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NY Times: When Dementia Changes a Loved One’s Personality
Link shared for 30 days. The article has many good observations such as "boredom can cause mood swings" https://www.nytimes.com/2024/10/23/well/mind/caregivers-dementia-mood-changes-management.html?ogrp=ctr&unlocked_article_code=1.Vk4.cyQb.h1Cqo3bOKJ9O&smid=url-share
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Cognitive Stimulation webinar
From Michael Ellenbogen: Reminder : Registration is open for the National Alzheimer’s and Dementia Resource Center’s next webinar on August 27, 2024 from 2:00-3:00 p.m. ET, Cognitive Stimulation Therapy Programs: Directly Supporting People Living with Dementia. Additional information about the August 27th webinar and the…
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Feeling guilty
My DH husband and I have always been open with each other and he has been tested, but has not been officially diagnosed yet with dementia but all the signs are there. I feel guilty talking to our children about him behind his back, but I feel like they need to know what’s going on. They have seen some of the signs as well,…
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I have So Many Questions..
Hi My mom was recently diagnosed with Dementia. She has visual and auditory hallucinations. She is very suspicious of people and even think everyone is trying to kill her. We moved her from independent living to assisted living and she was not happy about it at all. We had to keep her safe and get her more help because she…
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Does speech therapy
I asked about occupational therapy, I should perhaps have asked about speech therapy. DH with ALZ most noticable problem is lost words.
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Still living on their own
My father (80) was diagnosed with Alzheimer's last year. He lives in an apartment with my 82 year old mother. My father is in great shape physically but not mentally. My mother is in terrible shape physically and not so great on the mental side either. Unfortunately they do NOT qualify for much assistance as they make $100…
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Oh Hello Alzheimer's book
Just wondering if anyone has read the book by Lisa Marshall about her caregiver journey. I just finished it and have a lot of conflicting thoughts. I did not want to put the book down but then did not want to finish reading it because I knew how it would end. Even reading her experience, I looked for ways to deny that my…
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Long term care
How have you handled the transition to a care facility? Mom has intermediate ALZ, and it is starting to progress rapidly. My dad has almost died 2 or 3 times this year due to the stress of being a caregiver. Right now mom is in a COA program, I do the cooking, laundry is done by my sister or me, and my siblings and I…
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How to handle critical relatives
I have a question that I'm sure has been covered before. How do you deal with relatives who don't help with care yet are full of advice and are somewhat critical if anything happens with your loved one. More specific my mother has a UTI and on her birthday my sister and my aunt asked when am I going to place my mother in a…
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Update on how to talk to Doctor in advance of DH appointment...
Hello all. Just an update on my saga about alerting DH's doc to issues before DH's doctor appointment. My solution this time was to book an appointment for myself with the same doctor, scheduling DH for the appointment directly after mine. I am also a patient of the doc and booked my appointment for medication management -…
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Selling my Dad's car without the Title in CA
We need to sell my dad's car, now that he is in an AL/ MC facility. I have the POA, but not able to find or access the Title ("Pink Slip" as we call it in CA). Any suggestions on how to do this through the DMV?
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The simplest decision is too much
Mom may or may not have a UTI. Hospice ordered her an antibiotic. She’s been on hospice for 5 days. Due to cognitive decline. Today was another sad day for me. She called me at 11. Basically it seemed to me that she was looking to be told what to do. So I told her to get dressed and go to the AL dining hall. Lunch would be…
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Selling my Dad's car without the Title in CA
We need to sell my dad's car, now that he is in an AL/ MC facility. I have the POA, but not able to find or access the Title ("Pink Slip" as we call it in CA). Any suggestions on how to do this through the DMV?
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Echocardiogram scheduled-how to get him through it
My DH sees a cardiologist regularly. This time we had a little trouble with the EKG - when they put the stickers on his chest, he complained vehemently about how cold they were, how he was going to leave, etc. I managed to calm him down and we got through that. Next he usually gets an echocardiogram so we scheduled that…
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Bath tub conversion
Seeking comments from those who've converted the traditional bath tub to a walk in tub vs. a walk in shower. Thank you
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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Mom's MC Facility has been without a haircutting person for months
Does anybody in the Minneapolis/St. Paul area know of a mobile service or someone willing to cut hair at a MC facility? I don't know why it's so hard for them to find somebody but they've been looking for months now to fill the need since the other Stylist left.
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going without mom to Social Security for request replacement card
Dear friends, tomorrow I am going in person to the Social Security office to request a replacement Social Security card for my mom. In the process of requesting the appointment the algorithm stated I would need "medical certification" why my mom could not present herself. Also, I am my mother's power of attorney; I do have…
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Refusing help
My mother-in-law has been independant all her life. She's been dx with Alzheimers, is 87 years old and very suspicious/paranoid a majority of her life. What do we do if she starts refusing help and refuses assisted living?
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I am very sick with covid DW also infected. Help with ER visit
my DW has rapid Demetia, she is in late stage. Which is challenging enough, trying desperately to get some respite relief which I have been granted 12 hours a mont( which are now cancelled due to the Fact, we both now have Covid… DW doesn’t have the severity of symptoms as I do. I am trying to get to the hospital ASAP for…
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I just miss my mom
I am going to be 36 tomorrow, and my mom has been in memory care for about 6 days. I am a little devastated because I miss her. It is also devastating because she didn't sleep at all the first 4 or 5 days in memory care and when I went to visit her she looked HORRIBLE. Her face looked drastically different and it looked…
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diagnosis meaning?
My husband was diagnosed with Mild Cognitive Impairment secondary to Early Onset Alzheimers. I am unsure if that means he has Early Onset Alzheimer's and if I should apply for SSDI under the Compassionate Allowance, or if he is Mild Cognitive Impaired.
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Caregiver of DW 24/7 for almost 2 years w
The most amazing perfect woman has Severe Rapid Dementia, diagnosed officially September 2024. When we bot( refuted early from our careers, we owned businesses together, so being together has been wonderful… well, until truly these last 6-8 months. I stepped down for. My latest BUSIENSS as CEO, June of 2023. After noticing…
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new
Hi, I thought I sent a message but I don't know how to see it. After I post this will I be able to easily see the responses? My sister was diagnosed with Alzheimer's/Dementia last June after a PET scan. We finally have the follow-up appointment with her doctor Nov 7th. How does the doctor determine what stage/level my…
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Disposable Underwear who are NOT incontinent but leave 'skid marks'
Have any of you found a disposable pull-up underwear for a females (dementia elders) who are NOT incontinent but who leave 'fecal skid marks' due to memory decline? This female elder doesn't remember if she wiped or not. She also doesn't see well nor has the dexterity to remove all debris. Incontinence pullups are slightly…
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Any experience with Rexulti?
DH has been getting more delusional and agitated. Doc suggested a switch from olanzapine to rexulti. Wondered if there is any experience with rexulti out there. I know every PWD is different but would still like to hear about experiences with this med. Also what dose at what time of day? Doc suggested a cutback reducing…
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When does PWD stop voting?
I have seen previous discussions of spouses assisting in varying capacities (sometimes total, wink wink) with early/mail-in voting process. In my state it clearly says POA is not permitted to vote for someone else and I respect that. I have a gentle conversation with DW and she can answer yes/no questions like do you want…
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Day care for Alzheimer’s mom
I live in Corona Ca, I take care of my mom in stage 5/6 Alzheimer’s. I’m trying to find a place to take my mom for the day to socialize and do fun activities but I haven’t found anything in the internet. Maybe someone knows a place? Thank you