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Toilet hygiene
My DH sometimes had soiled pant or sheets at night, as a result he started to use depends disposable pull ups at night. He gets confused and puts them in the wash or hides theme!The worse problem is that he is not cleaning himself properly after pooping so disposable are dirty! Any ideas how to get around that problem? I…
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Ashamed
Gaahhh. I got into a fight with my DW yesterday. What in the world is wrong with me? I haven’t argued with her in years. It’s been 3 years of this, I know her brain is not functioning right and yet there I was, acting like she was my DW with nothing going wrong with her. Can I still possibly be in denial? Am I losing my…
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My DW's caregiver
My DW is declining and it is a hard thing to watch. We both live in an Assisted Living facility and the staff seems to be content to let me tend to each and every one of my DW's needs and requests, etc. I have Parkinson's disease and I feel as though my own needs are not getting met. It doesn't feel like anyone is…
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Tell me the obvious bc I am depleted
My LO isn't safe to be alone per dr. I have been dx with pneumonia and need to heal or will end up in hospital or worse. My LO's POA plans to call her and suggest she stay with her POA a few days while I am contagious. This is a necessity, right? Wow. I hear myself as I write and am pseudo feeling okay bc of treatments and…
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Struggling with guilt and frustration
I have been my husband's sole caregiver for the past 3 years. During part of the time I was caregiving for him, I was diagnosed with cancer and had to work full time, go through chemo and take care of him as well. After much thought and contemplation, my husband is now living in a full-time memory care for facility. The…
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New here
Hi Y'all, I was just sitting here having a pity party when i found this site. I read many of your comments and much of the advise given and already feel a bit better. My DW who has been my partner for over 50 years is somewhere between stage 4 and 5. I feel very fortunate in that she voluntarily stopped driving a couple…
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Girl From North Country
So I had these tickets for 8 months. way before the denial coma I was in. Yesterday started out with him accusing me of stealing his keys(which is true) So we head out the door and he heads to the driver’s seat. After he yells at the poor Amazon driver we are off with me driving. He says he doesn’t want to go to this…
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Can cannabis help LO's agitation and confusion?
My DH is in stage 5/6 of dementia and is often confused and agitated, refusing to change into clean clothes when there's been an accident, insisting on doing yard work in 32 degree weather and is unable to communicate due to his aphasia and word salad. It's been recommended that we try a low dose of cannabis (legal here)…
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Housing Issues Maybe?
Thanks everyone for the warm welcome back. We live in a 3 level townhouse and I’m not sure what to do about our living situation. He has lived here for 45 years and me 15. Should I try to renovate it for easier access or do we move to a one level place? It’s only the two of us and as someone here said “The Calvary Is Not…
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Reaching Out!
Hello, I am a new member and reaching out to help relieve my stress that I'm going through! My DH has had Alzheimer's for 6 years now, us being married 54 years and retired 20 years and within the last couple of months he is not recognizing me all the time. It starts late afternoons lasting until bedtime, which I found out…
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A different kind of film of love and dementia
I'm not sure how much of reality is there, but I want to see it. https://www.thedailybeast.com/obsessed/the-eternal-memory-the-sensational-love-story-that-should-win-an-oscar
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When to Move Spouse to Memory Care Facility
My 74 year old wife’s dementia has rapidly worsened. When the time comes for a professional memory care facility, what steps can I take to prepare her for the move?
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Never mind
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Finding a caregiver via Facebook
There are a lot of new members here and I thought I would pass on an unconventional way to find a caregiver that worked really well for me. My husband progressed to the point where I couldn’t leave him alone. He loved to walk and could take care of all toileting needs. I felt that I needed to have some free time for myself…
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Belle
@Belle I've always said there are no small losses in this game. They are all huge, and I'm sorry you had to deal with that. I remember when my wife forgot how to make pancakes in mid Dec. 2019. She never cooked again. She was an excellent cook, who made most everything from scratch. It was really hard to find something…
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General med questions.
Hi all. First thanks for all the support and ideas. Struggling with something. How can you tell if LO behavior and affect is related to med regimens vs. typical progress of the disease. My husbands meds were adjusted recently. Only seems to becoming more agitated and delusional. And before he had mma y more happy moments…
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New Here and trying to Manage
I am new to this group and so glad I found it!! At the suggestion of my VA Caregiver coordinator to find some kind of group. My DH was diagnosed almost 4 years ago - not your typical pattern though it was more like someone flipped a switch. One minute he was fine and the next minute he did not know who I was...this was…
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Repetitive questions
How do you deal with the repetitive questions? My DH is driving me nuts. He will ask the same question 8 times or more in the course of 15 or 20 mins. Then later it will start all over. I know it is not his fault but my patience is wearing thin. I have my own health problems (Pancreatic cancer) which he is oblivious to( no…
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Trying to stay positive
I’ve been reading posts on this sight and have found them all very helpful. I’m really struggling day to day. I’m 61 and my DH is 72. I’m still working full time and am blessed because most of the time I can work from home. My faith and church have been so wonderful and a dear friend from church stay with my husband when I…
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Leaving my husband with dementia for the weekend.
Hello everyone I am leaving tomorrow. To work my Nanny gig. The neighbors and our son. Are checking on my DH. I really get very anxious about leaving him. Feel guilty too. Does anyone have suggestions that could help. Myself and my DH be less anxious while I am gone.
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Rapid Decline or Delirium
My wife was diagnosed with Alzheimer 6/7 years ago in her early 60’s. She was doing ok with typical symptoms like forgetting things or mixing things up. However, two months ago, she starts mumbling and talking to herself quietly and not responding to our conversation much. We went to see our family doctor and did blood and…
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3 years ago to present day
So much has changed and so much remains the same. I remember 3, possibly even 2 years ago (all the years just blur into one) I could leave my DW at home for a few hours while I worked, played golf, did photo jobs, went to the store, etc. She had lost the ability to use a phone by then but I could still talk to her and…
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New caregiver group reminder
Just a reminder that I started a group to capture the information regularly shared with new caregivers. I added some sites and documents that are often shared (Tam Cummings Handouts, for example) and started a few discussion threads where I thought we could add useful member posts so they're easier to find later. This site…
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Clean house!
I know you will understand. Last night was a tough one. My DH was trying to clean his dentures. He shook them and they flew out of his hand into the tub and cracked a tooth off. I am loosing my mind! At 3am I was thinking, and googled chipped tooth on dentures. Found you can re-glue it with a kit. 4am I put on gloves and…
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Need to vent
we are early in this journey. We are both young and still working. DH is 60 and works as a salesman for building materials. He vents about his job every day and always has. His diagnosis a year ago was MCI and I notice issues with his memory and word finding every day at home. I don’t know how it is possible that it is not…
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Done
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Confused about Seroquel!
My DH (6 years ALZ) has been on Seroquel for almost a week for some agitation, delusions, hallucinations. Sometimes after I give him the 25mg pill, he gets agitated. It might take 30 to a hour for him to chill out. He is on 25mg twice a day. His first is 12:30pm because usually he is good in the mornings & sleeps sometimes…
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Stage 7 - Difficulty Swallowing & Diet Modifications
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Neurologist vs psychologist and others
Im interested in your experiences dealing with neurologist vs psychiatrists or both for dementia. I’m am not at all impressed with husbands neurologist. She hasn’t done a thing for him in a few years outside of occasional follow up visits that basically accomplish nothing. However his psychiatrist has been much more…
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Happy? New Year
It's that time of year again when everyone you see wishes you a Happy New Year. Maybe I'm just old and jaded but I see nothing happy about the coming year. I started keeping a journal last Jan. and looking back reading my past journal posts and seeing his decline over the past year just makes me sad. So I'm sure the coming…