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How often should I visit?
My question of the day is, how often should I visit? 5 weeks and 2 days in memory care now. I know the answer to my question is to do what feels right. I'm visiting every other day, for 2-3 hours. It's a 35-40 minute drive each way. And yes, working full time still. He enjoys my visits, but I'm not sure he knows who I am.…
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No Underwear No pants.
I talk to my mom 3 to 4 times a week on FaceTime. Yesterday when I called her the aid came in to help her to bathroom because she said her legs where hurting. She sat the tablet down waited for her to come back and I heard them take her to the bathroom. The bathroom is in her room. When she got back to FaceTime we talked…
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Now the move
Committed Friday to a MC facility, the fourth one I looked at. Maybe buyer's remorse is inevitable. It's small (24 beds) and seems reasonable, at least not intimidated by the hospital events as my first choice was. Spent the weekend going paperwork, now it's on to the details, seems like it might take another week to…
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The TITANIC defense and ADUHELM
I am not a neuroscientist I have no personal knowledge of whether Aduhelm works. But I have studied Science based safety regulation in particular the FDA since the early 1970s. ADUHELM backers, including the Alzheimer's Association are using the TITANIC argument that it was "approved" by government regulators. In this case…
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Trouble with giving pills
I started having trouble giving DH his pills. He either spits them out or spits them in his glass of water. I tried putting them in yogurt, but some tables are large and he crunches them if they are in food. I need advice - I'll try anything. He isn't refusing them - he just can't figure out how to swallow them with water…
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DH threatening to stop taking meds
I order his meds, give to him diligently each lunch and dinner time, I put the meds in a little dish, right under his nose! he forgot to take them today! I was annoyed, he threatened to stop taking them! Sometimes, he says how long he has to continue having a patch( I put the patch every am) It’s so frustrating! How should…
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Cry a little every day...
... for what was, what is, and what will be.
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What type of facility?
I'm finally admitting that it's getting to be too hard, too often. She knows everybody, seems to be fairly normal in a lot of ways. She does not have any other major health issues at this time. She does not wander. Her ability to communicate continues to get worse because she substitutes "three to elevens" for any and all…
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Folks we were all bamboozled by government again.
https://gbdeclaration.org/
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Shoes from Kizik?
Has anyone here ordered from Kizik.com? The shoes look like they would be great for PWD. Just wondering how they would hold up. I'm considering either women's Prague or women's Eco-Knit.
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Can delusions be a symptom of early Alzheimer’s?
My DH has Alzheimer’s, stage 5 or 6. His memory issues became apparent about 4 years ago. Here is my question- ( something that has been bothering me for a long time)- can delusions show up even before the memory loss? We’ve only been married 11 years. His first wife died, a very traumatic time for him. After we married…
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Bad Week(1)
This has not been a good week. About a week ago I noticed everything in our eight year old LG refrigerator wasn't cold any more and that all the ice had melted. I called a number of appliance repair places only to be told they don't service LG refrigerators because they have something different about their compressors so I…
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Kids and cops
Yesterday, the kids in the family were out in the street playing basketball. A cop came down the street, pulled his patrol car off to the side, and got in the game with them. How cool is that?
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UTI driving me crazy
This is the 2 nd UTI in a year. My wife had me leave 3 days ago cause she didnt know who i was. One day later she wanted to know why i was gone. Married 50 years this Feb. my daughter was here so it was ok but first time we’ve ever been apart. Even now a week later she isnt always sure about me. We have been dealing wit…
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Mild dementia/ Alzheimer’s
I asked neurologist what type of dementia does DH has, is it Lewy body, he said no. He doesn’t know what kind, thinks probably has Alzheimer’s. Is this a good answer? DH restless leg and shaking in his sleep, neurologist says to have sleep study done. DH had sleep apnea before, ok now. Is this a sign Dementia getting…
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Down Syndrome, Alzheimer's Disease and Drug Trials
Stunningly; 90% of people with Down Syndrome will develop Alzheimer's Disease, much of the onset being in their 40's and 50's. Considering the recent disagreement re drug approval, this is an informative link, and in some aspects, heartbreaking. Well worth reading the entire article:…
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Sleeps so much
My 88 year old DH, who I believe is into stage 6, is sleeping 18-20 hrs a day. He doesn't ever leave his chair except to use bathroom. I know to many of you this would be a blessing. I know how fortunate I am by reading what you go thru on a daily basis. He eats very little except sweets and ice cream. He is diabetic, has…
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DH Forgets who I am - follows my lead
It’s difficult to accept the disease is causing DH to not know who I am. To ask if I want to sleep in the guest room or to say we can sleep together since we are both adults and ‘will behave'. Or to think I’m his girlfriend – hasn’t a clue what my name is but knows he loves me. At one point I took out our marriage license…
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DH is gone. I am numb.
Jesse died this morning at 10:47 am. There are no words for how empty I feel.
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Music player
I was looking for a music player that my wife could use, something really really easy for her to use. I came across the Smpl Music Player in my search. All she needs to do is lift a cover and the music plays. For her it's as easy as that. The price new is way more than I would pay but I bid on one off eBay and got it for…
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Should I take DH off the ira beneficiary list
As with most couples, I have my husband as one of my beneficiaries. We have children from both our previous marriages but no children together. During 36 children of our marriage, his children have no contact with me even though they live near. My children don’t live near, one out of the country. I have my children as…
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Good resources for younger kids who have to help with caregiving in a home
https://aacy.org/
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What a month(1)
I've surfaced from a very stressful month with DH. I thought things were under control and the main problem was that I was sleep deprived and he was wandering all over the house all night...well, he started yelling at me and with the home caregivers. He has always been so polite and sweet - but this was a real change. Then…
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What to do when simple affirmations are not enough?
DW around stage 5 has increasing confabulations, a mix of real current events in her life and confused random bits from her disease. Today she came up with some story about a woman who approached her and gave her a spare pair of glasses. She is indeed using some spare glasses temporarily in preparation for a vision…
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Risperidol
Has anyone’s Loved one had significant side effects with this drug, and if so, what were the side effects?
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Nova this week on Alzheimer’s research
Just saw this ad, airs here on Wednesdays. Likely pretty interesting
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Skin Picking/Stimming/Repetitive Behavior
My DW has recurring lesions because she cannot leave a minor blemish alone to heal. Bandaids are the only cure, but she can't keep one on for more than a few hours. It's hard to watch. If she's in my field of vision, I can see her picking at her chin. There are times I have to drive with my right eye closed because seeing…
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Seroquel(Quetiapine)
My DW Dr has her on 4(25mg) seroquel for sleep at night, which is working great. Prescribed by her psychiatrist. Her Alzheimers Dr wants her to get off because it could be making her digress faster. Wants her also off her Cymbalta(120mg) which she has been taking for 30 years so she can get on amitriptyline to help with…
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gets worse and worse
OMG. Now on top of everything else, the treating psych who made all the medication errors and whom I have asked be removed from the case: this morning on rounds she told my partner that I am the reason she can't come home. No discussion with me at all. Unbelievable.
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The National Imperative to Improve Nursing Home Quality: Honoring Our Commitment to Residents, Famil
https://nap.nationalacademies.org/read/26526/chapter/1 Cahpter 10 is the recommendations