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Alzheimer’s research comments by RFKJr
RFK Jr says corruption at NIH is the SOLE REASON there isn’t a cure for Alzheimer’s: “For 20 years, because of utter corruption and fraud, we were directing Alzheimer’s research to one hypothesis, and any other hypothesis was shut down. We should have the cure for Alzheimer’s today. We don’t have it PURELY because of…
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Long term meds and medical screening
My husband is seven years into this dementia journey. He has zero short term memory and confabulations constantly about places we’ve never been, ads he sees on TV etc. He can’t find anything in the kitchen. He’s 73 years old and obese but pretty healthy. The doctor wants him to have a colonoscopy and to start cholesterol…
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Dental Decision
Does anyone have experience with a late to mid stage Alzheimer's patient with 1 tooth abscess and 3 pulp exposures. Oral surgeon wants to put my dad under general anesthesia and extract all teeth. What will a 2-3 hour surgery like that do to a person in this stage? will there be much recovery or do we just let nature take…
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Sun downing
So this just started for my husband. Pulled two all nighters over the weekend. Around 4pm each day he starts getting very agitated. If I can manage to stay disconnected until 7pm and then distract him with a movie he might settle down, but does not want to get into bed. He packs, paces, usually with boots on and often goes…
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Time to get a medic alert device
My DW with EOAD is now in stages 5/6. She can’t tell me her phone number or where ashe lives. Her vocabulary has dwindled to a couple of hundred words. She spends most of her day folding clothes over and over. She talks to her special friends all day. The other day I wanted to see what she would do if I were to fall and…
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PBA
My DW’s psychiatrist seems to think she has PBA (Pseudobulbar affect). Is anyone familiar with this diagnosis? There is a medication available to help with this but Medicare doesn’t cover the drug so it is out of pocket and expensive ($1600.00)
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Just an observation
So, 30 minutes after we called our son to tell him happy birthday DW forgot that we had talked to him , but she remembers to the penny how much we spent at the grocery store yesterday. I know I am not supposed to try and make sense of all of this but sometimes it just amazes me.
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Anyone With Resentment?
I'm going to post this before I chicken out. I have been married to my husband for 42 years. Now he has Alzheimer's/vascular dementia. Even in good times he could be difficult to live with, very controlling. Now I am bitterly resentful because I have to take care of him. Has anyone experienced this. I feel guilty and…
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AI and alzheimer's?
Excuse me if this has already been discussed, but I just read something that might show promise. https://scitechdaily.com/scientists-discover-hidden-cause-of-alzheimers-hiding-in-plain-sight/
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The Move to Memory Care is Here
So after over 4 weeks in Rehab for his knee and 5 weeks in a Geri Psych unit, my husband is finally being moved to Memory Care tomorrow. This facility wasn't my first, second or even third choice, but nobody wanted him! He went through multiple care assessments, and they all basically said "we don't think he's a good fit…
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Very Regrettable Appt.
Just to get it off my chest post….I know I know the calvary are not coming but darn darn darn… We went to the neurologist today after the 911 incident. I guess I was hoping for some back up but now I know there isn’t any. The Drs nurse wanted to know what I was doing to agitate him. I calmly explained, nothing…. And then…
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how do you return to the MCF after an outing?
DW has been in MC for four weeks. I've contemplated taking her out of the facility for some activities, like going to a restaurant or a park or the zoo. But I can't figure out how I would get her to return willingly to the facility. Every time I visit, she talks about wanting to go home. Seeking advice and insights…
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Just dropping in
I just wanted to wish all the ladies a Happy Mother's Day. It's really hard to appreciate an occasion like this when you have your hands full, but try to take time to pat yourself on the back, and find the time to do something for yourself that will lessen the load, if even for only a little while. It's been a while since…
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10 Absolutes in Dementia Care
Shared by another member here - Thanks Chug! Here is one you can download or print:
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Awareness of condition
My DW lapsed into the lost memory phase, and had a particularly hard time. She still knew me but said she felt lost. This made me wonder if she had any awareness that something is wrong.
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On the Upside
I just wanted to share a few positive wins in this land of the seemingly ever-down life. We are now 7 weeks post-MC move-in. Last weekend, in honor of Mother's Day, the care facility hosted a breakfast with mimosas and small fresh flowers for each Mom. It was a treat to share that with my DH since life with FTD is…
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Book that Gets It
Like we have time to reas? If you do, however, this novel by a writer whose husband died of Lewy Body Disease is good fictional treatment t of the rabbit hole we caregivers fall into. https://www.forewordreviews.com/reviews/counting-backwards/
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I moved DW to memory care (part 2)
So, that's the background. All of our family and friends were supportive of placing DW in MC, even urging me to do so, reminding me that I had to take care of myself. The conundrum for me was, how was I going to get her in the door? How was I going to get her things to the MC facility? One suggestion was to say her doctor…
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Started with hospice care .
Lots of help and support . Also I kept a home care person who is working out well . Hoping to be able to have some time to be myself this week . We had a nice mother's day with the grandkids visiting . Of course it was hard for them but important they got to see their grandmother now and not later as this progresses. My…
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Hope and hospice
My husband started on hospice a month ago. I find it has heightened my hope that the end will be here soon. Sadly, a side effect is I am getting exhausted from the waiting. I visit every day and don't feel like I can really separate sufficiently to do something like take a weekend away. I don't feel my presence is that…
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Confabulation, anxiety, depression
Moving on into the reality of DH's ALZ. For upwards of a month DH has seemed to be normal and, admittedly, I allowed myself to become somewhat lulled (is that a word?)into my own denial. What I failed to see was that his constant itch was most likely anxiety, that his calling hid brother more often was his attempt to a…
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A Most Sincere Thank You
I don’t think I ever got so many Happy Birthday wishes before in my life, so thank you so very much. I ended up going to a MLB game since I love baseball. It was 74 degrees, sunny and I got to share it with 28000 other people. It went extra innings. We lost but it was a glorious day, until found out DS left my DH alone…
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Seroquel - Anything I Should Know?
Finally was able to get my husband to a doctor for a complete physical. Turns out he's as physically heathly as he can be for a 78 year old. To help with anxiety and sleep issues, Dr has prescribed Seroquel - 12.5mg / per day to start. I can go up if needed. What has everyone's experience been? Good? Bad? Anything I should…
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Sorry, Another Stupid Question
I’m sorry for being so needy today….My birthday is tomorrow and I was wondering if I could spend it alone without any adverse reactions for him. After the 911 incident I just wanted to be alone, but not if he’s affected adversely. His wayward son said he would come over. Thanks
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new member
I am new here. My DH was diagnosed with dementia 3 yrs ago How do you know what stage of the disease he is currently in?
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Help
I am 55 years old this year my fiancé is 56. He had a very rough life. His family tried killing him a lot when he was a child so he has a lot of anger built up so he became a very bad drug addict and an alcoholic very bad, his clean of drugs For nine years now and clean of alcohol for two years very proud of him in all…
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Sundowning now all day
My DW has been sundowning for quite a while but this past week it seems to start up each morning. She goes to bed crying and wakes up crying. I can calm her down most times and get her redirected but next thing I know she is crying again. When I ask her what’s going on, she says she doesn’t know anything and doesn’t want…
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Trying to think ahead
What type of documentation does the Police Dept need to show that a spouse has dementia? Does taking the med bottles as proof meet this requirement? Just thinking ahead …just in case.
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911 saga
Does anyone have a suggestion for getting DH to the neurologist? I called to get an official letter from DH neurologist but they said he hasn’t been seen in 11months and he needs to be reevaluated. I explained I needed some documentation for the police. So she fit us in on Monday, but should I tell him the appointment is…
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Picking Skin
There is a big fancy word called Dermatillomanina which is a OCD thing of picking one's on skin. My spouse picks her arms over and over and over. They bleed. It is messy and it is frustrating. The Doc raised the antidepressant but it didn't help. Just curious if anyone else has had this issue and any luck of how to control…