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Light bulb!
Think I’m finally figuring out my anger is all about realizing each outburst, each I don’t remember, reminds me about his dementia and He/I am slowly losing him! And I cannot change it! Feeling helpless wishing for something that will never be! In a way that “ light bulb” is helping. I hope!
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Lorita's page
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how do you talk to an elderlaw attorney?
I'm in the beginning stages of talking to a (not officially certified) elderlaw attorney. We already have wills, health care proxies, etc., but I wanted another pair of eyes to see whether we missed something. Here's my problem. DW has anosognosia and gets angry at any suggestion that she has a problem. How can I discuss…
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Representative Payee Annual Accounting
Can anyone else who has done this for a LO in MC, walk me through how they do the rep payee annual accounting, given the online forms don't allow any notes or places to attach receipts?
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Another outburst...doctor suggests new drug...MC
I am just sharing because it helps me to get this off my chest. My DH had another outburst on Thursday night which was truly frightening. My one interest that takes me out of the house is rehearsal for a musical group I belong to, which happens each Thursday evening. Since myself, my DDIL and DS are all a bit afraid of…
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New Here - Wife of 56yo - Major Neurocognitive Disorder
Good Morning. After years of struggling and questioning my own sanity, my husband has been diagnosed with MND by a neuropsychologist. His MRI shows extensive white brain matter and old lacunes. We have a follow-up with the neurologist on 5/6 to get an official diagnosis, cause and prognosis, but according to the report, it…
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Spouse Newly Diagnosed
Hello everyone, My 65-year-old DH of 43 years was just diagnosed with dementia by neurologist with whom it took 6 months to get an appointment. PCP diagnosed MCI last summer. Although I anticipated, no, expected, the dementia diagnosis, I am reeling from it being “official.” I feel rage and despair and hopelessness. I am…
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New here
Greetings, I just signed up today, August 17, 2023. Thank you for this forum. I am the primary caregiver for my husband. I am still learning how to cope with his diagnosis. Sorry to ask questions, but where can I find the "stages" of Alzheimer's? I see many of you mention a stage with a number. I need to know what stage my…
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Competely overwhelmed and in tears or on the verge of tears ALWAYS
Hi all! I'm new here. My 59 yo DH was diagnosed with early onset alzheimer's and primary progressive aphasia in Sept 2020. He was able to continue working until Dec of 22. He's been home and frustrated and bored and angry since then. He gets so confused and believes things that haven't happened. Sees things and people do…
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Extraction of all teeth
DH aged 83 stage 5/6 needs to have all his teeth extracted. Should it be done all in one appointment? I am concerned with anesthesia and whether I will be able to care for him after the procedure until he heals. Any recommendations will be appreciated.
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There are no dementia indicators on an MRI, so what kinds of dementia wouldn't show up?
My DH had an MRI last week. It showed basically what the previous two did - some shrinkage of the brain but not really any progression and about the expected shrinkage for a 78-year-old man. What kinds of dementia would have no indicator on a brain scan? He walks and talks like a person with dementia - he is confused much…
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Nutrition Tips - gourmet puree! (Just kidding, but great tips)
Forum mates, I just posted about our chewing woes in the Caregiver's forum and here is a different article. Hoping this helps someone else either now or in the future, as it turns out to be a VERY time consuming thing! I will know enough to maybe open a gourmet puree restaurant when this is all over (!). This author is…
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Reached out to my state rep
I am tired of everyone (doctors, lawyers, care givers, MC administration, etc) that I speak to telling me the system is broke, the system is going to implode, that there is nothing more I can do, and that I am in a unique position. That position being younger than my DH and not able to retire yet to care for him. Assisted…
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My observations about MC
First of all, at least in my situation, an MC isn't like "committing" them to an "institution" where we imagine them in straight jackets banging their heads against the wall all day while Jack Nicholson is planning his escape. An MC can be a very homely and lovely place for them to recieve the care they need in a caring…
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How to deal with perceived anger
Just curious how everyone deals with your LO thinking you are angry at them but of course you are not. DH got up this morning saying I was really angry at him last night. I wasnt but that did not matter. What do you do? Do you just say okay I was angry but I am not now so lets move on? I dont like being the bad guy and…
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My DH went to MC today
My family and I have been thinking for a long time that because of his angry and agitated behavior DH needed a safer environment than I could provide for him at home. We had chosen a facility in February but we had to await an opening and also had difficulties getting doctors to sign off on their forms. I will say that the…
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wipe warmer?
I buy the Walmart brand xl 12X8inch wipes. DH doesn't like the cold wipes and one of the aids suggested a wipe warmer like the ones used for babies. Not having any luck finding one so was wondering if anyone purchased one of these that will fit the xlarge wipes? Thanks
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Has anyone been in this spot?
It is time for DH to go into s memory care facility. He can barely walk now and I fear for his safety should he get up during the night. I kept delaying as he also has incurable Leukemia ( docs do not want to treat due to further risk) that makes him vulnerable to infections. With stage 6 ALZ and low nutifils? Has anyone…
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Is a Real ID necessary?
My DH drivers license expires next Monday. I took him to the MVA to get a Real ID in place of a Drivers License. The clerk we saw told us he needed to have a social security benefits summery that list both his full name and his birth date. The Birth Certificate we have was issued by the hospital where he was born, has a…
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A Little Introspection
My therapist has suggested that I might find it helpful to be more open about my DH’s dementia and my own struggles as his caregiver. She tells me that I need to let go of the feeling that I should carry this weight on my own. I know I’ll find support here if I can just say what I feel, but I have a long history of…
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Are some PWD calm?
As DH moves down the Alz pathway, he has been calm throughout. We are now in Stage 5 I imagine, although he is still continent and mobile although wobbly of course. His MMSE yesterday was 17. He has always been an introvert and not a social person. I wonder if some get through the whole process without the overwhelming…
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Marriage
I am at my witts end. My husband is 53, we have been married 13 years, we went through addiction and many battles that go with that, together and came out the other side together when no one else in his family was supporting him. He was just diagnosed with dementia officially 2 months ago, but have been dealing with it for…
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Shaving...
I'm 38 and my BF has EO who is 44, recently he has become scared of his reflection in everything!!! Mirror, car windows, store fronts, glass doors anything that reflects. He has left his facial hair grow for 2 weeks now and is currently in the bathroom shaving.... I was gonna attempt to do it for him but he let's me get a…
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Sister said she put mom in Hospice
Well I was not ready for this, now I will see what happens next. I did see my Mom yesterday just briefly, she was sleeping. Hugged and kissed her. I am thankful, God bless.
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So on edge. Old behaviors resurfacing
DH was hospitalized in January. He was extremely agitated about my not letting him drive and he wanted his house back. We had sold it 2 years before but he doesn’t recall this. He was becoming increasingly more threatening and accused me of selling the house from under him. He would at times also threaten to hurt me or…
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DH's Nightmare is Over
My DH completed his journey very early Wednesday morning. I'm so grateful he no longer has to live in Alzheimer's world, not remembering anything for more than a few seconds and wondering what he has done wrong to be sent away. Hospice house was a blessing and helped take the sting out of hospital events. Upon reflection…
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Virtual Reality Experience
has anyone had any positive experiences using VR headsets with their loved ones?
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Please: help with advice getting into geri-psych
Hi there, My mom and I are at a total loss about what to do right now and I'm soliciting advice from your personal experience. Here's the situation: My dad, 80, at a memory care facility (Alzheimer's), has had some impulsive behavior resulting in the facility questioning if its the right place for him, and demanding 1:1…
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MCF Rate Increases
Do memory care facilities increase rates at will? I know that they will give you 60-day notice, but other than that, can they just increase whatever rate they want, whenever they want?
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Sharing positive news!
A memory care/assisted living evaluated and accepted my husband! He moved two days ago. It is a ten minutes drive and he tolerated the move very well, even rolling his own suitcase! He has a private room and shower and there are one half as many residents as his former nursing home. I thank God that this facility opened up…