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Let me whine.
Seriously feeling sorry for myself today. Please understand I love DH. What he's going through is worse than what I am. BUT… I'm still feeling sorry for myself. This disease goes on FOREVER. Symptoms first showed up 16+ years ago. When I was barely into my 40s (DH was about 45) and still a stay at home mom. I went back to…
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Update on Mom in AL
It has now been about 2 months since she has been in AL, and 10 weeks since she broke her wrist. The bones are officially healing. She asks almost every visit when she will move back to IL. She is playing bridge once a week (kudos to the rec director who started it as an official activity - after a few weeks it whittled…
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New here
My mom was diagnosed just this year. I think she's in the early stages of Alzheimer's. But seems to be progressing unfortunately! My brother and I are the only children from my parents. My dad is the primary caretaker for my mom considering they live together. My brother lives next door and I live an hour away. My brother…
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Managing Work and Caregiving
I am struggling with how to juggle both a full time job and caregiving. My DH was dignosed with Alzheimer's at 60…4 years later and I am thinking it is time to leave work and stay home full time with him as I am worried about his recent decline. Also, thinking I need to sell our home to fund his care…so much anxiety over…
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Methazolamide
Has anyone tried Methazolamide yet and has any experience to share?
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Introduction- looking for advice
Hello everyone - I am new to this forum and wanted to introduce myself. I have been married to my DH for 28 years and have recently become very concerned about him. I feel that he may have some form of dementia - but it has not yet been diagnosed. He blames his symptoms on stress at work, but I disagree. I feel the stress…
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Medicare Discharge,observation status & representative status: advise & help video
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Psych Hospitals, Confidentiality, and Need for Legal Guardianship?
Writing this in part to help others prepare and understand the situations you can end up in due to lack of preparation. Also, to ask for advice. My parent was admitted to a (very well known) psych hosp. They were transferred from another area hospital. I have been their sole caretaker for the last eight months. I took my…
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DPOA
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Narcissists , before & after dementia ...
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Dad continues to be ready to move out of MC plus staffing changes
Hi Community, Dad continues to talk about moving out. The difference I see now is that he is not only packing up and talking about it like before. Now he puts his jacket on and starts carrying his things to the MC door. The time it was most escalated a staff member was able to redirect him into his room to show her the…
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The other shoe has dropped
Well the inevitable happened this afternoon, she took another bad fall and has a spiral fracture of her right proximal humerus (dominant arm of course). We are in the ER and awaiting transfer to inpatient hospice, this is going to require a morphine drip and pray that it’s quick from here. There won’t be any coming back…
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Who else just misses their (still-living) parent?
I miss my dad. I miss being able to call him just to talk about whatever is on the top of my mind at that moment, or ask his opinion about something — anything. But especially being able to ask for his advice about life or what to do while trying to navigate this world. I miss his wisdom from a long life of experience,…
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Get me through this day!
Just venting here: The windows in our home are over 40 years old. The seals are broken on some, and others actually whistle from the draft. So after much procrastination, I decided to have them replaced. I figured they would send a couple of guys, and they would make their way through the house one room at a time and I…
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Not liking my feelings
Losing my empathy. I’m finding everything my DH does is irritating me! I can’t stand him not showering, wearing the same clothes for days on end - even sleeping in them, his constant watching my every move, lack of help with the smallest of tasks. He won’t go out unless he’s with me to provide entertainment. I actually…
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FAST Scale and info sheet
@harshedbuzz shared this link on a different discussion. I’m bringing the link here to discuss the info sheet about the FAST scale. https://alzconnected.org/home/leaving?allowTrusted=1&target=https%3A%2F%2Fmccare.com%2Fpdf%2Ffast.pdf We’ve always said that a PWD can skip stages or have symptoms from different stages at the…
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Just sad! Rant.
I am sad just plain sad. 10 years into this disease with my DH. No real end in sight. Days become weeks, week become years and the beat goes on! My DH is progressing toward his transition and I am wondering what the heck is next for me. Today is rough. I can't stop crying. I just want to turn back the clock. The past…
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Should I share my own surgery recovery with my LO that is in assisted living?
I have been caregiving for my mom for 4 years, moved her to assisted-living two months ago. I was consistently visiting her 4 to 5 times a week to assure her she is still loved and we are not abandoning her. She has vascular dementia and is resistant to much care so she doesn’t let the assisted-living staff do hardly…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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another memory care question
I've been looking at memory care facilities, most of which are owned by corporations, but a few are privately owned. (I'm not looking at the ten person homes yet—he needs more stimulation than they offer). I check my state health department website for complaints and citations for each one I visit. What I have found is…
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10 ways to help caregivers
In no particular order. All of these apply whether the PWD is at home or in a facility. Ask about the PWD. And listen. Ask the caregiver how they are doing. And listen. Give the caregiver flowers, chocolate or wine. Send the caregiver a nice or funny card to tell them how much they’re appreciated. More than once. Offer to…
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Vascular Dementia(10)
My DH was recently diagnosed with vascular dementia. He is currently exhibiting memory problems, confusion, frustration/aggravation. For example, he will ask me 4-5 times a day what we are having for dinner - even though he took it out. He asks the day of the week, the month even though he can look for it on his…
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For Older Unmarried Couples, Caregiving Obligations Can Be Murky
Gifted link from the NYT. An article about caregiving issues specific to older unmarried couples. https://www.nytimes.com/2024/11/10/health/elderly-unmarried-couples-caregiving.html?unlocked_article_code=1.ZE4.JvyT.QUUSabGS4hNM&smid=url-share
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Donepezil and Memantine-Extreme Side Effects
Hello Everyone! This is time on the site. My DH was officially diagnosed with VD about eight months ago. But because my mom also had dementia, I knew three years ago that something was wrong. His doctor didn't listen to me, and not until he had three mini strokes, and carotid artery operated on did anyone start listening…
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Formication
Is formication a symptom of Alzheimer’s, I have mixed dementia and I seem to get this sensation quite often.
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Increased Zoloft from 50 mg to 100mg
Thinking of increasing my DH Zoloft to 100. At times I see more anxiety in him. I am a little hesitant bc I don’t want to overdo the medication. Can anyone tell me if they see improvement after increased, or side effects?
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Mom with VD in final stage need advice
Hello, I've connected with others in the past here and have always appreciated the support and thoughts/suggestions from others. Mom has VD likely mixed with Alzheimers. 2.5 yrs since diagnosis. Likely had mild stage for a year prior. I am an only child. I placed Mom in a MC assisted living facility when it was obvious she…
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I'm almost as overwhelmed as my mom
New to this site but my mother was diagnosed and placed for her safety into assisted living nearly a year ago. Lots Of logistics issues but I wont go into all of that in my first note. A month ago, she had a fall, ended up in hospital with covid, pneumonia, pulmonary embolism and, since going into hospital, delirium… Cant…