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Coping tips?
I understand the shadowing, but how do you handle it? DH will follow me into a room and sit and stare at me then look at something else in the room then me again and back and forth and not saying anything! It’s driving me crazy! I get it, I understand the reasoning behind it but it just gnaws at me. He won’t do anything…
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New technology
So I get teepa snow emails and saw one that discussed a new technology that is an interactive projector and I searched the internet to see how it is being used. I am not trying to sell anything and I have no interest in the company but it's called Trovertafel it is expensive. I am gonna look into possibly helping to fund…
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FTD Group
Hello All, I'm not sure "grateful" is the appropriate word, but I am comforted to see more and more FTD caregivers on the forum. I noticed there is a group option and wondered if there is interest in forming an FTD Caregiver group. Let me know if you are. Kelly
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Third person
Hello, I am brand new to this and am overwhelmed. My DH was diagnosed with moderate stage dementia in April and last night had another episode of thinking he was not at home. He was trying to leave at 2:00am. This morning he started speaking to me in the third person. I am afraid to sleep because he may wander. Any…
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What do I need?
After a rough week I put out word that there will be a familiar meeting in December after the college semester ends for my kids (19 & 21). I need time for myself and some way to ease the decision overload I have DH has moved from stage 4 to early stage 5 and I need help. But with what? I don’t need errands run or groceries…
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Feeling Guilty
My DW is 15 years older than me (she’s 72) and I’d say in stage 4. She’s still largely present, though confused by many things. We still can have pretty good conversations and a lot of laughs. With that, I feel so damn guilty going to work during the day. We moved to a remote small town to lower her anxiety about living…
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Newbie trying to figure out the future
Good morning all, so glad to have found this forum ( in a way ). From what I’ve read so far I should be feeling fortunate to be where we are in this journey. But I’ve been a bit resentful and desiring some time to myself on a regular basis. I guess I’m feeling guilty now having read where others are dealing with much more…
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DH within last three months cannot walk very well,he has lost his joy
It Seems that every three months DH takes a huge step back. He can barely walk now, is sad most of the time. Put him on lexipro due to angry outburst snd in need of a mood lifter. Hdd Ed Chas been asked to stay home from ADS. He was diagnosed with AD in April 2022. Has anyone else experienced this rapid of a decline? Any…
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Feeling guilt
Hello. This is my first post. My wife was diagnosed wih dementia about a year ago and then in March suffered a severe stroke which complicated the dementia. She is in a nursing home nearby and I spend every afternoon, though supper. I've got a routine in which she brushes her teeth and I say I'll see you tomorrow. Many…
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More news
My husband’s sojourn in the hospital is about to end and he will be going I to a long term care home. The hospital has really done an amazing job with my husband. He is clean, well cared for and he smiles, opens his eyes really wide to take in the activity around him. His doctor called me today to suggest palliative care…
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How to handle refusing care
Care plan meeting yesterday at MC. Biggest issue is that my partner refuses most help of any sort. She is refusing bathing, change of clothes, oral hygiene, podiatry, refused physical and occupational therapy so that they had to discharge her. Refuses to come out of her room for meals. Continues (after 18 months in MC and…
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Regarding Namenda
I have seen a few recent posts of newly diagnosed patients being prescribed Namenda as a first medication. Namenda has been suggested for mid-stage patients. Are doctors giving up prescribing Aricept or Exelon patch, which are suggested for early-to-mid-stage patients? Just wondering. Iris
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New 43yo DH with possible EOAD
Hello, My husband and I have been married for 24 years. In March I noticed a change in personality and impaired judgment. After months of trying to convince him to seek medical attention we had our first appointment in August. He was able to convince the doctor that he was ok but since the doctor has seen us all our…
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Any tips on how to beware when they get up in middle of night.
i was never sound sleeper and I’m not at point of really being concerned but she got up early and had know idea , worried for later stage. Any tips
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Early onset Alzheimer's
Hello everyone. This is my first post and I am lost. My DW who is 53 y/o and has a masters degree lost 4 jobs in 3 years and now has issues remembering normal things. Her mother had early onset at 53 and past by 59. We had cognitive testing that showed a decline in memory and processing but don't see the neurologist till…
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Bad Dreams
My wife is in Stage 3 or 4 but except for serious memory problems is getting along pretty well. Over the past year she has had a few bad dream episodes. During the night she will start crying out and seems in distress. I wake her up and she goes right back to sleep and does not remember anything about it in the morning. Is…
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Headaches
Good Evening Friends, My DH who is nearing severe stage is showing many signs of progression. He is having terrific headaches. I am attributing them to his PCP putting him on Abilify but could be progressions as it is certainly evident. The PCP believes it could be a little of both and is taking him off Abilify (of course…
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Go Home Gone wrong
have not posted for a while, spouse with moderate dementia, diagnosed two yeas ago. 11/6 somewhat normal day, trip to the store for bananas, daughter and grand kids visited to jump in leaf pile, spent more than normal amount of time out doors. had a great time. around 4PM I was taking the dog for pre dinner walk, when she…
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Dealing with Husbands’s delusions
Another tough afternoon/evening. Went for a short walk, tried to clear my head and comeback refreshed. Doesn’t know who I am or why I’m here, wants to know how long I’m going to stay. More settled now but I am done in.
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Today Marks 2 Years in Memory Care
Today marks 2 years since I placed my loving wife in memory care and although I know it was the best thing for both of us it is still a painful milestone to acknowledge. I have been much more fortunate than many here as my DW is happy in MC and has never once asked about home. I believe the transition was easier for her…
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Average cost in NJ for Memory Care ??
Want are cost of care for patients? Is memory care certain amount of times a week? Please explain ? And at what point do you start memory care?? My wife has anosognosia. Live in NJ near shore
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CELA vs Specialist Attorney
Hello - it's my first post! My wife is newly-diagnosed. Probably stage 2 sometimes 3. Most of our financial and legal things are in order (DPoA's, wills, etc.), but I do have some things I need legal help on now that our situation has changed. I see CELA's mentioned on here a lot, but a quick check on the website shows the…
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Caring for spouse
Good day all. I finally decided to become a member of this forum. I'm not sure if I can find the help, or information I'm looking for. but here goes. My beloved bride was diagnosed with alzheimer's nearly three years ago (she's only fifty-three). She was forced to retire two years ago, and since that time, she has…
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Bible Verse to Lift You Up 11/11/23
CARE FOR OTHERS IS CARE FOR THE LORD! Matthew 25:31-40 New Living Translation The Final Judgment 31 “But when the Son of Man comes in his glory, and all the angels with him, then he will sit upon his glorious throne. 32 All the nations will be gathered in his presence, and he will separate the people as a shepherd…
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Refusing to see neurologist or take new meds
My wife has mild Alzheimer, was on a trail for couple of months took off , started taking meds but got rude effect. Now won’t take or go to neurologist. I know in denial
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Rivastigmine
Well things in my world change everyday - last night I was asking about Rixulti and tonight asking if anyone has been prescribed Rivastigmine. With a $500 copay for Rixulti I met with the doctor today and he changed the regimen to Rivastigmine patches. From my research (and for sure I am no doctor) It does not look like…
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Do you need lawyer??
To change or get a POA in NJ do you need a lawyer ???
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First time posting for DH has dementia with onset of hydrocephalus
Hello all. I thought I posted a week ago but does not show up on my discussions. So here goes. My husband is 82yo, diagnosed w/dementia and onset of hydrocephalus. He has progressed quite a bit within the last 6 months. Neurologist does not want to give me a stage let alone see him, just keeps prescribing medication. Am…
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My mom was diagnosed with Alzheimer’s
My mom was hallucinating so I made an appointment with a memory care doctor and they gave her a cognitive exam and a hearing test. She was diagnosed with Alzheimer’s so I made a decision to move her closer to her family out of state so I quit my job and moved closer to my mom’s side of the family. I was not prepared for…
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Caring for Grandma
Good morning. I'm new here. My wife's grandmother is in mid stages of Alzheimer's and is at home. Grandpa is her primary caretaker and does not want to move her to a memory care facility. He also doesn't allow much help. My wife and I go over every couple of weeks to wash grandma's hair and try to get her into a change of…