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Trust is gone..
I'm just kind of thinking about our relationship because it's Valentine's Day. After his outbursts of screaming and throwing objects last week, as well as telling me he's going to "leave me" I'm not sure what to believe. This week is a whole different ball game with multiple requests that I forgive him. I do forgive him…
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Respiratory Help needed - no mist from the nebulizer mask
Forum mates, I am giving DH breathing treatments (nebulizer) around the clock these days *for his asthma*, as often as every 4 hours. Stage 7a is throwing us a curve ball today as he is wheezing mightily, and coughing / choking, then OK to sleep for a while. I can't get the breathing treatment to work well enough today.…
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Just joined and new here
Hello...my name is Carolyn, and I have been contemplating joining this forum for a few months now, but have been too numb and grief-stricken to do so. But I thought I would give it a try. My husband (2nd marriage for both of us...he has two grown daughters, and I have no children) was diagnosed with FTD yesterday. He was…
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What specialist does he need?
I am trying to line up an Alzheimer's specialist to evaluate my husband and prescribe/monitor medications. I'm at a loss as to what specialty I should be looking at. Neurologist? Psychologist? Psychiatrist? Neuro-pharmacologist? Is that even a thing? He had a psychiatrist while he was hospitalized, but now it's just his…
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New Behavior
My DH has been declining over the last month after he had an episode that could have been a seizure. I wasn't here at the time but he described it as a blankness for about 5 minutes. Since then, he has started openly discussing his dementia/Alzheimers. He said he couldn't remember very much and told me he was scared. I…
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Food Obsession
Have noticed that my husband is obsessed with food and meals. He constantly wants to eat and go out for a meal. He hoovers over family members while they eat making everyone uncomfortable. Always hungry. Thoughts?
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DH took a nosedive this week.
Thanks to everyone for ideas. DW has lost so much ground this week cognitively and physically. He now cannot walk without assistance. Right now he is laying in bed with soiled clothes and refuses to get up to allow me to change his clothes before bedtime. I have tried everything ! He will not sit up to take his meds either…
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How Long
I'm sitting in the neuropsychologist office, having sat through the first set of questions to my DW for what I imagine will be her last evaluation to get a diagnosis. Like I need one -- she couldn't tell the Dr. what month or day it is, she can't drive or work her phone, and her speech is more halting and her ability to…
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DW Assaulted by MCF Employee
Has anyone on here experienced the physical assault and battery of their LO by a MCF employee? My LO was assaulted by an employee resulting in a serious injury and hospitalization. The assault was caught on security cameras. When police reviewed the video evidence the employee was arrested. I'm heartbroken and angry and…
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Respite
So my MIL is going to spend the next 5 day in mc so we can rest. I honestly don't think she'll make it. She's so withdrawn not sure she'll know she's in a different place but it's gotta happen. Thankful hospice could help with this much needed respite. We need to rest our backs.
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Super charged backlash
I'm caring for my DH at home. He is mobile but I don't trust him to walk without losing his balance so I do assist him. For the most part, I move him out of his chair for meals and bedtime. I can get him to the car so I am able to attend to chores while he stays in the car. All of that is fine on most days. However, at…
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O.T. - the history of dogs
Since I know there are a lot of dog lovers here, this is an interesting article. https://www.scientificamerican.com/article/how-wolf-became-dog/#Close%20encounters
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Update on dementia friendly movies
I previously posted about the successful pilot program here in little Saline MI called a Friendly Day at the Movies. It’s for persons living with dementia, their caregivers, family and friends. We show classic movies (Singing In The Rain, Mamma Mia, Easter Parade) with soft light and sound and no hard rules—we encourage…
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The Long Goodbye
I have been keeping a journal, at the suggestion of my doctor. She also suggested that I share some or all of my journal entries to anybody I think might benefit or gain some insight into my experience. So I thought I would share today's journal entry with all of you. I feel that you will definitely relate. MARCH 8,…
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2 Years in MC
Hi my friends. I've been away for a while, reading here now and again, but trying to find a way to continue through this life. Sometimes being here is just overwhelming. Sometimes it's just what I need. Yesterday DH "celebrated" 2 years in his MC facility, just a few weeks after he turned 60. He no long has any awareness…
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New here
Hi, my name is Debbie and my husband, Bill, was diagnosed with Alzheimer's in 2019.The signs were there sooner but I didn't recognize it. His mom died with Alzheimer's at age74. We've only been married for 10 years. This a second marriage for both of us after being single for over 20 years. Bill is 81 and me 70 in April.…
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DH placed this week-ups and downs
My DH went to memory care on Monday-my daughter and I brought him in. He was fairly confused about what was happening when we left, but seemed okay. Monday night the memory care staff called me, and said he was agitated and had barricaded the door to the kitchen. I got on the phone with him and was able to calm him down.…
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PET results
I’d love input on my DH PET results. My DH is 53 and we’ve been trying to figure out what is going on with him for more than a year. We finally got an appt at the Mayo Clinic in Jacksonville last month, which was great. The doc had him do an MRI, ECG, EEG, extensive blood panels, and a PET MRI. I haven’t been able to get a…
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MC Journey - Nightmare
I'm not going into all the details. Placed H on 9/1. He has continued to physically grab staff when being redirected away from a female resident he is fixated on. Medical group that provides service at the facility upped one medication and added another. Then increased both again. In January Facility Director and MC…
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Picked her up for the afternoon
When I walked in she wasn't in the common areas like normal so I checked her room. She was lying in bed but not asleep. When I walked in she was so happy to see me she started crying. We hugged and kissed and then I took her out of MC for the afternoon. She was so happy to be with me. We got hamburgers and a chocolate…
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DH now cannot walk
Home health care nurse told me that DH must be supervised all the time. With just the two of us, prior to his latest decline, he could at least go with me to the store, Mass errands - the beach etc. I sm trying to keep him safely at home, but how will I run basic errands? Walk the dog etc and keep Him safe. The problem is…
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Can he move back home from Memory Care?
My husband went to a memory care facility 10 days ago after a health crisis pushed him over the edge mentally. He was so agitated and delusional that I couldn't take care of him. He never slept, often wandered the house with his eyes half-open talking nonsense syllables. I visited him for the first time yesterday and he is…
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Of all things I didn't need (for a chagrined chuckle)
Sheesh. If my life weren't complicated enough, today i discovered that I have a new but unwanted farm resident: a beaver!!! He or she (or both) is cutting trees by our farm pond and attempting to dam the spillway. Unfortunately there's no such thing as a humane beaver trap, and he's picked a very inopportune place to set…
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personhood
My DW has lately become obsessed with what I'll call "personhood". We have different last names, so no "Mr. and Mrs. ...". Mail (to use one example) get addressed to us using each of our names. She interprets many simple things as though they're failures to recognize her as an individual. Examples: We got a mailing from…
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Driving is set to rest! Finally!
So, part of this is an update, part of it, is I am hoping maybe my story will help someone else. Driving is such a huge subject for all of us. My DH has no insight into his disease, like many others. He is not difficult, but he does like to be independent ( or he thinks he does). Anyway, I asked a few of my close friends…
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Adjusting to the new normal
Today is day 3 of placement in mc for my beloved. On day 1, we brought him in and sat for a while, and when he was escorted out to look around, my son and I left. On day 2, both sons and I went to see him and bring a few more items. It was brutal. He sat in an almost catatonic state. But when I sat next to him, he put his…
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Thank You.
Last night at 11:50PM my husband passed into the hands of God. He had been completely unresponsive to the nurses and to me all day. I talked to him all day about our lives together, about how I had loved him every day for 38 years and had been IN LOVE with him every day for 38 years, even through our darkest times. We had…
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It feels like my world is falling apart
DH has been in MC since January 23rd and I miss him terribly. The house is so lonely and nothing feels the same. I finally had my appointment with the elderlaw attorney yesterday and felt so much better and optimistic afterward. That didn't last long though. Reality isn't always easy and it isn't always pretty. She…
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Adult Day Programs
This is a related to the discussion about MC vs home care, but thought I'd start a new thread. I'm considering a day program once or twice a week for my husband so I have a chance to go to the dentist/doctor and complete some tasks around the house/yard. We will visit a program this week and am now really worried about how…
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Not sure if I can keep DH safe
i would love to hear how others handle- DH was already shuffling , gait imbalance. Etc. after two days in the hospital er her is severely weakened. Not eligible for a rehab facility, the case worker ordered a bed for the first floor of our townhouse and ordered in home physical therapy. My question is is this does the home…