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Simpler discussion format
Hello everyone. I found a simpler disussion format at Mayo Clinic: https://connect.mayoclinic.org/group/caregivers-dementia/
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by Ed - Diagnosis and depression
Just wondering how many of your LOs developed depression after finding out about the diagnosis.
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by Dio - Day of Move Ideas for Placement - Success
To all you brave warriors who have successfully placed your LO in MCF, please share your execution plan on the day of moving in. I'm looking for ideas. Since DH is still very cognizant of what's going on around him, I'd hate to traumatize him with the move. Some ideas so far include: Have friends bring him to dine at the…
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LGW Blindsided by hallucinations
My DH told me there was a pig outside our window. Instead of being thrilled that he had actually said something I told him there was no pig. I am so irritated with myself. I know he won't remember the conversation but I can't believe I argued with him. I hate this disease. He doesn't have many hallucinations (that I know…
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Therapist in the Boston area
Does anyone know a therapist in the boston area that understands caregiver stress? I know you really need someone that understands what it is like caring for someone with alzheimers. Thank you so much Deb
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Spouse with dementia and parkinson’s
Morning guys. Having a lot of frustration and trouble coping with husband’s moderate dementia. I believe he has now gone into the next “phase”. No sign of affection or caring towards me, I.e. no hugs, kisses or recognition of me. Then out of the blue he gets mean and nasty blaming me for watering my plants, that he’s the…
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How to tell my husband he can't work on cars anymore
Hy husband is in the moderate stage and still thinks he can work on cars. This results in taking apart the car and can't put it back together, making it unable to drive to the shop. He gets angry when I tell him I'd rather pay someone. How do I get him to let go?
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Distance to Memory Care
Hi All, I am closing in on a few MC facilities for my DH and have received contradictory advice as to how close or far away the facility should be. Some say the facility should be close by so you can visit frequently, deliver odds and ends, etc. However, another person told me don't worry too much about the distance--it's…
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Colt 99 First week of MC
MC move in and first week. I don’t post here often but I do read a lot. If you have shared your MC move story over the past several years, I have probably found it in my research (old platform) and I thank you for sharing. I will focus on the actual move and first week now and will include the planning and preparation in…
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Link to Understanding the Dementia Experience
The alzconnected link to this article may no longer work, try this instead- Smashwords – Understanding the Dementia Experience – a book by Jennifer Ghent-Fuller
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Help with getting spouse to appointments
Hello, I am new to this, need help, would love some input on something. how do I get my husband to go to appointments, sometimes he will, but there are times he will not, says things like the last time he was there was not treated right but thats no so, has a problem with trusting them at times. There are times we will be…
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Off topic for sure
I've been reading a little more about Helen Keller, and the movie "The Miracle Worker", a 1962 movie about how Helen Keller was helped. It really is a fascinating story, and Helen Keller was played by Patty Duke, 15 years of age at filming. She actually met Helen Keller in 1961, and the photo follows.
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I looked at the new privacy policy and here's what I found
I went over both the AA privacy policy as well as the Vanilla Logic policy. They're similar. The Good Both policies are fairly readable. There's a certain amount of jargon but for the most part, both entities explain the jargon they use. They both are fairly transparent in their disclosures. Under the Do Not Track…
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Off Topic: Favorite Movie Endings
With the Oscars coming up, I wanted to share some of the all-time best movie endings. Cinema Paradiso The parish priest forces a movie projectionists to remove all the kissing scenes from the movies he shows to the villagers. In a fire, the projectionist losses his sight, but is saved by his young mentee who later becomes…
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Clinical Trials: Leqembi
An FDA advisory board is going to provide input on the anti-amyloid drug Leqembi in June. For aducanumab the FDA statistician showed that the drug had almost no affect on non-APOE4 carriers, which may have impacted the FDA advisory board's decision not to recomment its approval, although the FDA later approved it anyway.…
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Even a Slow Progression Hits Milestones
I keep telling myself that DH is progressing slowly. And that may be true. But this past week, 2 things happened. First, we were at Culver’s and DH was eating a burger. There was a lemon wedge I had put on the tray. Halfway through the meal, he saw it, opened up his burger and squeezed lemon juice over the burger. I said,…
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FTD or ALZ
My husband was diagnosed 2 1/2 years ago with Alzheimer's, but was already scoring a 17 on the MMSE, (so basically pretty far along). We recently decided to switch to a local doctor because his geriatric doctor is an hour and a half away, and difficult to get a response from on short notice. When digging through all of the…
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My Bob is gone
Hello. My beloved husband, Bob, passed away in his sleep on Thursday, 3.23.2023. It was unexpected by the staff, by Hospice as he wasn't showing the "clinical" signs of actively dying. When I was with him just days before, he was consumed. Wouldn't make eye contact, no recognition, sleeping on/off, smiled briefly when I…
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DH passed
My DH passed away early this morning. I’d left MC at 8:30 to go home and sleep. I returned to MC around 2 in the morning. He died in my arms 90 minutes later. It’s astounding to me that exactly 6 months ago on Sunday, October 16th I called 911 and he was admitted to geripsych for 30 days. Memory care for 45 days. Hospital…
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Deleted
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Hi… I’m New Here
My husband was diagnosed initially w FTD and now after neuro psych appts with EO Dementia - mild. He’s 52 and we are trying to live and learn. We are working through long term disability process and permanent disability. Things are moving along. Slowly but surely. I think the daily schedule is important and he does not…
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Not again
My dw of 57 years passed 9 years ago of Alzheimer's. I remarried 4 years ago and am seeing early symptoms in number 2.
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For those who have lost a spouse
This poem was given to me by hospice. Gone From My Sight I am standing upon the seashore. A ship, at my side, spreads her white sails to the moving breeze and starts for the blue ocean. She is an object of beauty and strength. I stand and watch her until, at length, she hangs like a speck of white cloud just where the sea…
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I miss the Musings board
I have had a few postings that I've wanted to make on the Musings board, but alas, it's gone for good.
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Decades of anger from combative spouse
Hi, everyone: this is part commentary and part question. My wife of almost 40 years (we're both 69) is far along on the dementia journey -- probably mid-level, according to ALZ metrics, in that she can still feed, clothe, bathe herself but is entirely confused by dates, times, events, and the interdependencies between…
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Indoor locks?
My DH has been attempting to go outside at night. I am ordering alarms, but I was told I should check on Indoor locks, too. I was wondering what brands or styles do others use? He is mild/moderate but quick at the door. Thanks for any suggestions. Man, this is tough. Thx.
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Wandering at night
My husband recently started trying to walk outside in the night from bed. He has 100% use of a walker. My question is should I try to talk to him about this? He is diagnosed with moderate Alzheimer’s.
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Thinking about all you caregiving partners
well really thinking about all of us but caring for a spouse or partner is another kind of warrior
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Tough getting my head around things
Oh my! Why am I posting so much negative things the past few days? Been a turning point for me I guess. Day didn’t start out so well, awake since 3 am DH grumpy as usual. Finally ventured out with him to do some errands and visit the grands for a few. Get home and he starts complaining about our neighbor dumping dirty…
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Nowhere- temporarily living in same town as my husband
No longer do I need to disguise myself to visit my husband. Not even a Covid mask! He knows I’m his wife, without knowing the details. He no longer aggressively seeks to find me when I leave. Or demands to leave. It’s wonderful. I see him inside lots of smiles and deep sighs. He’s still the caring gentleman of others. This…