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I'm so tired(1)
DH isn't sleeping more than a few hours at a time. He wanders the house for hours in the middle of the night. I lay in bed only 1/2 asleep, so I can hear where he is. I feel so bad for those of you who have been doing this for years, and cleaning up messes and changing sheets in the middle of the night. It's only been a…
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Causing a scene
Hi again. I posted today about the telephone and now I have another concern. I didn’t want to leave him home alone so I took him to the grocery store where I could keep an eye on him while I shopped. He made a huge scene at the check stand because the groceries were not bagged the way he wanted them, yelled and called me…
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How Do You All Deal with Obsessions? What works?
Hello again, this is my second post, and I am thankful that this forum exists for those of us new to this to learn from those of you that have already been through it. My husband met a guy while getting the oil on our truck changed. Both are retired from military service. The man he met invited my husband to his VFW…
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My DW Thinks I'm Her Step-Father
I need advice from some of you experts. My DW was diagnosed with ALZ about a year and a half ago. Her short term memory is not good, but we're doing fine after 55 years of marriage. However, in the last few weeks she periodically thinks I am her step-father. Sometimes this goes away after a few hours. I have found leaving…
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Telephone frustration
The police were at our door today. It seems my DH was so frustrated on the telephone he threatened a business. Now I am afraid to leave him alone even if I am in another part of the house. We need to keep our landline because it is captioned for the hearing impaired. It is difficult for him to follow a conversation and to…
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Respite stay to his brother and friend : feedback
In august, my partner spent 10 days to his brother and then 10 days to his friend (she is his princess… his fiend when he was a child). It isn’t the first time. The brother, whose wife is a nurse, already welcomed him one week last year and one week in February. His friend welcomed him one week in 2019 and also last…
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Is being cold a common symptom?
I have noticed a number of you mentioning your LO will be turning up the heat. This is something my dad does routinely. We have tried to get him to put on a sweater, with limited success. He always wears long sleeve shirts and usually wants to put a jacket on to go outside no matter the temp.
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A Bit of a Rough Morning and a Sign
This morning my husband got into the shower and I got him washed and dried with no issues. Then when I tried to get him dressed he spat at me and clapped his hands together and caught my arm in between. He would not let me dress him. As I was trying to put his disposable briefs on him he cursed, etc. I pleaded "Please send…
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anger when asked for opinion
Don't know if this is common, but it seems to be more frequent with DH. Tonight, I asked him about having my parents over for a meal on Labor Day. He said "sure". When I asked whether he would prefer lunch or dinner meal, he became very angry and said "why do I have to make all the decisions?" and withdrew from me (usually…
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Thank you(7)
I’ve shared less than most, however I gained alot of knowledge and peace from this group. My dear husband Paul passed away peacefully at home on Saturday the 28th. He was on hospice since early May. You guys and gals made me laugh and cry but mostly I felt understood. I also made several good friends along this very sad…
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Activities on an Alzheimer's care unit in a nursing home?
Once again I am afraid my unrealistic expectations are getting the better of me. My beloved has been in a facility for almost 1 1/2 years. Still very verbal, but not often sensible. She recognizes family much of the time. She self feeds, but what she considers a "finger food" may not be everyones definition. The problem,…
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I sleep thru his midnight shenanigans
Sometimes I’m aware he gets up and other times I must be sleeping too soundly. Is there a trick to wake me when he gets out of bed? I feel so bad when I finally find him disoriented somewhere in the house and needing help.
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ER visit and surgery
Over the weekend my DH was not well. He didn't want to eat, seemed unsteady on his feet and complained of a stomach ache. On Sunday morning, we were at our son and his finacee's for breakfast. DH picked through his food and ate maybe a teaspoon of scrambled eggs. He said his stomach ached, so our son walked him to the…
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Aduhelm investigation heats up
Sept. 2, 2021Updated 2:14 p.m. ET Two powerful congressional committees investigating the controversial federal approval of Biogen’s Alzheimer’s drug, Aduhelm, demanded extensive information and documents from the Food and Drug Administration in a letter released on Thursday, making it clear that the committees’ leaders…
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Good dementia/caregivers story in WaPo
Almost overlooked this online because the headline focus is 9-11, and how many who did recovery have serious dementia young as 50. But it also talks a lot—and better than most in MSM—-about what all caregivers face in dealing with any dementia at home, the problems and what’s needed, etc.. I rarely see that done much or so…
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VENT: I gave DH the benefit of the doubt and then I got to clean up poop
This morning DH was heading to the water closet. I was walking right behind him eager to help. DH shut the door and said "I can do this". So I stepped back and gave him his privacy. After a minute or two I concluded it was not going well, but respected his privacy. He comes out of the bathroom a little later looking very…
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need help with guilt
I am taking care of a boyfriend with VD I am getting better with handling problems that pop up due to alot of reading about dementia. Problem im having is when i read about stages i reconize many of the symptoms of each stage my boyfriend is going thru now or has gone thru already. Its like he goes from stage 3 to stage 5…
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Alzheimer's Doctor in NYC
Hello, I am new to this board. My dh was diagnosed with Alzheimer's last week. We received our diagnosis from a doctor affiliated with NY Presbyterian but would like to work with a doctor from NYU Langone. I'm wondering if anyone can recommend a doctor with whom they've had a good experience. I've seen Dr. Arjun Masurkar…
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Jiminy Cricket! This day has been exhausting!
I didn't get much sleep last night. DH was restless and we got up multiple times so he could pee. DH is having leg cramps at night which are very painful and they make the trip to the bathroom an ordeal. I try to get him to eat potassium rich food which are supposed to help the crampy...alas I have not yet been effective.…
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Progressing
In the past week my husband has been slowly showing signs of progression. When it was time for him to step into the shower he asked "How do I do that?" I now wash his upper body and hair because he no longer knows how to do that. Has been nodding off while sitting on the couch after breakfast. Usually he stays awake. He's…
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Is this a good idea?
My wife is getting more in the "no" camp. There are things that simply have to be done, and sometimes she absolutely refuses to co-operate. When these times happen, I call our daughter, who has had unbelievable success talking her into doing what must be done. But my wife is getting to the point where even our daughter is…
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Its hot vent but any help
DH isn't diagnosed with MCI or any type of dementia as of right now so I don't post here often. He is an active alcoholic, uncontrolled diabetic, and his mom passed away from Alzheimer's - the dementia trifecta. He has much going on that I feel is the beginning of some type of dementia. With that being said...he has always…
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Desire to go to other house/JohnDoe
My LO has this daily desire to go to our other house, which we don’t have. It can start any time in the day but mostly around dinner and as late as 3am. Some times she will collect a few things to take. It has become very difficult to deal with. Usually a ride around the back roads in the area will distract her, maybe…
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FYI(8)
You may find these interesting. https://www.youtube.com/watch?v=3CiFk2hP23U https://www.youtube.com/watch?v=C11Xd6AuK_k
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Infidelity accusations(2)
One of the most horrible symptoms of Lewy Body Dementia is when your husband accuses you of infidelity. This morning my DH woke up and was extremely angry at me. He repeatedly called me a “prostitute” and said some really vile things regarding his delusions of me being “with other men all night.” He also wanted to hit me.…
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Electric shaver
Can anyone recommend a good electric shaver that actually cuts the whiskers? My DH does not have a heavy beard, but this issue has been a thorn in my side for years. I have a closet-full of mediocre shavers that are going in the trash; some which were not exactly cheap Must one spent over $300 dollars for a decent shaver?…
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No idea where I stand...
My husband was diagnosed with Alz 8 months ago and is probably moving into stage 4 now. We have always had separate money, etc. for our personal things and a joint account for our home expenses. He asked me in January to take over the "our" account and take care of our mutual bills and expenses and I have been doing that…
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What to tell DH about our move.....
We are moving to a house in a senior community. We have lived in our home for over 50 years and I know my husband would be livid if he knew I was planning on moving us. I am sure he will try to run away and go back to our home even though he can't find his way to anything familiar. He can barely walk most days. The kids…
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Thoughts(1)
Aside from realizing that my DH is no longer cognitively the man he was, I’ve come to realize that this disease has caused him to lose empathy. I’m crushed that I will no longer receive comfort from him, that his shoulder is no longer a place to lean on, that his arms will no longer encircle me…
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Really stupid question
My DH is in the early stages. Still drives but his judgement is gone. Yesterday one of my dogs pooped in the house and my husband picked up the poop and put it in the kitchen garbage. When I went to move it into the garage garbage can he flipped out. Screamed, yelled, pushed and started banging on our newly remodeled…