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Did we miss something in the beginning?
My wife's father died from Alz and I've always been told that by my wife so when she first started showing mild symptoms years ago we both just assumed. She didn't want to accept it, deal with it or go to the doctor about it and I didn't force her. Several years ago I made an appt with her PCP and since I had POA I was…
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If you haven't seen it......
Read the "Exciting News About Alzconnected" (one of the stickies on the main page). We're going to a new UI, so you should know what to expect.
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Question/Response I Can't Stand
"Does she still recognize you?" .... "Well, that's good." Ugh.
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Is it true? After Alzheimer’s…
I’m reading Patti Davis’s (daughter of Pres. Reagan) memoir, “Floating in the Deep End: How Caregivers Can See Beyond Dementia, and she asserts “that once Alzheimer’s enters your life, it never really leaves”. I’m wondering, for those of you have had a partner/spouse die what about it is still in your experience that might…
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How do I tell my husband he is going into a memory care unit?
We're at the point that I don't dare leave him at home. He still tries to help but he forgets what he's doing and doesn't finish. Or he does something wrong, like handwash dishes without soap. He doesn't think he is in such bad shape. There are times when he talks with me that he doesn't make any sense. They are words in…
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Starting in-home care. How many hours a week?
I know there are many of you who may have experience and wisdom on this topic. I am just now researching agencies to do in-home care for my DH who was diagnosed with mild dementia last December, after a diagnosis of MCI two years ago. He can still feed, dress, and toilet himself, but his needs and angry outbursts are…
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Dementia TV
I just came across this site. It is TV made for dementia, and looks really good. I don't have any first hand experience with it, but I think it's worth looking at. https://watch.zinniatv.com/browse https://watch.zinniatv.com/browse You can get a good idea of what it offers before signing up. Monthly price is $6.99, but if…
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nightmare of double incontinence
I woke up this morning to a major mess. My DH can't take a shower on his own. Thank heavens for Hospice. His bowel movement was everywhere. on his hands, all over his cup and on the rail of his bed. I did the best I could and now I'm waiting for Hospice to come shower him and I can clean the rest. What a nightmare that I…
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Interesting article about music and memory
https://www.washingtonpost.com/wellness/2023/02/26/songs-music-memory-connection/
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Information
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Creative Kindness Dynamic From sunnydove
This approach was part of a Post on the Caregivers Forum; it is from Member, sunnydove. For some of our Loved Ones this can be applied to, it is a lovely idea: " . . . One thing I do with Mom all the time is thank her for her help. Often she's done absolutely NOTHING. But she doesn't know that. So if I have to put in a new…
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Save a few bucks on streaming
https://cordcutterweekly.com/26-free-tv-services-to-stream-for-cheap/
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I feel so alone as he changes
I've been with my boyfriend for 22 years. He is diagnosed with Alzheimer's and his mother died from it. We never married because we were afraid he would be diagnosed and Texas is a community property state. i have worked a demanding job for the time we've been together. I was forced to retire in December of '21 even though…
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What stage is he in?(1)
Need to vent please. My husband doesn’t sleep at night. He might fall asleep for an hour then he’s up all night. Totally out of it at. Totally worse, out of it the next day. He’ll catnap during the day but it’s not restful. Talking nonsense, seeing things. Can’t complete a sentence that makes sense, hallucinates, totally…
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Need Direction
My husband and I moved to Fort Worth, Texas from California in late 2020 after he was first diagnosed with Mild Cognitive Memory Disorder. Our Primary Care physician referred us to a Neurologist. He initially did an EGG and prescribed Aricept and recently prescribed Reminyl. The medications are helping however I feel like…
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Back After Awhile
Hi, Everyone: I haven't been on in a few weeks, but I need to vent. Hubs, every few weeks or so, speaks of his mother in the present tense, although she died in 2016. This evening he was adamant that he had just spoken to his sister who was, according to Hubs, is in town. She is actually a few hundred miles away and hasn't…
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How long does agitation/agressive behavior last
Hello All,My lo was diagnosed with Alzheimer's eight months ago. And his agitation/agressive behavior has been there from almost the very beginning. He's been on serequal for about 3 month, which has barely helped. Then doctor also added Xanax once a day. Which just seems to sedate him but he still has agitation and…
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DH update with aggression-such a difficult process
Hi, I have mentioned in a few posts my DH has gotten really agitated/aggressive/violent towards staff and residents. Well, for the first time today, I went there and he was very wound up. He pinned me against the wall and staff had to come help. He was so scared and in fight mode. I left and came back later. I know it’s…
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My Story So Far
You would have to see my profile, click on story, rather long but all true.
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This could benefit some here
I posted this on the Caregiver's forum, but thought maybe it should be posted here too. https://www.elderlawanswers.com/becoming-a-family-caregiver-for-an-ailing-loved-one-19539
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If I get dementia
My wife’s sister posted this on Face Book and I wanted to share it. If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things. 1. If I get dementia, I want my friends and family to embrace my reality. 2. If I think my spouse is still alive, or if I think…
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Keeping spouse home
My dh is mid-late stage 6 and still can walk but shuffles and sleeps well at night so far. I do have caregivers that come five hours at least three times a week. My question is to those that have kept their spouse home until the end. Would you have put your spouse in memory care if you had a "do over"? Or were you able to…
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Visiting my DW in Memory care home.
I haven’t written 9 months, thats when i put my DW in memory care. That was the most difficult thing i have ever had to do. We have been married for 51 years and were joined at the hip, so in love all this time. She has has Alzheimer’s for 13 years now and for the last 4 years i have made sure that she had friends around…
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Owning our loved one's disease, what does it mean as a caregiver?
What do you think the term means, "owning it," in reference to our spouse's illness? What does "owning" something in counseling jargon refer to? What does it look like? Is it simply another way to look at acceptance? If so, what does fully accepting the dementia journey really mean? Whatever Acceptance is, is it possible…
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Question concerning POA
Hello All, Husband and I met with elder law attorney this morning. He is drawing up papers for me to be POA for my husband. We go back to sign papers on March 8th. Since attorney is drawing up the papers does that mean he found him competent, or will husband have to answer more questions on day he signs the papers? Just…
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I am deep in it
I have a contract on my home 2500 sq ft in the country, 16 acres 4 outbuilds a 24x40 garage all have stuff. Getting rid of most Stuff has been easy, and I am making good headway, the scrap yard has been profitable, 1400$ and counting in scrap steel, the dumpster folks will know my name, goodwill is also getting their…
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update on DH...hospice
Hi All...just wanted to give you an update on my DH as I had asked about keeping LO at home during the journey with AD. My DH went on Hospice several weeks ago, and I had no problem with this as the benefits out way the negative. I still have my caregivers coming seven days a week to help me get DH up in the morning and to…
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Partially OT - Medicare Advantage or Supplement?
I’m interested in the group’s thoughts on Medicare Advantage versus a supplement. I am posting in the spouse forum because I think the age range here is more relevant It’s off topic because it concerns my spouse rather than my PWD It’s time to decide whether to keep my spouse on my retiree insurance, which becomes a…
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Romantic film and tears
When my husband and I first got together, he wore round black framed glasses. A friend of mine told me I was Sylvester and my husband was Tweety Bird. It was a running joke because of my hubby’s sense of humour. Tonight I was watching “Evening” in which a woman recounts her past love. I made it through the movie, almost.…
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Weighted blankets(1)
DH is having a hard time sleeping at night at the care facility. He often wakens and wants to get up and can be loud enough to waken the other residents. Most times he will go back to sleep when told it is too early to get up, however, the night care giver and other residents often hav a hard time going back to sleep.…