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Startling Behaviour
So - my DH (probably at Stage 4 or 5- hard to tell for sure) is in the car with me after we picked up our 10 year old granddaughter from school. There was a lot more traffic than usual, and suddenly he started trying to get out of the car because he had a job to do to save a bus. I talked him down until we dropped off our…
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angel neighbor
[Sorry, this is a bit long.] I had minor outpatient surgery last week. (I'm fine, thanks.) When I made the surgery appointment, I was comfortable leaving DW alone in the house. However, within the subsequent two weeks she has reached a stage where she got very anxious if I were not home and fearful she would never see me…
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New to this
I'm new to this forum New to the world of caring for a spouse with Dementia. We are just beginning our journey. Is there someone who is also just beginning? My spouse still does all his own ADLs. His deficit is remembering and language. He is aware his memory is fading and it frustrates him. He can no longer carry on a…
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Alzheimer's or severe PTSD
Hi, Not sure if my wife is getting Alzheimer's or what I know her Grandmother had it. She comes up with delusional thoughts that my parents hate her and conspired with her daughter to ruin her through Tik Tok and just makes up things that are not true. Any thoughts?
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Anyone else here with hypoglycemia?
The reason I'm writing about this is if you do have hypoglycemia, and you have Medicare A&B, a CGM (continuous glucose monitor) is now covered. After spending a few days in the hospital because I was not having symptoms when I had low blood sugar (dangerous), my doctor was trying to get a special consideration for coverage…
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The whole cloak-and-dagger thing is getting to me: a vent
I am so grateful to have this place to just get all of these worries out of my head while I'm among friends, so to speak. At this point we have put my DH on the waitlist for a MC we have chosen. We have been told that we are second in line for a spot there. It had been a long, hard road for me to get to this point. He has…
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Almost Lost it This AM
So sometime during the night LO got up to use bathroom. This morning I go to his room to get him ready for his shower. Walk in the bathroom and it is wet. I thought maybe an accident. Then I hear the water running in one of the sinks; it had been on for who knows how long. The entire bathroom was flooded! I just stood…
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How to get my DH to accept a caregiver while I am getting a break
First of all, thank you all so much for giving me wake-up advice last week about getting out for a break. I really needed it. I love that you all are brutely honest in a loving way and get me to think a different way. I am truly the frog in the boiling water and didn't realize just how complacent I have been, not wanting…
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Constantly crying
Hi I’m new to this group and also new to being a caregiver to my wife who has been diagnosed with YOAD. She seems to just start crying. This happens a few times a day. I will take her in my arms to comfort her. When I ask her why she is crying, every time she says she doesn’t know. I want to be there for her but feel so…
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Lost rings
DH lost his wedding rings about 6 weeks ago. We searched and searched without success. Mysteriously they appeared today. DH found them in a very safe place ……… his Bible.😇
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Am I going crazy?
My husband, aged 78 and diagnosed 6 years ago, has suddenly taken a severe turn for the worse. He has been in home Hospice care for the last 2 months and now is, as the nurses say, "taking that final turn". He is incontinent, has nighttime agitation controlled with drugs, and sleeps almost all day. Within the last 5 days…
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Feeling sucker punched yet again
A couple of days ago, after talking about the family he grew up with, my DH told me I was “like family” which gave me pause. And because I have a very hard time ignoring the off-the-wall stuff he says sometimes, I asked him if he recognizes me as his wife, to which he replied, “It’s complicated. I was married before.”…
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Message from the head nurse just now.
My DW brought her friend Patty who usually doesn't participate in activities with her. She is such a bright light to others and we are so glad she is with us and in the environment best for her. She is doing great!
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What do we talk about?
Does anyone run out of things to talk about with your loved one? I can’t discuss things that need decisions, or things that might upset him. I can’t discuss my work, he doesn’t follow it or it upsets him. He doesn’t leave the house much, so he doesn’t have much to add. It makes me sad, and I miss who he used to be. We both…
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a move to MC and the end
My DH went to MC recently and the emptiness set in. Such an uncomfortable feeling to not have him home. I looked forward to going to see him everyday. I think he did know me,,,i would sit with him (barely mobile anymore) and I’d “visit” with little response, but it felt good to hold his hand, tell him i Loved him, get a…
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New and struggling
This is my first post. Not sure what to expect, but here it goes. My wife recently received a diagnosis of psychosis and vascular dementia, moderate with agitation. The agitation is mostly direct d towards me because she seems to view me as the villain of her story out to get her. It's led to some troubling behavior,…
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Unanswerables
I have been keeping a list for a while as DW loses her expressive vocabulary and keeps asking incomplete questions or making incomplete statements. I’ve learned not to probe too much for clarification as the thought probably evaporated before she could repeat it. when are they getting these things? could I have a full? are…
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Homeowners insurance
Hi there! I've attended a few in-person support groups, but just learned about the online forum. So happy to join this community! My LO (mother) recently had her drivers license revoked and is worried / fixated that her homeowners insurance will go up if the carrier finds out about her diagnosis. (It's bundled with her car…
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Cell phone use
I’m not sure what I am looking for so I’ll just type and see what I get. DH has a cell phone, he looks at the new on it, answers calls if he happens to hear them, reads texts if he happens to notice them. I pick it up periodically and say “ you missed a call ( or text) from x”. Then he will look at, maybe return a call,…
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Lost worried and scared
Hello everyone new here. I have some questions and would love some input. My mother was diagnosed with dementia after a very bad TBI, I have been her only care giver for almost 3 years. Meds have been changing and it don’t seem like anything is helping anymore. Recently in the last couple months now I can hardly get her to…
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Angry outbursts
Where to start? My husband who just turned 79 went from a very physically fit 76 year old to an angry man who can barely walk. He has some memory problems but not that bad. Because he can barely walk and has frozen feet a lot he has very angry outbursts. He gets up in the morning mad, he’s mad at god, mad at me, and mad in…
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Doesn't want my help.
Just wondering how you all handel something like this. My DW is a very stubborn person. All I want to do is offer my help but she gets offended and calls herself stupid. She is very confused with any tech stuff. If I offer help on anything there is a big crying seen and telling me she's just to stupid. Then she gets mad at…
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Strategies for getting LO to MC
As I look to the future, I am wondering how those of you who have placed your LO in MC have physically gotten them to go. Did you tell fiblets to get them there? Did you have a group go? We have no children to help. Thanks.
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Medicaid
I am going to have to start the process of getting my husband on medicaid and he still is mostly able to understand a conversation but forgets pretty quickly. So I want to tell him why I am gathering so much information but I don't know how to do this without upsetting him. I am so torn with guilt and I know my mom felt…
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My sister has dementia and is an alcoholic
My sister is approaching stage 6 dementia. She lives by herself. She is losing weight . She's not taking her meds every day unless I give them to her. I live 40 minutes away. She will not leave her home. She needs to be in assisted living. What can I do? I need legal advice. Can anyone help me?
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Say What???
My DH is struggling with words. I've started a list to help track his decline. When he watches TV, he pauses the program and then fast forwards through the commercials. Yesterday he called this, "cutting the in betweens."
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Maybe I’m trying too hard?
Yesterday my DH (mid-stage 6) seemed restless and bored, so we took a trip to a car museum. After we toured the museum for a bit, I noticed he wasn’t paying much attention to the cars. He was more interested in seeing my reaction to the cars and matching his reaction to mine. On the way home from the museum we stopped for…
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jury duty
My wife, who is in stage 5/6 dementia, recently received a jury duty summons. Initially, I felt overwhelmed by the additional stress it brought, and I was tempted to ignore the summons. After taking some time to cool off, I wrote a courteous letter explaining my wife's health condition and, in response, received a call…
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New diagnosis for my DW
My wife was diagnosed about a couple weeks ago with Alzheimer's. She had been exhibiting obvious symptoms since mid-2020, though, could've had some earlier that were attributed to aging. So, I am at a loss as to where to begin care taking and how to plan for the days to come. Is there any place to look for these? Humbly,…
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when DH imagines things
Any experience with the proper response when my DH says "there is someone else in the house". (There is no one else here, and it is very rare that someone would be here.) If I answer with truth, "no one else is here - just you, me, and the dogs", am I making him feel dumb in that moment? OR should I say something like…