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Our Descent into the Rabbit Hole
Lately, I've been reading blogs and watching YouTube clips on caregivers’ journey with their LOs. Does anyone care to share yours? If too painful to stroll down this path/memory lane, please forgive and ignore me. Mine has been quite unusual and I wonder if others might have experienced something similar. Please be…
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O.T Blues
https://youtu.be/op3AfST9Nnc I happen to like blues music. I find the lyrics meaningful and the instrumentals gripping. A good blues guitar always gets my attention. Strangely, I feel better when I listen to the blues. The above link is to Joe Bonamassa playing and singing Sloe Gin. I hope you enjoy it. David
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Neurologist appointment yesterday
Hi All, We had our first visit with a neurologist yesterday, and he has ordered a CT, angiogram, and EEG. They administered the Montreal Mental Exam, with borderline results (25). I have to say though that they were easy graders, as he couldn’t remember the word list until they provided lots of prompts, then gave him full…
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Switching from Exelon patch 4.6 mg to tablets
Has anyone experienced skin irritation due to the patch. LO will be switching to Exelon tablets soon. Any feedback on switching to Exelon 1.5 mg tablets twice a day from patch of 4.6 mg?
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Just wondering if others agree with my thoughts
This is from another thread: Cecil J wrote:it seems only men post these type of questions. I agree and I don't know why that's true? I'll take a shot at that. In our society, it seems to be taken for granted that men are the ones who are always after the "other woman". That seems to be OK because so many men do that. But…
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Tardive Diskinesia
Well DH has been struggling with various symptoms . It looked like he was restless, twitchy . And anxious. We thought he was struggling with constipation ( he is ) or maybe it was related to the seizures he has been having this year. His symptoms include: blinking his eyes,smacking/ licking his lips , moving his tongue…
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Lack of managed care plan and communication
My husband was admitted to a memory care facility in July. I joined this forum at that time hoping to get information about what to expect in facility management and other’s experiences in dealing with facility staff, etc. After 3 months at this facility, Bill has “eloped” once and fallen twice. He is diabetic and his…
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Need to work - can it be done from home?
Hi - I'm new to this situation. My DH has difficulty with some daily living tasks - he just can't seem to get through to the next step and gets stuck in a loop (multiple layers of clothing, bedtime routines, remembering to eat). I have a leave of absence of work that's about to end. I need health insurance myself as a…
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New retirement part 2
Thank you for all your thoughtful replies. To answer a few questions- we have been married 15 years with 2 children each. I have 2 girls in early 30's w/ babies, he has 1 girl early 30's with baby and 1 boy 29. We have always kept our finances separate and also have newly minted separate Wills and Trusts. I own the home…
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New retirement
This is probably not the correct message board to air my feelings but here it goes… My DH was diagnosed with MCI over a year ago. I have not been happy in our marriage for several years before that. Now looking back his behaviors could have been from this early MCI diagnosis. He became difficult to deal with. Everything…
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Exelon patch?
Has anyone used the Exelon patch? My wife is on Namenda XR 21mg. and I believe it's gone as far as it's going go at this point. She is going to the Neurologist this coming Monday and I was thinking about asking to try this medication. We have a Nurse Practitioner friend who has switched some of his clients from Namenda to…
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My turn to announce…
I read lot of bad news, that were for some a relief, for others a huge emptiness, a terrible tear… He left us yesterday evening, just after I left his room ant launched Clapton CD. Perhaps, even sedated, he felt I was now ready. Strangely, I seem to be the less devastated. I think I cried so much for 4 1/2 years that I was…
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How to increase hospice care
After a TIA and two bd falls, my husband was taken by ambulance to the hospital this morning. There are no injuries, no brain bleed. However he is diminished cognitively and not ambulatory (he walked a mile on Monday). He got here because he cannot be redirected. Last night he had (under a hospice nurse’s supervision)…
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Not Shingles, much, much worse. My cautionary tale
I posted a while back that I got shingles. Well it turns out that I don't have Shingles, what I have turns out to be far, far worse. I know this is going to sound outrageous but I have finally been properly diagnosed and I have developed an extremely rare Autoimmune condition, the most virulent version of a blistering skin…
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I have to say it
There are some options that are better than other options, but there are no solutions. After 7.5 years I placed DW in memory care. Much is better, much stays the same or feels worse. In conclusion: I hate this f#^<ing disease!
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MC recommendations in SF Bay area
I’m starting the process of vetting MC communities close (within 10 miles) to Pacifica, CA. Being my wife’s almost exclusive caregiver, my research time is limited so I am hoping to leverage the experience of others in this forum to offer some suggestions on facilities with which they’ve had positive experience. From there…
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Too much stuff
I'm winning something every day. Today's email had the subject line - YOu hàaVe won an NiiNJa -DualBreW - |Pro
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I place DH in MCF
I placed the love of my life in a private MCF last week. The story is that I have to have surgery and he is in this facility for "awhile" because I can't care for him while I am recovering. He is only 71 and feels he is with all these "old people" and wants to leave. He has been trying to escape every chance he gets for a…
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I’m burning out
My first time posting. DH of 53 yrs was finally diagnosed 2 years ago with vascular dementia even though we’ve been dealing with issues and testing for nearly 10 years. The year prior to diagnosis in a 6 month period he had shingles, 2 Tia’s and a brain bleed that damaged both frontal lobes. He is 75.Fortunately for me he…
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just for fun(1)
https://www.nytimes.com/2022/10/06/us/fat-bear-week.html?unlocked_article_code=jo9E_GFruwKtWrzPVAyC6SdWZhBKTIGgLZK6kND4c8f5BnYDel9AwtQufxn_thqvECdwbNN0em6FQVvEMQ7AUj0ubV8FUTCJ71PizcpB1-_BuIh3aunwOPer1vIVoMTbRMLCXgPB8GQ9HpJovdueUyvzhvAm2kk03N1oTcgyzQ4ZlA2KY8Wz69hxpbvhCHAYgyVwFgweaVZ3D2DvWYv3wUX1nnC8yTmh50Kwl4pkh0unwmNm2svezO…
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Checking in - early October
This is my second post. I'm new to these message boards and am learning the ins-and-outs of how to post. I took your advice and consulted with an certified elder care lawyer. It was helpful and I am now getting medical and financial POAs drafted. We also are working on revising our will and other estate paperwork as per…
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Coping with loss
Still new to these threads and I'm experiencing things that many of you have already experienced and so I write, looking for a few answers. I realize that this journey shows us many losses, but tonight, one particular loss has hit me like a ton of bricks. We had planned so many things for our retirement, DH retired two…
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The journey start
Im pretty sure my DH has the beginning of dementia. He no longer makes coffee like he used to, says he doesn't think he can do it. He asks what day it is so he can take his meds. He doesn't do hardly any chores like he used to. Our Dr of 25 years retired and did say dementia is starting. We have blood work today and he…
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Hurricane Ian bullseye update
My county was ground zero, much been on national news about the beaches and island destroyed. Our house —20 miles from beach—is near downtown FM; has major roof damage, we lost a car and 2-story “garage” bldg. apartment. Our house is about 8 inches higher than most so no flood inside house, most neighbors lost their homes…
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Memantine ingredient in Covid drug being researched
My sister came across this article about a potential Covid drug that lists Memantine as an ingredient. I wonder if Memantine on it’s own has any effect? https://www.scripps.edu/news-and-events/press-room/2022/20220929-lipton-covid.html
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TIA, a glimpse at the next stage
My husband and I walked to the post office today. On the way back he shuffled his feet more than usual, and veered off in a stumble, then I could barely walk him home. He fell on the final stair into the living room. He could not follow one simple direction (not uncommon) and his muscles were simply not working. Thankfully…
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Hitting the dog
My sweet pup, Bob, has an issue with his back that causes him to yelp when he poops. Last night DH screamed at Bob while he was pooping. DH then started yelling at me for not helping Bob. An hour later DH came to bed, yelled at me, Bob growled in response. DH hit Bob. Lately when DH gets mad he actually growls as well. I…
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More research questioning aducanumab
A new study gives evidence that amyloid plaques is not the driving factor in Alzheimers disease, but it is rather a consequence of the disease. It shows evidence that Alzheimers may develope as a result of the decline in amyloid-beta peptides. Therefore removing amyloid plaques, which the newly approved aducanumab…
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Personality traits prior to being diagnosed
Hi. I’m new here and this is my first post. DH was diagnosed about 2 years ago. He is in early stage Alzheimer’s, possibly transitioning to mid stage. Some days he seems almost normal, others, he is more repetitive and confused. He is 79 and retired from a long career where he had so many other working and doing things for…
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Her Journey is over
I let my other fellowship know last night, it was hard but I had to do it. I let them know that I remained sober thru all of this. I also let them know that between them and this fellowship it made my journey with her easier. Yes it was very hard at times but I made it thru it without hurting Jan there was some screaming…