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Very new at this
My husband (61 years old) was diagnosed with stage 3 Alzheimer’s. I am not sure what that means. I have read symptoms, etc. I just don’t know what to expect. I have never had to be a care giver. Does anyone know what stage 3 means? What happens next? He knows me, his worst symptom is speech. Thank you for any help.
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Cell Phone Use
Hello All - I haven't been on here much lately. My husband was diagnosed with early onset Alz in 2016, and the progression of his disease has been slow. He remains relatively functional in many ways, though his memory is very impaired. Recently we've started having a rash of unexplained charges on our credit card and…
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@ NancyTS
I hope you are safe from Hurricane Ida. My home and LO’s are all in harms way at this point. I live in Louisiana in Terrebonne parish. Please let us know how you make out. Wishing you the best!
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Conditions That Mimic Dementia
- Infections including UTIs - Medications including but not restricted to: antihistamines, antibiotics, BP meds, sedatives, cardiovascular meds, asthma meds, corticosteroids, pain pills, antidepressants, anti-anxiety meds, herbals and supplements, many OTC meds and more. (Never stop meds without MD input and guidance.) -…
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OT Henri is aimed right for us
Latest Hurricane Center tracking has Henri taking aim at Long Island and Connecticut. I’m 8 miles inland in CT, so storm surge isn’t an issue, but wind and rain will likely take out the power. Our ground is already wet and leaves are still on the trees so they are very vulnerable. I have several trees that could hit the…
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Need a little input, please
My wife is sometimes fecal incontinent, but the majority of times, she isn't. If she goes into the bathroom for a BM, chances are that if I'm not in there, I will have some cleanup to do. Sometimes not too bad, other times not too good. She can't use TP without getting it on her hands. But she wants her privacy, which I…
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Uh oh
Spoke too soon? In a comment on another post, I noted that DW has been at stage 6d for an extended period of time. Today was not a good day. Began with bowel incontinence. Big clean up in aisle seven needed. Later, DW couldn’t/didn’t distinguish between a kitchen chair and the toilet when she needed to go….opted for the…
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Virgil, thinking about you tonight and tomorrow
Please let us know how it goes. Pulling for you.
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When help isn’t help
I didn’t know how to construct a title for this problem but it is related to another post about people who may mean well but make things worse with their words, or their efforts to be helpful. Specifically, my husband’s AD symptoms are worsening in many ways. His anger, incontinence, balance, gait, appetite, sleepiness,…
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Just need to talk to my friends (153)
Hi, Thought I'd go ahead and start 153 tonight since it is getting hard to get on and we're losing things. Jo - I think Sara's the expert on face masks. I don't know much of anything about them. Like you I know Amazon has a lot of them and I've been looking at them today - just getting confused. I have a set of ten that…
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Neighbor issues
A little over a week ago my DH came in from being outside and told me the woman who lives across the street from us aproached him and was pointing her finger at him saying, "You work for me." He assumed she was refering to the time when he was president of our neighborhood association and he would do things for the…
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end of life directive vs. care
During end of life stage dementia in care facility, when patient doesn't eat much and needs help drinking fluid, not enough fluid intake is presumed to have caused kidney stone(s) which are painful to pass, blood in urine, and UTI. End of Life directive wants no measures taken to extend his life. Courses of antibiotics…
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Lion's Mane Mushrooms
Just learned about these. The documentary referred to clinical trials. Does anyone have experience using these mushrooms (or extract) for EO ALZ? Is there a place to look up clinical trial results? Or is this just another snake oil promoted to separate us from money we don't have?
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Aricept (try it or not)
Got the official diagnosis today for DW... EO (age 60) ALZ. However we've been progressing for at least 5 years - things are moving much more quickly now. I'm grateful that Zoloft was prescribed. Mood improvement would be a godsend. She gave up driving without protest or emotion - shocker! (Told me Sunday that she wanted…
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Scooting to the bathroom & fear of stage 7 & anxiety
DH and I still sleep in the same bed. From his side of the bed, the toilet is a straight shot of about 10 feet. DH gets up several times during the night to go to the bathroom. I get up to help him especially when it comes to sitting properly on the toilet seat. Last night, he woke up and said he needed to go to the…
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Delta, Dementia and the Elderly
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Maintaining some personal space
I'm wondering if anyone else has dealt with this. We have separate bedrooms because we're both light sleepers. One of the few things my partner still likes to do is clean, but I can't keep her out of my personal things in my bedroom. Neither of the doors has a lock, and I think she would not take kindly to that, but she'll…
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New symptom....did not identify self in picture
My folks have a digital frame and the family has put lots of pictures on it. My dad, who has dementia, really enjoys the pics. Today he asked me if I knew who that was in the picture. It was of him and my mother at their 75th wedding anniversary party. I told him that was him and my mother. He said no that was his brother…
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Carbonation and caffeine
The urologist DH goes to said to eliminate all carbonated drinks and caffeinated beverages and foods ( chocolate) from his diet as they stimulate urinary incontinence. Just thought we all could benefit from knowing this.
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Good news today
Today during my lunch time I had a call to prepare the respite stay in Tunisia (from September 23 to October 22). I prepare it as holidays and also present it to my partner as holidays. Just after that I had a call of one MC we visited and liked because of its size (14 residents) and architecture (you can see outside from…
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Nothing Could Prepare Me for Watching My Wife Slip Away
https://www.nytimes.com/2021/08/24/opinion/tom-coughlin-wife-psp.html By Tom Coughlin Mr. Coughlin, a two-time Super Bowl-winning head coach, led the New York Giants, Jacksonville Jaguars and Boston College Eagles. From the article: I’ve learned firsthand caregiving is all-consuming. It is mentally and physically…
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Frustrated. I can't do this
Today I just feel like I can't do this anymore. My loved one had another bout of diahrea. He just acts like it is normal life and I guess I have to face that it is. Thank heavens he made the change to disposable underwear. He does this and then when we go to the doctor he tells them he is fine and has no problems. They…
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I made a decision.
I'm going to place DH. I've been back to work for 2 weeks. Averaging 4.5 hours sleep a night, in about 2 hour increments. Bathroom issues are increasing. Meds were increased earlier this week, but have no effect. He requires almost constant attention, or he gets upset. Big incident today that required me to leave work. I…
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MC yes or no
Unfortunately everyone I don’t know I made the decision along with my son to transfer my sweet wife to memory care nine days ago and it has been excruciating I believe more so on me than her the first day was really rough for her and I I second-guessed for the first full six days was it too early did I do it right then I…
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Kinda funny
My wife had to pee, and was sitting on the toilet. I asked her if she trusted me. She said she did. I said "Good. I have to pee too. Spread your legs a little".
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Medication question
DH's anxiety is increasing again. He cries at least twice a day for 30 minutes at a time for no apparent reason. He gets very agitated about 3 hours after he wakes, and again before dinner. He paces at night and I can't settle him into bed. Once asleep, he sleeps 4-5 hours before getting up and wandering the house for 1-2…
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Very late stage seven -no recognition
DW is late stage 7 She can walk and swallow and that is about it. She does not react to verbal commands. You put a spoon on her lips and she opens her mouth. Take her by the hand and she gets up etc. She is 69. She does walk "around" people. No longer tries to open doors. She has no idea who I am Anyone else in this…
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Paranoia?????
Why is my DH getting so paranoid? He is approximately stage 3-4, still able to go out and about a bit, and can function on his own in public. I have recently noticed that most of his conversations have to do with people who either don't like him and talk about him (not true) or are looking at him funny, etc. If I try to…
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book by Pauline Boss
I have been struggling with the "loss" of my DH to dementia. At the suggestion of someone on this forum, I looked up Pauline Boss. My (wonderful local) library ordered her book, Ambiguous Loss: Learning to Live With Unresolved Grief. I started reading today, and it's just what I need. She gets it, as so few people do. I'm…
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Any experience with CBD for LO?
I'm wondering if CBD would be helpful? My DH has suffered from anxiety all his adult life, and it is supposed to be good for that. Might be able to sneak it into his coffee or other drink. Just wondering if anyone has any experience.