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What stage do you think we are in?
After being home the past couple of months for summer break I've noticed what seems to me to be quite a decline in my DH but am unsure what stage I'd say he was in. Sleeping is my biggest bone. He is constantly waking up in the middle of the night starting around 2am. He gets up and shuffles around the room, looking out…
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Psychotic episode response
My wife woke up at 3 this morning wanting to take all the kids home. There are no kids just me and a dog. Its as if the dog and I look at each other with here a we go again head nod. Like a team that has played and practiced a lot together. She has her job I have mine. There was a time psychotic episodes scared the wits…
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Chronic headache after Covid vaccine
DW has had a headache all day, every day since she got her first Covid shot over a year ago. Has anyone else heard of this?
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Another funny thing my wife said
This morning my wife says all excited "I remembered something today, I forgot what it was but I remembered it !" That line made my day.
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When the time grows near
My Dad's situation was so much different than most of your LO's, as he was in his 90's when diagnosed. He was home with my mother 2 years until he had a heart event. After hospitalization of 10 days he went directly to MC facility, where he stayed for one month before dying. While he had the usual issues with loss of…
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Not sure what to hope for
DH has been in the hospital for a week due to an ankle broken in 2 places. I went to the ER via anbulance this week due to dehydration and anxiety. My nephew and his wife drove 4 hrs to visit. I can tell DH has regressed as when we visited he said he would meet us in the lobby. He knew who I was but had NO IDEA why he is…
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MCI Resources
Hi all. As you may remember, my DH is in the early stages and as of yet, undiagnosed. In researching MCI and early dementia, I came across this helpful website with podcasts and videos about living with MCI. Those of you with LO in early stages might find them helpful. https://www.adrc.wisc.edu/mci
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Another night lost in the ER
I apologize in advance for whining, particularly because I am not up to date on reading posts by others. I know that people are dealing with worse things every day. I got the call from the MCF right after dinner last night that my wife had fallen again. My new instructions after multiple trips to the ER is to call me first…
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Another gem
Part of life in my twilight zone is my wife talking to me about me. I exist in her head as Bill the supervisor at work, Bill the caregiver most of the time, Bill the husband late at night and early in the morning. When I am the caregiver she talks to me about the Bill at work. Or when I'm at work she will talk about Bill…
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New Day New Challenge
Hi everyone. My husband was diagnosed with VD two years ago. Trying to navigate through this has been well interesting. Just when I think I have a handle on things there are always new challenges to face. DH is angry and cannot accept his diagnosis. He just wants to take a pill and make it go away. He is angry at me all…
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New and floundering
Hello. I am new and trying to find my way. My husband is 71, history of a brain injury and family history of vascular dementia. Memory loss has been noted for about two years, but he has been getting worse the last 3-4 months. I have found bills not paid, so I am now trying to figure this out, he has always handled our…
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Honeydeb
I created a new thread as I didn’t know if you would see this otherwise. My friend faced the same issue with her step children being in denial. She sent each an email with a doctor’s report diagnosing Alzheimer’s and they finally accepted it. My husband was a lot like yours 4 years ago. He was fit but was starting to get…
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joshbi
thank you.....your kind words mean a lot
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preparing meals(1)
I am looking for suggestions to help me with my wife's eating habits. I took over the cooking about five years ago. She dislikes almost everything whether at home or in a restaurant. Everything is too hard for her teeth they are not sharp enough, too sweet, too spicy or too salty. She spends most of the day foraging for…
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Memory Care Placement(1)
My DH has been in the hospital for almost 2 weeks after fracturing his ankle in 2 places. He is almost finished with in hospital rehab and will go to Memory Care in the bldg next to our independent living apartment. I knew this would happen one day and I am a mixture of relief and anxiety as I have taken care of him for 4…
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M1(4)
Stewart, don't let then flummox you into taking her home with threats over payment. She is not ready for discharge until there is a plan in place. Period. So if the other facility hasn't seen/accepted her, she's not ready for discharge. That's their problem, not yours. M1 thanks for your input so much, I know zero about…
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Sharing my Wisdom
I burnt the darn sausage being on here. One thing at a time. Hoot
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Forum friends in Indiana
Hope no one was hurt in explosion in Indiana. Prayers for all there! I only saw a little bit about this so no true information.
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Community Memory Care Facilities Contracted to Accept VA Disability
A relative who works for the VA as a social worker in Boise, ID gave me a heads up that there are some MC facilities in the community that are contracted to accept payment for disabled veterans directly from the VA. I am currently making phone calls to find out how I can identify those facilities in the nearby region in my…
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Refusing PT
The husband’s neurologist suggested he go to PT for balance concerns. Unfortunately my DH doesn’t not want to put any effort into doing most challenging things including PT. He agreed at first then didn’t go to appointment. Now he refuses to reschedule saying he doesn’t think it will help him. I’ve probably made the major…
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Are you entitled to benefits you don't know about?
https://benefitscheckup.org/#/
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Help with dog surgery
Hi, My dog, Bob, had his anal glands removed on Tuesday. My DH doesn’t understand why he needs to wear a cone. DH thinks it’s cruel. Any ideas on what to do? I’m worried that as soon as I leave the house he will take Bob’s cone off. This could be very dangerous if Bob chews the area.
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He's no longer walking
Over the past few weeks, I've noticed DH has taken another step down. He was having a very difficult time standing, but once up and had his balance he could walk. It was so, so slow, but he did walk. Over the last several days, he hasn't been able to get his balance to stand. He's now in a wheelchair. This isn't sudden, I…
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Early onset, no family history
Hi everyone, apologies in advance for the lengthy post. My DW was diagnosed with MCI at stopped working at 48, and diagnosed with EOAD shortly thereafter. No family history of AD or other dementia disorders. She just turned 53 (I’m 55) and for ~4 years had been relatively happy, competent, and independent, though…
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Update on dw
Yesterday marked 4 weeks she's been in a geripych. I didn't know that her having been in a geripych can make it harder for her to get placed. They think they have everything set good. Today I saw my Dw she seemed a little agitated but it was an ok visit with all the usual questions. When am "I" coming come meaning Her.She…
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I'm a fighter
I mentioned in a previous post that when my wife was in the hospital, the doctor(s) changed my wife's medications without consulting me. I filed a complaint, but I never got the letter telling me of the results of how they were going to handle it. So I called about that, and they said they would send a copy of the letter…
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Dear Abby
The August 3 Dear Abby column has a letter from a spouse (diagnosed with Lewy Body) saying he knows his wife was unfaithful because he heard her talking in the phone and when he confronted her she confessed. Dear Abby advised him to respect her honesty and forgive her. https://www.uexpress.com/life/dearabby/2022/08/03 (You…
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How about a laugh or even a smile.
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50 years(2)
It's been 50 years since I first kissed DW. Our first real date was CABARET. I watched it on the way home from Germany. I fed her ice cream this morning. She liked it but had no other interaction with me. I no longer cry after seeing her. I know the woman I loved for so long is gone and never coming back. But the memories…
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Medical professionals ignorant about dementia
This is maybe a rant, and singing to the choir to boot. When my wife was in the ER the other night, a horror in itself, I observed a lack of knowledge of Dementia. My wife was not the only dementia patient in the ER. One was repeating the same conversation over and over. The nursing staff started out responding to him, but…