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Psych evaluation update
DW has been in the Behavioral Health unit for psych evaluation for 13 days now. At first they had problems with wandering, aggressive behavior and being combative. She would wander into other patients room and once became combative with the staff, kicking and punching, as it took two of them to get her out of the room.…
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Need a Break(1)
How do other caregivers deal with their DH wanting to be with you every minute all day long? Its so frustrating to not be able to go into another room without being followed. "What are you doing?" He asks. He wants me next to him all the time. Eat at the table together., take naps together, watch tv together and I feel…
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Covid deaths increase
We have an uptick in Covid deaths on a week over week basis Feb 14 1118 Feb 21 1243 Feb 15 939 Feb 22 1378 Feb 16 1811 Feb 23 2404 3 day total Feb 14-16 3868 deaths reported 3 day total Feb 21-23 5025 deaths reported This not a good trend The Super bowl was Feb 7 so any super bowl bump is still a week off. Chart below is…
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Now I know
DH had a heart attack in Nov. followed by UTI and pneumonia. I knew this all had caused a downturn but wasn’t certain of the extent. Before all this he regularly made us breakfast including fruit bowls and cheese omelets but he hasn’t tried since Nov. Today I made the fruit bowl and asked him to do the omelette because I…
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Wild imaginings (delusions & hallucinations). Roller coaster...
Oh my... We have been busy just keeping the lid on, and so far, pretty good. However, I am constantly amazed at the very odd "conversations" we have daily. I will be lucky if I don't lose my marbles before this is all over. Maybe already have. lol In the last 24 hours, DH is "going back upstairs" (doesn't exist); "did I…
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Is it wrong?(1)
Is it wrong to want to lay on the sofa and want to lay your head on a man's shoulder with his arm around you? I so crave togetherness.
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Travel in the age of Covid
"Meanwhile, Crystal Cruises became the first major cruise line to announce that they would require all crew and guests to be vaccinated when sailings resume, on both their ocean-going sailings and their river cruises. Crystal joins American Queen Steamboat Company (AQSC), Victory Cruise Lines and UK-based Saga Cruises in…
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Thanks to Crushed
Crushed, remember those masks you and your daughters came up with? I immediately ordered supplies and put a set together. They are The Best! DH uses them when working on-site. I customize mine with a paper mask (earloops removed) stapled along the top line of the mask for that extra layer, and a shaped fit at the nose.…
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Bedridden - Reality Check?
I have checked in with questions a few times and wanted to provide a summary and get some feedback and ideas as I feel this board is full of so much helpful insight. My husband has EOAD and is 56, now entering stage 7 - I think. He has declined very rapidly the 2nd half of 2020 and now early 2021. -May 2020, was still able…
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Just need to talk to my friends (140)
Morning, Time for another part of our thread, I guess. Getting a bit hard to get on the 139. It's not good, weatherwise, here this morning. All the trees and grass are covered with a thin layer of ice. I thought I heard freezing rain last night before I went to bed. I didn't wake up until 7:15 and then couldn't find my…
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what I've learned - 1
DH was first diagnosed with MCI in April 2019. I knew he had memory and judgment lapses several years back, but I couldn't get him to see a doctor. I've learned a lot from this forum and further readings. I was not so active as I felt I had nothing to add to what had been posted. I believed DH was in stage 5/6 but I…
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Incontinence(5)
Things are happening quicker than I can get to them......DW - As usual..this morning I was expecting to find one of my favorite chores....dealing with the full morning diaper..To my surprise...nothing...Dry...When the Hospice nurse came I told her, she said, give her fluids during the course of the day & evening....& see…
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Has anyone taken a caregiver course online?
I know Teepa Snow and Dr. Natalie has them, and there are likely more. Just wondering if anyone found them money well spent.
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Looking for Advice
I am 81, my wife is 80 and has had progressively worse memory and cognitive issues for 2.5 years. Otherwise, we are both in good health. I make all decisions now and she seems okay with this. So far we lead a normal life and I don't believe anyone we know senses her problems yet. We live in a large home in New England…
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Misuse of POA by stepson
My stepson convinced my 83 year old dear husband with Lewy Body Dementia to make him his Power of Attorney to give the son “ something to do.” I objected, and just found out the stepson removed me as the beneficiary on my husband’s life insurance policies, and named himself as the beneficiary. Not only that, his son also…
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Harder than I thought
Last Friday was a difficult time and broke. When LH woke up at 1am and tried to leave . I contacted police and they had an ambulance take him to the hospital. That hospital sent him to a behavioral hospital to get his meds in order. I don't know what to do because they may place him in a memory care center. 3 days later…
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Alternative to Using the term Depends
My DH was diagnosed with EOAD in September 2019. At that time, getting on to this website was a nightmare especially if he was in the same room. I believe it's because he was in denial. I would only get on after I had gotten him safely into bed. But to be perfectly honest with everyone on this site, I too was in denial to…
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2nd opinion(1)
Have an apt tmrw with our 2nd neurologist for DH. First neuro diagnosed w/o any neurocognition testing. You only get 15 mins with him. When I asked about Exelon patch he said that’s for patients who can’t remember their meds. Diagnosis dementia with behavioral. He has a lot of Parkinson’s symptoms but neuro could tell by…
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A roller coaster of emotions hit me like a train
It's just after 9 am here in the Texas Hill Country. I've been out of bed about three hours now. I've already had a wide range of emotions and feelings. * Frustration - because my DH thinks he can do things independently but he cannot. As a result, I have quite a few messes to clean up. * Anger - at myself for getting…
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I hired a new aid - and other progress this month
My partner was in his family last week. Unfortunately I had to work and couldn’t rest as I would have needed. His return at home is hard for me. It's hard to go back to the routines I don't find pleasant (supervise the shower, the dressing...), to have to watch over everything. It’s more and more hard. During this…
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Impossible
My husband is in his second memory care home. He’s broken window and locks at least three times at his newest home. He barrages me with sad, angry, pitiful, manipulative emails. He cut himself tonight on a shard of glass. I awoke just now after an hour’s sleep gasping for breath. His Alzheimer’s of twelve years is killing…
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Anger(6)
I'm fairly new to the forum and I appriciate everything people say here. There are so many things I'd like to address but for me today is the issue of anger. My husband and I have been together for over 20 years after both of us came off of bad relationships. He is 67 and I am 64 years old and work from home. We seldom…
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feeling good after a good deed
The other day, walking home from the bank, I spotted something in the road. A purse, partially buried in the snow. A quick peek revealed a COVID vaccine card for an 82 year old woman. The rest of the way home I was thinking, how am I going to find this woman? I don't think she'll be active on social media....Opening the…
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Peaceful Passing
My DH passed away peacefully last week. He was on hospice for a week. Two weeks before he died he stopped walking. Talking was hard. Stopped eating a week before death. He did not have pneumonia or a stroke. Breathing was erratic and blood pressure was low. Heart was strong to start with. The Lord carried him home February…
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O.T. does anyone else use a chromebook?
If you do, here's a link to a useful video on new features. 3 Hidden Features In Chrome OS 88 You Can Try Right Now I tried them. Very useful.
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HOW TO CHOOSE CARE FACILITY AND XLNT RESOURCE WHAT TO DO DAY OF ADMISSION AND AFTER
The Illinois information is long and truly excellent. It is a literal bible of what to do on the day of admission to a care facility and thereafter, with all the whys, and hows, and so much more. https://www.kiplinger.com/article/retirement/T027-C000-S004-how-to-choose-a-memory-care-unit.html Consumer Guides |…
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late stage 7(1)
I actually get a little jealous of anyone who describes their spouse as using actual words or doing ANYTHING. Or developed symptoms after age 60. According to my notes the last time DW used actual words was August of 2018. She lost all recognition of me by January 2019. She likes very nice personal caretaker who sees her…
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If you have someone else who can persuade compliance
My wife never wants to bathe. And this morning she refused her pills, regardless of my proven tactics. But we have a daughter who can persuade her to do what needs to be done. She calls my wife every other day to remind her to shower. No problem there. This morning I called her, and told her her mother would not take her…
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My first ever post
My DH was diagnosed 3 years ago. He is 10 years older than me. He is retired and I still work, and need to work right now as his retirement only brings SS to the household income. I am his "whipping post". If I do or say one thing, he expected it to be the other way. His short term memory is sooooo bad and he's getting…
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Lobster bib
This may be old news to many of you but I was getting tired of DH dropping food on his clothes and the floor so I ordered extra large adult bibs on Amazon. They are terry cloth and very effective. I didn’t want him to feel embarrassed so I told him it was a bib for eating lobster which we would have later. He said “ok” and…