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MC availability – what a difference location makes.
As I write this, I am painfully aware of how difficult placement and care has been for some of our board members, especially Hoot in his resent search for adequate care for his LO Jan (God rest her soul). (I am also a native Gander although aTroll). In the past several weeks I have visited 8 MC facilities within 10 miles…
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New day New Challenge ... Again
I’m beginning to see that nothing will remain the same from day to day. DH was doing ok, not great but ok. Today he’s repeating questions, doesn’t remember events, making silly faces when he walks into the room, doesn’t respond when asked a question, talking about people who have passed away as if they are still here! How…
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DW Trip to ER & Her Ex’s Passing
As I have posted previously my stepdaughter is an only child that has a mother with Alzheimer’s and a father with vascular dementia. Over this journey my stepdaughter & I have work together to support each other and provide the best care possible for both her parents. Last November when placement for her father became…
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Zyprexa appears to work for us
Hello fellow caregivers, I am breaking from my usual posts made in crisis to report some positive developments. Zyprexa appears to be working for my HWD. I give a dose in the morning and one before bed (with a melatonin gummy). The auditory hallucinations have vanished, his agitation is diminished, and somehow he has…
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Palliative care - today
I'm back from Tunisia where I went to get his things. I hesitated a lot to go there but I needed to thank people there (the 2 caregivers but also the other residents spouses whos did so much). For once, it was a cery pleasant stay : golf, swimming pool, I even had a very nice sea bath. I was there only 3 days and went back…
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End of phone solicitation
For the longest period whenever the phone rings and just a phone number shows up with no name we don't answer because it might be a solicitor. We still have a land line and it seems like that is all that call that number. Anyway for the past few weeks my DH has been confusing our house with a business for some reason. He…
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Interesting therapist comment
My Therapist made an interesting comment. She compared my satisfaction with being a professor emeritus still active on the cutting edge of research, with my endless feelings of being lost with regard to DW. What she said was that I acted like a person who had been involuntarily retired from a career that they really loved.…
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Petscan show progress in 14 months
DH - 84, recent petscan shows progression from MCI to mild Alzheimer’s. New meds in the pipeline may work! How can u tell how fast the progression will be? What can u do to slow down progression ? Would Viagra help? Suggestions ?
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Just need to talk to my friends (179)
Hope everyone is well. Tablet still acting up but needed to start 179 because we got to 10,000!
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Hurricane Ian
I’m thinking of my fellow Floridians and hoping Hurricane Ian passes you by. While I’m in the cone of uncertainty, I think the worst of it will be east of us. Having survived Hurricane Michael in 2018, my advice is to ask your local emergency managers for help if you’re worried. They are there for you!
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Music musing
Written and performed and winning an Oscar for the movie “Philadelphia”, and written about AIDS, this is the best song about Alzheimer’s I can find. https://youtu.be/4z2DtNW79sQ
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Concerns for our friends on the east coast
Hoping they all make it through Ian without too much to overcome.
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Lasix - yes or no for dementia.?..
My husband is stage 5 currently and is type 1 diabetic for 52 years. He was diagnosed with stage 3 kidney disease a year ago and improved greatly on low salt diet. The doctor prescribed lasix but his legs haven’t really swollen until just recently so I have t used it until now. And as to be expected it caused repeated…
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Could this be true -Just got in my email
This message is sent to all Alzheimer's Association and Alzheimer's Impact Movement board members, all Alzheimer's Association staff, and volunteers and supporters of AIM and the Alzheimer's Association. We have an exciting major development about the potential for a new treatment for Alzheimer’s disease, and we wanted to…
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My dear wife passed at 10:05 this morning
Hi everybody, Jan's suffering is over and I am so glad. I'm going to miss her dearly. I would like to thank each and everyone of you that kept us in your prayers and thoughts. All the advice given which I wish I would have followed at the start. For you newcomers to this forum, the advice given is by people that have gone…
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Heat and cold regulation
My husband is downstairs huddled under a blanket in front of a space heater blasting out heat. The funny thing is... I turned up the a/c because the house is heating up and stuffy after a warm day. I have the ceiling fan turned on upstairs in my study and in the bedroom to mitigate the stuffiness. The room he is in is wide…
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I heard this song yesterday
I will trust you Lord by the McKameys My drive to go to see my dw in mc is about 40 minutes so I have a christain radio station I listen to. My walk with Jesus started about 20 years ago and this station means a lot to so many people myself included. Long story short My level of trust in God has carried me this far and…
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Clogged toilet and Boost
Trying to come up with words that aren’t gross sounding. Has anyone experienced a change in bowel movements after drinking Boost for a few weeks? My DH continually clogs the toilet after BMs and I initially thought it was from too much toilet paper because he folds it creating a bigger mass than just bunched up toilet…
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6 Weeks in VA Psych Unit - No Progress
I am beyond frustrated and more than a little angry. DH has been in the Psych unit of the VA hospital for 6 weeks without any significant improvement in his anger, agitation, and lashing out. The first 4 weeks, they merely continued to give the same dosage of Quetiapine (Seroquel) that I had given him at home for almost a…
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Tips Please!! for Dealing with Capgras syndrome
My husband has been going back and forth between me being his wife and another lady he does not like very much. I can’t pinpoint a trigger. I have read about Capgras and talked with the Hotline. He’s gotten to the point of accusing the “other lady” (me) of stealing his wife’s purse and wallet, using her computer and…
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Grief Counseling
To those who have recently lost a LO; I'd like to add my 2 cents worth of suggestions regarding grief counseling: 1. Wait a month. I think it took me that long to be able to even say DH's name out loud without crying. 2. Make sure you are a 'fit' for this support group in advance. The hospice SW recommended a zoom support…
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DH Passed
I am sad to say that DH passed away on Sept 21, 2022. He declined very rapidly after his last episode and was gone a month later. I did get in to see him on the 20th and sat with him on the 21st. I am angry at the legal system as they charged a man with assault and he didn't know what was going on. He didn't know what he'd…
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Spouse keeps asking for his younger wife/girlfriend
My 75 year old husband keeps asking me over and over if he can take the car and go see me. We have been married for 54 years. He knows exactly the location of the house where I grew up and dated him but its in another state over 2500 miles away. I keep telling him I am right here. That doesn't work! Many times he thinks I…
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Rational Comments interspersed with hallucinations
DH has been in SNF rehab since 9/11. I visit from about noon to 3:30 or 4:00 daily. He gets very confused when I go home. He understands I am going home to feed the cat and dog, but thinks I am also going to take him home to the house he grew up in in New Jersey. He has been in California for 64 years and in the same house…
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Neurologist appointment
We had our appointment with the neurologist last week. I took some of your advice and told him we were going to a Medicare well check that we have to start doing every year. The appointment lasted about two hours and my DH was given the full scope of tests. He did pretty good on some (name as many animals as you can in 30…
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For Hoot619 billing
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Stopping by to update situation
Hi, I've been around quite a while, although previously more active on the caregiver's forum. I wanted to reintroduce myself and describe the current situation. Most of the information regarding my spouse is in my profile, so I won't repeat it here. The progression has been rather slow, and step-wise in nature. There are…
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DH wants a divorce
My DH is pretty early on but on a number of occasions (particularly on my day off) he doesn’t know we are married and when I explain we are he wants a divorce. He wants to know who has the deed to the house (he signed it over to me but doesn’t remember). Today I played along and said I would find a lawyer and he should…
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I was dumbfounded by what DH’s aide said-what do you think
A few months back my DH’s aide said she couldn’t see how I could do what I do. I was taken back because she is only here 12 hours a week while I am here 24/7. She is half my age. Apparently 4 hours, 3 days a week is a struggle. I have just been keeping on keeping on. My husband is one of those that must be on the go…
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things seem to be going downhill
DH is in an enhanced care facility. Price is crazy but he needs to be there. He's unable to walk. He is getting more and more agitated. Hospice reminded the nurse yesterday he needs to get his meds on a regular basis before he gets agitated. Yesterday he was so mad at me he said he hated me. He is still thinking I have…