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Downsizing to a new house?
My DW is 4 years into EO diagnosis. Her health (other than mental) is good, and she is still able to enjoy take-out lunch to the park and strolling afterwards. I am looking to relocate to a smaller home, but I'm worried how this would affect her. Any thoughts or experience to share?
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Caregiver guilt
Dr. Natali <careblazers@gmail.com> To:Ed Tue, Nov 22 at 5:02 AM Careblazer, It breaks my heart when amazing Careblazers tell me about all the guilt they have. You do so much to best care for your loved one with dementia, yet you beat yourself up over some of the things you've done while trying to figure out this confusing…
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What do you see for yourself post dementia?
I doubt that most of us even consider that question, but maybe we should. Especially for those of us on the younger side. For me, I consider my work done, and life for me is in the early winter of the season. I had one brother and one sister. My sister died at 89, and my brother died at 88. My mother died at 86, and my…
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how to write a diary
My wife and I have been living in my brother’s house for 3 months or so. He caught covid (i think for the second time) towards the beginning of August 2022. while in the hospital he became very agitated and ultimately was diagnosed with dementia. Since that time, his dementia has gotten worse and worse. i am just setting…
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Memory care facilities(3)
I am researching and touring memory care facilities and want to know if smelling bad is a red flag. I understand it would be difficult to keep up with all the incontinent people there but is it a sign of understaffing?
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A Wise Answer
DH is obsessed with his age...82 and the fact that he can't drive anymore. He has a litany that he repeats time after time during the day. It goes something like this: " I don't drive a car. I don't ride a bike. I can't go for a walk by myself. I'm 82 years old!" Sometimes I get tired of hearing it! Yesterday though, for…
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sorry I posted on the wrong board, My brain has been all over the place.
Peewee goes to the cancer doctor next week. I have already decided not to do chemo or radiation . I am so heart broken but I am ok. Peewee's Dementia is progressing. He no longer eats very much has lost a lot of weight. Has just the last week started wetting his pants, But he can still change his own clothes. he has just…
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Update to kicked out and a Punch
Finally got to see DH after a month in geripsych and a week in MC. It was wonderful to see him but I’m aware he’s slipped down the totem pole. I found 10 filled glasses on a shelf in his closet. I asked him what they were. Pee. He said he didn’t know where he was supposed to go. This past Saturday night I got a call from…
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Grief - Anticipatory and Post-mortem
This meme pretty much nails it for me.
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I never thought I would....
have to use a suppository on my DH. We do what we have to do. I think I've done it all now. My caregiving has reached a different level. How would you complete the sentence?
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Deeply Saddened
Hello everyone. Trying to get through yet one more f'n holiday season, pretending, dressing my table, buying fixings for Turkey Day, readying guest rooms for my sister and aunt and then sobbing all night missing my poor, dear husband who's in long-term care. He contracted Covid at MC in mid September; fell (again) and…
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He doesn't believe what he's told
Yall, I'm struggling with this. DH does not believe anything hea told. If one of our girls says she is doing A because of X, he thinks there's an alternate reason. The news just gave a number of $5800 and he says they misquotes that amount bc it was much higher. If I say something, he responds with "as smart as you are, I…
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Why nurses quit
It's a paywall. https://www.nytimes.com/2022/01/19/opinion/nurses-staffing-hospitals-covid-19.html?
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Back to church
Yesterday was our first day back to church since March of last year. It's and Episcopal church in the southwest and we received a notice that they were starting up in person services again without making a reservation but we were still required to wear a facemask. We got there and were greated by a gentleman who asked us…
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Im talking TURKEY
My daughter has a turkey recipe It goes like this 1) call my Dad 2)Tell him I need a turkey 3) Tell him how many people 4) Tell him when the Turkey needs to be on the table sliced 5) Wait till the doorbell rings open the door 6) there will be a perfect turkey I have been the family Turkey cook for over 50 years I am…
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First time on here!
Hi... DW has started to not take her pills. She takes water and then pills but she just gargles them and then spits them out. I can crush the regular ones but not the Time Release. Any thoughts on this? I ahve many more questions but this is a good start.
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What is the competency threshold for guardianship and conservatorship?
The kids are concerned their dad will contest guardianship and conservatorship, since the doctor's report says he's alert and aware. But the report also shows he scored a 7 out of 30 on the MMSE.
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Legal Docs Completed
Thanks to all who suggested that I see an elder care lawyer and get our wills updated and POAs in place. We/I got it all done this week! I feel relieved. Thank you for your suggestions and kindnesses.
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You see signs, but why should you get a diagnosis?
This is an article I copied a few years ago, and I thought it might help people who suspect dementia. Add to this that some medications might cause more problems for certain types of dementia. More than 50 conditions can cause or mimic the symptoms of dementia, and a small percentage of dementias are reversible. Two common…
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Resource Guide for Caregivers
Here is a link to a guide provided during a recent caregiver webinar. https://lor.nnlm.gov/op/op.Download_Share.php?documentid=4618 Happy Thanksgiving to y’all. Mary
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The Dogs know better...
While I wasn't looking, my wife fed her dinner to the dog. I was very upset with the dog.
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Any tips or suggestions for type 1 Diabetic going into Memory Care
My husband just went into Memory Care. It is on the campus of a large Senior Living community that has high overall ratings. His sugar monitor got lost the first day but luckily showed up the next day and I now have it on a lancet that is attached to his belt buckle. And I'm going to get software that parents use to track…
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Recent decline
Hi, My husband is showing a rapid decline since he caught the common cold. This started early in October with a cough. The night before we were to leave for my mother's, he could not stop coughing. I became so concerned, I called 911 at 2:30 am. Tests showed he had the common cold aka rhinovirus. All of the other covid and…
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You think you've heard about early onset - read this
You will probably get a box asking you to subscribe, but just close it. https://tinyurl.com/yw346y3f
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Lady Peewee - Upate On Peewee
Lady Peewee gave an update on Peewee; she placed her Thread on the Caregiver's Forum rather than her usual coming here. Peewee has been diagnosed with lung cancer, so those of you who know her from her long time on this Forum, you may want to let her know you are thinking of her:…
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OT...Ed and Gig
Miles Davis "After Midnight" Can I join the jazz group???
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Random Thoughts on Calories, Hospice, and the Dying Process
I talked to the Hospice nurse today about my DH's decreased eating and sleeping more. He is eating less than 3,000 calories a week. (When he was younger and doing carpentry work, he could eat that much in a day.) She said it was all part of the dying process. And he tires so quickly after sitting up in bed for no more than…
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Toileting issues in someone i thought was solidly in stage 5
Hi, everyone. Second post here because I am perplexed. DH was diagnosed with mild dementia, combination of AZ and VD, at the end of June 2021. Recently some toileting issues have cropped up. As long ago as February 2022, I noticed he was reluctant to use a public toilet -- even in a health care setting when it was a single…
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Realization(1)
I have seen three homes and they are all nice. The staff is caring and the premises are very clean. The residents seem very happy as well. What my realization is that my mindset has had to change. I always saw long term care homes as death incorporated and swore I would never commit someone in one of those places. Well, I…
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Girl got big
I have not noticed anyone commenting on this, so here is my take. Cooking and meal prep. Has been my job for years now. When we shop, I basically shop and she ponies along behind me making rare suggestions. This means I am running the calories at our house, and you would expect that we would pretty much stay the same size…