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Placement in Memory Care(2)
Studith We are about to place my DH in Memory Care. He looks for me first thing in the morning, and comes out of bed at night to make sure I''m here, and this is unbearable to me, knowing this will be the case as he becomes accustomed to his new surroundings. When our helper is here, he looks for me, although she''s able…
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Something good out of the fog
My gal is in love with a TV show. There are 3 documentaries about a couple friends doing epic motorcycle trips. She love the guys, loves the scenery, and remembers nearly none of it. Despite watching them over and over for days, it's always new and interesting to her. Now she asks how the guys are doing. Wonders how they…
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Newbie here
I care for my husband who has been dx'd with mixed dementia since 2015. I need advice on how to navigate Medicare to Medicaid. All the Memory care places told me l have to pay out of pocket for 2 years then they will accept Medicaid. We have a small savings which might not even last 2 years, and live on SS.
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Happy Veterans' Day - Thank you for your service
To all the Veterans and your loved ones, Thank you for your courage, commitment and sacrifice. with tremendous gratitude, Lady Texan
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SSA Question
DW is fine. Asking for a friend. People who have walked this road before, I need help with the SSA form OMB No. 0960-0101 I received. It asks for the information about "living children of the deceased". Does that mean adult children or just minor children? A search of several websites has yielded no information.
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Just need to talk to my friends (158)
Hi, Thought it was about time to start a new installment of our thread - time goes fast when you're among friends. It's 55 here this morning with a stiff north wind but the sun is just now beginning to shine. Supposed to be in the 60s the next four days, then down into the 40s by Thursday. I dread that. My back was feeling…
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Reducing the Impact of Dementia in America: A Decadal Survey of the Behavioral and Social Sciences
https://www.nap.edu/read/26175/chapter/1
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He thinks he knows everything
My husband always had a strong ego. Now, with Alzheimer’s, he seems to try to prove his self-worth with every interaction. If I tell fiblets, he tells humungous whoppers, except that he believes he is telling the truth. If someone mentions a country, any country, he has been there. If someone mentions a famous person, he…
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Hot of the press form the Milken Institute - Scaling Comprehensive Dementia-Care Models.
https://milkeninstitute.org/report/dementia-care-models-scaling-comprehensive
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Morning Madness
For years my husband's and my morning routine consisted of quietly waking up with a cup of coffee and watching the morning news. I'd later shower, get ready for work, feed the dogs, have a little breakfast then I'd head off to school as a substitute teacher. Recently though it's turning into what I call my morning madness.…
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Can anyone recommend book(s) that the PWD would enjoy?
My beloved has been in a long term care facility for 1 1/2 years. Still knows me and can pick out members of the family from photos (no one else visits).. The problem is "self entrtainment". She can still read a little but gets frustrated with trying to read the newsapaper. Has anyone run across books that would be…
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need a cheer up?
I was feeling sorta down so I made cranberry sauce for the holiday I have a turkey thawing , two in the freezer and one is being "baby sat" in DD#1's freezer She loves it when people see it and think she is going to cook it.
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What an amazing day looks like now
This was my best day in months. Started with a clean wipe, already a good start. I got my wife into the shower, first time in 8 days. I got her to put on pants, first time in 2 weeks. We went out together to do stuff, not since the last time I got pants on her. We shopped. She was upbeat and fun...even funny! We got home…
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Just need a virtual hug today
Hi everyone. My DH has been taking Seroquel (200 mg each night) for about 6 weeks now for delusions and paranoia. I thought it was working but things now actually seem to be getting worse. He is afraid to go to bed at night because he thinks that men are in our house and they are threatening him, pulling his pants down,…
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Follow-up on Seroquel Rx
There was a post about Seroquel a couple of weeks ago. I expressed interest because my husband was experiencing delusions and temper-explosions. I gave in to the neurologist’s suggesting Seroquel, in addition to the antidepressants. Many replies noted how effective it had been for their LO. The change in my husband after…
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Just like a shut down my web sites I am shutting down the information I share here
I can not continue to share 3rd party information that I feel would help you all. I have access to the best folks in and always hot off the press. When I thought it would be helpful I shared it with you . But I am really getting tired of being the one that has to defend things here. If someone wants to step up to receive…
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Recommendations for waterproof mattress cover?
My DH is reaching the stage in his Alzheimer's that he's becoming incontinent occasionally and insists he isn't. Hasn't wet the bed yet but I notice stains on his undies when I do the laundry. Can anyone recommend a good waterproof mattress cover? Also good incontinence briefs recommendations would be appreciated. This is…
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Mobility problems
For some time DH occasionally has problems standing and walking but after a few steps didn't need assistance other than a cane, although a little wobbly as usual. Thoughts were it was a balance issue. For past 2 weeks he has constant problems standing from a sitting position and then walking, No longer a balance issue but…
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Sometimes things go very quickly downhill
My DH passed on September 28th from ALZ, more specifically, aspiration pneumonia and AFIB. He had been in memory care only 2 months when they found him lying on his bed, unable to talk or swallow or walk. They called 911. He had had an AFIB episode that left him with only 45% capacity in his heart, which meant little blood…
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This song was popular when we got married
And yes, I'd do it all again. https://www.youtube.com/watch?v=iulmZAz8XfY EDIT: Thanks June. I didn't realize it wasn't a hot link. https://www.youtube.com/watch?v=iulmZAz8XfY
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Momento
For some reason DW put these earrings on the windowsill 4 years ago, just before she went into memory care. I've never moved them. I see them every day.
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Disguising myself in memory care - Win!
It’s been awhile since I’ve posted. I’ve finally discovered a way to visit my husband in memory care by wearing a wig, Covid mask, and speaking in an accent. I visit as a volunteer and even gave him a much needed haircut my first visit! It’s so good to be able to speak with him and check on his well-being! He has a female…
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Elder Care Cost
I spent $400 with and Elder Care Lawyer to be told it would Cousy $5000 to set up trust and other paperwork and an additional $1000 a year for consultation. Is this average? I could meet with another attorney but it will cost $350 before I get a quote.
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Totally alone
Last weekend visiting my husband in MC, he was strangely bent; stooped over more than I've seen, his head dropped down almost resting on his chest. He was still his sweet self, very happy to see me, saying "I love you so much", smiling that I was there, but couldn't keep his head up. Sitting on the bed beside him, I…
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This may help you with bills and financial issues
https://silverbills.com/
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The Loneliness of Frontotemporal Dementia
2019 article on FTD, from the NYT. https://www.nytimes.com/2019/11/07/well/mind/frontotemporal-dementia.html?searchResultPosition=1 ElaineD
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A win: The Toilet Tango
DH has apraxia and taking him to the toilet was very frustrating for us both. I try to keep the experience breezy and cheerful. Since I have to guide him this way and that, I call it the toilet tango. Lately, I have added some Cha-Cha along with a little rhythm as I sing simple instructions along with the cha cha cha. It…
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care giving to mom
In Jan my wife age 64 died of EO/FTD I retire at age 58 to be her care giver. She died at home with her children and dog present. My problem is my mom who is 90 has dementia and my sisters want me to take care of her while they keep on having fun. I don't think they have any idea of the emotional cost of care giving. Any…
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White Crane
Was wondering how you and your family are doing?
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I cannot do it But i can do it
This is the way I sometimes feel. When it is the worst of times, she won't do (or won't let me do) what absolutely needs to be done. When these episodes happen, they last about 1/2 hour or more, so most of the day she is pretty easy to care for. When it's over, it's in the rear view window. I am much stronger than she is,…