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Reposting for Oldestdaughter2023
Welcome to the forum. Your post landed in an administrative post that admin forgot to close. I am reposting it for you. To make a new post click on the orange button with a white cross a bottom of screen and then click again on the box it will show above the button. New to this site and dealing with my mom’s symptoms…
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Financial Assistant for Moms Caregiver
Good morning. I have been caregiving for my mom with Early Onset Alzheimers for the past year. Unfortunately, her care needs are far greater than I feel comfortable caring for and honestly I am just burnt out. My family is looking for some kind of care for her, whether it’s a daycare facility, nurse at home, etc. My mom…
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Caregiving advice
Hello , My husband and I are at the beginning stages of caregiving for my mother in law . She lives with her husband . We work full time . My husband gives her meds in the morning and night . We took her keys . She has stopped washing her hair and does not change her clothes as much as before . She needs help washing hair…
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Appropriate cost for Home Health Aide
The quote I received for a home care assistant seems quite high compared to what research led me to expect, but I understand internet research may be misleading. I was quoted $650 per week, for three days per week, six hours per day. State is New Jersey. Does this roughly agree with others experience?
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Stubbornness has double down!
My 75 year old father has vascular dementia. He lives on a farm with my elderly mother and has taken care of things around the house his whole life. His stubbornness has gotten worse as his dementia has progressed. He refuses to give up the keys to his tractor or to stop using chainsaws and other dangerous tools. I've…
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Handling mom's delusions
My 85 year old mom has moderate dementia. For the past year she has had this delusion that her husband of 60 plus years is not her husband, her husband (with the same unusual name) is missing and she regularly asks us to try to find him and at times cries about him not being there. Obviously this bothers my dad even though…
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Is it Dementia or her life-long scheming?
My mother is 95 and has dementia. Fortunately, she lived in an Assisted Living Group home, but not one that specializes in Memory Care. I am currently working with my mother’s physician to get medication (Seroquel) dialed in. Her dementia is not the main cause of my aggravation. She has several negative personality traits…
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Need help understanding
Hello I'm new to this. I'm actually heading to Germany next week to help with my mom who has been diagnosed with dementia. This is something new to me and with the language barrier over there ( with doctors) lm a bit concerned. Was hoping maybe I could get some input as to what questions should I be asking. I video chatted…
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How do you know when it's time to move parent into Assisted Living?
My mother lives in another state with her partner of over 30 years and has early to mid-stage dementia. Her partner has expressed that he can't take caring for anymore (and is often angry with her and also has severe anxiety and depression) but when I suggest that I can move her down to assisted living in FL to be near me…
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memory care or skilled nursing
My mom is 93 and has advanced Alzheimers. She has gone downhill steadily since my dad died 5 years ago, from walking 5 miles a day as precinct captain to not being able to get out of bed for the past week without a lot of encouragement and help from me. I have been taking care of her at her home for much of the past two…
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Frustrated
I live 3 hours away so I visit my mom once a month. My sister and aunt insisted my mom live by/with them. However, they still have an expectation that my mom can care for herself. My mom does function in some ways at a fairly good level but doesn’t shower, put on clean clothes, or consistently take her meds. I used to be a…
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Long tiring disease
My Dad has been diagnosed with Alzheimer’s since January 2021. He is on memantine and seroquel. My mom is his primary caregiver. I come to my parents house every day to help because he can be exhausting. The pacing, the accusations of cheating or stealing money. He also doesn’t want my mom to go anywhere, he almost…
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I feel like I'm the only one who feels this way...
I feel like my mom is already gone. She still knows me and she can have a conversation, but her short term memory is gone. In a 5 minute time period she will say the same thing or ask the same question 5 or more times. She insists I never call but I call every day. When I visit, I will talk to her the next day and she will…
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Education for Health Care Workers
Hi. My Dad has ALZ dementia, my mom had dementia associated with Parkinson's before her death in 2020. My husband and I are still working full time as do our adult children. Two years ago I had to have my dad placed in assisted living. Recently he had a fall and fractured his arm. I accompanied him to the ER. We have never…
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Vanderbilt University Medical Center research survey available through 6/1/2023
Vanderbilt University Medical Center is conducting research on how to leverage collective knowledge and interactions in online platforms, such as Reddit, ALZConnected, and Facebook to assist informal caregivers for people living with Alzheimer’s disease or other dementias (ADRD). Informal ADRD caregivers refer to those…
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Symptoms of alz
So I messaged my mom’s neurologist yesterday regarding the following issues. Which what I have read are common symptoms of alz. I haven’t been thrilled with her dr since first meeting her but took 4 months to see her. Anyways, thoughts of my moms symptoms and the drs response…. I wrote this to neurologist: Hi! Over the…
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Recently moved mom in
For safety reasons, I moved my 76 year old mom with stage ~4-5 Alzheimer's in with our family 4 months ago. The constant repeating is mind boggling. How do you learn to answer over and over without flipping out? If I even change the tone of my voice, my mom cries and shuts down then I feel terrible. This lady talks non…
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What are your thoughts about the new website?
There are already a few threads on this topic, but not on all the forums. What do you like about the new website? What don't you like about the new website? How can it be improved? Even though, it is after the fact, it it good for the Alzheimer's Association to get feedback both positive and negative so that perhaps more…
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How do I make the decision to move my Mom?
We just moved my 82yr. old Mother in with my husband and I knowing that she has stage 4-5 dementia. I should have done my research prior to the move because I am just beside myself and have started having small emotional breakdowns myself. She has been here for only 2.5 months but I may have taken on more than I can…
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New to the group
Hello I am new to the group. My Dad was diagnosed with Lewy body dementia confirmed in September 2022 but initial diagnosis of Alzheimer's was January 2020. He has progressed recently to needing more care . We live on the South Shore does anyone have recommendations for care agency? Not really sure where to begin. Look…
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Swallowing Problems/ Late Stage ALZ
I have a feeding tip for those caring for someone with late stage Alzheimers that have swallowing problems. This strategy helped my mom tremendously. I'm thinking it might not work for everyone, but it is worth trying and I hope it could benefit some of you. My mom was diagnosed with Alzheimer's August 2020. The disease…
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new here...first post
Hi, im new to alzconnected.......i take care of my parents who are both 89. My mother has late stage Alzheimer's and my dad and I take care of her. I moved my parents down to my property a year and a half ago so i could take care of both of them. my dad does his best, but he gets frustrated so i take my mom for most of the…
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Moving dad
Moving dad to AL tomorrow. It’s time. I know it’s the right decision for him to be safe. I know I can’t reason with Alzheimers, so I don’t. When I’ve tried to talk to him about moving, he wants nothing to do with it. But I know 4 years ago when we filled out the POA, he agreed that I can make the decision when it’s time…
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Completely lost
My dad is in middle stages of Alzheimer’s and currently living in Abilene, tx with stepmom. I have 4 kids and grand baby on the way, currently living Weatherford, tx .2 hours away. My stepmom has recently decided to come out of retirement and actually take on more work that requires monthly travel, sometimes more, while…
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How to place parent in memory care without their consent
I have been a nurse for 14 years and I have never felt so lost/confused with the medical system. My mother was diagnosed with Alzheimers in 2020, she also has hypertension and is an insulin dependent diabetic ( VERY brittle). She is constantly in and out of the ER for nausea, secondary to her blood pressure (last time…
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My mom's episode today
My original post is here, with background information https://alzconnected.org/discussion/64342/this-is-my-intro-long#latest TL;DR, white female, 84 years old, 5-2, about 110 lbs, history of late onset epilepsy, Diagnosed with dementia three years ago on the basis of a psychotic episode, brain scans and a brief interview…
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Not handling mom dementia well
Mom is now in nursing home for 3 months. She keeps asking to go back to her home country in the Caribbean. We tried that last year and it was a disaster. There is no one there that can care for her. I am her only child. How do I respond to her when she is insisting to leave the nursing home to go there. Help me please with…
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My mom is late stage Alz/Dementia
hi, I am my 70 year old moms caregiver, I just gave her supper and I just caught her eating the cotton from a diaper. it was clean she just scraped out the cotton and was eating it, is that normal?
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Tips from people who are representative payees for social security
I have just become my parent's representative payee for social security. I could use some advice from people who are representative payees for their parents on how they managed opening the bank account and paying their parent's expenses in such a way as to make sure they are following the rules and documenting correctly.…
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Geriatric care
I have aimlessly been looking for doctors in our area that specialize in Dementia, I am in Grand Forks, ND. My mom is late on set and is seeing an internal medicine doctor whose help has been very minimal since she doesn't specialize in the disease. Any information would be greatly appreciated.