forgotten how to order. Just…
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Ich habe mich verloren
"Ich habe mich verloren." "I have lost myself "was the routine reply of Auguste Deter, Dr. Alois Alzheimer's first case of what became known as Alzheimer's disease. This first described case of Alzheimr's is incredibly painfully similar to the experience of people here.…
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Swallowing/choking
DH has Lewy Body. Has anyone else's LO developed swallowing issues? First time experience this morning while eating a banana. Difficulty swallowing and almost choking.
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Unsure of what to do next
Lately I am feeling like I am going a little crazy. I feel desperate to know if I can continue caring for DH at home. Seems every week I feel different. Basically I mostly feel that I cannot care for him in our home. DH is a veteran and I just cant figure out how to get Aide and Attendence to help pay for care, in the home…
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Australia National Dementia Helpline
Description The National Dementia Helpline is an Australia-wide telephone information and support service for people with dementia, their carers, families and friends. Health professionals and service providers, community organisations and people concerned about memory loss can also contact the helpline. Services provided…
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bathroom mats
there was a question on bathmats...I googled and could not find any non-slip that did not have a review saying that it slipped....suggestions?
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Blubbering
My husband has Lewy Body dementia. He gets teary eyed, blubbery, at anything. At a song on radio, at a collision in a Nascar race on tv, at someone saying hw good their cake was . Anything! Is anyone else experiencing this with their loved one? It can be embarrassing when out in public.
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Happy Easter!
Just wanted to wish all on the forum a happy Easter and express my gratefulness to such a kind and caring community. DH and I are going to attend church this morning. Not sure how it will go but I miss being in church and it seems like a good day to try it.
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One box of Kleenex later...
Tonight he said “I am glad I still remember you.” I cannot stop crying. I do not care if he smells like a homeless person, pisses all over the floor or leaves the water running. He has shown me more love than anyone and brought joy and fun to my life. It is breaking my heart that he knows how this disease is pushing us…
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Blues for Saturday
We all know that with our LO’s there are good days and not so good days, and indeed within any given day good moments and not so good moments. Today was a not so good day, with my DW’s anxiety apparently ratcheted up. This morning, I left her in the kitchen for a few moments while I took care of a couple of things…
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To The Child In All Of Us - Happy Easter!
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visual anosognosia?
Iris mentioned this the other day, and it gave me a name for something I'm seeing a lot right now: namely that my partner can't identify things that are right on front of her face. Including the cats, and this morning, the huge can of Coffeemate that was sitting by the coffee maker. There's a lot of "Honey, I can't find…
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Tired of being the bad guy
Arrgggh. DH just hung up on me. I am at work and he is at home. He wanted to know where the keys to his van are. I told him I have them and said to him "You should not be driving." He said he is just as good a driver as I am, to which I replied that,Yes, you used to be. He then said "have a nice day." and hung up. I swear…
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What Do You Do When They Want to Leave?
Every single day, my husband wants to leave and he wants to go back to the little western Kansas town where he was born and grew up. He's 82. It's all he'll talk about from daylight to dark, no matter how many subjects we try to distract him with. He doesn't believe that this is our house and insists we get in the car and…
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The light was on for a minute....
She had a brief episode of clarity this afternoon after not recognizing two good friends on the phone. She,asked me if she was getting worse (yes), if other people knew ( oh yes), and whether this was a fatal disease. She cried, and said she was scared. We talked about living in the moment. I told her I would never…
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Night Games
New experience and not every night. Anywhere from 2:30 to 4 AM, my DH wakes and reaches over to the night stand to put on his glasses. I wake, too, asking him to take them off as it's time to sleep. Last night was the worst. He said "No I won't". I told him it was time to sleep and he didn't need them. He said, "these are…
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Funriture, MIL and dinner
I know, I know, I've read about it many times that it is best to not argue with your spouse who is suffering from this disease because you can never win, but every now and then my DH hits a trigger in me that pushes me too far. The other morning he informed me that he told his mother that she could have all of our living…
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Affected Me More Than It shoud
This morning while I was on the phone my wife went to burn incense as she does every day. I looked up and she was walking out of the kitchen with several paper towels on fire.. As I hung up the phone I ask what she was doing. She said she didn't know. I then proceeded to put out the paper towels and again ask why. She did…
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Respite- Gratitude & Guilt
Yesterday I departed on an 8 day respite break to visit friends in Florida. Today I find myself struggling with conflicting feeling about my trip. First, I am grateful to my stepdaughter who is staying with my DW while I’m gone, my regular caregiver whose working extra hours so my stepdaughter can go to work, to other…
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New Brain Guide
UsAgainstAlzheimer’s has recently launched BrainGuide, a first-of-its-kind platform that empowers people with knowledge and resources to take the best next steps in managing their own or a loved one’s brain health. With more than 60 percent of Alzheimer’s cases in people over 65 years old going unrecognized, there is an…
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this is a first
We were in the family room watching tv. Our daughter called so I turned the tv down. After the call, I went into the kitchen. When I came back my husband was up looking for something. I asked what and he said football and the tv. He couldn't find the tv was looking behind the door and going out into the hall. I told him to…
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First Excustion after Covid.
I took DW to the optometrist. It was sort of test run to see how she functioned. We are both fully vaccinated so she could go out no problem.Her hair is longer than it has been since 1975. She looked lovely. We had appointments and they were waiting for us. Told the optician she could not help but do his best. He adjusted…
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Cant see caregiver forum
Each time I try to see Caregiver forum I get a notice about site maintenance, dated from October! Anyone else having an issue?
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1st time using disposable undies for DH
Today is the first time that I dressed DH in disposable undies. In this case, it was the gray men's Depends I picked up several months ago. DH did not say a word about it, nor did I. I am guessing he is currently unaware of the switch. I think making the switch was harder on me than on him. Possibly because it is a real…