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Crazed Sleep Patterns
My DH has always gotten up and made the morning coffee. I don't know if it is the change off daylight savings or the days getting shorter but in the last few weeks he is getting up at 2am to make coffee. I tell him it is too early and to go back to sleep. Then between 3am and 3:30am it's the same thing again. When he does…
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How much milk is bad for you.
My Peewee is drinking almost two gallons of milk a day with chocolate drink mix. I try to get him to drink other things such as tea and water with flavoring but no he won't. When we are out of milk he gets upset.
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Feelings of denial and not dealing with the future's hard realities
My first post. My wife has early-mid stage 3 as far as I can determine. She/we have been in an AD clinical trial for eight months. She still does an acceptable job of caring for herself. I've been reading some of your posts and many are depressing and hard to read. I have been seeing a psychologist who specializes in AD…
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Ideas needed : what to bring to MC
It is in 1 month and as we are going by plane, I can only take some suitcases. But I wonder what I can bring twitch him so that he will feel better there. The last two years, I did lot of photo books and I am preparing one with pictures of his family and friends, with comments so that the caregivers and the speech…
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Waiting List
How soon do I need to put my husband on a waiting list for my? He is still very early in this journey but my lawyer said I should start looking at places right away.
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When this person speaks, they all listen
https://thehill.com/blogs/congress-blog/politics/583572-how-to-improve-care-for-people-living-with-dementia?rl=1
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what a week!
It started on Monday. DH fell and fractured 2 ribs, spent 2 nights in the hospital and had to be medicated each night because he was agitated confused and wanted to go home. He has never been agitated or needed medication before. I know he was in a strange place with strange people and I was not there so he was confused…
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memory loss(1)
My DW has exhibited short term memory loss since the beginning of this journey but in the last couple of months the memory loss has gotten shorter and often she repeats questions that she asked a few minutes ago. This week there appears to be a further worsening of memory in that she is not recognizing clothing as hers…
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Does Anosognosia ever end? Or is it just overcome by advanced AD?
My DW has mid-stage AD. She also has anosognosia (inability to realize she has AD). So she feels she does not need a care-giver (me!) and so it is very difficult for me to get her to do things (like take her meds). She says it is none of my business. So will she ever realize she has AD and, therefore, needs help? Or does…
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One hallucination (?)
I’m not even sure if this is a hallucination. Be forewarned, sex involved. But please bear with me… My DH has been very docile, and very apathetic. But the last month or so he’s increasingly angry, and accusing me of sex with strangers. In the last week, he insists he “saw” me doing it, not right then, but earlier. (Yes he…
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When is the right time for AL/MC?
My wife is 55 and was diagnosed 2+ years ago. She's stopped driving. Our relationship has gone to heck because we fight a lot. She drinks a ton (I had to lock all the alcohol in my home office), and she gets very argumentative. The woman I loved is gone. Not a lot of love left on my side. Thanksgiving was a challenge. She…
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She Should Know Better
We are visiting my spouse’s sister in Florida for Thanksgiving week that has mostly gone well since I limit how much time he has to spend with her on any given day. However, several times she has tried to bully or yell at him when he has not responded in a manner she liked or moved as fast as she wanted. I have had to…
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My dear husband has passed!
I have not been on much lately as I devoted more time in caring for my husband who was bedridden for over a month. The 4 1/2 year journey is over as of last night. Frank went to be with the Lord at 5;40 in the evening. My four kids and close family members had said the rosary and 2 hours later, the kids and I gathered…
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Enough Already!
OMG if I get one more email from Alz. website asking for money I may throw up!!!~ \ PLEASE. STOP.
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I, too, have lost my love...
I am saddened every time I visit this site--the loss, the suffering...it is all too much for me at times. As things got very bad for my husband over the past year, I couldn't muster the mental energy to visit here too often. My love, Ray, passed away last Wednesday, the day before Thanksgiving. His final weeks were nothing…
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Learning To Turn The Tide On Nursing Homes
https://www.yahoo.com/finance/m/85a6b777-9610-3e0c-9953-a9b6482434a9/did-we-learn-anything-from.html J.
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A very good Thanksgiving
Thanksgiving Day went so well! I wasn't sure how DH would do with so many people there but he ended up having a great time! Three of our four children and their spouses were there along with four of our five twenty-something grandchildren. DH was "the biggest duck in the puddle." He talked and laughed and ate a big meal.…
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Wedding ring(1)
I just noticed she wasn't wearing her wedding ring. The engagement ring is still on her finger but the wedding ring is gone. I sure as hell hate every bit of this disease. Of course she doesn't realize it's gone or even care that it's missing. That she doesn't care is almost unbelievable to me. She likely took it off…
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The Show Must Go On
I so enjoyed watching Tony Bennett’s performance with Lady Gaga. It brought back a lovely memory for me. I had the privilege of meeting Tony in the 70’s when he was performing at the Hollywood Bowl. My DH was running the spotlight for his show that evening. My DH was good friends with the stage manager and he was able to…
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anesthesia(1)
Be extra careful with your spouse in regards to falls. if your spouse has dementia and undergoes any kind of treatment that requires anesthesia it could advance their dementia considerably.
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DH with mild dementia accusing me of memory problems
How do u react to your spouse who has been diagnosed with mild dementia, can’t remember what was said 2 minutes ago, accusing me that I have memory problems I have taken over the task of ordering and giving him meds am and pm, making doctors appointments, technical matters and more! I want to explode when I am accused of…
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DH has completely forgotten who DS is
I finally have to admit that DH doesn't know who DS is anymore, and the memory isn't coming back. DS is 21 - we adopted him when he was just 9 months old. DS and DH did so much together, and as we were a tiny bit older parents, we were lucky and had the ability to spend more time together as a family doing things as DS…
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Turkey pot pie
Some mornings you just feel like making turkey pot pie !!
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DH's falls are more frequent - it is exhausting for us both
DH is falling more frequently. Specifically, he is falling 1-3 times per week. He fell on Friday and yesterday. I called the fire department for a lift assist yesterday because I was unable to get him up. DH states he is sore. The pain makes him cranky. I am giving him Tramadol for pain which I suspect may further impair…
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Caregiver Identification: Strategies for Advancing Person-Centered Dementia Care Across Settings
https://umn.zoom.us/webinar/register/WN_KF5PxiYoRJWxkFq2Go82ug
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M1- How are you?
You have been heavy on my heart for three days now. Are you okay? I sure hope the nephews visit was a blessing. Also, I hope she is calming down about feeding the animals.
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Autopsy Findings
My husband passed away in June after a 17 year battle with EOAD. He began showing symptoms in his late 40's and once he was officially diagnosed, volunteered for several clinical trials at USC. Being a part of the research group gave Bill the option to donate his brain for research after death which he chose to do. I just…
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when is it time for a nursing home
My husband is 69 he was diagnosed with moderate alzheimer's 2 years ago. The last time we saw his doctor in October, i asked what stage is he at now and doctor said almost late stage. he was not able to follow simple intructions that the doctor was giving him during the examination. My husband can still get in and out of…
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M1
Hello M1; am thinking of you this morning and wondering how things went yesterday with your Thanksgiving dinner with your nephew and his S.O. and hope that all was peaceful and without strife. J.
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Tony Bennett and Lady Gaga
Will be on TV this coming Sunday CBS.