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Constant gaslighting
I just came back from a local caregiver support group near me. So thrilled to feel so validated by similar stories, got some ideas for some of my challenges. Then hubby comes back from his mens group. He got a ride like I asked him to, he complains that his ride can’t drive either. Then he tells me he saw his therapist…
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Some PWD may be able to return home
It breaks my heart to read about some of your struggles with the decision to move your LO into a care facility. Last night I watched this Teepa Snow video on YouTube and the speaker is a minister who took care of his affected wife for many years. During one stage, she fought him and wouldn’t allow him to care for her, and…
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Just need to talk to my friends (176)
Hi, Seemed to be the right time for 176. Can you all believe it's been that long and for years we didn't number them. Sara, I will make a concerted effort tomorrow to find the recipe for stuffed eggplant. Jo's recipe sounds good but lots of ingredients. I'm like you in that I like easy things to cook. By the way I…
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Spoke too soon
When I came down after tidying upstairs, there was a big brown package in the sink. Whipped on the blue gloves and put it in a doggy poo bag. But what was more worrying was the fact there was a stranger sitting in the living room. He was very nice and introduced himself to me. My husband kept asking me to come in and talk…
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Transient Global Amnesia - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/transient-global-amnesia/symptoms-causes/syc-20378531
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Tomorrow to MC, any last advice?
This seems a small problem in light of the intense suffering many others are experiencing. I apologize, but here I go. Thank you in advance!! DH will be going to MC tomorrow, after about a month in rehab. Gout both knees, L-1 fracture, pneumonia. Walking with a walker now and more steady on his feet, which is the goal MC…
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Stuck (as in, we are stuck)
It will. be four months next week that my partner has been in MC, five since she was hospitalized. There has been no acclimatization or acceptance of her surroundings; if anything, the MC folks are telling me that her anxiety about not being able to leave is increasing. They asked me today what I thought about them trying…
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DW Doesn't Think I live in our House
My wife and I have been married 31 years in September and have lived in the same house the whole time. She was recently diagnosed with early onset (she's 63) and the primary issues are no short rterm memory and some sundowning activites including wandering off. Recently though about once a week she will ask me when I am…
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Spouse with dementia “fires” aide
DH screams at aide(s)—only if and when I’m not here—to go away and get out of the house. For context: For a couple years he really dislikes other people, even longtime friends, at the house. If friends came by, he might last 5 minutes, then he goes to another room. Even kids and family, if more than one, he leaves. I can…
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Now even more to deal with
Starting a new post about my challenges in trying to help my wife. I feel like I'm writing too much, sorry if I am. To briefly recap, on Saturday my ability to care for my wife at home by myself came to an abrupt and unexpected end. I called for an ambulance to help get my wife off the floor and to take her to the ER to…
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Its sad as I wasted so much time with them
Good afternoon, I WOULD FIRST LIKE TO APPOLOGIZE IF FOR SOME RESON YOU ARE GETTING THIS A SECOND TIME. But I was going of multiple email list and you sure cannot trust a person with dementia to do it right. I wanted to ensure that I had reached out to all that I have spoken to in the past about DAA. Please share with all…
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air tag question
One of our sons convinced me to get an air tag ( a tracking device) and put it under the insole of DH shoe. He said he wouldn't notice it and I would be able to find him if he should wander off. Looking at the air tag this morning, I think it is going to be noticeable if I put it in his shoe. Has anyone had any experience…
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No offense intended, but.....
As far as I know, none of the people on this support forum are qualified in any way to take on the responsibility for the full-time care of a person with debilitating mental disease. For most of us, we believe that our vows of love and care are binding, and so we do the best we can in a miserable situation, but we delude…
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Muddling along until I can secure Guardianship for DH
Jo C - Thanks for the nudge to let you all know how things are going after discharging DH home from the VA Psych Unit. As I say, I'm muddling along with his psychotic behavior until I can secure legal Guardianship for him. It is necessary that I have this court order in hand should I need to re-admit him to Psych treatment…
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Still Around
I've been off this forum as I've been ultra busy with DH. We have had rolling behavior issues which have left me exhausted. Or rather burnt out. DH is now on an antidepressant and is going through the adjustment period. This means flipping the switch and heading for Planet X. This has happened quite a bit in the past two -…
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2 trips to the ER
DH ..92...for the first time wandered out of the apartment and tried to open up the car doors.We live in independent living and a neighbor noticed him and helped him lay down on the grass and they knocked on my door ( I had been napping as I have fibro and CFS )and we called EMS. DH had brain surgery 4 yrs ago and was…
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Wrong month
DH has been confused about which month it is, thinking it is June. I gave up on correcting him. So when he asked this week if we were going to the fireworks on the 4th of July, I begged off citing Covid concerns. Then he asked about celebrating our anniversary on July 18th. We already celebrated it on the 18th by going to…
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Glucerna and Other Drinks Contamination Recall
https://www.yahoo.com/finance/news/glucerna-oatly-drinks-among-53-203923957.html
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Has anyone been through grief counseling?
If so, maybe you can answer a question for me. My wife died a little more than a month ago. We have a daughter who has always been there for us throughout her mother's dementia, and she handled the specifics for the funeral. She has been having a very hard time with grief. She and I went to the cemetery yesterday to see…
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Hyper Focused and Mood Swings Just a Vent
I don't expect any "solving" answers to my vent. DH is not diagnosed (and while I know no one wants a dementia diagnosis, I must admit I am a little envious of those of you that at least have that piece done so you have a "reason" for behaviors). He is still working in our business as President and told me as recently as a…
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Love is still strong
For the last few weeks she has been so cute. There are still the accidents and messes, and the inability to do basically anything, but there have also been smiles. The smiles that pull all her lines tight and give her the face of bright young thing. She jokes with me, and pokes me when I walk by, and then laughs at her…
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ToolBelt Expert
Hello Stewart, have been thinking of you and hope you are doing alright; we have had some concern as you had not been feeling well. So hope you have been able to gain some headway on feeling a bit better and that things are moving in a positive direction for both you and your dear wife. J.
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jmlarue(1)
Hello jm; I have been thinking of you and wondering how you are doing and how things are going since your DHs arrival back home. Though we know it won't be "perfect," I so hope that things are at least somewhat better than they had been prior to the VA Psych stay. Wonder if you are still thinking of and/or are working on…
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So now all this...
Recent times have not been good to us. For several months I've been trying to deal with my wife's delusions, hallucinations, anger, and agitation. We've worked our way through some of the meds and different dosing levels with limited success and overall unacceptable results. My goal had been to better manage her behavioral…
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I feel out of my depth
My husband was diagnosed in November 2021 with mid stage dementia. I had to retire in April in order to take care of him full time, he was no longer able to be left alone for even a few hours a day and I can't afford even part time help. I sometimes feel angry that I had to do that, then I feel guilty as he is the love of…
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No poo in sink
Hi everyone,I have been getting up every morning checking the sink for brown surprises, and so far there have been none, a week and a half and no poo. I still catch him peeing from time to time but no poo. I have eliminated most of the dairy in his diet and it seems to be working. I realize this may be tempting fate…
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DW wants to come home from MC
DW has been in memory care since end of April. She knows who I am but recently most of her conversation does not make sense. Regarding her coming home sometimes I tell her the truth, i.e., she has a medical condition that need specialized help that I can't provide her by myself. I usually try to delay or defer the…
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Possible fabrication in Alzheimer's research
https://www.science.org/content/article/potential-fabrication-research-images-threatens-key-theory-alzheimers-disease
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Hodgepodge contemplation of where we are now
I used to write a lot and participate much more the first few years I came here. Now I mostly read, so grateful for others' sharing, and have hunkered down in my own little corner, poking my nose out once in a while. I just don't have much energy for anything more and am feeling weary and quiet and somewhat detached. At…
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Follow up on DH
My last post I had said dh had a fever but tested negative for covid. He did in fact test positive for a UTI the next day. He was put on meds and is doing much better. He seems to have adjusted to MC and is eating very well. He still cannot stand or walk and is on hospice so they will not do PT. His Dr and I both believe…