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Caregiver starting. Need excuse he will believe
I have a lady coming in tomorrow to walk with my husband and make him lunch. He would be angry if he thought she was here for him. I thought I would say she was here to help me with my computer and then suddenly get a call from the dentist about a available appt if I can come in right away. She can agree to wait until I…
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How to redirect difficult behaviors
I haven't seen this yet, but thought it might help someone here. How to redirect difficult dementia behaviors (3 mistakes to avoid)
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Booster vaccinations
My sources in medicine are strongly supportive of booster shots on an eight month schedule , especially for Nursing home and MC patients. This is especially true if you are in an heavily unvaccinated state or area. County level vaccination data is at https://www.nytimes.com/interactive/2020/us/covid-19-vaccine-doses.html…
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Is there anything like Scottish Dementia Working Group here?
It's made up of people with Alz. but supported by family & community and Scottish Alz Assoc I was a caregiver for my husband for many years and I wondered if there was anything like the Scottish Dementia Working Group here
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Great experience at a concert
My HWD is pegged at stage 5.5 with mixed dementia. He walks the dog and enjoys sitting on the deck watching birds. He does not engage in much other activity. We went to a concert last night. It was an hours drive away, parking and access were easy (he is ambulatory but slow). He loved it. A couple of people engaged him in…
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crushed(8)
do you happen to know how many Dr members there are in America's Frontline Drs
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if you are a caregiver
I hope you will take time and read/listen to this. I believe the content is really, really helpful. https://www.thehearth.org/tbuilder-layout/news/
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small tailspins
Funny (not) how many things we take for granted. The remote for the TV in my partner's bedroom went out--she had trouble working it, but managed--so I called for a new one. But I didn't think to ask for the old model. This one is different, and she can't figure it out and couldn't even find it this morning because it looks…
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Neuro Today Update--Possibly FTD
Today was our 6 month neuro appointment. I took all of your advice and wrote the doc a note and delivered it yesterday which he read right before the appointment. In it I described DH's shed/yard tool sexcapades, his sleep issues, his anger/agitation & agression, his impulsiveness (he gave away his car at church last…
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I can't follow my own advice when it comes to travelling
DH rarely leaves the house. Nearly every outing with DH is exhausting to me even if it is just a walk around the neighborhood. Our last hotel stay was 2 years ago. It was anxiety inducing for us both. DH couldn't operate the card key or find the elevator that was right outside our door. The noise in the hallway bothered DH…
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SS Disability
Can anyone enlighten me on applying for Disability benefits for my DW. She is 60, unable to work but has many years of employment in her past. The nueropshyc doc delivered a 13 page report with test results indicating dementia consistent with early onset ALZ but FTD is not ruled out. Appt with the Neurologist is the 24th…
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Breaking all the relationship rules
Being a couple took a lot of work. We made it through some rough spots and grew up together, and one of the good things we did was set some basic rules. Basic rule #1 is don't lie to each other, #2 was don't talk about each other to 3rd parties. These agreements got us through, and really helped make us a solid couple. I…
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Update on Peewee and me.
I have had a lot going on. Daniel the man who has been helping me with Peewee, He has stage 4 colon cancer. Now Peewee and I take care of Daniel. My brother had a massive heart attack. My mother went to the ER twice in the same week.I can't deal with all the stress I am under so I have decided to Retire and stay home with…
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Parkinson's Drug Tied to Increased Hospitalizations, Death
https://www.medpagetoday.com/neurology/parkinsonsdisease/94081
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Leave me if you need to
Things seem to have taken a definite downturn around here, and my partner seems to know it. She told me yesterday she didn't think she'd make it another year, and today she wanted to go over her will and final arrangements. She asked me if I needed help (!), said she wanted to sell her car (!!), would accept household help…
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Meds(6)
DH is on Aricept and Namenda since 2018. He started Seroquel last year around this time. My question is, I really don’t think the Aricept and Namenda seem to be doing anything. The Seroquel still seems to be helping, although he may need a different dosage. My DH is in the moderate to late moderate stage He was diagnosed…
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Overfeeding the animals
This is something I can't seem to stop. My animal lover partner still takes great pleasure in our one dog, three cats (one indoor, two outdoor), and range of ducks and chickens. Fortunately she lets me take care of feeding the dog. But she still considers it her responsibility to feed the cats, and even though I have…
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What does Hospice look like?
Ok folks , we have been on hospice a week now and I guess I had a little fantasy of what it would be like . It would be like the cavalry coming over the hill in the old western. My problems would be over and Peace would come to the valley. We qualified for Hospice because DH spent four days in bed without moving his upper…
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24/7 supervision
My lawn needed to be mown badly, so I mowed it badly! While i was charging around the yard on the tractor, DW was getting into to raspberry preserves with a spoon. Preserves all over her clean blouse and the couch. I am changing DW’s clothes twice a day from incontinence or food stains. I can’t keep up with her movement…
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What a joke!
I went to the grocery store this morning. It's the only one that is close by. They put a big sign on the doors where you walk in. It said something like "If you are not fully vaccinated, a mask is required". Of course nobody asked for proof of vaccination. I wore a mask (and I am fully vaccinated), but I felt as if the…
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Beautiful, but sad.
“When Memories Fade” by Jane Southwick Cool, arranged by Eric Nelson. On YouTube, sorry, I don’t know how to provide a link. If you’re needing a good, cathartic cry, give this beautiful “hymn”-like song a listen. * Look for the “mix” version, lyrics are printed out.
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Vaccines: I cut off my nose to spite my face!
I know there are already numerous discussions on vaccines. I'll add my story: My DH is bedbound, is non-verbal, has ALS and is in late-late-late stage dementia. He is a veteran and receives (thank goodness) 21 hours of respite service each week. There was a time when one of DH's regular CNAs left and another time in which…
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Just need to talk to my friends (152)
Hi, It's August 1st- time for a new segment of our thread. Wanted to start this so Sara's early morning post would be on it.
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regrets
My DW passed at 10:33 on the 7th of February this year I lost her to Lewy Bodies. It seems like yesterday that I was holding her hand and telling her I love her. I am thankful I had the strength to care for her it was not an easy road and I don't fault anyone that cant. I was fortunate enough to have daughters that…
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Knock on wood
My husband has been almost like his old self. We haven’t had any Argie bargy since I have taken to shutting the A/C at night. It has been warm but I will take peace any day over strife.He thanks me now for making his dinner and anything else I do for him. It could be due to the fact I had to go for various medical…
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Buspar in place of Zoloft
My DH just returned from neurology appt. We discussed how the 75mg of Zoloft he has been on for 2 years doesn't help his anxiety and agitation. They are tampering him off Zoloft and prescribing a low dose of Buspar 2x daily. Anyone have any thoughts on this?
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concerned for Scotty Tom
Just in case Scotty Tom, like me, reads this board without posting (only because things are too indescribably bad), I just hope things might have improved for him. Without wanting to pry, or further breach his privacy, I just wanted him to know I've been genuinely concerned for him for months and sending (agnostic) prayers…
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Husband inappropriate looks at daughter
Although I have been reading your posts for years I just joined. Thank you for the help and advice. My husband is 78, I am 64, we have been married for 35 years. We have a 27 yr old daughter living 1 1/2 hours away, who visits every other weekend. My husband has two married daughters living 2000 miles away. My DH was…
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Pending Federal Nursing Home Overhaul Bill
https://www.yahoo.com/news/nursing-home-overhaul-bill-boost-170022034.html
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The sweetest of gestures
So, I am the one holding down the fort for these 11 years now.My DH suffered a near fatal viral infection that entered his brain and caused encephalitis which has lead us down a very long and at times seemingly endless road of ups and downs and setbacks and uncertain diagnosis of just what is it he has been left with such…