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Another Awareness problem
Most of you know that I'm trying to increase awareness of dementia. For those of you who might not, I'll keep this part short. At the present time, I'm working with a reporter for the largest newspaper in our region to get our story out there. This reporter is a seasoned veteran of reporting. Yesterday he emailed me four…
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Strange experience
My wife is wide awake wandering around the house wanting to go home. She says I have to call Bill. I am Bill. I hand her phone to her and call me. I pick up the phone and start talking to her while she is right in front of me. She couldn't make the connection the person on the phone and the person in front of her was me. I…
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Therapy
I want to talk to a therapist. Just someone who understands caretaking and the stress and anxiety that is driven by real-world things that are actually happening. Better Help found me a pretty good fit. On the 3rd session we finally got to caregiving, and I told him I chose him because we had some tangencies, what with him…
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vascular dementia weakness
Okay Hospice just left and my DH was much weaker. Not sure he will make another shower. He had trouble following directions. I wish they could say that it means he has so many days left. I know it depends on a person and how much they can or can't give up. In my mind I have already lost him.
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DW has been placed on hospice
It was just a week or so ago I posted about my DW being in an MCF for six months. I talked about her unusually rapid decline. Just since that post my DW has taken a turn for the worse. My DW has just been accepted for hospice. DW's MCF was seeing some new decline and medical issues so they contacted DW's neurologist (with…
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Game App
Littlehelp My husband used to play candy crush. He could still play today if the advertisements didn’t throw him off, he plays fine, but can’t grasp how to get through the advertisements. So my question is, is there an app of games for Alzheimer’s patients. I can’t get him interested in anything such as coloring or…
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Totally unexpected re: awareness
I got a call from the newspaper reporter. He had a lot going on today, and asked me if I would be willing to give an interview over the phone. Of course I would. We were only about 5 minutes or so into the interview, when I became emotional, and told him I was sorry, but I couldn't continue. He was very understanding. He…
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Interesting book
Now that DH is in memory care I have some free time for reading. I realize many of you don't have this luxury. But I do want to recommend a book called "Making the Rounds with Oscar" by David Dosa, a gerontologist who works in the memory ward of a SNF in Rhode Island. Oscar is an ordinary residential cat on the ward who…
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Alone time - HA!
Can’t seem to get alone time! Everyday there is a different ailment and DH follows me room to room to just sit! He says he feels lightheaded or his leg hurts or his back hurts or he feels confused. I understand his need to be with me but it’s like having eyes on you every second of the day. I try to give him simple tasks…
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Website with free nature videos
On Daily Caring site I found information about a free website that shows a wide variety of animal and nature video....many of them are live and some are prerecorded. The few I looked at are peaceful and interesting, and lots of different subjects from cats ad dogs to hippopotamuses.. Go to Explore.org to see what might…
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Confusion increasing
Ddoes the confusion with Alzheimer's just keep increasing? My DH with Alzheimer's diagnosed last July, just seems to keep getting more and more confused in last couple months. He's still mobile, but can't figure out how to open car door, can't figure out how to get seatbelt on or off. Gets so confused when I give meds to…
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New to this site and find your experiences helpful
As I scroll through each person's experiences, I am in awe of the heroism and strength each of you are exhibiting. You are all an inspiration to me. My husband was diagnosed in 2018 but he was exhibiting signs at least 2 years before that. He can still get around, communicate and is no way as challenging as many of your…
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dementia and diet
When my DH was first diagnosed we started following the Mind Diet by Maggie Moon. It seems pretty nutritionally sound to me. A friend just gave me a copy of Dale Bredesen MD's book : The End of Alzheimer's The First Program to Prevent and Reverse Cognitive Decline. I plan to talk to his Dr the next time we go, but I'd like…
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Makes me think of the Energizer Bunny
Just wondering, do any of your LOs constantly keep going? My husband is sleeping around 4 hours at night. And during the day he cannot get still. He's inside, outside, in the bedrooms, in the bathroom and then in the kitchen. Each place he goes he created a mess. He's on serequal morning and evening. And Xanax as needed to…
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Getting into their reality
Last night, I watched the latest episode of the tv series "A Million Little Things" which had an arc about a main character's father who was diagnosed with Alzheimer's. The son was having trouble dealing with his father's confusion and forgetfulness, constantly trying to explain and/or set things straight. Then another…
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My Best Friend and Love is Gone
Hi All, My amazing, dear husband died Sunday morning. I want to thank you, the great people on this forum, who helped us along this path that we all share. I will post again, but wanted you to know he is now at peace. Thinking of you and thankful for your kindness.
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Just need to talk to my friends (188)
Morning, We had lots of rain last night. Haven't been out to check how much but there's water standing everywhere. We need it so won't complain too much. The sun just came out here, Sara, so it'll be around 70 today - 30 degrees colder tomorrow. You've been a busy lady this morning. I had that much energy when I was your…
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I’m losing it!
Last few weeks have been stressful, scary, eye-opening, confusing! I actually tried to have a conversation with my DH about how I am helping him, how I am there for him, and will do my best to do all I can for him, but I want him to understand just that and please stop yelling at me and blaming me for his illness. “I’m…
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I am not a monster
DH, age 62,has EOAD diagnosed in 2021. Currently in Stage 4 and doing okay. His PSA was elevated and an MRI showed two areas that were suspicious for prostate cancer. The biopsy results came back today: benign. When I share the results with family and the wider world the reaction I most often get is one of relief and…
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Mail call
We live in a neighborhood where your mail is still delivered right to your house. In our case the mail slot is by the front door and comes right into the house. DH has taken upon himself to be the caretaker of all the mail and go through it first by himself which is fine with me. Even junk mail seems important to him. The…
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Hurricane Sue blowing through
I am sitting in my office listening to my wife in the kitchen banging cups, dishes and silverware and cupboards opening and slamming closed. It was her birthday yesterday and there are boxes and packaging material she can pick up and move from one place in the house to another. It sounds like a hurricane blowing outside.…
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Buggs
I started to post this on another thread, but thought you might not see it. Buggs, I'm not sure if you saw this video, but it's pretty good. When someone with dementia REFUSES to bathe [try this] If the stench is too much for you, try putting a little Vick's Vapo Rub under your nose. Some people say it works well. I hope…
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KimDK
Hi kim i saw your first post on another thread so started a new topic for you. I am so sorry you find yourself in need of support but you will find it here.. MCI at 56 has to be a terrible shock and you are facing a lot. You asked about whether he can still work and apply for SSDI. I am sure there is much available online,…
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Early onset Alzheimer’s
My husband got diagnosed with EOA 2 yrs back, I do see a slow decline in him. I’m in NJ.. any resources available here to keep him and busy and caregiving help. I’m lost and depressed.
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New to the forum; not sure what’s ahead
Dear friends, my husband is 80…I’m in my 50s. We’ve been married for 30+ years. He seems to have Alzheimer’s according to GP. He seems to be stage 4 or 5 based on my reading. It’s hard to tell. We’re still waiting to see the neurologist. He’s not aware of his memory problems. He forgets what he’s just done (like feeding…
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Awareness - getting started
I did exchange emails with Jim Mangi, aka "Toad". He suggested several things, one of them being that I contact Alz. Association, which I did. The first lady I spoke with asked me what I would be willing to do. I explained to her that I would like to try speaking to small groups of people in an effort to let them know what…
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A New Facility
Tomorrow morning I am moving my husband to a new facility. His current facility has been great about working with us because I told them it is simply about cost which is true. The new place is $2000 month less and he will have a private room. The owner of the facility is going to ride with my friend in the U Haul truck I…
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Introducing Myself(5)
Hi, all. I just joined ALZConnected! My wife has a lot of health issues, beginning with multiple myeloma (diagnosed almost 13 years ago). Last year she developed serious arrhythmia which resulted in 60 hours in ERs, two hospital stays, ablations, and a pacemaker--all the while being partially blind due to much-needed…
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A new problem. It’s not him it’s me.
My husband was diagnosed with AD in 2015. Last May he had a paralyzing stroke. He’s been in a skilled nursing facility since he was released from the hospital following the stroke. At first I visited him every day and stayed for hours. I realized the physical and emotional toll it was taking on me and cut back to 3-4 days…
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What a relief, got POA
My husband was diagnosed last July with Alzheimer's. And right off the bat, doctor said get a durable power of attorney. It has been like pulling teeth with my LO. Between him refusing to go to appointments, or being so out of it he didn't know his own name. My fear was he'd never be competent enough to appoint me as POA.…