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Daytime dreams(1)
My DW is 65 and was diagnosed with EOD 4 years ago. So far, her decline has (thankfully) moved very slowly. I retired early to get the most out of what we have left. All is ok in the grand scheme of things and I try to concentrate on each day as a gift and not dwell on what we've lost. One fairly new behavior is that she…
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Minor wins--hey I'll take them
I've made some progress just doing things without any discussion with my partner. This is a definite change that has taken getting used to. But: first, to follow up on an old thread, at the advice of this forum I turned all the ringers off on our landline, which has greatly decreased the nuisance factor of the scam calls…
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How long is typical in stages 5, 6 and 7
I have read as much info as I can find and want to know from those going through this what you have experienced with time in different stages. Other than arthritis and this horrible disease - he has VD, FTD and AD , he’s been very healthy and active all his 74 years. As we all know, this is so hard. I have people I know…
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I feel either that I am failing or that I want to quit
Many questions - I understand that nothing is normal any longer - there is no normal. DH has MD and the FTD changes things up completely. He is frequently angry with me but can't articulate exactly why he is angry. None of the food or meals I have prepared for the last 43 years are to his liking and nothing I suggest…
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First Alzheimer’s Vaccine Human Trial Set to Begin at Boston Hospital
Another interesting possibility for treatment/cure. The problem for those of us on this forum is, as the doctor in the video states, if the trials are successful and the FDA approves this drug, "doctors may begin prescribing it in four or five years". First Alzheimer’s Vaccine Human Trial Set to Begin at Boston Hospital…
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New MC trial stay
During my lunch break, we went to the MC and he stayed. We unpacked his suitcase and he went with the others to have lunch. We recognized a man we met. He was also eoad and as we have a common friend, she connected us, but we just met them once. Everything went very well when I left. And strangely, the headache I had since…
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a few pictures from DW
I found a file DW had created years ago with some of her wild life pictures Thought you might some of them
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Just received the Ohio Family Nursing Home Satisfaction Survey
I torn. Overall my beloved is getting great physical care. She is always clean, her hair is cared for, her clothes match and are neat ( I do her laundry). The problem being, 80% of the survey I have to answer in the negative. Common areas are clean, but patient rooms only get a "lick and a promise" with many details being…
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Sudden Alzheimer’s decline
Hello, My husband is 69 and was diagnosed with early onset Alzheimer’s 5 years ago and has seemed to stay in this middle stage for a long time. He also has heart issues and is a type 2 diabetic. He went to the ER twice this past week for a kidney stone that still has not passed as far as we know. He is currently not in…
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Just for laughs
My DH has made me laugh out loud several times the last few days. He is on a roll and I’m just trying to make the best of these interesting discussions. (BTW. he’s dead serious but seems to enjoy it when I get a kick out of his remarks, thank goodness!) Him: Huh. Me: What’s up? Him: It’s not easy. Me: What‘s that? Him: I’m…
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Feedback on Aricept
DH saw his neuro doc today and was given the results of his testing which shows mixed mild dementia/comorbid Alzheimer's. He was told to try Aricept for a trial period and to return in 3 months. DH was not upset or anything---guess that's the lack of insight kicking in which in this case may be a good thing; still…
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Potential vaccine and treatment for Alzheimer’s
Another false alarm? Time will tell. At least it doesn't cost $60,000 per year. NEWS RELEASE 14-NOV-2021 New approach provides potential vaccine and treatment for Alzheimer’s A promising new approach to potentially treat Alzheimer’s disease – and also vaccinate against it – has been developed by a team of UK and German…
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Camera solution
I am proud to say that I just set up two old iPhones as video cameras. It was easy and cost-free. Who doesn’t have an old phone in a drawer gathering dust? I used the Alfred Camera app.
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He lost his wallet.
This afternoon has been especially wearing and exhausting. About a month ago, DH lost his wallet. I really believe he accidentally threw it away. He had taken his money out so there was no monetary loss. The only thing in it was his picture ID. The whole thing has morphed from he lost his wallet to him saying someone stole…
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$266.00 a day
I am getting so tired. I do everything for my husband and all he likes to do is walk. He can still eat by himself and is fully continent so I can’t really complain there. He has a 10 sec memory and can’t talk about anything. Showers and changing clothes can be a battle and sometimes I just give up. Life seems like an…
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Is this a crazy idea?
For those of you who are really having a very hard time, I wonder if a hypnotist might help? Would you try it?
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Swiss Cheese
In a TV show…Quantum Leap…the main character jumped back in time into other people”s bodies to correct an error in history. He always explained his confusion as having a Swiss Cheese memory. This must be what it is like for my sweetie…only it is the present that is full of holes and memory traps for him, while his past is…
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Horrible Story Famous Utah elder care lawyer plunders Alzheimers patient
IM posting this right now I will come back with advice later The lawyer was very well known in the disability law community Its equivalent to Berni Madoff From Newsweek Utah attorney is accused of embezzling more than $9.5 million from clients over the past decade to fund his "lavish lifestyle," prosecutors said. Calvin…
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Embarrassing situation
Saturday evening we were invited by friends of mines. When we arrived, they told us that another couple will join us as well another friend, perhaps with her partner. When the couple arrived. What a surprise, they recognized my partner and he recognized them. They already met several times because they had a common friend.…
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Imagining the journey without technology
My dad cares for my Mom who has dementia but I am unsure of what kind of dementia she has. He doesn't know either. My dad is an analog man in a digital world. He hasn't embraced emerging technology. He has given up email. His search skills are antiquated. He reads the news on line but that's about it. Not embracing…
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Best Practices in Dementia Care and Caregiver Support
https://www.capc.org/training/best-practices-in-dementia-care-and-caregiver-support/
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A tough love talk
Mrs. will not shower or bathe. Will happily fight about it. I was gone too long...in my office sorting out an accounting mess, and then I noticed things were real quiet. Finding the two poopy hand towels in the kitchen sink was a horrifying first. You may recall that I have had a real hard time overcoming my aversion to…
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A Tip for Caregivers
My husband is unable to step onto a body weight scale. I bought an extra wide scale thinking it might be easier to step on but it isn't for him, so now I use a body tape measure to get an idea of how much muscle mass he's losing. I measure his thighs, biceps, and waist. Compared to 8 months ago he's lost an inch or a…
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Medicare price jump due to poorly supported Alzheimer's drug
WASHINGTON (AP) — Medicare’s “Part B” outpatient premium will jump by $21.60 a month in 2022, one of the largest increases ever. Officials said Friday a new Alzheimer’s drug is responsible for about half of that....... Medicare officials told reporters on Friday that about half the increase is due to contingency planning…
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Has any one read this book and what are your thoughts? Someone with dementia said it was good.
https://www.amazon.com/Clinic-Alzheimers-Disease-Other-Dementias-ebook/dp/B08KH53VDY/ref=sr_1_3?keywords=mayo+clinic+alzheimers&qid=1636654932&sr=8-3
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Rural: Where do you find in-home respite care?
I live with the HWD in a rural area, and am struggling to find respite care. Care.com yields nothing within 50 miles, the Alzheimer's Association local chapter does not list resources. I am going to call them tomorrow for a "care consultation" but it is an 800 number and I don't have high hopes. Licensed, unlicensed, I…
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Hello again!
It’s been a long time since I’ve been on the board. I’ve needed connection so here I am! I hope everyone is well!
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What We've Got is Failure to Communicate
Communication with my wife has become extremely difficult. Even simple communication is almost impossible now. Her main issues are language, communication, concentration and memory problems. Being new to care giving I'm having trouble understanding, accepting and dealing with someone who answers almost any question…
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Unorthodox Care Plan (MC)
I have my own little version of “Mordern Family” with my stepdaughter and her family including DW’s ex-husband. Over the years this extended family unit has evolved from probably avoiding social get togethers in the early days, to accepting that we could all gather to celebrate births, birthdays, holidays and graduations…
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Observation
This morning in the grocery store parking lot I saw a guy park his pick up truck in the handicapped section, way out of the dedicated lane, no handicap tag in view, back end of his truck was sticking out. He left it parked that way and went into the store. It brought back a memory of when my husband first showed symptoms…