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Reached out to my state rep
I am tired of everyone (doctors, lawyers, care givers, MC administration, etc) that I speak to telling me the system is broke, the system is going to implode, that there is nothing more I can do, and that I am in a unique position. That position being younger than my DH and not able to retire yet to care for him. Assisted…
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My observations about MC
First of all, at least in my situation, an MC isn't like "committing" them to an "institution" where we imagine them in straight jackets banging their heads against the wall all day while Jack Nicholson is planning his escape. An MC can be a very homely and lovely place for them to recieve the care they need in a caring…
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How to deal with perceived anger
Just curious how everyone deals with your LO thinking you are angry at them but of course you are not. DH got up this morning saying I was really angry at him last night. I wasnt but that did not matter. What do you do? Do you just say okay I was angry but I am not now so lets move on? I dont like being the bad guy and…
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My DH went to MC today
My family and I have been thinking for a long time that because of his angry and agitated behavior DH needed a safer environment than I could provide for him at home. We had chosen a facility in February but we had to await an opening and also had difficulties getting doctors to sign off on their forms. I will say that the…
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wipe warmer?
I buy the Walmart brand xl 12X8inch wipes. DH doesn't like the cold wipes and one of the aids suggested a wipe warmer like the ones used for babies. Not having any luck finding one so was wondering if anyone purchased one of these that will fit the xlarge wipes? Thanks
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Has anyone been in this spot?
It is time for DH to go into s memory care facility. He can barely walk now and I fear for his safety should he get up during the night. I kept delaying as he also has incurable Leukemia ( docs do not want to treat due to further risk) that makes him vulnerable to infections. With stage 6 ALZ and low nutifils? Has anyone…
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Is a Real ID necessary?
My DH drivers license expires next Monday. I took him to the MVA to get a Real ID in place of a Drivers License. The clerk we saw told us he needed to have a social security benefits summery that list both his full name and his birth date. The Birth Certificate we have was issued by the hospital where he was born, has a…
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A Little Introspection
My therapist has suggested that I might find it helpful to be more open about my DH’s dementia and my own struggles as his caregiver. She tells me that I need to let go of the feeling that I should carry this weight on my own. I know I’ll find support here if I can just say what I feel, but I have a long history of…
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Are some PWD calm?
As DH moves down the Alz pathway, he has been calm throughout. We are now in Stage 5 I imagine, although he is still continent and mobile although wobbly of course. His MMSE yesterday was 17. He has always been an introvert and not a social person. I wonder if some get through the whole process without the overwhelming…
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Marriage
I am at my witts end. My husband is 53, we have been married 13 years, we went through addiction and many battles that go with that, together and came out the other side together when no one else in his family was supporting him. He was just diagnosed with dementia officially 2 months ago, but have been dealing with it for…
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Shaving...
I'm 38 and my BF has EO who is 44, recently he has become scared of his reflection in everything!!! Mirror, car windows, store fronts, glass doors anything that reflects. He has left his facial hair grow for 2 weeks now and is currently in the bathroom shaving.... I was gonna attempt to do it for him but he let's me get a…
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Sister said she put mom in Hospice
Well I was not ready for this, now I will see what happens next. I did see my Mom yesterday just briefly, she was sleeping. Hugged and kissed her. I am thankful, God bless.
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So on edge. Old behaviors resurfacing
DH was hospitalized in January. He was extremely agitated about my not letting him drive and he wanted his house back. We had sold it 2 years before but he doesn’t recall this. He was becoming increasingly more threatening and accused me of selling the house from under him. He would at times also threaten to hurt me or…
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DH's Nightmare is Over
My DH completed his journey very early Wednesday morning. I'm so grateful he no longer has to live in Alzheimer's world, not remembering anything for more than a few seconds and wondering what he has done wrong to be sent away. Hospice house was a blessing and helped take the sting out of hospital events. Upon reflection…
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Virtual Reality Experience
has anyone had any positive experiences using VR headsets with their loved ones?
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Please: help with advice getting into geri-psych
Hi there, My mom and I are at a total loss about what to do right now and I'm soliciting advice from your personal experience. Here's the situation: My dad, 80, at a memory care facility (Alzheimer's), has had some impulsive behavior resulting in the facility questioning if its the right place for him, and demanding 1:1…
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MCF Rate Increases
Do memory care facilities increase rates at will? I know that they will give you 60-day notice, but other than that, can they just increase whatever rate they want, whenever they want?
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Sharing positive news!
A memory care/assisted living evaluated and accepted my husband! He moved two days ago. It is a ten minutes drive and he tolerated the move very well, even rolling his own suitcase! He has a private room and shower and there are one half as many residents as his former nursing home. I thank God that this facility opened up…
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Venting and overwhelmed with how to help my DH with his GERD and allergies
My DH has struggled with allergies all his life and chronic GERD the last couple of years. This brings on coughing, snorting, spitting, clearing throat all day long. He’s take nexum, acid reflux, nose sprays, mucinex, etc. We went back to his allergist yesterday, and he order him Symbicort inhaler and we were hopeful it…
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Worried
Just need to talk this out. No need to respond. My DH passed the Driving knowledge test, but flunked the skill test on Sat. I thought it was going to be the opposite, but he couldn’t parallel park to save his ass. So he’s been on the warpath since. Since his license has been revoked he has me jumping through hoops for him.…
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VERY new here
Long story short my DH's mother had early onset Alzheimers, I 'suspected' for a long time that my husband may be starting on that path too… Only he's OCD we just moved to be closer to 'some' family 7 years ago - from Vt. We are now 77&76 years old. My husband insists on working - just 'retired' (as his new jobs consisted…
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Any ideas for me to stop worrying...
I am, and have always been, a worry wart. But I've always been a great sleeper. Since my DH has had dementia, I've been waking up early and then having trouble getting back to sleep as my mind thinks about all the possible stresses coming up. The latest one is the hiring of a painting contractor for the house. I've got the…
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When do you know it’s time for a Nurologist that’s more knowledgeable on condition
I ask this as I read others see different kinds of Nurologists so I guess I asking when is that time? We see a Nurologist regularly so far just short term and confused no driving. Everything else on her own
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Young Onset Alzheimer's
My wife just turned 55 and was officially diagnosed with alzheimer's at 53. I am 59 and had to retire at 56 to take care of her. I have done a lot of reading on the disease and caregiver stories on caring for people with alzheimer's. I often tell people if they really want to know about dementia they should read the…
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He wants to go home . . .
Every day my DH begs me to take back to his home town (6 hours away) to see his mom and dad (who passed long ago). I try telling him they are in heaven. That his siblings are coming here to see us ( I’m not sure they are). Nothing works. I know his longings are real and I feel so bad for him but it’s also so hard for me to…
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Let's take a minute to celebrate the life we had
My wife is in the last stage of dementia. It's unbearably hard to watch. I put together a video of pictures that plays in her room filled with pictures of our life together and our many trips. We had a great life and I now look back upon that with gratitude. She seems to watch it. I love watching it and try to identify all…
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The man in the mirror
Hi I'm new to the group and my BF has EO alzheimers with FTD. He also has speech aphasia. He is 44 and was diagnosed last fall. All has been well, as far as him staying home alone. I close one day per week till 9pm. Well a few weeks ago we came home and he had to go potty he said in the mirror "I gotta go okay bye" I just…
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What are options for working spouse?
First time posting. We are 3 1/2 years into my DH Alzheimer's diagnosis. DH is 66, I'm 53, working full time, and and have a child in college. DH just came home after a month long hospitalization for med adjustments due to aggression. We have seen agitation and some aggression at home, however, he had an extreme act of…
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I find oddest things set them off ! How about you??
yesterday out had great day vine home get in house I ask her if she got mail and wife says “why would I get mail!” I said because first thing you do everyday we go out. Hasn’t spoke to me all nite waiting for this morning.
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DH has Alzheimer's disease
I am a 58 yr. old trying to care for my 61 yr. old husband with Alzheimer's. He was diagnosed with this disease when he was 57. I hate to see him decline in the easiest tasks he used to do. He can't read or write anymore, but he still claims that he isn't sick. I hate this for him or anyone that is going through it. I am…