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DH’s Geri psych retiring. Thoughts?
in a way, I’m glad Geri psych is retiring in a way. DH really likes him. He first got involved when DH had sort of a breakdown when his symptom started to surface and he became extremely depressed about 7 yrs ago. As his dementia advanced we stuck with him but I never had a lot of confidence in him and his ability to treat…
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Is there life after this
it’s early morning. DH is still sleeping so this is my precious quiet alone time. I sit here in the dark and pray. My prayers have changed and it makes me feel sad and guilty. I used to pray for my DH not to get any worse but now he’s in stage 6 Alzheimer’s and I just pray that once we are done with this terrible journey…
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Nervous about SS interview... tired of waiting...
Good Morning! I'm a nervous wreck today. I have a phone interview with SSDI in two hours and I have no idea what to expect because I visited their office in person (waited an hour) and called their 1-800 # (waited an hour and fifteen minutes) to find out how the process works and to get clarification on how to fill out…
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Question on Lequembi qualifications?
I just got an answer regarding my DW starting Lequembi. I was told that her MOCA score (15) was too low to qualify. She still does her ADL’s without help and most of the time I’m thinking she’s great. Is this “cut off” a Medicare thing? I was disappointed but wasn’t sure if I could have convinced her to submit to the…
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On the advice of my therapist
I have a habit of minimizing or stuffing down feelings and emotions. My therapist has given me the assignment of telling someone about something I am struggling with. Not to look for a solution but as a way to validate the experience. And so… I have a great deal of resentment and a feeling of loss of self. DH was diagnosed…
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Incontinence question
Hubby and I are hikers. Every day we hike for 3-4 miles. It’s so good for both of us, but he’s had two instances recently where he lost bowel control. He knows he has to go but can’t make it home. It happened today and we made it home but he went in his pants and it got on the carpet. Afterwards he told me he has a lump…
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Inner Dialogue
I would like to share something with the group I learned in sports that I am using to cope with my wife's challenges. In sports your inner dialogue has a lot to do with your outcome. If you say internally "I hope I don't hit the ball into the water." That is exactly where the ball will go. If you say "Hit this ball to that…
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ReCODE protocol
My primary care physician has recommended the book "The End Of Alzheimer's", Dale Bredesen, MD. I am interested in pursuing this non-traditional approach to peerhaps reversing Alzheimer's. Has anyone out there had experience with it?
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Just need to vent
After more than six months two doctor recommendations and a letter of incompetence I have finally convinced my brother it time to move mom to AL. She lives with him and is home alone while he is at work. I have the DPOA but it’s hard to do things without my brother on board when he lives with her. My SIL was the DPOA for…
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Getting The POA Enacted
Hi, I just wanted to know if anyone has had the POA enacted and what that process looks like if you're already the POA. My grandmother is getting worse, but she might not want to go to a care facility at the end of this year. I let her doctor know I'm the POA and I'd like to get it enacted in case we have to put her in a…
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Redirecting conversations over the phone with mom with dementia/Alz
My mom is in a memory care facility 3 hours away from me. Often, we have very pleasant conversations over the phone. Recently, she has been saying she is trying to call her mom/dad to pick her up and take her home (they have been deceased several decades). When I try to redirect, she will get extremely upset and repeat,…
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Today is a bad day and I just need to talk
My DH is adjusting well to the new MC and they say he is sleeping well. I've visited once in two weeks, and called him most days. He knows who I am and says that he misses me. I'm able to tell him how much I love and miss him too. Until today. I came down with Covid two days ago and my voice is horrible. I called yesterday…
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So done with Donepezil
Sorry for another poop topic but I just need some suggestions and maybe a pep talk. Mom has been on 5mg donepezil (generic name) since maybe May, possibly April. A little after she started taking it, she started having diarrhea and not making it to the bathroom in time with other loose BM. At the time, she was also eating…
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55-year-old DH with early onset: Reasonable cost of CELA? Disability Attorney?
Hello, As I try to research and advocate for my husband and family, I am wading through an overwhelming number of details. We finally have an appointment with a CELA in 3 days and she charges a flat rate (rather than hourly), so that her clients will feel free to call with questions anytime and so she can be available to…
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I just paid the deposit . . .
. . . on a MC apartment. Starting this process has cheered me up, even as it also fills me with dread, of the transition, the understanding that it will not be a thorough solution, of being lonely. But for now, I am hanging on to the optimism. Tyrone
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my DW is bored
My highly educated DW is bored. She has MCI, so her memory retention is a couple of minutes at best. Normal activities that would engage someone are beyond her: she can't read a book or newspaper, because she retains nothing. The same is true for watching TV programs or movies that involve somewhat complicated plots. I try…
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My DW & Hospice Education
Today, my DW of 25 years was released from the ravages of of this evil disease (+ cancer) and is, truly, in a better place. I was lucky enough to be by her side, holding her hand, when she passed. And I might have been alarmed at the changes she underwent, if not for having learned about the signs and sounds and changes…
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Suggestions are appreciated
My Dad has Alzheimer’s and my mom has just been diagnosed with Stage 4 cancer.she has been feeling ok until last week and is in hospital now. My Dad always wants to be with my Mom(agreat love story), but he is quite advanced. I have brought him to see her the past two days but yesterday was such a bad day for him,and I’m…
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Transitions into Memory Care..
Transitions are hard. Change is hard. Especially when there are enough thoughtful moments interwoven in the confusion….
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I’m 19 and don’t know what to do
My dad is 68 and was diagnosed with Alzheimer’s about a month ago. this was not a surprise, I started encouraging my mom to talk to him over a year ago but it still feels real all of a sudden. I see him a couple times a week and each time he’s losing more of himself and I just don’t know what to do to support him and my…
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Gut Health
I am curious if anyone has researched impact of gut health on cognition or has anyone tried a diet that has shown any benefits
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Stop visits with neurologist
Hello! I am wondering how others handle simplifying visits to doctors. My dad has Alzheimer’s and, while I can take him to local doctors, going out of the county to see specialists is not easy. He broke his neck last summer two different times and is following up with the neurosurgeon virtually. Our local hospital sends…
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Last will and testament
My mother was diagnosed with Alzheimers about 5 years ago. It has been a challenging 5 years. She is now in Memory Care and seems to have lost most of her memory. She is clearly not able to make any legal decisions on her own. About 12 years ago, she made a will. She was most likely of sound mind at that time. In her will,…
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New drained and confused.
My mom is 84 and moderate stage.i am an only child and she move into our home nearly a year ago. I have severe anxiety over her diagnosis. Some days you can't even see symptoms and other days whew! Obvious noticeable. So some days I think diagnosis is wrong and other days I know. It's a heck of a Rollercoaster. It's so…
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good options for in home care
My mom is in the advanced stages of vascular dementia and needs full time care. My sister was living with her as her daily care giver but she is now in the hospital with cancer. I’m staying with mom now but need help caring for her so I have time to work and take care of my own home. Facilities are too expensive and she…
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End-of-Life options for 55 Year Old husband with early onset? Legal planning.
Hello, My 55yo husband is in the early stages of early-onset Alzheimer's. We have three children, a 21yo daughter with autism who cannot live independently and is not able to work, an 18yo son who is about to graduate HS and head overseas for a year-long travel before heading to college, and an 11yo daughter who will begin…
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Time for outside help but what kind?
My mom has dementia & is 95. She was diagnosed 3 years ago & moved in with me & my sister. I am not new to caregiving, my husband was chronically ill for 10 years & the last 2 in a hospital bed in our living room. We have always thought ourselves blessed that we both are able to work from home & care for her. My sister…
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I’m at an impasse
I am extremely frustrated! My dad refuses to comply with the doctor’s referral to see a neurologist. He’s taking memantine, which is for dementia and is in denial. My brother and sister have their own families and issues. I’m the one that’s closest geographically to my parents, so it all has fallen on my lap. However,…
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Suspected Alzheimer’s/dementia
My mom is 57. She is forgetting the answers to questions five minutes after they’re answered and forgetting what store we bought something at when we were there the day before. She didn’t remember making a decision about travel plans until I reminded her of the decision and told her why. She feels like it’s nothing. I’m…
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Mother's Day was hard
Celebrating any holiday, birthday, or significant life event has become so hard since DW has been diagnosed with VD, psychosis, and AFIB. It's hard to see her living in a reality that seems to torture her with fear, anger, and sadness brought on by memory struggles and delusions. I feel so powerless to help and because in…