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Caregiver costs
I am at the stage with my DH that I may be needing care during the night so I can get sleep. Due to the cost of caregivers for 12 hrs, it is cost prohibitive. Any ideas?
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In home care for DH
I am caring for my DH and finding it harder by the day. DH is incontinent at night, which means changing clothes, sometimes bedding, anyone else out there have the same issue. Sometimes twice a night. He wears depends and an inner pad. Because of being up with him, I am exhausted, as I am tge sole caregiver at night.…
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Leqembi
Curious if anyone has seen any improvement with their loved one receiving infusions. My DH has had 10 and we have a long way to go but I’m not feeling very hopeful.
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Spouse is aware of memory loss
Just wondering if anyone has a loved one who is aware of their memory loss. My DH will realize he is forgetting things. He is worse than what he thinks he is at. He absolutely refused to do the neuro-psych test to see where he is at. He has no physical issues to cause dementia so he was diagnosed with ALZ. My mom with…
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ravastigmine vs donepezil
My DH's neurologist seems very knowledgable and nice but sometimes things confuse me. My DH was taking donepezil, but the neurologist switched him to revastigmine because he takes escitolopram for depression and apparently there is a risk from taking donepezil with escitalopram. From what I have seen it looks like a…
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Researching FACILITIES: Care Managers? Who to trust? What questions to ask? Where to begin?
My husband is only 56 and probably in stage 4. I understand that it's important that I research options for memory care now (or soon), because things can decline abruptly with early-onset AD. I got a list of "care managers" from the Alzheimer's Association hotline folks but they were careful to tell me that they "don't…
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Dental care
DH has always been meticulous about self care and would never consider missing a shower. Same thing about dental care. I find that ever so gradually this is changing. Once in awhile he wants to skip a shower. It happens rarely so I haven’t yet made a big deal of it. I’m more concerned about dental care as he does have some…
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Repeated falls
My DH has now been in AL for two years, with Parkinson’s disease that has caused severe physical disability and advancing dementia. He is in a wheelchair, and needs assists with all his ADL’s. He is supposed to call for help with all transfers but he does not recognize that he is disabled, which I have learned here…
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DW scared me today
I was shocked to my core today. DW is late stage 6 or early 7 - 6 1/2 years since EO diagnosis. This morning when I got her out of bed, her facial expression said it all - she was lost and terrified. DW has been in a relative calm stage of over the last year, so this was a sudden change. And I couldn't reach her. After…
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Question about using Depends
DH as has had only a couple of accidents related to incontinence. But it really upset him. No knowing what the recurrence would be I suggested Depends or the underwear inserts. He said no way. I just ordered them and snuck them in. When he had another accident, I showed them to him. Now he loves them and wants to wear them…
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Memory
My DH has been diagnosed with Alzheimer’s. Is it normal (usual may be a better term) for him to remember some things better than I do yet not remember other things?
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Sometimes you have to laugh
So, just when life gets you down, sometimes you have to laugh. Last night my DH started to panic. "We have to get out of here! I know what I'm talking about. We don't have security clearance. You need to go cook dinner across the street." None of this made any sense, of course, but the best line was, "Where can I find…
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excessive sleeping
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Dilemma about Memory Care
I have two questions: First, almost universally the memory care facilities I have visited say you should place your person sooner rather than later. I wonder what the evidence is for this, or whether it's easier for them to have less impaired people. What I see, almost everywhere, is people who are mostly pretty far along…
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Locked doors
We are approaching the point of keeping doors locked. During the day the front door is blocked by a sun screen. The side door is open. I am able to keep an eye on things. Not sure how to phrase this….i am wondering how peoples LO react when they find the doors locked. Especially t first. Thank you….
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TIME TO HIDE THINGS
DH thinks he is being helpful, but he's not. Today he put my computer somewhere??? and my headphones too. I was out for a couple of hours and when I came home they were missing. He managed to walk out with my computer, but my headphones are still missing. He thought I would want to put my computer away somewhere else and…
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Went looking for love
Well I did something I'm not very proud of, but I'm getting to the end of my rope. I have been so lonely and in need of companionship. DW is late stage and we are in year 7 of this journey. I'm still relatively young at 65. I decided to go onto one of those dating websites to see if I could find someone willing to spend…
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Obsessive plant watering
my DW is watering our plants 4 or 5 times a day. They are desert plants. Not only don’t they need it but it’s affecting them adversely. Any ideas how to redirect the behavior without hurting her feelings?
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Frustrated!
For the most part, DH is very easy to care for. I hate our situation and I long for what used to be a happy, content life, but I feel fortunate because I know it could be allot worse. Every once in awhile he comes up with something that throws me for a loop, though. Lately he refuses to cut his toe nails. He says they…
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Activity, shadowing, and denial...
Hi! My husband is in moderate stage dementia. We don't have children and nor do we have a large network of friends or family who are able or willing to help much. Once very social he is now shying away from people probably due to word finding challenges. I know I am early on in my caregiving journey and these problems may…
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Colonoscopy Brings Complications
I am 81 years old, but active, strong and healthy. My DH is 86 and diagnosed in 2021 with Alzheimers. He has remained gentle and sweet, very helpful and in good physical condition otherwise. Just doesn’t remember 5 minutes ago. I am his anchor and he tells me that all the time. So now I have had a colonoscopy on the…
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In home care dilemma
a few months ago my DW was having hallucinations and confused about who I was. We now have her on meds to help. There has been major improvement in the hallucinations and confusion. Her memory is not good and doesn’t even remember going to the Dr yesterday. Because of the tough times in the last few months our sons…
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Hygiene, Meds, Diet
DW diagnosed with MCI 7 years ago. Initial vehement denial, everyone out to get her into a home. Neurologist prescribed Donepezil to start. Very shortly she refused to take any med. As condition worsened, tried to add memantine with no luck. After first 2 1/2 years of her believing everyone "knew" about her diagnosis (not…
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When did you give up on doing errands with your LO?
Hello, fellow travelers. I am wondering about something I have been thinking about for a while, and it’s this: At what point in your LO’s disease progression did you stop taking him places with you? DH was diagnosed with mild dementia 6/21. Three years later, we seem to be sliding into stage 6. I have continued to take him…
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Hearing Aid Guidelines posted under Caregivers
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Perfect circle, epic fail
My husband had his welcome to Medicare visit today. When it came time for the clock test, he drew a perfect circle, then nothing. Just a blank look when we reminded him he was supposed to put the numbers on the clock. He had no idea what to do. Pretty good description of life at our house. He can complete some tasks just…
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New diagnosis
Looking for some bedroom gymnastics with curvy delights or pencil thin babes? We'll sort you out. They're all here strutting their stuff in lehenga, sarees stripping down to nothing as they get drilled real good by eager studs who can't wait to spice things up. Get front row seats to sweaty, moaning romps that hit all the…
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Brown Bottom
My BF 45yo EOA has stopped wiping his butt after #2. Which leave marks in his boxers. He says he doesn't know how it gets there. Any suggestions??? We are all in this together 💜
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Not a good day, steeling myself
My partner hasn't had a bath in a week and she is only eating if I'm there to feed her. She was very combative about a bath yesterday and wouldn't even let me help her get clean clothes on, so i left her standing half naked in her bathroom. I did tell one of the aides what a state she was in. I think I need to let both of…
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Caring for a healthy Spouse
My wife has Alzheimer's, 84 years old with a history of ALZ for 5-6 years. Her memory and cognitive skills are almost gone. She is totally dependent on me for daily living. She takes care of her personal needs. Otherwise she is very healthy. Can handle many tasks given close supervision. Even mows the lawn. She thinks she…