-
Off topic, but an interesting story - at least to me
My SIL passed away last spring. Her family had a celebration of her life yesterday, which I attended. One of my nephews told me he had been researching something on the internet, and he happened to come across a newspaper article from around 1908. My father was 13 years old, and the house where he lived also had a rat…
-
Social anxiety
Hi all. This is my first post but have read your helpful posts many times! My DH was diagnosed with MCI several years ago and had a CSF in April which showed bio markers for AD. We have learned to deal with many challenges but this one has me stumped. Any time there is a family gathering, DH gets extremely agitated,…
-
New Med Protocol
Well we saw the neurologist today. It has been a long white knuckler of a month dealing with DW's hallucinations, delusions, and psychotic anger episodes. I filled the doctor in on all her symptoms then just let her talk and the doctor listen so between my assessment and his observations of her behavior. We have some new…
-
Finally happening
It's finally happening. My appointment with the neurologist that I made in Feb. is next week. I think I'm pretty well prepared with a list of questions to ask and even drove to the clinic to see where it is located exactly because there is so much construction going on at the hospital next to it. I need to ask you opinions…
-
Sorry for losing it. Here is the rest of the story
This is not a pleasant post, and contains no useful information. I had a mini-rant a day ago, and I didn't give any info on the 'why' of it. Here goes. I have sanitation issues. It’s the way I was raised. We used to say ‘girls don’t poop’, and not even in jest. In our house there was no clue that women did anything in the…
-
Moving to MC this Thursday
I’ve signed a contact with a memory care facility. Thursday is moving day. Advice has been almost universal to spring this change on DW that morning. Any good advice for what to say? How to handle the message? It feels like a betrayal even though I know that it’s the best decision for her well-being and mine. Thanks in…
-
drug interaction
Saw you post re drug interactions....I have used and recommended drug.com. Is it at least close to the source you have? Is there one closer we can use online? Would a phamacist be able to help with possible interactions? It was my pharmacist who alerted me to possible problems with a med script before she would fill it.
-
Why anti-amyloid drugs have failed to treat Alzheimer's disease
Eli Lilly is the latest company to acknowledge that its drug candidate only helps a segment of the Alzheimer's population: APOE4 carrier (although Biogen never did acknowledge this for Aduhelm/aducanumab; an FDA statistician did). Donanemab Analyses Suggest Benefits for Select Alzheimer's Patients A disease-progression…
-
Engagement
My 28 year old son asked his girlfriend to marry him last night. It was done at the beach at sunset, with her family watching. The pictures are beautiful. We are all excited. We couldn’t have done this last year. My husband (58)went on hospice at home last August we spent the whole year on stand by just waiting for him to…
-
An Update(1)
Last week I wrote that DH was getting very upset when I leave and a caregiver comes to stay with him. It was getting so bad that I was thinking about giving up going out and dropping out of the few things I still enjoy doing with friends. Thankfully, our daughter is here this week and she reminded me that I need time away.…
-
60 falcon
Just had you on my mind. How are you doing?
-
FYI(14)
This series reflects on some of the major scientific advances from the past decade and the potential for greater future progress. Each video profiles an NIA-supported investigator and innovations made possible by the increased momentum in Alzheimer’s and related dementias research. The full series includes: Dr. Laura…
-
1 year in with MCI
I have been reading posts for the past week and it is time for me to share. My DH at 66 yrs old was diagnosed 1 year ago w/ MCI. I see many changes, but he says he's fine. I have lost the partner I thought I had. He is not capable of seeing what I am going through since "he's fine". When I bring up his repetitiveness and…
-
I’m sad today
I know these are little things, but it makes me sad to see my DH declining. Yesterday he admitted that he was having trouble using his kindle, of which he’s had several over the last 15 yrs. or so. Then in the afternoon I found him eating raw cookie dough out of the freezer. I got angry and he was so embarrassed. He’s…
-
Elder law answers
Researching Medicare or Medicaid? Google Wants to Help Google has announced changes to the search experience for users seeking information about Medicare and Medicaid eligibility and enrollment. Read More... No Will? You're Putting Your Kids at Risk As the recent death of Anne Heche shows us, not having a will can place a…
-
It's good
Yesterday I visited dw and got home about 10am. And like everyone here I have a to do list. I had a large popular tree fall about a month ago. It was dead. It was along our creek and it fell across the fence so I had cut it out from the fence and put it back up. Our neighbors have cattle so I just did the right thing. Now…
-
Frontal Alzheimer's disease
The geriatrician who saw my partner last week told me that he has frontal Alzheimer's disease. Not frontotemporal dementia but frontal Alzheimer. She sees it in his impulsiveness, the fact that he brings everything to him roughly, that he puts things in his mouth, that he screams... I feel like this is bad news because…
-
What do I do next?(1)
DH has FTD. I tried to get both of us into an assisted living facility near our daughter so I would have some help. Yesterday I went back there for a second look at the apartment, took DH with me and he behaved so badly that they said he needed to be medicated and they wouldn’t be able to take him. DH has no doctor,…
-
A trip to the ER
A tough day, after a not-great evening. Last night, DW required an hour-long clean-up after the most massive bowel movement accident we’ve ever experienced. A mess everywhere, and after getting her clean (fortunately, she did not resist—how we look for bright spots!), the bathroom needed a thorough cleaning and laundry…
-
Medicare drug plans
My DH doesn’t not have a Medicare drug plan, I know we will have to pay a penalty to get one. Right now, he is only on Arecept. Does anyone know which drug plans are best as we get further into the disease and he will need other meds?
-
One month in MC, just to update
Hi there, DH has been in memory care one month. He is adjusting pretty well. Everyone says hi to him, and he smiles and says hi back, though he will sometimes laugh and comment that "there are some screwballs here". He does not remember much these days, when I go see him if he's just finished lunch he will say he didn't…
-
Hot showers and Bowel Incontinence
No formatter is installed for the format not-found
-
Buggsroo miss you
Buggsroo hope you’re doing okay!
-
Mini Rant
The details don't matter. Today I just had a series of things happen that actually had me holding my head in my hands and telling the wall "I can't *DO* this anymore". Of course I can, and I will, but....come on already.......it's just ridiculous that this is my life.
-
Halioperidol in my toolkit
My HWD, despite being on Seroquel, is still prone to fits of agitation, especially regarding undergarments. Tonight I was dealing with him trailing urine soaked Depends goo all over the house, trying to get him to change into a fresh undergarment. He became violent,. I could not handle that along with cleanup, as I had the…
-
Feelings in Head
I am not sure if I have asked here about this but my DH has a feeling in his head that he says feels full, which makes him struggle to even walk. The research doctor says that alzheimer's is not the cause of this but I don't know what else it could be. He has had many tests and has had this light headed feeling for…
-
Medicare part B and aduhelm
From the NYT Because Aduhelm is administered in outpatient settings, the cost would be borne by Part B, not Part D, the prescription drug plan. Medicare officials factored in anticipated Aduhelm costs when the agency announced a 14.5 percent increase in the standard monthly Medicare Part B premium for 2022, to $170.10.…
-
I saw the Doc's nurse this morning
The wife won't let me do anything, every thing is a battle unless it is food. Then I don't know if it is going in her or on the floor. If she doesn't throw it she will eat it later. She has a rash on groin and breast area and it turned into infection under breasts. Smelled awful bad. Sat night after I called 911 and they…
-
Ok to sign legal documents?
We are planning to sell our house and downsize. I was speaking with the real estate agent and told her of my husband‘s diagnosis of early ALZ. She has not been around her m much, and was asking if he was mentally competent to sign legal documents. He is pretty self-sufficient right now. Do I need to do anything in order to…
-
2 months in advanced care
DH went from the hospital to an advanced care facility on July 11. I was hopeful he would be moved to the memory care unit, but it didn't, and I don't think it will happen. He is unable to stand or walk. He is completely incontinent, and his speech is just a jumble of words...word salad. Every so often he says something…