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Full Code Hospice Patients and Nurse Dynamics
The Caregiver Forum has a Thread re a Member's LO being a Full Code, resuscitate status while on Hospice service. Many people are unaware that a person can indeed be a Full Code and still receive Hospice servces. In doing some reading, I found the following article link to be informative and also give a peek behind the…
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Footprints in the sand
Footprints in the Sand Footprints in the Sand, a beautiful poem! Apr 26, 2010 @ 11pm, One night I dreamed a dream. As I was walking along the beach with my Lord. Across the dark sky flashed scenes from my life. For each scene, I noticed two sets of footprints in the sand, One belonging to me and one to my Lord. After the…
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Kudos to Jo C
Her responses are always insightful, compassionate, and founded on a solid knowledge base. Additionally, suggestions that may sound unsavory are made with tact and empathy. I am grateful she is here to keep us moving forward. Who else appreciates Jo C?
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Another minor update
I just got a call from a nurse at MC. She said my wife was walking the halls, and was severely confused. She had no idea where she was. The aide just went into her room to check things out. She is sleeping now, and if she's anything like she was at home, that means she will sleep until morning. They also asked me to bring…
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How does incontinence begin? Info needed
How does incontinence begin? DW is starting to experience bouts of both #1 and #2 incontinence for several months. It can go on for several days and then she will return to being continent for a week or weeks. When incontinence happens she seems unaware of it and it's me seeing or smelling the result. I have been very…
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Noticeable decline
I took a long weekend away over Memorial Day, and when I returned I feel like I notice new losses, or changes in behavior, kind of like the way a baby develops new skills, seemingly overnight. DW is in Stage 4, after an MCI diagnosis 4 years ago. Her new behaviors are increased suspicion (“Who drank my wine?” has turned…
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I’m new to this forum-need support
Hi, My husband was dx with “MCI, likely early AD”, in November 2020. He currently denies that he has had any decline since, although I have seen decline mostly with his mood and behavior. I think it can also be difficult to see changes when with the person daily. He retired in December 2021 because he was not performing…
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On a lighter note - inventing words
Recently 'Quilting brings calm' posted a resurrected reference to an alzinfo.org website on the "7 Stages of Alzheimer’s". The entry for Stage 6 stated that: "As this stage [6] comes to an end, the AD person ... begins to manifest overt breakdown in the ability to articulate sentences and words. Stuttering (verbigeration),…
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Ed 1937
Reading this am. it seems today is the day your wife is transferred from the acute hospital to MC; I have been thinking of you and hoping for the best that the transition goes better than thought. So hope you are doing alright; it can be an exhausting day when making such a transfer admission. Of course we are all thinking…
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Update on Drs. Visit
First I want to thank everyone for their comments and their advice. I couldn't, and still can't do this without all of you. I sat here this morning before my DH's doctor visit and new what I had to do. I needed to take you all with me. So, I printed out the two pages of posts. I folded them up and you all went to the…
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What to do about care
I'm at a crossroads with care. Orignally in January my LO fell and broke his hip. while in the hospital he developed dilirium, later diagnoses as VD in March. I still have caregivers but only 6 days a week 8 to 4:00 daily. I'm thinking of cutting back even further as my LO is doing so well. If I let my caregivers go, they…
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new to this group(2)
I am new to this group, my husband has Dementia, I need someone to talk. I am in San Jose, CA.
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DH is stage 7f
DH has been eating less and sleeping more the past few weeks. He's lost more weight, is less responsive, and may be in pain. He's non-verbal so we have to go by body language. Hospice doctor put him at 7f on Tues and we're continuing to adjust meds to find the right amount of morphine, etc to keep him comfortable. He was…
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Struggling with medication
My wife is in the hospital with possible TIA, but there is no conclusive proof there was one. She has been taking 2 1/2 mg warfarin since the pandemic began, and there was no reason to think that it was not working for her. A doctor in the hospital increased her dosage to 5 mg, and they were running pro times. I'm not sure…
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How do I get my husband out of garage!?
I'm so grateful all of you are here!! Maybe someone can give me some advice. We went to the grocery store this morning. I always take him because I think it's good to get him out a little. He always insists on returning a few items. He thinks he's making money by doing this. However, it's been escalating. He's been…
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HWD refuses disposal incontinence briefs. Tips?
I had my HWD in washable incontinence briefs, but he is now incontinence of bowels also. He refuses to wear disposable briefs. I took away the washable underwear and he absolutely will not wear the disposables. I have tried gentle persuasion, explanation, empathy about “getting old,” …you get the picture. We are currently…
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To my friends
I would appreciate your prayers for me and my dw. She will be seeing a doctor at 11 tomorrow. Yesterday I talked to the her doctors head nurse, and she had already been updated by the doctor. He already knew about my dw. ( BTW the doctor is our neighbor.) The nurse seemed empathic and I could tell this wasn't her first…
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Update, and a busy date
Yesterday was a full day for me, and today seems to be the same. Much to do. When my wife was in ER yesterday, she couldn't tell the doctor my name, but she knew I was her husband. She told everyone that I was running around on her. She was very agitated at me all day, and tried to get out of the bed to leave the hospital…
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Maudlin Mate
I wrote about my husband who has Alzheimer’s and had a stroke four weeks ago. My children went back home and I am trying to settle into a routine with DH. I visit his assisted living/nursing care facility each day and spend about three hours with him. Today I left after two hours because he was complaining non-stop. He was…
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repetitive behavior
New behaviors from my DW always send me looking for advice and my spouse repeats the same question(s) every day, "who is coming here today? " I am very familiar with this. But she has been having problems with her hearing aid and I made an appointment for tomorrow to get it repaired. She came in the tv room and sat down…
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My new life
Today came down to more turds in sink. I was well rested so just cleaned up everything. Then after everything was sanitized, I made my morning nespresso Columbian and sat with it out on the deck. I had ordered a mini fridge from Walmart and it came today. Carried it down the basement and plugged it in. I was over the moon,…
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What Makes Him Smile
More moderate than mild now, my sweet Handyman still has skills that make him smile…which in turn make me do the same. He spent a lifetime in the construction industry from lumber yard to kitchen and bath designer. My beautiful post storm kitchen is evidence if that, as are many project that made this little brick ranch…
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Home from grandson't wedding.
Our trip to our grandson's wedding went well...mostly. There were some rough spots. Some of them were very rough. At one point DH didn't know who I was. That had never happened before and it felt like someone had kicked me in the gut! He was very tired from seeing his sister's for lunch and going to the rehearsal dinner in…
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Who has recently placed or will place a loved one?
I know there is a big list of us who have recently placed or are ready to place loved ones. Just thought I'd do a roll call. I placed DH on March 8.
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Who gives care to people who are alone?
Ever since DH started having what seemed to be psychotic episodes and was hospitalized 7 months ago, I've been experiencing loads of road blocks from our insurance company, claiming (pardon the pun) that our claims were either missing info or that the service codes--basic psych evaluation, individual therapy, and…
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Trying to date
My wife of 29 years is in the middle stages of Alzheimer's. She's 55. She was diagnosed with MCI around 10 years ago. I've been the sole caregiver and recently placed her in MC. I want to go on with my life. I feel like my marriage ended around 4 years ago, and I really have no love for her anymore. I actually met a…
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I'm a chicken and trying to face it
I hate trying to hire people, period. I'm not good at it, not a good bargainer, hate talking to people on the phone that I don't know. I've had several responses to my companion ad on care.com and feel obligated to respond at least to the ones that are covid vaccinated. Almost wish now I'd never posted it. There is no…
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M1 or other health folks
We still feel like my FIL has not beat this UTI, he has been treated three times since Jan (well, four if you count the hospital treatment during his stay) first was nitrofurantoin, the second was sulfa(something), the third was Cipro. He does well for a week following but we feel he is not beating it. Now his urine smells…
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Please help me. I need a hug
I don’t know where to turn. My husband, who is somewhere around stage 6 AD, had a stroke three weeks ago. He is paralyzed on his right side and is unlikely to improve. My daughters came to help us, for which I am very grateful. Today we moved my husband to the best assisted living, extended nursing care facility in the…
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Why do they think we cheat on them?
My wife went into the hospital on Thursday, and she told everyone that I had a girlfriend. This is the fifth day in a row she's talking about it. She told me today that through all the years we've been together, she never questioned me, but now she can't trust me. But she did tell me she loved me. I'll take it! But I'd…