-
Feelings in Head
I am not sure if I have asked here about this but my DH has a feeling in his head that he says feels full, which makes him struggle to even walk. The research doctor says that alzheimer's is not the cause of this but I don't know what else it could be. He has had many tests and has had this light headed feeling for…
-
Medicare part B and aduhelm
From the NYT Because Aduhelm is administered in outpatient settings, the cost would be borne by Part B, not Part D, the prescription drug plan. Medicare officials factored in anticipated Aduhelm costs when the agency announced a 14.5 percent increase in the standard monthly Medicare Part B premium for 2022, to $170.10.…
-
I saw the Doc's nurse this morning
The wife won't let me do anything, every thing is a battle unless it is food. Then I don't know if it is going in her or on the floor. If she doesn't throw it she will eat it later. She has a rash on groin and breast area and it turned into infection under breasts. Smelled awful bad. Sat night after I called 911 and they…
-
Ok to sign legal documents?
We are planning to sell our house and downsize. I was speaking with the real estate agent and told her of my husband‘s diagnosis of early ALZ. She has not been around her m much, and was asking if he was mentally competent to sign legal documents. He is pretty self-sufficient right now. Do I need to do anything in order to…
-
2 months in advanced care
DH went from the hospital to an advanced care facility on July 11. I was hopeful he would be moved to the memory care unit, but it didn't, and I don't think it will happen. He is unable to stand or walk. He is completely incontinent, and his speech is just a jumble of words...word salad. Every so often he says something…
-
MIL 87 Dementia Now Hitting/Slapping
HI Need to know how to deal with MIL 87 Dementia, HOH, for the first time slapped me on the back when I went to open the front door, her, she came from behind me so I did not see her do it and there were no witnesses. The Hospice Nurse was at the door and I went to let her in. I did not react at the time as I was working…
-
DH in rehab
DH spent six days in the hospital with A Fib, congestive heart failure, UTI and pneumonia. Yesterday afternoon he was moved to a SNIF which happens to be where our daughter was an aid some 40 years ago when she was in nursing school. DH is very upset at being in the facility, says he is being held a prisoner and tried to…
-
M1 again
The last time I remember you visiting your wife was on Sep. 2. Just wondering if you have been back since then, and if so, how did it go?
-
Consults with VA Social Worker Consistently Discouraging
DH has been receiving in-patient treatment at the VA hospital Psych Unit for 3 1/2 weeks. The assessment from doctors and staff is that he has not exhibited any of the hallucinations, paranoia, or angry lashing out that drove me to have him admitted for inpatient psych eval and stabilization. I have no expert opinion to…
-
Other medical issue
I don’t want to get too far ahead of the situation but I anticipate the medical community will be recommending tests and procedures. DW is well into stage 6 – needs regular assistance now with toileting. I have noticed her stool color is pale grey for the last couple of months. In 2019 a cat scan found incidental mass and…
-
Things I do and don't miss
I miss her presence, her laugh, her sense of humor, her touch, her kisses and hugs. I miss the person she was, all the time. I miss being able to talk to her about anything, and getting wise and insightful feedback, and unconditional support. I miss her initiative, her vision, her energy. She made me better than I was. We…
-
Should we move?
Looking for advice on whether to move to be near our children and grandchildren now that my husband has been diagnosed with ALZ. He is in the early stages. He drives, plays pickleball etc. but has many problems. He agreed to move but the process of looking for a new home 9 hours away from our home of 31 years is very…
-
When to step in?
Trying to let my DH have as much independence for as long as possible. Two years since diagnosed with VD and beginning to see a decline, slow but steady. He no longer seems concerned about his hygiene. Has not been to dentist is 4 years, missing front teeth was supposed to get implants, has the posts but refuses to have…
-
News after 3 weeks in the hospital
Yes, the repatriation was already 3 weeks ago… - week 1: tied to the bed, a lot of agitation. He grabs us and hurts us, doesn't eat, spits up... he can't speak. - week 2: still tied to the bed. Slightly less agitated. I start to succeed in making him eat and he has little quiet moments and makes little sentences. I asked…
-
Finding Joy in all this.
First let me say this is gonna be a little bit of a rant, so if you don't want to hear me rant,feel free to stop here. I hear so many who have found a great place for their lo's! and i am truly happy for each one,isn't that what we all want, since placing my dw I have found that my choice hasn't been that! Covid limited my…
-
Mr. Toad's calendar
More correctly, it's Kathleen's calendar put together by Mr. Toad. This woman was more than talented! While you may not have heard of Kathleen, her work can arguably be compared to that of Ansel Adams. That is really saying something. The pictures are breathtaking. If you haven't ordered one, I highly recommend that you…
-
Tech question about this board
Does anyone else notice that being on this forum creates an unusual drain on your device’s battery? I use 2 different model tablets, and I can almost watch the battery level drain on both when I’m here. It doesn’t happen on other sites, at least not noticeably. Or maybe it’s just me or my devices?
-
Dh has become so clingy
I am just so tired. We have a caregiver come in 2xs a week for 4 hours. She is very nice and tries to engage dh but he just watches tv and complains that he doesn’t have anything to do. He talks about wanting to do something but never does anything. He will watch me do all the outside work and say he feels better doing a…
-
One's around me that I share with
Hi everybody, The one's around me that I share with are my kids, also the people that have gone through this with their loved ones here where I live. When I'm talking to them you can see the concern in their faces, I think it reminds them of what they experienced and how they got through it They have gone through those…
-
The way we were
Barbra Streisand - The Way We Were (Official Audio) Lyrics MemoriesLight the corners of my mindMisty watercolor memoriesOf the way we were Scattered picturesOf the smiles we left behindSmiles we gave to one anotherFor the way we were Can it be that it was all so simple then?Or has time re-written every line?If we had the…
-
Parroting?
I still don’t know where we are in this journey… Something that has been going on for at least a year is that my husband will say something as if it was his idea when it was actually something that was said to him a few minutes before. He just doesn’t remember. Case in point: We just put in a fire pit patio. There is a…
-
Quitiapine
Has anyone had bad reactions to Quitiapine (Anger and Agressiveness) My DW has bee on 100 mg three times a day for several months but the last couple of weeks the agressive behavior has increased dramatically.
-
Just need to talk to my friends (178)
Hi, Wanted to start this so posting will be easier. Didn't sleep much last night so will try and o take a nap until it's time for my medicine, then watch Barney Miller and then sleep. Don't need to get up early. Sarah is still waiting for them to get the right formula to her and her oxygen supplies. She'll begin calling…
-
I just had a good cry
So I am sorry for this post ahead of time. I just came from the basement where I sat and cried it out. Now I am just angry- and this is the only place I can get the anger out before I say something to DH. I didnt realize all this was hidden in my heart til just now. I want to know when I get "a pass"? When do I get someone…
-
DH is getting very upset when a caregiver comes to the house.
The Area Agency on Aging gives me 16 hours of respite care a month. The last two times I have had a caregiver come to the house, he has gotten very upset and irate. He protests that he doesn't need or want a babysitter. Yesterday, he said he was going to go for a long walk and got very angry when I left. He stood in the…
-
I visited a MC yesterday
Yesterday I drove to a small town about ten miles away and visited a care facility that offers Alzheimer's care. A very dear friend of mine who had Alzheimer's resided there the last two years of her life and her family was very pleased with her care. My daughter and a close friend went with me. I had prepared a list of…
-
New here, just beginning process
Hello and thank you all for being here. I have been reading the threads and I am learning so very much about this new journey I am starting. DH is not diagnosed and that prompts my question. He has no insight into his symptoms, what I learn now might be anosognosia, and am having trouble getting him to his primary doctor…
-
DH with EOAD just need to share
Hello all. I have some questions that I'm sure some of you might be able to advise. My DH was only 59 when diagnosed with EOAD in June of 2020. Symptoms for at least 3 years prior. In Oct. 2021 he had a bad seizure, hospitalized, came home a different person with violent behaviors. Meds have helped with that. Fast forward…
-
Dementia language and PWDs
The language that is used to describe PWDs is disheartening and demoralizing, IMO. I don't see any hope for the future. When I first joined, a PWD referred to himself as "brain-dead". I gently chided him, telling him he was not brain-dead and to not refer to himself that way. But several caregivers also used that term to…
-
Home care vs facility care -- What is the basis of this Johns Hopkins claim that home care is better
A non-research article on the Johns Hopkins site, https://www.hopkinsmedicine.org/health/wellness-and-prevention/safe-and-happy-at-home states that "Research shows keeping a loved one with dementia at home helps them be happier and live longer" and similarly that "Of the 5.8 million people in the United States who have…