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First timer
This is my first time here. I am trying to take care of my 75 yr old husband who has dementia. We live in a small town in S.E. Kansas. No one has told us what type of dementia he has. They just shove a pill at him and tell him he has years before we have to worry but I see things progressing quickly. We have always had a…
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Back from Germany
Just to note I could face time from Germany with no problem For myself the nostalgia was almost overwhelming We first made the trip though the Rhine Gorge in 1977. I was the lucky husband of a brand new doctor. I was just starting an academic career. The hardest thing I have had to learn is to celebrate the time we had…
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Thank goodness for the waterproof mattress protector
DH had a urinary accident in the bed last night. His disposable briefs could not handle all the fluid. DH's jammies were soaked. The fitted sheet, flat sheet, regular mattress pad and water proof crib pad were soaked. THANKS GOODNESS for the waterproof mattress protector. We use the 6 sided model with the zipper. It saved…
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Promising Animal Studies Using Commonly Available Drugs
This interesting article showed up in my newsfeed today. Researchers at Rush University Medical Center in Chicago have found in animal studies that the combination of two common drugs help reduce amyloid beta in the brain. Excerpt from the article: “A promising series of early studies is highlighting two well known…
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Update from other day post that was deleted
Who I can not believe after I mentioned him the other day he has passed. He is surely in a much better place. Its said that it took this long. This dieses took the mind of good person way to long ago. https://kansasreflector.com/2021/11/02/former-u-s-rep-dennis-moore-dies-after-battling-cancer-alzheimers-disease/
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Absentee Adult Son (AAS) Came to Visit
DH and his AAS were estranged for over a year. DH reached out to AAS by phone over a month ago. Since then there have been several positive phone calls initiated by DH. AAS came to visit on Saturday. The visit went well. AAS brought his girlfriend who is expecting their 1st child. The girlfriend brought her puppy. I am…
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Made an appointment with an Eldercare Attorney
I often read these messages but don’t frequently post. Part of the reason is my husband is beside me so often and I feel like I don’t have time to myself to compose a message. You are all such a resource and hope with time I can help others too. I’ve been knowing and wanting to see an attorney to see what needs to be…
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Sleeping Separately
DH and I share a queen size bed. DH has limited awareness of where his body is in relation to other things so I tuck in DH at night. It used to work well, and DH was receptive to my guidance. DH was on one side of the bed and I was on the other. DH now is more confused and resists. Regardless of my instructions and…
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Week-end to my parents with poop accident
As my brother came back from New York with his wife and son, my sisters and me gathered to my parents last weekend. They saw my partner last time in June. So only 4 months bu were shocked bout the changes. Last time as in the morning I was running early in the forest, my partner arrived for the breakfast with his short on…
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Severe Stage EOAD Husband stays in bed longer
For over a week now my husband has been staying in bed much longer than he ever has. He sleeps solidly for hours and when he wakes he just lays in bed talking and clapping. Friday he went to bed at 2:30pm and got out of bed Saturday morning at 10:30 am. (20 hours spent in his bed). Before that it has been up to 16 hrs.…
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Another update from Josie
My saga continues. Just thought I'd update. Recap: in June DH's anxiety, delusions and paranoia creeped up. PCP gave him new medicine. It kind-of worked, meds were increased in July. DH became a walking zombie. PCP said take him off those meds, but I'm not going to help with medicine any more. And since you're considering…
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DH says he thinks he’s going to die soon.
My DH is in good physical health. FTD. AD, Mixed dementia, VD are what he’s been diagnosed with but there has not been a timeline given to us for him. Per the Alzheimer’s information, they show that he is in stage five. He’s able to take care of it next self except his hygiene has gone downhill dramatically. Eating habits…
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If I Die First
My husband is in the early stages and we have completed our legal work. However, my husband has no family and no friends. I have a brother and nephew 3000 miles away whom my husband has never liked. While my nephew can be the Special Needs Trustee, he cannot be the advocate. If I die first DH will have no one to help or…
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MIL Problems
I've often heard it said that with some people with dementia they want to "go home" but the home is where they grew up and were young. Or they believe their mother is still alive but in reality they have deceased. I haven't seen much about how people deal with issues when their LO's, in this case, mother is still alive and…
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Do you need a laugh?
https://www.facebook.com/watch/?v=2706897819621783
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Feeling like I’m always in trouble with DH - I have ??’s
I know that it is the disease speaking, but I am having difficulty being the bad guy and having him angry at me most of the time. He has FTD, VD, AD so there is a lot going on. I am the object of his anger because I am always here. I try not to take it personally, but it is very difficult, draining and depressing. Things…
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How do I tell him he's going to MC?
Hello, I'm sure this topic has been covered, so I'm sorry for the repeat. I've started telling DH that I'm not feeling well, going to doctor, tests, etc, who will ultimately tell me that she doesn't recommend that I continue to care for him. His brother and I have found a beautiful place for him to live. Etc, etc.…
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From a good friend of mine Norrms McNamara
https://www.torbayweekly.co.uk/news/all-care-staff-need-to-be-dementia-trained-8411490
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Soon the end of the respite stay in Tunisia
I go back in Tunisia in 3 days. And we will come back together. Headaches and backache are back. Nights are agitated again. Everything went very well and he never complains (I call him every evening). He likes to be there. But for the moment he is in holidays. He can’t stay in Tunisia, we need to go to the court together…
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Just need to talk to my friiends (157)
Hi, Time for another empty cottonsack! Seems like they come around pretty fast. It's a beautiful morning - cool (had to wear a long-sleeved shirt) and sunny. But, they're predicting storms again early in the morning and, hopefully, rain the next couple of days. Thank you, Beth. I appreciate that so much. We have had too…
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STUCK IN A DISABILITY VS. DOCTOR CONUNDRUM
OK, so I have posted before how very little Kaiser has done for diagnosis and even less for any kind of treatment.Now the lack of effort put into diagnosis is coming back to haunt us. Long term disability wants to see "biological" evidence of cause of dementia, otherwise they are treating my DH's diagnosis as a mental…
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Nor’easter Aftermath - Likely No Power For Days
Cape Cod & SE Mass got walloped with a Nor’easter last night. Woke up about 3:00 AM with no power. Being a former utility worker I know all to well that this restoration in going to take a week until all are restored. Hope my area is early in the restoration queue. I have a backup generator for light, heat, refrigerator &…
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Constantly Walking
I do not think I am alone in this but I would like to know if there are many others out there that are living with a spouse that just constantly walks outside. My wife is walking over 20,000 steps a day and she peaked at 45,000 steps several weeks ago and ultimately ended up in the hospital as the result of her body…
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Wedding anniversary roller coaster
Today is our 26th wedding anniversary.I went through our years worth of saved cards and picked out the anniversary cards and set them up at my husband’s breakfast place. I got tearful looking at them and remembering us. I went upstairs and heard he had left the water running. I told him I think he left the water running…
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Hearing Aids(1)
Before my DW retired in 2012 she was given free hearing aids and wore them religiously. A few years later she started using a C- pap machine. She used it for a couple years then she stopped. Despite the doctor’s advise to use it, she doesn’t want to. The doctor says” In this stage of her life (Alzheimer’s), you have to…
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I feel like I am loosing my MIND -- Husband Undiagnosed
Since 2013, husband has been diagnosed with Cognitive Disorder NOS, following a period of time on life support due to septic infection and AFib. Since that diagnosis he suffered a massive heart attack ("the widow maker") and had 3 stents placed. The past 2 years have been difficult at best, this past couple of weeks have…
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please help(1)
recommendation for adult "diapers" not pullup
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Stressed? Do you have an open mind?
This will probably be my only post today, but I wanted to pass it on. If you have an open mind, and feel like you need help, please try this video. If you find it helpful, please let us know. How your brain is making caregiving HARDER
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Beware digital medical records
Digital medical records are a great advance in medical care. The patient, or advocate, doesn’t need to repeat the history every medical visit. But beware; a mistake in one provider’s notes will carry over to every subsequent visit. My wife had a bad experience the last month, which was actually caused by a mistake made…
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DH sleeps 3-5 hours during day
DH with mild dementia is sleeping excessive, after waking up he is angry and aggressive! What do I do? Waiting for Exelon patch, otherwise no Lz meds