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Latest interview
Our latest interview with you for “Exploring Different Brains" is now released and viewable on our site differentbrains.org, and the podcast version and transcription are both available on the same page as the video. The podcast version is also available on: Apple Podcasts | Stitcher | SoundCloud The direct link to the 26…
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Memory Care(1)
Has anyone placed their spouse in memory care for up to 6 months, and after training and additional care providers were able to bring your spouse back home? My husband is in the middle stages and can still conduct his daily activities. By the way, does anyone know how to flip my profile photo so that it’s right side up?
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Another setback
DH has been in memory care since mid August 2022. He has fallen many times,had some seizure like events and many other problems.We live in NC and the intestinal flu has been rampant. Sure enough he got it and along with it, severe diarrhea and vomiting. Several of the med techs and aides got it and....I got it a few days…
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How old am I?
DH said he is an old fart. So I asked him why he said that. He replied because I feel old. Then he asked me if he is 57 or 58. I then said You are 81. He said WOW. Yes, wow! LOL no wonder he feels old. Oh my.
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When she's afraid
I came downstairs after taking a shower. I found my wife naked from the waist down, sitting in a laundry basket, and very frightened. She said something about people coming and taking everything and not leaving, some word salad, and something about the dogs. I got her calmed down, cleaned up, and then went to work on…
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It's over(2)
April 6, 2012: This was the day our lives changed forever with a stroke that eliminated all language, the day I lost all communication with my companion and husband since 1967. These almost 11 years have been a downward slope in every way, and now he's gone. One would think I'd be ready for his final breath, but I wasn't.…
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Stop them from driving - dirty tricks
1) Cause a police incident. Any interview during a traffic stop can generate a notation of concern by the officer, resulting in a letter from DMV requiring a competency test, making it not your fault. 2) Report your concern to the police expressing your concern, and ask for a police interview at your home. Claim ignorance…
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Tapping feet constantly
IS anyone dealing with LO tapping feet constantly? Over the last couple weeks my husband has started tapping his feet on floor constantly while sitting. It's grinding on my nerves. I just want to scream "STOP IT"!
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Here's a smile for you
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Just need to talk to my friends (186)
Morning, It's a better day - dreamed of my Charles last night. It's sunny but really windy. Toad and Mike came and fed the girls and I was able to see Gray Lady and her new baby, Chucky or Chas (that's what Charles' dad called him). Took down the trash and put a couple of cards in the mailbox even though there's no mail…
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new to this forum, help please
Greetings, all, We don't have a diagnosis, but there is clearly a profound change in my husband's behavior that has been ongoing for two years. I'm scared. He sees no changes in himself, and blames me for "changing." No one in our circle of influence or family sees any changes because he hides it so well. After decades of…
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How's your wife doing?
We all get a version of this, and we seem to start with 'fine' in the early stages, and then maybe some of us get fatigued by the question and get snarky in our responses, That's my history, but now I have crossed this new line, and honestly I'm a little stuck. I hear people ask me how my wife is, and they sincerely want…
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Advice needed regarding antidepressants!
My DH with EOAD and FTD has been on Cipralex since Feb. Started at a low dose and doubled it in April as I didn't feel it was helping much. We started the med because he was having suicidal thoughts and many 'down' days. He still gets stuck easily, especially with losing his license and not being able to drive his…
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Staying sane in an insane situation
Well DW is moving into the the next level of insanity in this journey. The bolts that are in airplanes are stress tested by pulling on the length and pushing the middle with heavy weight while twisting, heating and vibrating until it fails. That is what I feel like right now. An aircraft fastener being tested until…
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No Sleep(4)
It’s 6:00 a.m. My husband has had 3 hours of sleep in the last 3 nights. The last two he hasn’t slept at all. Paces all night throughout the house, , turns lights on. Last night he turned on the shower at 3:00. We have tried traxadone, seroquel, melatonin, Benadryl and Belsomra. Put a heater and electric blanket in his…
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Another insight to my wife's condition
I am both horrified and curious at the same time throughout this journey. Horrified for obvious reasons but curious to learn as much as I can about the disease and her experience with it so I can help us both navigate through it. Today as I was talking with my wife assessing her status a light went off in my head. Her…
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WOW! Thought I had a handle on things!
Such a hard week. Realizing I don’t have DH to really talk to about our everyday life .. kids, grandkids, financial stuff just everything! I actually tried to talk to him today about why I am so stressed. I woke up at 3 am and mind just kept going. My venting to him, as I finally realized was heard by a dementia mind! He…
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More advice please
After 2 weeks hospital, my DH was medically cleared, and we found a bed in geripsych to tweak his meds. I will say he did great yesterday showered for the first time in three weeks, and got out of bed and walked around the halls. He is much, much less combative and has been doing OK when the nurses try to change him. They…
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Possibly changing memory care
When I placed my husband I looked at 10 facilities and ultimately chose a nearly new one that was bright and cheerful. It had lots of activities and was very clean. Their price was low partly because my husband was pretty self sufficient. Fast forward to today. He is incontinent, needs help with dressing and hygiene and is…
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Have to laugh
We have been having issues over the last few days with how my partner interacts with other residents on her MC unit. The activities director was telling me that my partner still has her lifelong charisma (no surprise there) and that other residents look to her as a natural leader. But that leads to some funny and surreal…
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Nursing home ?????
I placed my husband in nursing home last Oct. He has been on Seroquel 50 mg per day which really helped him. The nurse told me they cut it back to 25 per day today did not say why, they called me and said they found him in the bathroom looking for a razor to commit suicide or wanted a gun. His depression is really bad…
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Medicaid Funeral Assistance May Help Pay for Funeral Costs
https://www.elderlawanswers.com/medicaid-funeral-assistance-may-help-pay-for-funeral-costs-19493
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DH is starting to withdraw from social engagements
A week ago today, two men from our church who have been friends for years invited DH out for lunch and a drive afterward. They were going to get pizza. DH accepted the invitation readily but when it came time to go, he had forgotten and said he wasn't up to it. He refused to go. He also didn't really remember who the men…
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Taking all his clothes off
Every time my dh goes to bathroom he now thinks he has to take ALL his clothes off! He says he’s freezing , so I have to put several layers of clothing on him, then he has to go bathroom, and getting all clothes off, then back on. I don’t understand the why, but he insists. Not only do I put layers of clothing on him, I…
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What now, husband refused to see attorney
I'm so disappointed. Husband and I had appointment with elder law attorney today, and I had to cancel. Husband refused to go. Attorneys office said to call back and they will try to do a conference call. I'm just sick of it all.
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Good read on bvFTD
https://neurosciencenews.com/bvftd-brain-sagging-22351/
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MC logistics issue
My partner is withdrawing in MC because she's reacting negatively to some new residents. Has anyone else had this kind of issue? I went in to check on my partner yesterday because twice in a week, she hasn't wanted to get up, get dressed, or leave her room. They had called me concerned that she was ill, but when I got…
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Memory care placement, one year ago today
I placed my wife in MC January 25th 2022. It was encouragement and advice from people on this forum that gave me the strength to do it, and I'm sorry I've not reported back here for several months. So to recap the last year, placement has worked out about as well as I could have ever hoped. Below I'll go into more detail.…
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Zauberflote. Off topic
Was wondering if you would be able to share name of your magic black box for battery. Would like to check into it. Thank you
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not sure where I go from here
My DH passed away from Alzheimer's on December 6. I got through everything with the help of our 5 kids. I also got through Christmas and New Year's with their help. I think I was numb. The kids and I spent his last week with him. We had air mattresses everywhere. I am thankful we were able to be with him. Got to hold him…