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A plea
To the family of my husband’s memory care “wife”, When you left your mom at memory care’s door, you left your mom. I did the same with my husband. Our vulnerable, brain compromised, loved ones were removed from their prior lives and homes and somehow found solace in each other’s company, believing the other is their…
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A new low...
I had to do something today that I wasn't quite prepared to make in this journey. DH refused to take his meds. Ordinarily I can pursuade him but today his behavior was aggitated and combative there was no way to reasonably change his mind. I had to take his phone and offer it as a reward if he would take his medication. If…
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Help with Prescription cost?
I have been having problems keeping my glucose high enough to prevent symptoms. My doctor ran blood tests, and he is pretty sure I have a tumor(s) in my pancreas, or possibly in another location. An MRI is on schedule for Feb. 4 to see if they can find any. Tumors like this are not usually malignant, and he does not want…
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Eating(2)
My DH is a lung cancer survivor and now suffering dementia perhaps exacerbated by the chemo and radiation. He is being tested for ftd or VD. They have ruled out Alzheimer’s. So much to learn. This is so much harder than the cancer. One area of concern causing irritation between us is getting him to eat. I give him protein…
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Does Medicare pay for family members to be a caregiver?
You can Become a Paid Caregiver for a family member at home in Georgia! A new Medicaid service, Structured Family Caregiving (SFC), offers financial support services to Georgia families that deliver care at home for a senior or disabled person. To learn more go : https://www.homenurse.net/structured-family-caregiving/
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Why did Alzheimers patients die?
A covid 19 study seroprevalence study just published estimates 304915 covid deaths through November 5 That is about a a 25 % increase over the 240,000 deaths officially reported. This is very important in our community since surges of Alzheimer’s patient attributed to other causes (loneliness etc.) may simply have been…
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cost to get medicaid planning from Elder Care lawyer
We have worked with him before for our wills, poa's etc. now I am looking down the road in case DH needs a nursing home. I was quoted 15,000$ for as long as needed with no other costs down the road regardless of time frame. this sounds like a lot but considering a year in MC it might not be unreasonable. any thoughts for…
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Wants to go home(1)
Tips, advice, affirmations deeply needed.. My husband has Lewy Body Dementia. He is mid-stage. It's only been the two of us, and I had to come to the very difficult decision to place him in memory care. Breaking my heart is under-stated. He wants to come home, he wants his license, credit cards, (probably to plan an…
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New here and need help
I'm Don and the sole caregiver to my DW. She was diagnosed with Alzheimer's just over two years ago although looking back it started awhile before that with using the wrong word and getting confused while driving. Presently she can't put together words to communicate and talks in gibberish and numbers. When she tries to…
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Can/How to Continue Working Outside the Home
Prior to being laid off due to COVID I had a profession I enjoyed for 30+ years. I am in early 60's and never thought actively about retirement. Just got a call for a job interview. Problem is husband has Parkinson's, psychiatrist & neurologist suspect ALZ and have requested another neuropsyc scheduled for early Feb. since…
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Suggestions/help with getting my DH to sleep longer at night.
My DH was diagnosed 4 years ago with FTD. In addition to Aricept and Donepezil , he now takes Alprazolam 0.5 mg. (Xanax) nightly for sleep and/or agitation. He falls immediately to sleep,but 2-3 hours later awakens and begins pacing, searching for objects, inquiring about people in the house (there are only the two of us),…
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Caregiver cancer
My husband died at 73in September 2020, stage 7, after two weeks in a Hospice facility. I was saddened by his death, but also relieved because keeping him at home until those last two weeks had been a 24/7 ordeal, feasible only with the support of my son and his fiancee who had moved back in to help. We couldn't have a…
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Upcoming PBS Show--- Dementia Murder Mystery
Just saw that there is a new movie scheduled for PBS on Sunday, 1/3 at 9 pm (at least in our area.) It's titled "Elizabeth is Missing," about a woman with dementia who is convinced that her best friend has disappeared. Glenda Jackson is the star, and our Boston Globe gave it an excellent review. Apparently it's a murder…
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Another one of my Podcast.
This was tapped over 6 months ago but just came out today. I even for got about it. https://www.spreaker.com/user/8098964/episode-7-michael-ellenbogen
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Bringing in Help for the First Time
We are bringing in a night aide to help with the care of my father so that my mother can get some sleep at night. She's worried about how to explain the situation to my dad as he obviously does not adjust to change well. Does anyone have any advise on how to communicate the change to him?
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What Difference Does It Make
My 74 yo husband has been diagnosed with MCI. They are now in the process of trying to define the type of dementia. They also found stenosis of the vertebral artery. I guess my question is what difference will it make to put a label on the type of dementia? Isn't the end result the same? I was angry that 2020 put a hold on…
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Vaccine distribution
https://www.washingtonpost.com/graphics/2020/health/covid-vaccine-states-distribution-doses/ (sorry, Joe...still can't make it blue)
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Taken for granted
Recently one of my girl friends has been frustrated by her significant other. He’s not helping with the housework. He is not picking up after himself. He’s leaving clothes in the dryer and holding up the laundry ritual. Basically, he is not behaving the way she wants him to. I am sympathetic. Its easy to fault a…
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New here(13)
Hi. I'm Diane and I'm new here. My dh and I are in our late 50's, and he's been having increasing trouble with speech (finding words, etc.) and now some memory issues. He has trouble remembering skills he doesn't use often, and recently had trouble with a routine task for work and trouble signing in to his favorite…
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Any men in the Auburn/Tacoma, WA area caring for their wives?
My uncle has been helping with my aunts Alzheimers disease for several years. My aunt is now in full time care at a facility. He has some support but knows it would be helpful to talk to a man that has gone, or is going, through the loss and grief he is and has. He recognizes the benefit to sharing with and supporting…