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Decisions have to be made…
I finally got the official paperwork with the diagnosis with my father’s dementia being official. He has signed Medical POA, and Durable POA. He probably won’t remember any of it, despite it being notarized and all. Adult Protection Services along with the doctor says he is fully capable of making his own decisions. He…
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HOLIDAY TRAVELING
This Memorial Day my wife and I are going to Poland Springs in Poland Maine for the weekend for the first time since my diagnosis, I hope that I do no act up. The doctor gave me 2 new meds to help slow down the progression of my ALZ. They seem to be helping it is now rare for me to feel like that the walls are closing in…
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Newly diagnosed AD in DH
Early stage AD, we're told. He's still functional but it's been obvious something wasn't right because he would complain about not being able to focus on his newspaper. If he loses that and driving he will be difficult. I finally got him to the primary and then testing last fall. We finally got a PET scan last month and…
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Lamotrigine
My mom was put on lamotrigine for her anger. Does anyone have any experience with it? It is not something I have seen discussed here before.
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First post - Feeling abandoned by siblings
For the past 3 years I have basically been the sole caregiver for my mom with Alzheimer’s. She is currently living alone at home. I expect she will be moving into memory care in the near future. At the start my brother and sister gave excuses why they couldn’t help—no time, can’t handle, lived 15 miles away while I live…
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At what point do you consider MC
Is there any right time or stage to consider MC for your spouse? Cost is not a consideration in this case. But when is your LO better off in a structured environment than dealing with caretakers that she can't stand?
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Big Ol' pile of .....
YUP, you guessed it poop!!!! This week's new thing started. As of Monday morning my bf (44yo eosa) has been having an issue with just his first of the morning bathroom duties. Today is my day off and I was so excited to get to sleep in ... haha at 6am I woke to him in the bathroom. (In my head ... SWEET HE DID IT!!) Then I…
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Wondering if I'm a trigger for my DW at MC
I try to visit my DW every day or every other day at her MC. She's always glad to see me and I her but it's always so difficult when I leave. She either wants me to stay with her or go with me and she gets hurt and upset when I tell her I have to leave now. She still cries telling me "I just want to go home!" I think she…
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Driving Battles Continue
@kimeche …I can relate and unfortunately it is extremely dangerous for him to drive and we as caregivers are held responsible for their actions, not to mention the unbearable burden of guilt you’d have if he killed somebody. I’m sorry, I am in the same exact spot.💜 And now my rant for the day—My DH got a letter from the…
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Adult Day Care
Does anyone have experience with the Embassy Forest Hills Center in Columbus, OH? I need to find some day care for my wife who has dementia, and want some personal recommendations. Thank you.
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Needing guidance
Still at the beginning of this journey ( well officially at least). DH 57 with EOAD confirmed via PET scan. He has his neuropsyche evaluation in June. We had a trust, advance directives, durable POA drawn up several years ago ( before everything). I called a CELA to have it looked over and make sure everything was in line.…
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Help
My wife was diagnosed with Alzheimer's in March 2023. I can see she is slowly declining...I'm the only caregiver right now and also work a very stressful full-time job. I'm worried about getting to a point where she will need constant care. I absolutely have no idea what to do...I've heard nightmare stories that we'll go…
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Pool Safety?
I’m new here and this is my first post.. my mother (67) is a few years into Alzheimer’s and still living at home with my father who is her primary caregiver. I am about a 10 minute drive away, often busy with my kids (6 and 3), but I spend time with mom a few days a week to give my dad some down time. Mom is left alone…
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increased weakness
88 year old mom, at home with me, stage 6… She is at the point where I'll need a transport chair soon. Struggling to stand and walk. Rallies a bit for PT, but presents weaker for me when no one is here. PT is going to come a couple times a week and wants her to do exercises again. My question is this…when does PT become…
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Calling all doctors
DH’s behavior, both at home and at day care, has become more challenging lately, so I contacted his neurologist to request a medication adjustment. He has been on citalopram for a year, currently at 15 mg/day. He also takes 10 mg of donepezil (Aricept) daily. The doctor’s NP said that because of the possible effect of…
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Obsessed with driving and threatens self harm
Could use advice how to maneuver through telling the dementia person they can’t drive after Dr has already told them they couldn’t, license has been suspended months ago.. should we live in his world and play along with him buying a car or should we continue telling him he doesn’t have a license and can’t drive? When you…
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Will Robotics and AI Be the Future of Elder Care?
https://www.elderlawanswers.com/will-robotics-and-ai-be-the-future-of-elder-care-19713
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Lithium and Trazodone
DH is currently on trazodone 50mg at night for sleep. He has been dealing w a significant infection in his ear and now jaw for the past several months which has created more (understandable) anger and irritation than is his normal daily snarls and growls. Infectious disease doctor yesterday recommended antidepressants…
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How to truly block spam phone calls
My father has dementia and is eager to talk to every telemarketer. This has the phone ringing dozens of times a day, with him wasting lots of time talking to people selling services he doesn't need. Worse, the caller is sometimes a scammer, and Dad is gullible enough that he's given away his credit card and other sensitive…
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hospice
My dad is in memory care. I'm not sure the stage. He is totally incontinent but eats well, will answer a basic question if its a few words but does have "word salad" when he tries to say more than a few words. He usually only remembers his mom and dad and thinks they are still alive. My questions….since he is in memory…
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The "shake", part 2
For those who were entertained by my "moment of humor" post on April 9, here is the sequel. I visited mom today and handed her another Glucerna shake, strawberry this time. She sipped away on it till it was about 3/4 gone. Then she turned the bottle so that the label faced me. She pointed at the word "Shake", smiled slyly,…
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Fiblets or Truth Telling & Distraction Techniques?
Hi, I was a frequent reader of these discussions a few years ago but found a smaller group that felt a little closer. They have ended the Kinto app/group and so I return here. When I first started reading, I heard a lot about “fiblets” or the little lies that people tell to their person to avoid confrontation or agitation.…
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Dark humor
I’m tired so maybe that’s why the thought came to me that I’m finally a mother. DH and I were never blessed with kids. Now, I’ve become a parent! I realized this when MIL called for me at 3 AM. She couldn’t tell me why she’d called. I asked if she needed to go to the bathroom and she agreed. We went and after she was…
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Another good day
Consider this a continuation of something I posted in April. I wanted to update on how the not driving is going. It's now been about 2 months since DB last drove. YB has been having issues with a car repair and DB has leant him his car. The fix has been slow for a number of reasons, and DB is getting anxious. I got a call…
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ALSP support group
My mom was DX with ALSP it’s a rare/genetic for of Alzheimer.. I was wondering if there was any type of support groups even virtual support groups that anybody has or has gone through that could help me. I love to join a support group, but I don’t know where to start, Can guide me?
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Update on husband and hospice
My husband has been on hospice care for about a month and a half. I definitely didn't think he was ready and was truly surprised when he was approved. I've been blown away by the level of care. His nurse comes weekly and is so good with him. The CNA showers him twice weekly. The social worker, chaplain, and music therapist…
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The move to AL
We moved mom from my brothers house to AL Sunday. He let her do all the packing, which wasn’t much. Using the suggested packing list from the facility (very basic, toilet paper, hand soap..) he had mom pick out everything she thought she would need at the store. Based on that you can probably imagine how it went. I got to…
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Anxiety Medications for Alzheimer's Patient
My wife (76) is at an advanced stage of Alzheimer's. She suffers from extreme anxiety and yet no medication seems to help. So, my question is: Is there a stage in the progression of Alzheimer's at which no anxiety medication is effective?
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Mom's Alzheimers and wanting to go home
My mom is 77 and was diagnosed almost 3 years ago with Alzheimers. She has been steadily declining the past three years. She was born in Romania; and has been in the country for 50+ years. She keeps saying she wants to go home; I tell her she is home and she says this is not her home. I tell her we cannot travel because…
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Referral for CELA s
it is so difficult to choose a good elder care attorney. It is like taking shots in the dark. . Does anyone have a recommendation for Wisconsin or Indiana? So appreciate it.