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Rant(1)
I hate my life. DH has FTD and “won’t” is his middle name. He won’t shower, shave, brush his teeth, change his clothes, wear Depends, stop taking food out of the freezer at night and putting it in the oven, turn off lights or water, sleep in his bed, and the list goes on. He is taking Olanzapine and Depakote which I don’t…
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How to decide to place or try to keep home?
I don’t post often, but I read several times a week. DH has declined to the point of needing daily care while I work full time as a school counselor. He had a huge decline in November when his doc and I decided to stop Donepezil due to him adding Klonopin. I really didn’t think it was doing much and had read that we should…
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Lecanemab accelerated approval
The best article I have found on lecanemab's FDA approval comes from the Alzforum. Lecanemab (brand name Leqembi) is going to be restricted to people with evidence of amyloid plaque who have mild cognitive impairment (MCI) or mild dementia. This comprises about 20 percent of those with AD. There are also cautions for…
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Exposed
Are there people on this forum that you wish you knew who they are. Some folks are just so negative that I wonder why they are always like that. Do you wonder as I know who many of them are. I hate when people think they can say what ever they want just because they know you don't know who they are.
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Can
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What just happened?!
DH has been home 15 days from a SNF. In that time we've gotten back into a routine, and things have been mostly calm here. I hope it isn't the calm before the storm. We had such a good day today. He happily let me give him a shower. I took him to Disney Springs, and we had a nice lunch followed by ice cream. We sat by the…
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Unexpected reaction at memory care
Today My daughter, SIL and I took my DH to a family home board and care. He thought we were going for a car ride and to see how the wood worker had repaired his night table. (Table had to be taken to care facility and its repair requirement was part of the fibbing to get stuff out of our house). We got there at lunch time.…
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DH is positive
On top of everything else, DH tested positive for Covid last night. This might have contributed to his double incontinence and confusion. I know he has a sore throat and is starting to have a little trouble catching is breath. I told the staff to be vigilant as he is a heart and cancer patient.I’m still visiting twice a…
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Lecanemab and the FDA
The FDA may make a decision on the anti-amyloid drug lecanemab on January 6th. This drug has about the same effectiveness as aducanumab/Aduhelm which the FDA approved last year but which Medicare refused to cover due to concerns over cost, effectiveness, and safety (especially the risk for brain bleeds and brain swelling…
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A literal s storm
It’s so crazy. Two 1/2 months ago D H was driving. Followed by a month of geripsych and 1 month in MC. Doc said he was in about the end of stage 4. Four days ago he became more confused and incontinent. Tested for UTI awaiting results but put on Antibiotics. Covid hit MC and DH may have it. He’s definitely not feeling…
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My Birthday(1)
This Sunday is my 70th birthday. We are going out with some friends to celebrate. I am not sure if Hubs even remembers. I want him back so bad, back five years or so to when things were relatively normal, before the six hour surgery that started the whole memory problem. I get plenty of counseling support (and legal in…
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Moving DH into memory care
I have made the decision to move my DH into a memory care facility. I have 2 choices, one in my town and one in the city in another state where my daughter lives. After looking at the pros and cons, I will make the choice of which place. But my question to all of you who have moved your LO into a facility, how did you go…
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OT--baby whale
A whale calf was born on camera a few days ago. I can't give a link, but you can search "baby whale Dana point". It may lift your spirits for a moment. Iris
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Furniture suggestions
DH enjoys his big man lazy boy chair but it is fabric and now that he is incontinent it is difficult to maintain. The chair has electric controls. The other issue is that he is having difficulty getting out of it. I think it is too low for him. He is 6’4” tall. I would like to get him a new chair that is easily cleaned,…
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Stop caring?
I don't expect much positivity in the new year because it will be another year of constant crying, emotional outbursts and thoughts that make no sense. She never stops. I think the only way to get through another year of this is to stop caring so much. Never gives me five minutes to myself. . . I'm past burnout. Even when…
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OK...Glass Half Empty
I am so mad at myself for being such a Pollyanna. Every time I get knocked down, I jump up and try to fid another solution. I look at the glass half-full and then when something doesn't work out I am devastated...but I tell myself not to give up. Well, I am about to throw in the towel. I am more than exhausted and I just…
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2022 National Strategy to Support Family Caregivers
https://acl.gov/CaregiverStrategy https://acl.gov/sites/default/files/RAISE_SGRG/NatlStrategyToSupportFamilyCaregivers.pdf
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The Global Council on Brain Health (GCBH) examined the impact of delirium
https://www.aarp.org/content/dam/aarp/health/brain_health/2020/03/gcbh-delirium-report-english.doi.10.26419-2Fpia.00101.001.pdf
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Bridge Over Troubled Waters
Listening to Simon and Garfunkel's "Bridge Over Troubled Waters" and can't stop crying this morning. Must be getting a migraine because I become either agitated or sappy, sometimes both. Grateful for Imitrex
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EOAD caregiver of spouse
Although I am not new to this forum this is my very first post/comment. I am also dealing with a spouse with early onset Alzheimer's. I saw symptoms for years but he absolutely refused to see a doctor. He said it was "typical aging" memory loss. He finally went into see a neurologist at my insistence and had testing last…
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Tearful, yet beautiful song.
Garden of Remembrance by Fish Copy and paste address below into web browser. https://g.co/kgs/NWzmkD It’s a New Year, I can’t say happy while he’s imprisoned in his mind.
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DW wants to leave memory care when I visit her
Hello everyone, This is my first post since my wife was accepted in a memory facility last week. The diagnosis is dementia with recommendations to care for her in memory care for the rest of her life. I am pleased with the facility and the support, but every time I visit her she begins to pack her belongings and wants to…
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CARING FOR PEOPLE WITH MEMORY LOSS
CARING FOR PEOPLE WITH MEMORY LOSS JUNE 4, 2022 | 8:00 AM -4:30 PM CST | HYBRID CONFERENCE FREE HYBRID CONFERENCE REGISTER NOW Choose to attend in-person or virtually via Zoom Join experts in a lively, informative discussion related to memory loss, caregiving tips, and what you can do to help. Register June 2022 4…
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Feels like whiplash
My DH is in early stages, or so I think. Days go by and he seems fine or at least stable, then he says something that startles me, like asking whether our oldest daughter is married (wedding was 3 years ago). He has no memory of the events and showing photos of the event didn't help him remember at all. Is the memory gone…
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Apathy question
Have any of you experienced apathy with your spouse diagnosed with Alzheimer’s?
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Medicaid planner verses elder law attorney
Hello All, With my DH getting harder to take care of, I'm looking into long term care instead of caregiving at home. With our financial status, I'm pretty sure he can qualify for medicaid. I'm not sure if I should contact a Medicaid planner or an elder law attorney. What are your suggestions?
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Where do you imagine yourself in a year's time?
Last New Year's Eve, I certainly didn't foresee all that has happened this year. Impossible to know, of course, but if I had to guess, I suspect my partner won't be alive in another year's time. I imagine feeling relief and sadness, both, and am already ready to sell the farm and downsize. I want mercy for her, for the…
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Questions on respite help
Has anyone used the respite for caregivers thru their supplement insurance? My husband follows me everywhere I go, and I've mentioned to him that someone will come and stay with him a few hours while I take some time to myself. I can tell he's going to throw a fit when I actually leave the house. I'm just wondering how the…
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Tell me about your hero
Mine is my daughter, Jennifer. She has two auto immune diseases. She is in pain every day, and she drives to Chicago to see a specialist. If she is late for an appointment, it is cancelled, and she has to wait some time before she can get in to see him. She can't afford to miss an appointment. Not long ago. she was in a…
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Horrifying tale of the Aduhelm approval
The High Price of Aduhelm’s Approval:An Investigation into FDA’s Atypical Review Process and Biogen’s Aggressive Launch PlansPrepared by the Staffs of the Committee on Oversight and Reform and Committee on Energy and Commerce…