-
New controversy with Donanemab (marketed in the US as Kisunla)
Donanemab: Conflicts of interest found in FDA committee that approved new Alzheimer’s drug
-
fists and toes clenched
My DH has been home with me for two months after being in memory care for six months. He has started clenching his fists and toes, and he is amazingly strong. He will hold on to blankets when we are trying to get him out of bed, and it takes two of us to get his hands free. Does anyone else have this problem or a solution…
-
Attention moderators: can you please help us with this darn popup?
could you update us about when this cookies pop up will be fixed? Very very irritating. We flagged it yesterday….
-
how to have a discussion
My husband gets $75 every 2 weeks for groceries from rent we take in. I was helping him get groceries to last that time and he was doing good. then I stopped checking because I thought he got it, he didn't. if he didn't get meals on wheels he would be in trouble. so, I got advice to make meals ahead of time and freeze…
-
Help!
I DH has been in the hospital 3 weeks due to COVID and pneumonia. He has recovered medically, but the COVID has advanced the Alz and they are keeping him to get his agitation under control. His agitation has greatly improved but now he just wants to go home. It is all I hear when I visit and he is constantly badgering the…
-
Vasovagal Syncope
My wife has stage 4, early 5 Alzheimer's. She's had 3 fainting spells in the last 3 months. Bloodwork, MRI's, Echocardiograms, Holter monitors, medication changes have found no cause. The most recent ER doctor theorized that it's vasovagal syncope brought on by her damaged brain trying to deal with the stress and confusion…
-
Illusion, hallucination or delusion?
Every night lately, my DH asks me questions like, "where is everyone else", or "where is the little girl", or "where is the dog"? I understand the dog question, because our dog died after us having him for 10 1/2 years, but the other questions confuse me. There are just the two of us living in this house. Sometimes he asks…
-
And so it ends...
Joy passed on Sept 22 after fighting a broken hip and a broken mind. Several years ago our mom left and we had the wonderful opportunity to care for a delightful elderly woman. As Joy's journey was ending, our mom came back and we embraced in her return.…
-
H
-
Newly diagnosed early onset alzheimers
Hi I’m new here…so my 62 yo husband was diagnosed w early onset Alzheimer’s within the last year. MRI was normal but the “tests” done in the doctors office showed it. So I’m just watching and trying to figure out it he has it. Question, he has always worn his hair short and now he is letting it grow! Besides looking…
-
Information in case of emergency
DH has ALZ. I read somewhere about posting info on 'fridge in case of emergency for emergency personnel to find. How much info is enough and how much is too much? Emergency contacts, doctors, diagnosises, allergies, insurance, doctors… is this too much? Not enough?.
-
Legal
Husband with dementia lost all the money in Fidelity. I was never contacted.Do I have any recourse?
-
The Estate Sale
Before mom was diagnosed her living situation was not good. Her granddaughter and her three kids lived with her a took advantage of her. Mom was overwhelmed by the mess an unable to cope. To clean the house she would get a box and dump everything from the coffee tables and really every surface into the box. Then stuff the…
-
The slow goodbye to my hero
Not sure where to begin or if this forum will be helpful, but I've got to try. New here, my dad was diagnosed with early onset Alzheimers about a year and a half ago. He was forced into early retirement as the job became too much. Watching my dad, who's way to young, slowly get worse is the hardest thing ever. I've been…
-
Dementia and Muscle Weakness
My mom has been diagnosed with Dementia / Alzheimer's for about 2 years now. This past year i have been staying at my parents house as the adls for my mom are getting more difficult for my dad to care for her alone. We would like to keep her in her home as long as we are able to still care for her.💓 My mom's left side of…
-
Sometimes you gotta laugh...
Aha! Been trying to figure out why I get so caught up in HDW's conversations in the late afternoons. As I explained to my stepson, dad's disease is not bad memory (from which he always suffered) but it's brain processing. We are huge sports fans. Today is NFL Sunday. Except that today all of the teams playing at noon…
-
What is the importance of annual doctor visit?
My DW was diagnosed three years ago and is still in the mild stage but clearly some progression. She also has anosognosia. Our memory care unit recommends an annual evaluation. My questions is, why? The diagnosis hasn't changed and she's still doing pretty well. I worry that the appointments will upset her and don't see…
-
New to the group-Understanding LOs hallucinations
Good afternoon-My name is Jennifer, I am new here. Within the past year, my moms behavior has changed significantly. Hallucinations are becoming more common. I have read a decent amount about this and have determined that supporting and going along with the the situation is best method? I have two sisters, so, this is all…
-
Falls
Today is the first day of fall. This is a good time to review fall awareness and fall prevention. Falls can be deadly in older adults, even in those without dementia. Iris
-
Cela lawyer
Can anyone recommend a good relationship lawyer. I am in Mahopac ny
-
DNA testing for kids
My DH was diagnosed with Alzheimer's five years ago (at 70) but had symptoms for at least 5 years before that. Both of his parents died at 60, so we don't know what might have happened had they lived longer. His brother had his DNA tested and had two copies of the 'bad' APOE gene and recently tested positive for…
-
Mother in law
Hi, new to this. My mother in law is 85 and is fit as a fiddle sharp in mind etc up until end of summer, she’s lost a lot of weight, her personality has changed so much, she’s very stressed and anxious about things that would definitely not have affected her previously. She’s loosing interest in going out to socialise l,…
-
Need help
My treasure of an MIL has middle stage Alzheimer’s & lives at home with my FIL. They argue constantly, he is miserable, but he knows she needs more help than he can give. There was an incident & she ran to her neighbor’s home (through the woods) in her nightgown. We are not sure what exactly happened. She was taken to an…
-
Hello
....
-
Today I feel ... unstuck
I've been feeling pretty stuck—I am doing an OK job with caregiving and surviving, but the future looks bleak for me financially and I am bored, frustrated, and lonely in the present. Rather than continue to feel so many negative emotions I started exploring possibilities for change after reading this from Maya Angelou:…
-
Doctor ordered MRI but she probably can't stay still. Is it worth it to try?
Hello, This is in Pennsylvania. My mother-in-law is 83, living with us, certainly has some kind of dementia, but we don't have a specific diagnosis. Her primary care doctor ordered an MRI to help us get a diagnosis. I told the doctor that MIL has a habit or tic of snorting and sniffling. It is almost constant. I am sure…
-
DH now stage 6
my DH is now stage six. I’m exhausted physically and mentally. He hallucinates, delusional, wanders, paranoid, agitated and confused. The speech is so bad. He can say a word and make a somewhat sentence but cannot put two sentences together to make a thought. He sometimes thinks his children are small. He asked me to tell…
-
Alzheimer's homebound status
Am I correct here? Medicaid pays for 35 hours of home care for people who are homebound and people with Alzheimer's who are a wandering risk are considered homebound. Please correct me if you think I've misinterpreted this. Here are my references: From Google AI: Yes, wandering can qualify for Medicaid homebound if it…
-
Help - Decisions and Options: Any advice/suggestions are appreciated
My DH was admitted on Sept. 2 with COVID. He is off of isolation and want to transfer him out of the hospital. They have been unable to come up with the right meds to calm his anxiety (he constantly wants to get out of bed because he thinks he has to urinate, but he doesn't). He has been checked for a UTI. They have had…
-
UTI or Just a Progression of the Disease.
My DH has been sleeping almost around the clock for the last 3 days and eats only small amounts of food when hand feed. He will walk with assistance but very slowly. He does not appear to be pain. This new behavior came on suddenly. He was walking unassisted, feeding himself and sleeping maybe 8-10 hrs a day prior to the…