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Regarding remternetug
Has anyone been approached to participate in a clinical trial for this new drug? Iris
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New diagnosis in middle of major life changes.
Hello all, my husband was diagnosed last week with Alzheimer’s …The signs have been there for about 2 years, I believe my husband is in the mild stage still. Our neurologist didn’t provide a lot of information. I am struggling with some major life changes we started making a year ago. We planned to move from Michigan to…
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How do you know you LO is in the dying phase?
I just left him in the hospital for observation - impacted colon anyway he is so weak. Now can barely walk , sleeps slot. Keeps saying he is dying and I will be ok, i say” Michael- we can get busy living or we can get busy dying’ He will say I want yo get busy living When I left him tonight I felt so sad Maybe I sm not…
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MC journey off to a very rough start
After 3 nights secret work in late hours preparing for moving DW age 59 into MC, I thought I was going to get a break on move-in day (last Friday 3/1). DW has had a lot of agitation and they reassured me they are used to dealing with this. We arrived at 10am, the team assembled in her room, collected meds, signed off on…
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Ruba-dub-dub
Had a thought the other day. How willing is my wife going to be to have - insert name ( ME, Her DAD, the guy that seems to be around all the time when her husband is gone, the guy who always takes her to school, brings her home late at night, takes her food shopping etc:) help her change clothes, help her clean up after an…
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Things Changed Again..am broken.
My last post was a positive one in that my DH (Stage 6.5) turned out to be in a better position, health-wise, than was claimed by an on-call Hospice nurse. My DH's regular nurse came the next day and said my DH was not on the verge of dying, based on all his vitals, etc. Over the last week my husband stopped eating and…
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Not even sure I should post this, even though it's on topic.
I was having breakfast at a restaurant this morning, when I received a scholarship essay my granddaughter wrote. I was eating, with tears running down my cheeks. After all, it's about my granddaughter and my wife. "The key that unlocks doors, education is the most valuable asset one can have in life. Education brings…
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Need Advice for Mobility Issues
My DH was diagnosed 2 1/2 years ago. I'm not sure what stage he's in, but he's really slowing down physically. He has to get up a couple of times a night to pee, and it has become very hard for him. He sits up on the side of the bed and rocks back and forth until he gets enough momentum to stand up. I try to help but…
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This thread has been deleted
Please don't take this as a means to ridicule you. I understand that this is one of the hardest things to handle with the disease. But in your best interest, that of your husband and that of the public, you rea@Lkrielow99lly have to get him off the road. He is way past the point where he shouldn't be driving at all. Not to…
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SNF vs MC
I'm curious about the difference in the level of care between a skilled nursing facility and a memory care facility. I think my confusion is because MC counts as assisted living and I'm concerned that's not sufficient. My husband needs help with all ADLS and must be supervised at all times. To get him to eat, I need to…
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How did you find a therapist qualified to help a caregiver cope with partner's dementia?
I have reached the point where I need help. I feel that I am falling apart. There is absolutely no time when I can just sit and be me - you know, have a cup of coffee and look at the paper, or take a little nap when I am tired, or even read a book. My DH was controlling before he got sick, and now it seems that he needs to…
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I think I need a new script...
As background, my DH and I traveled a great deal over our many years as a couple, often visiting his family who live halfway around the world from us. In the last few months, he seems fixated on travel. He keeps saying he wants to do it "before he dies" or "Don't you have a 'bucket list' of things you want to do before you…
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A happy
My Mom's vase, and fresh tulips. All my best. Back to sleep.
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Declutter- how much is to much
As things progress, my daughters and I have been slowly declutterring. There is a large amount of clothing that is no longer worn or worn out. We go through and slowly remove the excess and worn items. My wife is down to a few pair of pants and tops/sweaters she wears all the time. We have several identical pairs of pants,…
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today's delusion
So, recently DW has been talking about how I've been away and she has lived alone for a long time. Today that switched(?), and she told me she had gone away. At first it sounded like she meant she had gone away for many days, but it morphed into just today. She didn't know where, why, or how she went away. She said there…
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In better times #2
We had a thread like this a few years ago. It was very popular. Post a pic of your LO during better times. I'll get it started. For some reason it gets blurry when I post it. This is Carole.
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How to get acclimated to the decline
My DH has been in what I think is a pretty steep decline lately where he can't remember something literally right after we talk about it. So therefore each question is repeated a gazillion times. I always felt that I was adapting to his changes okay, but I find myself getting much more emotional and irritable than I have…
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Adult Foster Care
I’m in Massachusetts caring for LO with Alzheimer’s full time. He’s got Medicaid and is almost approved for Adult Foster Care (AFC) which means I’d be paid a non-taxable stipend to care for him. He was evaluated as needing level II care which means he needs help with two or more ADLs and behavioral supervision. Please…
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I am a ……….
DH is unhappy with me because I made him take a shower. He said that I am a real pest. Being a well trained, knowledgeable caregiver I acknowledged his feelings and responded “yes, I’m a real hemorrhoid.” He promptly agreed with me. How is that for positive reaffirming communication?
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Leaving LO alone on the caregivers side
Wow. I woke up an hour or so ago (4AM), and thought...what would happen if something unexpected happens to me? We live alone, the two of us. What if I got in an accident while picking up groceries, what if I fall down the stairs and the EMTs come and talk to Tim...but no one else. My physically close family have keys. I…
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My heart hurts. . .
Now that I've placed my DW in MC after so many years of living in her world, day in and day out, 24/7/365 I thought I'd feel "free" now and in some ways I do but I miss her so much more than I thought I would. She's doing pretty well there and for some reason that breaks my heart even more. That she doesn't really know…
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rolling my eyes, talking to myself
When DW repeats herself; or says "Maybe you told me this, but I can't remember"; or says "Sorry to interrupt"; or "Did you know?"; or "Do you remember?", I say to myself, "Yes", or, "Oh please, not again!", and I roll my eyes when DW isn't looking. It's a minor way to vent without getting angry with her.
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Has anyone heard from Jo C.?
I hope she's doing OK.
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The fine art of complaining by King Boo
https://alzconnected.org/discussion/comment/155111#Comment_155111?utm_source=community-search&utm_medium=organic-search&utm_term=King+Boo
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Update: Am I going crazy?
I want to thank everyone here for all the kindness and concern. It restores my feeling of being part of this strange thing called the human race. I have learned so much from you. Things have taken a turn that I think might be informative for all of us. I have pasted it as an answer to some of you but thought it better to…
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First signs of trouble, concerns at MC
Was there at the MC checking on my DW and I noticed she had soiled herself so I took her to her room, cleaned and changed her but when I was cleaning her I noticed some fairly significant skin breakdowns between her cheeks. Her pants and shirt were wet so I went to change those and there were no clean clothes in her room…
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Medicaid divorce
Someone suggested that I get a medicaid divorce to protect my assets and qualify my DH for medicaid. Has anyone ever done this or is it an obsolete idea?
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Swallowing
My wife has started having trouble swallowing pills. Is this the start of other swallowing or eating problems? She seems not to have any problems eating, although I do cut everything up for her.
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In a safe place
DH lost his wedding rings about 6 weeks ago. We searched every place possible without success. Yesterday they mysteriously showed up. They had been in a very safe place……………inside his Bible. 😇 Ah, bless his heart.
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Boorriinnggg
Boredom has become a big issue with my LO. She has no interest in any of her previous interests. (My teacher aunt would kill me for that sentence). Early on there were long walks on the local beach, visiting local attractions, she had an interest in cake decorating (took several courses with granddaughter, best part was…