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Visiting at the nursing home
My husband has been in skilled nursing facility 5 months due to a fall and late onset ALZ. It seems no matter what time of day I visit, he gets agitated after a few minutes and disagreeable. He tells me stories that are imagined and I agree with whatever he is saying. I never correct him and just go along for the ride. I…
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Chicken Soup for the Soul(1)
A friend gave me “Chicken Soup for the Soul Living With Alzheimer’s and Other Dementias” and I am totally absorbed in reading it. It gets at the emotions and feelings we all experience as caregivers. 101 stories of caregiving, coping and compassion by 101 caregivers. I highly recommend it.
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He begins to know famous people.
I already read post on that, but as it was marginal for me, I never replied. I didn’t really felt concerned. It started with the sailors. Often in previous months, He claimed to have routed famous sailors on transats. He knows well one famous sailor and followed his races, but I think he was already unable to route him… or…
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Holiday advice: do I warn the guests?
So my partner has one great nephew of whom she's very fond. He's 27, and he used to spend a week every summer here on the farm when he was a kid. We haven't seen him in three or four years (pre-pandemic). He's been wanting to come visit, and so he and his girlfriend are coming for a small Thanksgiving dinner next Friday.…
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advice for the day
Some days just let the Rhino have the road
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European Experts say NO to Aduhelm
Nov 17 (Reuters) - A European Medicines Agency panel voted against approval of Biogen Inc's (BIIB.O) Alzheimer's drug Aduhelm, in another blow to prospects for a treatment already grappling with a slow rollout in the United States. Shares of Cambridge, Massachusetts-based Biogen, which announced the negative vote on…
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Travel or vacation questions
DW and I just got back from a two day vacation. I guess I'm trying to do these while it's still possible to manage things. She needs lots of guidance. The problem: We were at the huge Air Force Museum in Dayton, Ohio when I felt some bowel problems. I told her emphatically to wait right where she was, and that I'd be out…
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Estate Planning Help
How does one find a reliable estate lawyer? We are in a situation where I feel like I cannot trust the documents and plans we have had in place with our current attorney and I'd like to explore another resource. Nothing has happened to us specifically, but there are stories from friends that lead us to believe we should…
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I hate what I have become.
This disease has turned me into a monster. I can't believe I did what I did this morning. I snapped. Normal morning getting ready for work, preparing DH breakfast. I look out the kitchen window and see an empty cigarette pack on the lawn. I asked him nicely to please pick it up, it belongs in the trash. He said, it will go…
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a few more pictures from DW
People seem to like the pictures so here are a few more. I have to edit them to get them into the size restriction. These were all taken AFTER her Alzheimer's diagnosis. They are all in Kruger National Park in South Africa. In Kruger you MUST stay in your car. So I would prepare the cameras and drive and spot the animals.…
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Two drugs for dementia
I di not know until today thye also have a drug in China that was approved. So we have two drugs on the market for now.
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Daytime dreams(1)
My DW is 65 and was diagnosed with EOD 4 years ago. So far, her decline has (thankfully) moved very slowly. I retired early to get the most out of what we have left. All is ok in the grand scheme of things and I try to concentrate on each day as a gift and not dwell on what we've lost. One fairly new behavior is that she…
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Minor wins--hey I'll take them
I've made some progress just doing things without any discussion with my partner. This is a definite change that has taken getting used to. But: first, to follow up on an old thread, at the advice of this forum I turned all the ringers off on our landline, which has greatly decreased the nuisance factor of the scam calls…
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How long is typical in stages 5, 6 and 7
I have read as much info as I can find and want to know from those going through this what you have experienced with time in different stages. Other than arthritis and this horrible disease - he has VD, FTD and AD , he’s been very healthy and active all his 74 years. As we all know, this is so hard. I have people I know…
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I feel either that I am failing or that I want to quit
Many questions - I understand that nothing is normal any longer - there is no normal. DH has MD and the FTD changes things up completely. He is frequently angry with me but can't articulate exactly why he is angry. None of the food or meals I have prepared for the last 43 years are to his liking and nothing I suggest…
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First Alzheimer’s Vaccine Human Trial Set to Begin at Boston Hospital
Another interesting possibility for treatment/cure. The problem for those of us on this forum is, as the doctor in the video states, if the trials are successful and the FDA approves this drug, "doctors may begin prescribing it in four or five years". First Alzheimer’s Vaccine Human Trial Set to Begin at Boston Hospital…
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New MC trial stay
During my lunch break, we went to the MC and he stayed. We unpacked his suitcase and he went with the others to have lunch. We recognized a man we met. He was also eoad and as we have a common friend, she connected us, but we just met them once. Everything went very well when I left. And strangely, the headache I had since…
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a few pictures from DW
I found a file DW had created years ago with some of her wild life pictures Thought you might some of them
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Just received the Ohio Family Nursing Home Satisfaction Survey
I torn. Overall my beloved is getting great physical care. She is always clean, her hair is cared for, her clothes match and are neat ( I do her laundry). The problem being, 80% of the survey I have to answer in the negative. Common areas are clean, but patient rooms only get a "lick and a promise" with many details being…
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Sudden Alzheimer’s decline
Hello, My husband is 69 and was diagnosed with early onset Alzheimer’s 5 years ago and has seemed to stay in this middle stage for a long time. He also has heart issues and is a type 2 diabetic. He went to the ER twice this past week for a kidney stone that still has not passed as far as we know. He is currently not in…
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Just for laughs
My DH has made me laugh out loud several times the last few days. He is on a roll and I’m just trying to make the best of these interesting discussions. (BTW. he’s dead serious but seems to enjoy it when I get a kick out of his remarks, thank goodness!) Him: Huh. Me: What’s up? Him: It’s not easy. Me: What‘s that? Him: I’m…
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Feedback on Aricept
DH saw his neuro doc today and was given the results of his testing which shows mixed mild dementia/comorbid Alzheimer's. He was told to try Aricept for a trial period and to return in 3 months. DH was not upset or anything---guess that's the lack of insight kicking in which in this case may be a good thing; still…
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Potential vaccine and treatment for Alzheimer’s
Another false alarm? Time will tell. At least it doesn't cost $60,000 per year. NEWS RELEASE 14-NOV-2021 New approach provides potential vaccine and treatment for Alzheimer’s A promising new approach to potentially treat Alzheimer’s disease – and also vaccinate against it – has been developed by a team of UK and German…
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Camera solution
I am proud to say that I just set up two old iPhones as video cameras. It was easy and cost-free. Who doesn’t have an old phone in a drawer gathering dust? I used the Alfred Camera app.
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He lost his wallet.
This afternoon has been especially wearing and exhausting. About a month ago, DH lost his wallet. I really believe he accidentally threw it away. He had taken his money out so there was no monetary loss. The only thing in it was his picture ID. The whole thing has morphed from he lost his wallet to him saying someone stole…
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$266.00 a day
I am getting so tired. I do everything for my husband and all he likes to do is walk. He can still eat by himself and is fully continent so I can’t really complain there. He has a 10 sec memory and can’t talk about anything. Showers and changing clothes can be a battle and sometimes I just give up. Life seems like an…
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Is this a crazy idea?
For those of you who are really having a very hard time, I wonder if a hypnotist might help? Would you try it?
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Swiss Cheese
In a TV show…Quantum Leap…the main character jumped back in time into other people”s bodies to correct an error in history. He always explained his confusion as having a Swiss Cheese memory. This must be what it is like for my sweetie…only it is the present that is full of holes and memory traps for him, while his past is…
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Horrible Story Famous Utah elder care lawyer plunders Alzheimers patient
IM posting this right now I will come back with advice later The lawyer was very well known in the disability law community Its equivalent to Berni Madoff From Newsweek Utah attorney is accused of embezzling more than $9.5 million from clients over the past decade to fund his "lavish lifestyle," prosecutors said. Calvin…
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Embarrassing situation
Saturday evening we were invited by friends of mines. When we arrived, they told us that another couple will join us as well another friend, perhaps with her partner. When the couple arrived. What a surprise, they recognized my partner and he recognized them. They already met several times because they had a common friend.…