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end of life directive vs. care
During end of life stage dementia in care facility, when patient doesn't eat much and needs help drinking fluid, not enough fluid intake is presumed to have caused kidney stone(s) which are painful to pass, blood in urine, and UTI. End of Life directive wants no measures taken to extend his life. Courses of antibiotics…
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Lion's Mane Mushrooms
Just learned about these. The documentary referred to clinical trials. Does anyone have experience using these mushrooms (or extract) for EO ALZ? Is there a place to look up clinical trial results? Or is this just another snake oil promoted to separate us from money we don't have?
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Aricept (try it or not)
Got the official diagnosis today for DW... EO (age 60) ALZ. However we've been progressing for at least 5 years - things are moving much more quickly now. I'm grateful that Zoloft was prescribed. Mood improvement would be a godsend. She gave up driving without protest or emotion - shocker! (Told me Sunday that she wanted…
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Scooting to the bathroom & fear of stage 7 & anxiety
DH and I still sleep in the same bed. From his side of the bed, the toilet is a straight shot of about 10 feet. DH gets up several times during the night to go to the bathroom. I get up to help him especially when it comes to sitting properly on the toilet seat. Last night, he woke up and said he needed to go to the…
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Delta, Dementia and the Elderly
We are starting to get good data on the risk of the Delta variant to vaccinated Elderly people. (My Brother in law who is 77 just had a breakthrough infection) The probability of getting infected is about the same as for unvaccinated people, although the hospitalization and death rates are about a fifth so far. DD#1…
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Maintaining some personal space
I'm wondering if anyone else has dealt with this. We have separate bedrooms because we're both light sleepers. One of the few things my partner still likes to do is clean, but I can't keep her out of my personal things in my bedroom. Neither of the doors has a lock, and I think she would not take kindly to that, but she'll…
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New symptom....did not identify self in picture
My folks have a digital frame and the family has put lots of pictures on it. My dad, who has dementia, really enjoys the pics. Today he asked me if I knew who that was in the picture. It was of him and my mother at their 75th wedding anniversary party. I told him that was him and my mother. He said no that was his brother…
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Carbonation and caffeine
The urologist DH goes to said to eliminate all carbonated drinks and caffeinated beverages and foods ( chocolate) from his diet as they stimulate urinary incontinence. Just thought we all could benefit from knowing this.
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Good news today
Today during my lunch time I had a call to prepare the respite stay in Tunisia (from September 23 to October 22). I prepare it as holidays and also present it to my partner as holidays. Just after that I had a call of one MC we visited and liked because of its size (14 residents) and architecture (you can see outside from…
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Nothing Could Prepare Me for Watching My Wife Slip Away
https://www.nytimes.com/2021/08/24/opinion/tom-coughlin-wife-psp.html By Tom Coughlin Mr. Coughlin, a two-time Super Bowl-winning head coach, led the New York Giants, Jacksonville Jaguars and Boston College Eagles. From the article: I’ve learned firsthand caregiving is all-consuming. It is mentally and physically…
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Frustrated. I can't do this
Today I just feel like I can't do this anymore. My loved one had another bout of diahrea. He just acts like it is normal life and I guess I have to face that it is. Thank heavens he made the change to disposable underwear. He does this and then when we go to the doctor he tells them he is fine and has no problems. They…
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I made a decision.
I'm going to place DH. I've been back to work for 2 weeks. Averaging 4.5 hours sleep a night, in about 2 hour increments. Bathroom issues are increasing. Meds were increased earlier this week, but have no effect. He requires almost constant attention, or he gets upset. Big incident today that required me to leave work. I…
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MC yes or no
Unfortunately everyone I don’t know I made the decision along with my son to transfer my sweet wife to memory care nine days ago and it has been excruciating I believe more so on me than her the first day was really rough for her and I I second-guessed for the first full six days was it too early did I do it right then I…
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Kinda funny
My wife had to pee, and was sitting on the toilet. I asked her if she trusted me. She said she did. I said "Good. I have to pee too. Spread your legs a little".
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Medication question
DH's anxiety is increasing again. He cries at least twice a day for 30 minutes at a time for no apparent reason. He gets very agitated about 3 hours after he wakes, and again before dinner. He paces at night and I can't settle him into bed. Once asleep, he sleeps 4-5 hours before getting up and wandering the house for 1-2…
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Very late stage seven -no recognition
DW is late stage 7 She can walk and swallow and that is about it. She does not react to verbal commands. You put a spoon on her lips and she opens her mouth. Take her by the hand and she gets up etc. She is 69. She does walk "around" people. No longer tries to open doors. She has no idea who I am Anyone else in this…
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Paranoia?????
Why is my DH getting so paranoid? He is approximately stage 3-4, still able to go out and about a bit, and can function on his own in public. I have recently noticed that most of his conversations have to do with people who either don't like him and talk about him (not true) or are looking at him funny, etc. If I try to…
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book by Pauline Boss
I have been struggling with the "loss" of my DH to dementia. At the suggestion of someone on this forum, I looked up Pauline Boss. My (wonderful local) library ordered her book, Ambiguous Loss: Learning to Live With Unresolved Grief. I started reading today, and it's just what I need. She gets it, as so few people do. I'm…
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Any experience with CBD for LO?
I'm wondering if CBD would be helpful? My DH has suffered from anxiety all his adult life, and it is supposed to be good for that. Might be able to sneak it into his coffee or other drink. Just wondering if anyone has any experience.
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I'll See You In My Dreams
https://youtu.be/dJkaZ8hQM60 The road is long and seeming without end ... I'll see you in my dreams ... I'll see you in my dreams When all the summers have come to an end I'll see you in my dreams We'll meet and live and love again I'll see you in my dreams Yeah, up around the river bend For death is not the end And I'll…
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For those talking of advocacy
Hi. I saw on an earlier thread where several people were talking about the need to advocate publicly for AD, to lobby on Capitol Hill and to raise general awareness. Some of you may not be aware that the Alzheimer's Association actually has a separate, non-partisan, advocacy/lobbying arm, called AIM - Alzheimer's Impact…
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Henri dropped tree on PWD's house
My sister's husband Mom is the PWD. They were living in her house to take care of her. After the came tree came through the roof they moved her to their own house and she hasn't been able to settle down. Sister says she is pacing. Do you think it is the new enviroment or that she knows something bad happened? How long may…
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I am in the club nobody wants to be in… I don’t remember the name.
I am in the club I can't remember it’s name and can't find the post. But that's what I thought yesterday: oh no ! I'm in the poop club! It helped me a little to dedramatize the situation. Yesterday I came home from work a little over an hour after he returned from daycare and as I walked up the basement stairs, I…
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he thought I was trying to get rid of him
I took my DH to the senior center in the next town over to look at a program they have 2 days a week 3.5 hrs each day for people with dementia. He enjoyed meeting everyone and he seemed to like it. As soon as we left he said I'm not going there. I told him he should try it for a week or 2 but he was pretty adamant that no…
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Who has placed LO in MC?
For those of you who have placed their LO in MC. Did they go willingly? Did they put up a fight? My DH has anosognosia I don't have guardianship, did you have guardianship? What allows you to place your LO? I'm sorry for these stupid questions, but I'm sure others have been in the same place before and could offer advice.
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Showing significant signs of improvement - thyroid med adjustment???
My friend had taken a marked turn for the worse a few weeks ago. He would uncharacteristically get mad at me for the slightest offense and thenwould sulk and be irritated with me for days. During a particularly bad week, he put his pills in the full glass of water, he tried to cook food on a paper plate over a gas stove.…
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Six month wait to see his neurologist
My DH's appetite has gone down even more the last few weeks resulting in loss of weight. He weighed in at 145# during our October visit with his neurologist, in 2019, and is just below 120#s now. Having read some posts on here, I know loss of appetite is common with Alzheimer's. DH is late stage five and early stage six. I…
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In 2 days I understood that I can't leave him alone anymore
Wednesday evening there was the poop in the bathroom, and this morning something I didn't understand, but I could have been poisoned. Every morning I get up early to go running or biking. This morning it was cycling. Sports are important to me. Usually when I get home an hour later he is up and waiting for me. This morning…
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Disaster Preparedness Links For Caregivers
https://www.alz.org/help-support/caregiving/safety/in-a-disaster Some of the links have additional links to multiple different helping agencies: https://www.nia.nih.gov/health/disaster-preparedness-alzheimers-caregivers https://www.aarp.org/caregiving/basics/info-2019/preparing-for-emergency.html…
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Advice from this forum that made a difference
Wow. This bit quoted below made a profound difference in my day. I have been reducing choices over the years, and I stopped at binary decisions. Do you want X, or Y? From dinner choices to what she is wearing, to showering or not. It's really frustrating, and sometimes we go all day without getting anywhere. It did not…