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onfused about what can be protected financially
We went to a CELA we heard speak at our local Alz Association. I took with us our 20 year old will, trust, for review. He said 3 things: 1. Put your house in the will since it is currently not, that will avoid probate for it. 2. Go back to original attorney ( they know each other, so I guess that was a positive input, but…
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I feel lost(1)
It's been just over 2 weeks since my husband passed. It's still hard to believe. I made it through the wake and service and family coming from everywhere. I have been trying to get ready for Christmas. My 7-year-old granddaughter asked if I put my tree up yet. I told her I wasn't going to. She said what if someone helps…
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Jmlarue(2)
You have been on my mind a lot lately and was wondering how you are doing. Hope you finally got VA to help with your dh and that you are taking care of yourself. I have been off for a couple of months myself because dh has been progressing. Just wanted you to know you are missed.
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Merry Christmas/Happy Holidays to all my forum friends
Just can't say it enough. Part of my daily routine and my daily support to check in here. Care about all of you, posters or not, and appreciate hearing from those who can and do post. I've had my holiday celebrations already. Lunch at memory care on Tuesday resulted in a great group photo of my partner perched between…
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Can’t fix finances
I am in the process of getting our finances in order and find my hands are tied by the institutions holding our money. They require 2 doctors to sign affidavits that DH is unfit to manage his accounts but DH refuses to be medically assessed. He currently has no doctor. I have made appointments but he refuses to go. In the…
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Punished for Grieving
And so it's Christmas and I'm alone. Totally, alone. My son who lives 1.5 miles from my house refuses to spend any time with me because my sadness is palatable. Though our conversations don't evolve around his father, that he's bed bound in hospice care, my son is sensitive and my feelings are profound at the loss of a…
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So you're concerned about your memory?
I've noticed some memory problems, and after I watched this, I feel a little better. This video is by Lisa Genova, author of "I'm Still Alice", and she is also a neuroscientist.. She talks about normal forgetfulness, and she explains…
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Tech question
Is there a way to mark things as having been read, or to highlight items (other than the option to get the email notice). There is so much good information but I’d like to narrow my choices some….I often go back and reread something because I don’t realize I already read it. Thanks!
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A message from our family
Good day to all of you, and a Merry Christmas and Happy Holidays. I'm posting this on behalf of both myself and my mom, gm gypsie. My brother, one of Jerry's sons, has made a movie with his family called Stealing Time. We would like to post a link to it, as it's a very short film that was created by my brother and his…
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Do They Ever Adjust to a Caregiver
I had to start over with a new Caregiver Agency. The prior Agency didn't have enough staff and could not find anyone when my current Caregiver quit. My spouse has ALWAYS hated having a Caregiver (we started about four months ago) but became a little more mellow with it. The owner of the new Agency came over yesterday. We…
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A disconcerting day
DH has been in memory care since mid August. Thankfully it is in the bldg a 3 min walk from our independent living apartment. He has fallen a few times and today I got the call that he was slumped over in the dining room at breakfast and was non responsive. I have a DNR in place but I allowed them to take him across the…
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He looked like himself
This past Sunday, I DH asked me to help him pick out his clothes to wear to church. I got him out his khaki pants and a white shirt. The, since it was so cold outside, I got out two sweaters for him to choose from. He looked so handsome! Later, he was watching a football game on TV and instead of slouching in his recliner…
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Advice I wish I’d been given at the beginning
It’s been a while since I’ve gotten on here to post or read. I was overwhelmed with the confirmation diagnosis that I’d already known for my DH of ES Alzheimer’s. I appreciate everyone who tried to help and give advice. However, most of it was scary doomsday stuff that I couldn’t handle at the time. Things like you’re on…
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What is going on?(1)
My husband was diagnosed with Alzheimer’s this year. He is 76. He’s sleeping 10 hours a night and fitfully sleeping in his chair during the day. What is disturbing is he sleeps with his mouth wide open. His mouth and hands are moving. It s not a restful sleep. He wakes up and searches on the floor or on his chair with his…
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A change coming for hospice?
I received an email a few days ago that mentioned this possibility. Apparently there has been quite a lot of fraud from hospice providers. It mentioned that "for profit" hospice companies are much more likely to commit fraud than "non profits". The matter is bad enough that it is being discussed in Congress, and changes…
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Six years and 1 month...
My DW has finally stopped asking where Mon is and asking to go home. She has fragmented sleep, an hour or two here and then awake and then another hour or two. She will wander slightly but only from one room to the next. If there is a distraction she will sit and then doze off after 4-5 minutes. She used to eat sandwiches…
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Stem Cell Treatments
DH's dementia has proceeded at a very rapid rate. He had gotten to the point that the neurologist put him in home hospice care. Our family doctor (not the neurologist) insisted that there had to be something causing the dementia to proceed so rapidly. He was disappointed that the neurologist wasn't willing to research this…
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'Our Body is thy temple' 'is now airing
Exciting news. Our new series 'Our Body is thy temple' 'is now airing on Glewed.TV. We have been shooting this series around the country over the last year and we take a deep dive into the disparities in the black community and their health and the role the black church can play. We feature such conditions as diabetes,…
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Looking for Home Services Advice
DW transitioned to a MCF on December 5. Regrettably, it did not go well. There were issues regarding supervision and attention to her needs. There was an incident involving another resident that troubled me greatly. I will leave it at that except to add that I brought her home out of concern for her safety after learning…
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Should I seek professional help?
About once a year or so I fall off the crazy train. After day in and day out of trying to live in my wife's ever shrinking world, taking care of her both physically and emotionally from the moment she wakes up at 4am until it's time for bed. Her never giving me any space and shadowing me all day long. Always trying to…
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Neuro visit update
Everything went very smoothly all the way into the exam room. I handed the nurse a note for the Dr to be discreet and listed all of the symptoms starting from about 5 years ago. I guess he was about as discreet as he could be while trying to do an exam. He had my note with him but he was pretty much "matter of fact" and…
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Crying question
I have notice my dw cries more and so the nurse, we are wondering if a medicine needs adjusting, she takes 10mg of Lexapro and olanzapine 3 times a day. 7.5mg,2.5mg and 7.5. She has been in mc for several months. She calms down after I get there and the nurse can get her to stop by changing the subject which she can't…
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Another question about women and toilet paper non-use
Hi all, In a previous question I noted that my DW was no longer using toilet paper after urination and I asked how much to be concerned about this. (I know this because she frequently does not remember to flush.) The consensus was that it was not a big problem but that I should make sure that she changed her underwear…
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Despite the grief....
I have found a few things.... 1. I haven't done a load of laundry since Tuesday. 2. I have less dishes to wash. 3. I discovered that there were other shows besides Gunsmoke, MASH, and A-Team. I'm not making light of my or anyone's grief for it is very real, it was just thoughts that ran through my mind. Judi
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Covid deaths hit 400 a day
We are getting a substantial increase in deaths in the over 70 crowd Wear mask get shots be careful
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Apparently it’s a difficult time!
Actually posting a lot this week! Feel like I can’t deal. DH still complaining of leg pain but won’t go see doctor just wants to grimace , moan, complain, and shut down and make it difficult to help him! I have not been so understanding as I know I am doing everything and just been crying and becoming a person I don’t…
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Stage 8(2)
Hello all. This morning between 2-4 my husband passed peacefully in his sleep. I would talk with him whenever I went into his room. He seemed to know I was there because he looked at me when I said his name. It's a relief, but I know the sadness and tears will come. My favorite memory of this past week was from Sunday when…
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National Plan to Address Alzheimer’s Disease: 2022 Update
https://aspe.hhs.gov/sites/default/files/documents/59cefdd628581b48b2e389891a675af0/napa-national-plan-2022-update.pdf The 2022 Update includes several notable recent actions to address disparities in ADRD care. Earlier this year, the Indian Health Service (IHS) established the Alzheimer’s Grant Program, a first-of-its…
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A Little Panic
Friends: I have just had a little moment of panic. Hubs (MCI) has been doing alright, as long as I can live with susbstantial forgetfulness (sometimes drives me up the proverbial wall). We had a delightful Xmas lunch with former work colleagues and he was very much a sensible participant in the conversation. This evening…
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Hallmark Dementia/Alz movie
I recently watched a Hallmark movie( Italian memories) or something like that. It showed how a person with Dementia can seem fine one moment and greatly confused the next moment. It also showed the importance of the primary caregivers need for respite and differing family dynamics about what’s important for person with…