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Can anyone recommend book(s) that the PWD would enjoy?
My beloved has been in a long term care facility for 1 1/2 years. Still knows me and can pick out members of the family from photos (no one else visits).. The problem is "self entrtainment". She can still read a little but gets frustrated with trying to read the newsapaper. Has anyone run across books that would be…
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need a cheer up?
I was feeling sorta down so I made cranberry sauce for the holiday I have a turkey thawing , two in the freezer and one is being "baby sat" in DD#1's freezer She loves it when people see it and think she is going to cook it.
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What an amazing day looks like now
This was my best day in months. Started with a clean wipe, already a good start. I got my wife into the shower, first time in 8 days. I got her to put on pants, first time in 2 weeks. We went out together to do stuff, not since the last time I got pants on her. We shopped. She was upbeat and fun...even funny! We got home…
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Just need a virtual hug today
Hi everyone. My DH has been taking Seroquel (200 mg each night) for about 6 weeks now for delusions and paranoia. I thought it was working but things now actually seem to be getting worse. He is afraid to go to bed at night because he thinks that men are in our house and they are threatening him, pulling his pants down,…
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Follow-up on Seroquel Rx
There was a post about Seroquel a couple of weeks ago. I expressed interest because my husband was experiencing delusions and temper-explosions. I gave in to the neurologist’s suggesting Seroquel, in addition to the antidepressants. Many replies noted how effective it had been for their LO. The change in my husband after…
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Just like a shut down my web sites I am shutting down the information I share here
I can not continue to share 3rd party information that I feel would help you all. I have access to the best folks in and always hot off the press. When I thought it would be helpful I shared it with you . But I am really getting tired of being the one that has to defend things here. If someone wants to step up to receive…
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Recommendations for waterproof mattress cover?
My DH is reaching the stage in his Alzheimer's that he's becoming incontinent occasionally and insists he isn't. Hasn't wet the bed yet but I notice stains on his undies when I do the laundry. Can anyone recommend a good waterproof mattress cover? Also good incontinence briefs recommendations would be appreciated. This is…
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Mobility problems
For some time DH occasionally has problems standing and walking but after a few steps didn't need assistance other than a cane, although a little wobbly as usual. Thoughts were it was a balance issue. For past 2 weeks he has constant problems standing from a sitting position and then walking, No longer a balance issue but…
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Sometimes things go very quickly downhill
My DH passed on September 28th from ALZ, more specifically, aspiration pneumonia and AFIB. He had been in memory care only 2 months when they found him lying on his bed, unable to talk or swallow or walk. They called 911. He had had an AFIB episode that left him with only 45% capacity in his heart, which meant little blood…
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This song was popular when we got married
And yes, I'd do it all again. https://www.youtube.com/watch?v=iulmZAz8XfY EDIT: Thanks June. I didn't realize it wasn't a hot link. https://www.youtube.com/watch?v=iulmZAz8XfY
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Momento
For some reason DW put these earrings on the windowsill 4 years ago, just before she went into memory care. I've never moved them. I see them every day.
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Disguising myself in memory care - Win!
It’s been awhile since I’ve posted. I’ve finally discovered a way to visit my husband in memory care by wearing a wig, Covid mask, and speaking in an accent. I visit as a volunteer and even gave him a much needed haircut my first visit! It’s so good to be able to speak with him and check on his well-being! He has a female…
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Elder Care Cost
I spent $400 with and Elder Care Lawyer to be told it would Cousy $5000 to set up trust and other paperwork and an additional $1000 a year for consultation. Is this average? I could meet with another attorney but it will cost $350 before I get a quote.
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Totally alone
Last weekend visiting my husband in MC, he was strangely bent; stooped over more than I've seen, his head dropped down almost resting on his chest. He was still his sweet self, very happy to see me, saying "I love you so much", smiling that I was there, but couldn't keep his head up. Sitting on the bed beside him, I…
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This may help you with bills and financial issues
https://silverbills.com/
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The Loneliness of Frontotemporal Dementia
2019 article on FTD, from the NYT. https://www.nytimes.com/2019/11/07/well/mind/frontotemporal-dementia.html?searchResultPosition=1 ElaineD
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A win: The Toilet Tango
DH has apraxia and taking him to the toilet was very frustrating for us both. I try to keep the experience breezy and cheerful. Since I have to guide him this way and that, I call it the toilet tango. Lately, I have added some Cha-Cha along with a little rhythm as I sing simple instructions along with the cha cha cha. It…
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care giving to mom
In Jan my wife age 64 died of EO/FTD I retire at age 58 to be her care giver. She died at home with her children and dog present. My problem is my mom who is 90 has dementia and my sisters want me to take care of her while they keep on having fun. I don't think they have any idea of the emotional cost of care giving. Any…
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White Crane
Was wondering how you and your family are doing?
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I cannot do it But i can do it
This is the way I sometimes feel. When it is the worst of times, she won't do (or won't let me do) what absolutely needs to be done. When these episodes happen, they last about 1/2 hour or more, so most of the day she is pretty easy to care for. When it's over, it's in the rear view window. I am much stronger than she is,…
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My description of the last 10 years.
I was asked what being an EOAD spouse was like. Here was my response: Being an early onset Alzheimer's spouse is like the worst parts of marriage and divorce with no redeeming values.It's like being hit by a flamethrower that destroys lives, relationships, families, careers, finances and futures and leaves nothing behind…
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A text message from his son
« Hi, how are you ? Do you know if dad is back from Tunisia ? I tried to call him but had no answer. » My arms fall off. Does he really think that his dad comes and goes in Tunisia alone. He came at home the day before the departure and saw me accompany his father to the toilets, having to shower him in the shower…
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Bed alarms
I need to get a bed alarm so that I know when my husband gets out of bed. I don't sleep in the same room because he tosses and turns, kicks, snores, etc. and I need my sleep to be a good caregiver. Does anyone have a recommendation? There are tons on the market, some are pads for the actual bed and others are mats you put…
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In home caregiver. COVID Vax
I am considering hiring a new in home caregiver who has recovered from having COVID months ago but has not been vaccinated. This lady is a licensed CNA who previously worked in a Nursing Home but suffered burnout due the number of patient COVID deaths during the height of the pandemic. This lady will not take a COVID shot…
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One Less Bell To Answer
“One Less Bell To Answer, One Less Egg To Fry, One Less Man To Pick Up After, I Should Be Happy, But All I Do Is Cry.” The popular version of this song, performed by The Fifth Dimension, was released in 1970, but written by Burt Bacharach in 1967, the year DH and I were married. I loved The Fifth Dimension, Burt, and that…
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DH wakes up for bathroom at night
DH forgets to take torch to bed, bumps in the bed at night, this wakes me up, I am a light sleeper, any light wakes me up and can’t go back to sleep. Tried to put nightlight but his bedside but light keeps me awake. Any ideas? Next, will try glow in the dark paint - on the torch. Tried anything that solves the problem?…
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Home caregiver for DH who gets delusions.and agitations when I leave
Every time I leave the house my husband thinks I am having an affair, it triggers his delusions and agitation. Where can I find a caregiver that can deal with him?
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Great book for newcomers, and reminders
A “how to” for caregivers new to this disease, and a good “wrap-up,” for everyone, I found this book on Amazon called “Caregiver Overwhelmed: How to Cope with Alzheimer’s and Dementia.” has tons of great advice. The title sounds dramatic, but it is a straight-forward, easy- to- read book of tips for all kinds of problem…
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Information shared appreciated, Michael
I have much appreciated the information on Alzheimer's disease that you have shared on these boards through the years, Michael. I have seen things get pretty heated at times on this site, and maybe sometimes moderation was needed, but I agree that usually a light touch is better.
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@gonegirl40
I am posting to ask you to please be patient with Michael and me. There used to be several patients who posted on the Caregiver boards, but now only Michael and I post. Speaking for myself, I am aware that my verbal and written skills are not what they once were. Having much experience in different areas, I try to…